Re: Mistreatment on the forum....

[Guest guest]

,

I had to get up and walk away after reading this post.

Immediately, I felt a lump in my throat and a pit in my belly.

Mind/Body work has taught me this is one of my triggers for a stress response

leading to feelings of overwhelming dread that settle in my lower abdomen and in

my chest.. My head also hurts.. This is a huge reason for my health issues.

Honestly, I don't know how to process a post like this.

My fiber and psyche just look at is as alien.

I want to respect your need for expressing this and yet express that I am

utterly confused, shocked and sad.

Marilyn has a very tough job sailing this boat. She follows SCD guidelines that

Elaine herself approved.

You make it sound like there are so many people that are horribly mistreated by

Marilyn. I find this to be extremely challenging to digest and quite frankly

hard to believe.

It seems to me one of your needs to go public with a post like this is in order

to provoke a response.

If you just wanted to get your message across without taking everyone on this

group on this journey you could of chosen to of done things differently.

This is public so it will evoke responses whether written or not in many of the

users of this group.. Just like my stress response written at the begining of

this post..

In the years I have been on this group I have never seen a complaint like this.

Sure, people get disenchanted and sometimes pissed with Off Topic and threads

needing to be halted. But later, cool off.. Never an accusation of this sort.

I find this disturbing and upsetting and I am worried about everyone here who is

trying to achieve health in these really difficult circumstances such as IBD and

other debilitating ailments.. reading this first thing..

I am also sad and worried about Marilyn as I hope she knows a post like this

does not represent the majority or the whole.

And that many of us truly appreciate the treasure that she is.

Personally, I do many things to heal.

I do though understand the line that this is a sanctioned SCD group (which btw-

Marilyn has gotten slack from old timer SCD'ers for not being strict enough with

her group.. She has taken her judgment and she created such an open and warm

atmosphere WITHIN a sanctioned ***SCD*** group! it's astonishing really..)

A different group not under the Auspices of SCD could discuss everything under

the sun including the SCD without strict guidelines.

I sometimes find it very stressful being on these groups due to the personal

nature of the politics and the personal attacks.

Jodi

>

> Hi all,

>

> Hope you are all doing great on the diet..

>

> Following on from my recent message about the Medicinal Use of the THC content

of Cannabis, I received many emails in support of having brought this subject to

their attention.

>

> Unfortunately something else always came to my attention with regard to this

forum and how it is run.

>

> Some people, who for obvious reasons shall remain anonymous, wrote to me about

their reluctance to post on the forum due to the way they have been treated by

Marilyn in the past. I was both shocked and disgusted by this, though having now

had some little dealings with Marilyn I am not now surprised.

>

> Here is a selection of quotes from emails I received….. " down right rude " ,

" her disrespectful manner of communication " , " inexplicable competitiveness and

dominance " , " a bit pushy on the board " , " I got tired of fighting "

>

> How anyone who is claiming to help people can treat fellow Crohn's/Colitis

sufferers like this is beyond my comprehension, especially when these same ill

people have more than likely been bullied and treated badly by the medical

profession before coming to these type of forums for help and compassion.

>

> After having posted my previous message on this forum and SCD UK… Marilyn

accused me of being a spammer…. I asked for her to withdraw this accusation,it

being factually untrue, two messages does not constitute spam, particularly when

people are interested in the subject. It would seem she posted this just to have

a go at me as I can see no other reason. To date Marilyn has not replied to my

request.

>

> As I have stated before, I respect that Marilyn helps people here, as I have

helped others as I am sure you all have when you can. But this disrespect for

people needs to stop. I can understand peoples reluctance not to confront

Marilyn about this as they do not wish to be treated harshly again nor kicked

out of the forum as we all need this from time to time to help us in our

recovery. I am not afraid to speak out, not because I do not need these forums,

but because if no one speaks out, nothing ever changes.

>

> If Elaine Gottschall was still around today, I do not think she would be very

pleased with this kind of behaviour and I also believe if Crohn's and many other

diseases could be cured without using the SCD, Elaine would be more than happy

to never sell another book and be happy we could all eat what we wish.

>

> Some " off topic " subjects seem to be openly discussed every other day on the

forum and while I somewhat agree that it can be confusing for some beginners,

some OT subjects may help people to recover quicker and it is really up to them

what they choose to do with advice from more experienced people. Yes there could

and probably is another OT forum, I think I heard some guy was setting one up…

but trying to keep up with all these emails can be quite a task. Indeed I think

most people who are doing very well on the diet are using off topic alternatives

etc…

>

> I did think about contacting Marilyn privately about this matter, but seeing

how she chooses to conduct herself publicly I thought it only fair to those she

has insulted, including myself, to have this made public.

>

> My own opinion is that these diseases though affected by diet are also brought

on by our attitudes and behaviour. I have had to change many things apart from

diet in my life to recover and it is forever a learning process.

>

> Now Marilyn, you can choose to do one of two things. You can take a look at

how you have been replying to people and maybe change your ways a little in

order that we can all make the most of the help afforded by this forum, or you

can kick me out of the forum and show everyone that you will continue on just

the same, thus proving what others and myself have experienced.

>

> I do not need a lot of people replying to defend Marilyn, I am speaking for

those who were mistreated by her, including myself…the rest is your own

business.

>

> Good health and good day to you all…

>

> Peace

> (from Ireland now living in Italy)

> Crohn's 3 years(diagnosed)

> SCD 2 yrs 9 months

> No meds(legal or illegal)

>

[Guest guest]

Hey Jodi, and group,

I think many of us respond viscerally to things like this because we are so

sensitive. One of the things that impresses me about this board is just how kind

most of us are.

I had to learn to deal with an abusive family member. I used to take their

issues personally. I later learned that this person is mentally ill. This

person stirs up drama and misery for people around them, spreads lies and

rumors, and tried to ruin relationships because this person is miserable.

Nothing I could do would change the situation because it was that person's

problem, not mine. Now this person's actions don't affect me as much, but I

avoid them because of this kind of visceral response.

As to the board: there are way more kind and sincere people here than people

with an axe to grind. I know that I have benefited from the community here, and

I have enjoyed getting to know you and many others. However, an open board will

attract all kinds of people. Some people enjoy upsetting others for

entertainment. It is precisely our discomfort and response that they seek and

enjoy. If we ignore them, they get bored and move elsewhere to get the attention

they seek...I

PJ

> >

> > Hi all,

> >

> > Hope you are all doing great on the diet..

> >

> > Following on from my recent message about the Medicinal Use of the THC

content of Cannabis, I received many emails in support of having brought this

subject to their attention.

> >

> > Unfortunately something else always came to my attention with regard to this

forum and how it is run.

> >

> > Some people, who for obvious reasons shall remain anonymous, wrote to me

about their reluctance to post on the forum due to the way they have been

treated by Marilyn in the past. I was both shocked and disgusted by this, though

having now had some little dealings with Marilyn I am not now surprised.

> >

> > Here is a selection of quotes from emails I received….. " down right rude " ,

" her disrespectful manner of communication " , " inexplicable competitiveness and

dominance " , " a bit pushy on the board " , " I got tired of fighting "

> >

> > How anyone who is claiming to help people can treat fellow Crohn's/Colitis

sufferers like this is beyond my comprehension, especially when these same ill

people have more than likely been bullied and treated badly by the medical

profession before coming to these type of forums for help and compassion.

> >

> > After having posted my previous message on this forum and SCD UK… Marilyn

accused me of being a spammer…. I asked for her to withdraw this accusation,it

being factually untrue, two messages does not constitute spam, particularly when

people are interested in the subject. It would seem she posted this just to have

a go at me as I can see no other reason. To date Marilyn has not replied to my

request.

> >

> > As I have stated before, I respect that Marilyn helps people here, as I have

helped others as I am sure you all have when you can. But this disrespect for

people needs to stop. I can understand peoples reluctance not to confront

Marilyn about this as they do not wish to be treated harshly again nor kicked

out of the forum as we all need this from time to time to help us in our

recovery. I am not afraid to speak out, not because I do not need these forums,

but because if no one speaks out, nothing ever changes.

> >

> > If Elaine Gottschall was still around today, I do not think she would be

very pleased with this kind of behaviour and I also believe if Crohn's and many

other diseases could be cured without using the SCD, Elaine would be more than

happy to never sell another book and be happy we could all eat what we wish.

> >

> > Some " off topic " subjects seem to be openly discussed every other day on the

forum and while I somewhat agree that it can be confusing for some beginners,

some OT subjects may help people to recover quicker and it is really up to them

what they choose to do with advice from more experienced people. Yes there could

and probably is another OT forum, I think I heard some guy was setting one up…

but trying to keep up with all these emails can be quite a task. Indeed I think

most people who are doing very well on the diet are using off topic alternatives

etc…

> >

> > I did think about contacting Marilyn privately about this matter, but seeing

how she chooses to conduct herself publicly I thought it only fair to those she

has insulted, including myself, to have this made public.

> >

> > My own opinion is that these diseases though affected by diet are also

brought on by our attitudes and behaviour. I have had to change many things

apart from diet in my life to recover and it is forever a learning process.

> >

> > Now Marilyn, you can choose to do one of two things. You can take a look at

how you have been replying to people and maybe change your ways a little in

order that we can all make the most of the help afforded by this forum, or you

can kick me out of the forum and show everyone that you will continue on just

the same, thus proving what others and myself have experienced.

> >

> > I do not need a lot of people replying to defend Marilyn, I am speaking for

those who were mistreated by her, including myself…the rest is your own

business.

> >

> > Good health and good day to you all…

> >

> > Peace

> > (from Ireland now living in Italy)

> > Crohn's 3 years(diagnosed)

> > SCD 2 yrs 9 months

> > No meds(legal or illegal)

> >

>

[Guest guest]

Jodi,

This is the only response I am going to give to this thread and the only reason

being that once again Jodi, you have missed the point...as you did in my

original OT post...and I do not want others to miss the real point...

The point is the treatment of fellow crohn's/colitis/ibd sufferers on this

forum.... off topic subjects are just what brought this to light..

You Jodi have your experience and others have theirs....if you are happy, all

well and good but others are not and are intimidated... what about their stress

response????

we are talking about the whole here... I am talking about people who have

contacted me...and now my own personal experience....

why was I personally attacked and called a spammer????

I have spent many many years online and never have I been insulted like this....

I have spread the word about SCD, and this forum amongst others, on every forum

to do with Crohn's etc that I could find in order to try to help sufferes, I

doubt Marilyn would be as quick to accuse me of spamming over that...

This is not about my OT subject being halted.. I said what I had to say on that

subject within that thread...and then Marilyn accused me on SCD UK of being a

spammer...that was uncalled for and THAT was a personal attack....and a very

serious one, I gave her a chance to withdraw the accusation and she did

not....which can only be put down to her attitude and the attitude we are

talking about here...

How do you know how many this represents Jodi, fact is none of us do.. as I said

people are too intimidated to come forward publicly..

The only response I would like to get from this is a change in attitude towards

people on the forum who need the forum....nothing else.. I have nothing to gain

by this post or my original OT post... no ulterior motives..no nothing... is

that so hard to understand..someone just wanting to help and stand up for those

who are too intimidated or tired to do so??? I am not looking for others

support, I am not trying to set up a new forum.. I just will not stand by and be

personally attacked, or talked down to ,by Marilyn or anyone else in this

group..which some of you seem to have a hard time dealing with...and in doing so

personally attack me.... pot and kettle...strange huh???

we are all sensitive people, as I believe most people are with Crohn's etc, no

one is better than anyone else here, regardless of how long each of us has been

on the diet...everyone has something to learn...perhaps something to teach..even

the old timers...cause time moves on...

As I said I will not be replying again...if this is not clear now.. I am afraid

it is just peoples misconstrued idea of what I am saying..there is nothing I can

do about that...people will think what they will anyway... as you have done so

far Jodi..and no doubt more of you over time...

I wish you and all others good health and a good day..

peace

Peace

(from Ireland now living in Italy)

Crohn's 3 years(diagnosed)

SCD 2 yrs 9 months

No meds(legal or illegal)

> >

> > Hi all,

> >

> > Hope you are all doing great on the diet..

> >

> > Following on from my recent message about the Medicinal Use of the THC

content of Cannabis, I received many emails in support of having brought this

subject to their attention.

> >

> > Unfortunately something else always came to my attention with regard to this

forum and how it is run.

> >

> > Some people, who for obvious reasons shall remain anonymous, wrote to me

about their reluctance to post on the forum due to the way they have been

treated by Marilyn in the past. I was both shocked and disgusted by this, though

having now had some little dealings with Marilyn I am not now surprised.

> >

> > Here is a selection of quotes from emails I received….. " down right rude " ,

" her disrespectful manner of communication " , " inexplicable competitiveness and

dominance " , " a bit pushy on the board " , " I got tired of fighting "

> >

> > How anyone who is claiming to help people can treat fellow Crohn's/Colitis

sufferers like this is beyond my comprehension, especially when these same ill

people have more than likely been bullied and treated badly by the medical

profession before coming to these type of forums for help and compassion.

> >

> > After having posted my previous message on this forum and SCD UK… Marilyn

accused me of being a spammer…. I asked for her to withdraw this accusation,it

being factually untrue, two messages does not constitute spam, particularly when

people are interested in the subject. It would seem she posted this just to have

a go at me as I can see no other reason. To date Marilyn has not replied to my

request.

> >

> > As I have stated before, I respect that Marilyn helps people here, as I have

helped others as I am sure you all have when you can. But this disrespect for

people needs to stop. I can understand peoples reluctance not to confront

Marilyn about this as they do not wish to be treated harshly again nor kicked

out of the forum as we all need this from time to time to help us in our

recovery. I am not afraid to speak out, not because I do not need these forums,

but because if no one speaks out, nothing ever changes.

> >

> > If Elaine Gottschall was still around today, I do not think she would be

very pleased with this kind of behaviour and I also believe if Crohn's and many

other diseases could be cured without using the SCD, Elaine would be more than

happy to never sell another book and be happy we could all eat what we wish.

> >

> > Some " off topic " subjects seem to be openly discussed every other day on the

forum and while I somewhat agree that it can be confusing for some beginners,

some OT subjects may help people to recover quicker and it is really up to them

what they choose to do with advice from more experienced people. Yes there could

and probably is another OT forum, I think I heard some guy was setting one up…

but trying to keep up with all these emails can be quite a task. Indeed I think

most people who are doing very well on the diet are using off topic alternatives

etc…

> >

> > I did think about contacting Marilyn privately about this matter, but seeing

how she chooses to conduct herself publicly I thought it only fair to those she

has insulted, including myself, to have this made public.

> >

> > My own opinion is that these diseases though affected by diet are also

brought on by our attitudes and behaviour. I have had to change many things

apart from diet in my life to recover and it is forever a learning process.

> >

> > Now Marilyn, you can choose to do one of two things. You can take a look at

how you have been replying to people and maybe change your ways a little in

order that we can all make the most of the help afforded by this forum, or you

can kick me out of the forum and show everyone that you will continue on just

the same, thus proving what others and myself have experienced.

> >

> > I do not need a lot of people replying to defend Marilyn, I am speaking for

those who were mistreated by her, including myself…the rest is your own

business.

> >

> > Good health and good day to you all…

> >

> > Peace

> > (from Ireland now living in Italy)

> > Crohn's 3 years(diagnosed)

> > SCD 2 yrs 9 months

> > No meds(legal or illegal)

> >

>

[Guest guest]

All I can say is... Good grief!

When I went to bed last night, there were ordinary messages on the

board.

This morning, I wake up to accusations of being a jerk and a dominator,

and rude and so forth.

Why? Because a message posted to another board -- not even this one --

wasn't answered for three days.

Gosh. I had a tropical storm through here over the weekend. The weather

was quite unsettled, and I was only reading the messages for the boards I

participate in regularly -- I didn't even read any Pecanbread. Just this

board and the writer's forum on another service.

Also, last week would have been my parents' 65th wedding anniversary, if

Mom hadn't died last autumn. My Dad was feeling pretty lonely, so I was

doing stupid things like fixing a special meal for him -- more oysters!

His computer died, and I have been trying to get a brand new system up

and running for him AND make sure he was able to get the newsletter he

does for his Kiwanis Club out more-or-less on time.

How terrible of me to be spending time with my family instead of hovering

by my computer!

Yes, the above three paragraphs are sarcastic.

I started this board to help people. I spend 40-60 hours a week

answering emails and/or researching answers. I've even been available on

Thanksgiving and Christmas to help people with SCD holiday stuff. And I

don't get paid one penny for all the time I donate -- neither do any of

the other wonderful and helpful people who answer questions

here.

I have been involved in on-line communities since 1992.

Posting the same message across two or more boards which were not

directly related to the topic of the message constituted spam in the eyes

of the people who taught me on-line etiquette.

The topic of the message which appears to have started all this was

related to IBD, and therefore was okay for a short discussion -- but this

is an SCD board, not a " let's legalize whatever " board.

These health forums do not exist in a vacuum. Maybe you don't know it,

but there have been instances in which the owner of a forum such as this

one, was sued for practicing medicine without a license.

Since the product being recommended in the initial posting is not a

legally available product, except under certain limited situations, it's

not something I want discussed on this board. And by " legally

available, " I do not mean SCD-legal. I mean city, state, and federal

legal. The original poster, not being (so far as has been mentioned) a US

citizen, may not be subject to those laws. I am. With all due respect,

whatever my personal view of the topic -- which the original poster does

NOT know -- I don't plan to go to jail over it.

When the same message pops up on another board, I wonder. I stated my

opinion on the message -- which I think most people agree is the

objective of these lists -- stating opinions and sharing information is

within the parameters of the lists. It took the poster 27 hours to

respond to my post -- with a demand for an apology and a threat to take

further action if I did not formally apologize.

Clearly, the initial message in this thread, an ad hominem attack,

was that action. I call it an attack because it was not posted in the

Forum where my alleged offense occurred, but in this one. Had the message

really been about that alleged offense, it would have been posted in the

other group. But it wasn't. I must, therefore, conclude that it was

specifically aimed to create trouble on this board.

This board is specifically designed to support the Specific Carbohydrate

Diet, as delineated by Elaine Gottschall.

It's very, very difficult to tread the line of following Elaine's diet,

and trying to research further on topic as new information becomes

available without seeing that " new research " potentially sweep

SCD under the carpet the way the " new research " about

gluten-free diets tried to sweep the Haas diet under the carpet.

I've done research on probiotics, for instance, and while I may agree

that some of them look promising, I cannot, in good conscience, recommend

them to someone as " SCD-legal, " specifically to newcomers to

the diet. I struggle daily with the knowledge of how much EASIER it would

be if we just had some pre-prepared foods we could count on, versus the

knowledge of how easy it is for commercial food to be contaminated, and

the incredible effects that small amounts of illegals can have on our

healing.

I genuinely appreciate the collective knowledge of this group, even when

I find myself obliged to disagree with someone because their post does

not meet the parameters of SCD as delineated in Breaking the Vicious

Cycle.

I tread the line between what Elaine recommended, what I myself have

experienced, and what I have learned from the people on the SCD lists.

Sometimes, there is confusion over what WAS legal at one point and what

IS legal.

The vast majority of people participating in the BTVC-SCD Community are

polite and friendly, and helpful. I genuinely appreciate the people

who spoke up in response to the initial post

I will continue correct people if they make statements which I perceive

as being contrary to SCD, such as the individual who repeatedly insisted

that polysaccharides are a healing food.

If anyone has a question they are uncomfortable with asking on the public

board, please feel free to contact me privately. Personal issues

should be kept personal.

Thanks to everyone who posted in a positive manner.

I respectfully request that we defeat the purpose of the initial post in

this thread by dropping the issue, and getting on with the business of

implementing SCD in our daily lives -- with healing, mentally and

physically.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

TO ANDREW AND STEVE

 

I THINK THAT AS THE PARTNER OF A CROHNS SUFFERER WHILE I PERSONALLY DONT HAVE THE PROBLEM I AM CLOSE ENOUGH TO SEE BOTH SIDES.  I THINK BOTH OF YOU NEED TO SUCK IT UP, ACCEPT THAT MOST PEOPLE ARE HERE TO HELP AND GROW UP AND BE BIG BOYS.!!!!

I WOULD LIKE TO SEE EITHER OF YOU READ ALL THE THREADS, AND HOLD YOUR COOL WITH PEOPLE WHO CONTINUALLY ASK THE SAME REPETITIVE QUESTIONS OVER AND OVER AGAIN, AND NOT LOOSE IT ONCE IN A WHILE. 

 I KNOW I CERTAINLY WOULD HAVE TOLD MANY PEOPLE ON THIS LIST TO GO BACK TO THE BOOK, READ IT AGAIN, LOOK AT OLD THREADS THEN ASK A SENSIBLE QUESTION, NOT ONE THAT HAD BEEN ASKED A MILLION TIMES OR TO TALK ABOUT OFF TOPIC IDEAS THAT HAVE ALSO BEEN COVERED BEFORE.  STICK TO THE RULES(BVTC) AND STAY OFF ANYTHING ELSE.  SPEND MORE TIME GETTING YOUR OWN HEALTH ON TRACK AND ONLY CONTRIBUTE POSITIVE ALLOWABLE CONTENT HERE.   I THINK MARILYN DOES A WONDERFUL JOB, SHE CARES ABOUT PEOPLE AND WHEN THINGS COME UP THAT I AM NOT INTERESTED IN I JUST DELETE THEM. TRY IT SOME TIME.

 

JENA

On Wed, Jul 28, 2010 at 5:58 AM, Wizop Marilyn L. Alm wrote:

 

All I can say is... Good grief!When I went to bed last night, there were ordinary messages on the board.This morning, I wake up to accusations of being a jerk and a dominator, and rude and so forth.

Why? Because a message posted to another board -- not even this one -- wasn't answered for three days. Gosh. I had a tropical storm through here over the weekend. The weather was quite unsettled, and I was only reading the messages for the boards I participate in regularly -- I didn't even read any Pecanbread. Just this board and the writer's forum on another service.

Also, last week would have been my parents' 65th wedding anniversary, if Mom hadn't died last autumn. My Dad was feeling pretty lonely, so I was doing stupid things like fixing a special meal for him -- more oysters! His computer died, and I have been trying to get a brand new system up and running for him AND make sure he was able to get the newsletter he does for his Kiwanis Club out more-or-less on time.

How terrible of me to be spending time with my family instead of hovering by my computer!Yes, the above three paragraphs are sarcastic.I started this board to help people.  I spend 40-60 hours a week answering emails and/or researching answers. I've even been available on Thanksgiving and Christmas to help people with SCD holiday stuff. And I don't get paid one penny for all the time I donate -- neither do any of the other wonderful and helpful people who answer questions here.

I have been involved in on-line communities since 1992. Posting the same message across two or more boards which were not directly related to the topic of the message constituted spam in the eyes of the people who taught me on-line etiquette.

The topic of the message which appears to have started all this was related to IBD, and therefore was okay for a short discussion -- but this is an SCD board, not a " let's legalize whatever " board.

These health forums do not exist in a vacuum. Maybe you don't know it, but there have been instances in which the owner of a forum such as this one, was sued for practicing medicine without a license. Since the product being recommended in the initial posting is not a legally available product, except under certain limited situations, it's not something I want discussed on this board. And by " legally available, " I do not mean SCD-legal. I mean city, state, and federal legal. The original poster, not being (so far as has been mentioned) a US citizen, may not be subject to those laws. I am. With all due respect, whatever my personal view of the topic -- which the original poster does NOT know -- I don't plan to go to jail over it.

When the same message pops up on another board, I wonder. I stated my opinion on the message -- which I think most people agree is the objective of these lists -- stating opinions and sharing information is within the parameters of the lists. It took the poster 27 hours to respond to my post -- with a demand for an apology and a threat to take further action if I did not formally apologize.

Clearly, the initial message in this thread, an ad hominem attack, was that action. I call it an attack because it was not posted in the Forum where my alleged offense occurred, but in this one. Had the message really been about that alleged offense, it would have been posted in the other group.  But it wasn't. I must, therefore, conclude that it was specifically aimed to create trouble on this board.

This board is specifically designed to support the Specific Carbohydrate Diet, as delineated by Elaine Gottschall. It's very, very difficult to tread the line of following Elaine's diet, and trying to research further on topic as new information becomes available without seeing that " new research " potentially sweep SCD under the carpet the way the " new research " about gluten-free diets tried to sweep the Haas diet under the carpet.

I've done research on probiotics, for instance, and while I may agree that some of them look promising, I cannot, in good conscience, recommend them to someone as " SCD-legal, " specifically to newcomers to the diet. I struggle daily with the knowledge of how much EASIER it would be if we just had some pre-prepared foods we could count on, versus the knowledge of how easy it is for commercial food to be contaminated, and the incredible effects that small amounts of illegals can have on our healing.

I genuinely appreciate the collective knowledge of this group, even when I find myself obliged to disagree with someone because their post does not meet the parameters of SCD as delineated in Breaking the Vicious Cycle.

I tread the line between what Elaine recommended, what I myself have experienced, and what I have learned from the people on the SCD lists. Sometimes, there is confusion over what WAS legal at one point and what IS legal.

The vast majority of people participating in the BTVC-SCD Community are polite and friendly, and helpful.  I genuinely appreciate the people who spoke up in response to the initial postI will continue correct people if they make statements which I perceive as being contrary to SCD, such as the individual who repeatedly insisted that polysaccharides are a healing food.

If anyone has a question they are uncomfortable with asking on the public board, please feel free to contact me privately.  Personal issues should be kept personal.Thanks to everyone who posted in a positive manner.

I respectfully request that we defeat the purpose of the initial post in this thread by dropping the issue, and getting on with the business of implementing SCD in our daily lives -- with healing, mentally and physically.

— Marilyn    New Orleans, Louisiana, USA    Undiagnosed IBS since 1976, SCD since 2001    Darn Good SCD Cook

    No Human Children    Shadow & Sunny Longhair Dachshund     Babette the Foundling Beagle       

[Guest guest]

Jena

I am afraid that you are missing the point somewhat. I have not mentioned this

before because I didn't think it was worth it even though I had received several

emails from others who thought the same.

As had the guts to raise it I thought I would support him rather than

send him a personal message.

Since my response to , I have received several emails again showing

support. Most people don't want to upset the equlibrium of the board which I

understand.

raised this issue in a reasoned and polite way and as far as I am

concerned it is just constructive feedback.

I would underline the fact that there is no doubt that Marilyn does an excellent

job for the forum and helps many people with her tireless work.

Steve

>

> >

> >

> >

> > All I can say is... Good grief!

> >

> > When I went to bed last night, there were ordinary messages on the board.

> >

> > This morning, I wake up to accusations of being a jerk and a dominator, and

> > rude and so forth.

> >

> > Why? Because a message posted to another board -- not even this one --

> > wasn't answered for three days.

> >

> > Gosh. I had a tropical storm through here over the weekend. The weather was

> > quite unsettled, and I was only reading the messages for the boards I

> > participate in regularly -- I didn't even read any Pecanbread. Just this

> > board and the writer's forum on another service.

> >

> > Also, last week would have been my parents' 65th wedding anniversary, if

> > Mom hadn't died last autumn. My Dad was feeling pretty lonely, so I was

> > doing stupid things like fixing a special meal for him -- more oysters! His

> > computer died, and I have been trying to get a brand new system up and

> > running for him AND make sure he was able to get the newsletter he does for

> > his Kiwanis Club out more-or-less on time.

> >

> > How terrible of me to be spending time with my family instead of hovering

> > by my computer!

> >

> > Yes, the above three paragraphs are sarcastic.

> >

> > I started this board to help people. I spend 40-60 hours a week answering

> > emails and/or researching answers. I've even been available on Thanksgiving

> > and Christmas to help people with SCD holiday stuff. And I don't get paid

> > one penny for all the time I donate -- neither do any of the other wonderful

> > and helpful people who answer questions here.

> >

> > I have been involved in on-line communities since 1992.

> >

> > Posting the same message across two or more boards which were not directly

> > related to the topic of the message constituted spam in the eyes of the

> > people who taught me on-line etiquette.

> >

> > The topic of the message which appears to have started all this was related

> > to IBD, and therefore was okay for a short discussion -- but this is an SCD

> > board, not a " let's legalize whatever " board.

> >

> > These health forums do not exist in a vacuum. Maybe you don't know it, but

> > there have been instances in which the owner of a forum such as this one,

> > was sued for practicing medicine without a license.

> >

> > Since the product being recommended in the initial posting is not a legally

> > available product, except under certain limited situations, it's not

> > something I want discussed on this board. And by " legally available, " I do

> > not mean SCD-legal. I mean city, state, and federal legal. The original

> > poster, not being (so far as has been mentioned) a US citizen, may not be

> > subject to those laws. I am. With all due respect, whatever my personal view

> > of the topic -- which the original poster does NOT know -- I don't plan to

> > go to jail over it.

> >

> > When the same message pops up on another board, I wonder. I stated my

> > opinion on the message -- which I think most people agree is the objective

> > of these lists -- stating opinions and sharing information is within the

> > parameters of the lists. It took the poster 27 hours to respond to my post

> > -- with a demand for an apology and a threat to take further action if I did

> > not formally apologize.

> >

> > Clearly, the initial message in this thread, an *ad hominem* attack, was

> > that action. I call it an attack because it was not posted in the Forum

> > where my alleged offense occurred, but in this one. Had the message really

> > been about that alleged offense, it would have been posted in the other

> > group. But it wasn't. I must, therefore, conclude that it was specifically

> > aimed to create trouble on this board.

> >

> > This board is specifically designed to support the Specific Carbohydrate

> > Diet, as delineated by Elaine Gottschall.

> >

> > It's very, very difficult to tread the line of following Elaine's diet, and

> > trying to research further on topic as new information becomes available

> > without seeing that " new research " potentially sweep SCD under the carpet

> > the way the " new research " about gluten-free diets tried to sweep the Haas

> > diet under the carpet.

> >

> > I've done research on probiotics, for instance, and while I may agree that

> > some of them look promising, I cannot, in good conscience, recommend them to

> > someone as " SCD-legal, " specifically to newcomers to the diet. I struggle

> > daily with the knowledge of how much EASIER it would be if we just had some

> > pre-prepared foods we could count on, versus the knowledge of how easy it is

> > for commercial food to be contaminated, and the incredible effects that

> > small amounts of illegals can have on our healing.

> >

> > I genuinely appreciate the collective knowledge of this group, even when I

> > find myself obliged to disagree with someone because their post does not

> > meet the parameters of SCD as delineated in *Breaking the Vicious Cycle.

> >

> > *I tread the line between what Elaine recommended, what I myself have

> > experienced, and what I have learned from the people on the SCD lists.

> > Sometimes, there is confusion over what WAS legal at one point and what IS

> > legal.

> >

> > The vast majority of people participating in the BTVC-SCD Community are

> > polite and friendly, and helpful. I genuinely appreciate the people who

> > spoke up in response to the initial post

> >

> > I will continue correct people if they make statements which I perceive as

> > being contrary to SCD, such as the individual who repeatedly insisted that

> > polysaccharides are a healing food.

> >

> > If anyone has a question they are uncomfortable with asking on the public

> > board, please feel free to contact me privately. Personal issues should be

> > kept personal.

> >

> > Thanks to everyone who posted in a positive manner.

> >

> > I respectfully request that we defeat the purpose of the initial post in

> > this thread by dropping the issue, and getting on with the business of

> > implementing SCD in our daily lives -- with healing, mentally and

> > physically.

> >

> > — *Marilyn

> > * New Orleans, Louisiana, USA

> > Undiagnosed IBS since 1976, SCD since 2001

> > Darn Good SCD Cook

> > No Human Children

> > Shadow & Sunny Longhair Dachshund

> > Babette the Foundling Beagle

> >

> > * *

> >

> >

> >

>

[Guest guest]

At 10:02 AM 7/28/2010, you wrote:

raised this issue in a

reasoned and polite way and as far as I am concerned it is just

constructive feedback.

No, it was not -- it was an ad hominem attack. Constructive

feedback is one thing. Stating that I am rude, disrespectful,

bullying, and posting things " just to have a go at him, " is an

attack.

I've got way better things to do with my time. In point of fact, I would

probably have at least two books on SCD published by now, including my

cook book(s), if I did not spend as much time on the list as I do.

Moreover, if " there is no doubt that Marilyn does an excellent

job for the forum and helps many people with her tireless work, " how

does that square with being a bully, rude, abrupt, and

disrespectful?

I have had people contact me off the list if they had a question about an

answer. I am requesting that you -- and any others who have a problem --

contact me, and tell me -- off list -- what you found

" abrupt. " One person has already done me the courtesy of

doing this. If, however, " abrupt " translates to " What is

the URL of the product you are asking about? " or " Look it up in

BTVC, " or " No, that is not legal because Elaine said so, "

or " No, that is not legal, and here's why, " or more rarely (3

people in the last 18 months), " Since you insist on posting non-SCD

material to the list, I am placing you on moderation for a month, "

the answer should be self-explanatory.

had a problem with a comment I made on ANOTHER FORUM. So instead

of taking it up with me there, or with the moderator of that Forum if he

did not get a reply quickly enough to suit him, he came here, and posted

a major personal attack in retaliation, creating distress for many people

on this list.

Unacceptable.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Yeah, Miscreant on the forum…imo

Carol

From:

BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Wizop

Marilyn L. Alm

At 10:02 AM 7/28/2010, you wrote:

raised this issue in a reasoned and polite way and as

far as I am concerned it is just constructive feedback.

had a problem with a comment I made on ANOTHER FORUM. So instead of taking

it up with me there, or with the moderator of that Forum if he did not get a

reply quickly enough to suit him, he came here, and posted a major personal

attack in retaliation, creating distress for many people on this list.

Unacceptable.

[Guest guest]

Marilyn, as always, you are so right on.

Steve, , and anyone else that has a problem with Marilyn's way of doing

things around here, please keep it to yourself or go elsewhere. I for one do not

appreciate the distraction. We need Marilyn's time and energy for solving our

very real health problems.

Dawn

> > raised this issue in a reasoned and

> >polite way and as far as I am concerned it is just constructive feedback.

>

> No, it was not -- it was an ad hominem attack.

> Constructive feedback is one thing. Stating that

> I am rude, disrespectful, bullying, and posting

> things " just to have a go at him, " is an attack.

>

> I've got way better things to do with my time. In

> point of fact, I would probably have at least two

> books on SCD published by now, including my cook

> book(s), if I did not spend as much time on the list as I do.

>

> Moreover, if " there is no doubt that Marilyn

> does an excellent job for the forum and helps

> many people with her tireless work, " how does

> that square with being a bully, rude, abrupt, and disrespectful?

>

> I have had people contact me off the list if they

> had a question about an answer. I am requesting

> that you -- and any others who have a problem --

> contact me, and tell me -- off list -- what you

> found " abrupt. " One person has already done me

> the courtesy of doing this. If, however, " abrupt "

> translates to " What is the URL of the product you

> are asking about? " or " Look it up in BTVC, " or

> " No, that is not legal because Elaine said so, "

> or " No, that is not legal, and here's why, " or

> more rarely (3 people in the last 18 months),

> " Since you insist on posting non-SCD material to

> the list, I am placing you on moderation for a

> month, " the answer should be self-explanatory.

>

> had a problem with a comment I made on

> ANOTHER FORUM. So instead of taking it up with me

> there, or with the moderator of that Forum if he

> did not get a reply quickly enough to suit him,

> he came here, and posted a major personal attack

> in retaliation, creating distress for many people on this list.

>

> Unacceptable.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>