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A few years ago I forwarded a message to friends and people in my field of interest. I was so humiliated to get back several emails about what a goof I was that I didn't know it was a well-known scam. It was a very heartfelt Amber Alert message.

The replying emails quoted several websites that had scam or fraud in them. Having learned my lesson, before I forward any scary or supposedly informing message I google the key words and type scam or fraud after them. I'm now amazed how many of those scary messages are now documented as frauds...for instance a warning one about how a certain candle air freshener can melt and start your house on fire. Makes great sense in the email, but in the fraud/scam websites it totally proves how it is false.

There is a HUGE desire to believe anything if it fits into what we want to hear. Even if you believe, it is very enlightening to read or hear about opposing views, just to check ourselves.

I hadn't heard of neuro.... So I did googled that word with scam behind it. A bunch of websites popped up and actually there were some discussions pro and con and frankly way too deep for me to read more than a few paragraphs, so I have no comment or basis to make any recommendation. If this doctor is charging you more than a minor amount and it isn't covered by insurance then I'd beware. Keep an open mind, you said you searched the internet, so I assume you ran into some of the websites I ran into. Whether you believe them or not, ask some of the questions of the doctor and see the response he/she gives. If we only ask the questions we want to hear we only hear the answers we want to hear. Asking, "you have seen people cured haven't you?" is going to get a different response than, "what documentation do you have of your cure rate and how do you define cure and what other professionals share your viewpoint and who are the ones that totally disagree with your view point?" When he said he knew about achalasia, did he understand all about it, such as white foam, not being able to drink water, or was he just bluffing his way through?

Again, not having heard of this before, I'm more inclined to follow the treatments that insurance covers. But I don't know anything at all about this process, haven't looked into it, just beware of anything or anyone charging you more than entertainment money for treatment if it isn't generally accepted. As you can see I'm suspicious, but have no basis for it, just my nature. If you do try it, please let us know, realign my beliefs and views and we can have an open discussion.

Best wishes,

Sandy>> Has anyone here ever heard of Neuro Cranial Restructuring? I've been > speaking with a doctor who practices NCR, and he thinks he can help me > with A. I've done a lot of research on it online, and while I haven't > found anything specifically regarding A, it has helped many people with > many other neurological problems. The doctor I spoke with has actually > heard of A, which I found hopeful. The fact that I haven't found > anthing connecting this treatment with A isn't too surprizing, > considerring the rarity of A.> Anyway, I'm hoping to give the procedure a try before resorting to > surgery, so if anyone has any info, please let me know.> Thanks!> >

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Hi everyone,

I checked the website:

http://www.drdeanhowell.com/

For those of you who share my jaded sense of humor,

try reading the page with a straight face. It's fun.

If you get good at it, there may be a career for you,

so long as you have no scruples.

This is reminds me of that TV guy who holds his hands

up to the camera asking you to place your hand on the

TV while he faith-heals you, for a credit card

donation.

Really, it's not nice to take advantage of our

suffering by manipulating us. Dr. Dean Howel, ND

(whatever _that_ means) is honest when he promises to

manipulate our heads. He only needs a few of us to not

get the joke.

Dan

--- toomuchclutter <sandycarroll@...> wrote:

>

> A few years ago I forwarded a message to friends and

> people in my field

> of interest. I was so humiliated to get back

> several emails about what

> a goof I was that I didn't know it was a well-known

> scam. It was a very

> heartfelt Amber Alert message.

>

> The replying emails quoted several websites that had

> scam or fraud in

> them. Having learned my lesson, before I forward

> any scary or

> supposedly informing message I google the key words

> and type scam or

> fraud after them. I'm now amazed how many of those

> scary messages are

> now documented as frauds...for instance a warning

> one about how a

> certain candle air freshener can melt and start your

> house on fire.

> Makes great sense in the email, but in the

> fraud/scam websites it

> totally proves how it is false.

>

> There is a HUGE desire to believe anything if it

> fits into what we want

> to hear. Even if you believe, it is very

> enlightening to read or hear

> about opposing views, just to check ourselves.

>

> I hadn't heard of neuro.... So I did googled that

> word with scam behind

> it. A bunch of websites popped up and actually

> there were some

> discussions pro and con and frankly way too deep for

> me to read more

> than a few paragraphs, so I have no comment or basis

> to make any

> recommendation. If this doctor is charging you more

> than a minor amount

> and it isn't covered by insurance then I'd beware.

> Keep an open mind,

> you said you searched the internet, so I assume you

> ran into some of the

> websites I ran into. Whether you believe them or

> not, ask some of the

> questions of the doctor and see the response he/she

> gives. If we only

> ask the questions we want to hear we only hear the

> answers we want to

> hear. Asking, " you have seen people cured haven't

> you? " is going to get

> a different response than, " what documentation do

> you have of your cure

> rate and how do you define cure and what other

> professionals share your

> viewpoint and who are the ones that totally disagree

> with your view

> point? " When he said he knew about achalasia, did

> he understand all

> about it, such as white foam, not being able to

> drink water, or was he

> just bluffing his way through?

>

> Again, not having heard of this before, I'm more

> inclined to follow the

> treatments that insurance covers. But I don't know

> anything at all

> about this process, haven't looked into it, just

> beware of anything or

> anyone charging you more than entertainment money

> for treatment if it

> isn't generally accepted. As you can see I'm

> suspicious, but have no

> basis for it, just my nature. If you do try it,

> please let us know,

> realign my beliefs and views and we can have an open

> discussion.

>

> Best wishes,

>

> Sandy

>

> >

> > Has anyone here ever heard of Neuro Cranial

> Restructuring? I've been

> > speaking with a doctor who practices NCR, and he

> thinks he can help me

> > with A. I've done a lot of research on it online,

> and while I haven't

> > found anything specifically regarding A, it has

> helped many people

> with

> > many other neurological problems. The doctor I

> spoke with has actually

> > heard of A, which I found hopeful. The fact that I

> haven't found

> > anthing connecting this treatment with A isn't too

> surprizing,

> > considerring the rarity of A.

> > Anyway, I'm hoping to give the procedure a try

> before resorting to

> > surgery, so if anyone has any info, please let me

> know.

> > Thanks!

> >

> >

>

>

>

__________________________________________________

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My favorite is " Your wrinkles might diminish as your brain

expands to its full capacity. "

Would that it were true...

-- in PA

Re: Re: Neuro Cranial Restructuring

> Hi everyone,

>

> I checked the website:

>

> http://www.drdeanhowell.com/

>

> For those of you who share my jaded sense of humor,

> try reading the page with a straight face. It's fun.

> If you get good at it, there may be a career for you,

> so long as you have no scruples.

>

> This is reminds me of that TV guy who holds his hands

> up to the camera asking you to place your hand on the

> TV while he faith-heals you, for a credit card

> donation.

>

> Really, it's not nice to take advantage of our

> suffering by manipulating us. Dr. Dean Howel, ND

> (whatever _that_ means) is honest when he promises to

> manipulate our heads. He only needs a few of us to not

> get the joke.

>

>

> Dan

>

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I agree, my head could be as large as one of those huge character balloons above a used car lot.

But... with all sincerity aside, it could be a type of relaxation, maybe like bio-feedback. When you watch crowds, don't you notice in older people how a minor issue when you are young can become a huge issue when you are older. For instance my mil had a leg about 1/2" shorter. Through the years it shifted her hips and shoulders and she had a hard time with her back. She was also slightly vain and foot inserts didn't work in high heels, so she wasn't good at trying to level herself out, especially when young. Possibly straightening your posture, lowering your shoulders, lessening the tension in your neck is helpful. I hadn't clicked on any of the links. I don't want to discourage people from trying new ideas and being open to discussion. I'd ask for free sessions and see what happens, and report back here. As long as they aren't cutting into you or using you as a cash cow likely it can't hurt.

But if it did work, don't you think it would be breaking news, Oprah would be talking about it, and the people who started it would be winning prizes.

Looking for more natural and less invasive cures is something so many go through here. Eternal hope, like me fitting back into the 80's Calvin Klein jeans still in my closet. Don't take my hope away!

Sandy>> My favorite is "Your wrinkles might diminish as your brain > expands to its full capacity."> > Would that it were true...> > -- in PA> > Re: Re: Neuro Cranial Restructuring> > > > Hi everyone,> >> > I checked the website:> >> > http://www.drdeanhowell.com/> >> > For those of you who share my jaded sense of humor,> > try reading the page with a straight face. It's fun.> > If you get good at it, there may be a career for you,> > so long as you have no scruples.> >> > This is reminds me of that TV guy who holds his hands> > up to the camera asking you to place your hand on the> > TV while he faith-heals you, for a credit card> > donation.> >> > Really, it's not nice to take advantage of our> > suffering by manipulating us. Dr. Dean Howel, ND> > (whatever _that_ means) is honest when he promises to> > manipulate our heads. He only needs a few of us to not> > get the joke.> >> >> > Dan> >>

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wrote:

> My favorite is " Your wrinkles might diminish as your brain

> expands to its full capacity. "

>

My brother-in-law used to tell the kids that their hair growing was a

sign that their little brains were growing and pushing the hair out.

notan

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,

What kind of doctor is he?

It sounds interesting, but from what I

have read, I think I would want to discuss this with a neurosurgeon before

allowing anyone to perform something like this on me….just to play it

safe. My grandson has a shunt in his ventricles to drain CSF (cerebral spinal

fluid) and he also has had 2 cranial reconstructions. These are not to be

confused with Neuro Cranial Reconstructions, but all the same, if you are doing

anything so invasive that it could alter the bones of the skull and have an

affect on the brain and flow of CSF, I would think it would be important to

have this done by a neuro specialist and have an MRI or CT scan afterwards to

find out how the procedure has affected the brain and cranial pressures. Maybe

I am overly cautious because of everything that we have been through with my

grandson, but I am just surprised someone practicing chiropractic or

alternative medicine could do such a procedure… Just my thoughts!

Sandi in No CA

From: achalasia [mailto:achalasia ] On Behalf Of his3princess

Sent: Wednesday, April 09, 2008

8:52 PM

achalasia

Subject: Neuro Cranial

Restructuring

Has anyone here ever heard of Neuro Cranial

Restructuring? I've been

speaking with a doctor who practices NCR, and he thinks he can help me

with A. I've done a lot of research on it online, and while I haven't

found anything specifically regarding A, it has helped many people with

many other neurological problems. The doctor I spoke with has actually

heard of A, which I found hopeful. The fact that I haven't found

anthing connecting this treatment with A isn't too surprizing,

considerring the rarity of A.

Anyway, I'm hoping to give the procedure a try before resorting to

surgery, so if anyone has any info, please let me know.

Thanks!

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I hadn't really understood what NCR is, just assumed it was basic chiropractic massage stuff, to relax... so I read some more and am slightly shocked about what it is. Makes as much logic to me as if they wanted to work on achalasia via knee structure. I don't want to insult you, but please step back and look at the logic. I know you are exploring every slight option, so maybe take a notebook and write down the pros and cons of the choices, and the risks and the history and I think it should become clear what would work best in your situation. Thinking of pregnancy from the message I left ... kind of like a woman in labor who is trying to find another option besides the two basic types of delivery when the labor pains are fast and hard and the soon to be Mom doesn't like either the normal path or C-section option and wants to find a choice, like through the belly button or something. Natural and normal stage to go through, but deep breaths and let the information sift and take the paths more travelled.

Personally, no way would I let anyone besides a neurosurgeon, after at least all the tests Sandi mentioned, do anything like the websites talked about. I'd love to be warm loving and supportive, but perhaps, dear , you are reaching for a miracle. I'd rather have a hole in the wall doctor do a dialation, at least it is in the right area. Working on your facial bones, I just imagine root canal pain if anything goes wrong.

Deep breaths, read through old posts here, I'd send you to other websites with common people but there aren't many, you know them all. Look through pub med articles. The choices are really pretty minimal, but there are hundreds and thousands of us that have made it through. If you want to try NCR, try to find hundreds and thousands that have been improved or at least been through that experience with achalasia. I'm not saying it won't work, but I'd follow the more travelled paths. (does travelled have 2 ll's?)

Try ginger, try yoga, try peppermint, carbonation, try any other non-invasive technique, but be very careful with any other "new" methods. IMHO that is. Find out if it is covered by insurance, then if it isn't call your insurance company and ask why.

I've got to assume logically if there was a chance it would work, and it is cheaper to use NCR the insurance companies would cover it. They have very smart clever people there, although they can be difficult, but they have statistics on what works. Anything cheaper would be first on their list to try, wouldn't you think?

Sandy

>> ,> > > > What kind of doctor is he?> > It sounds interesting, but from what I have read, I think I would want to> discuss this with a neurosurgeon before allowing anyone to perform something> like this on me..just to play it safe. My grandson has a shunt in his> ventricles to drain CSF (cerebral spinal fluid) and he also has had 2> cranial reconstructions. These are not to be confused with Neuro Cranial> Reconstructions, but all the same, if you are doing anything so invasive> that it could alter the bones of the skull and have an affect on the brain> and flow of CSF, I would think it would be important to have this done by a> neuro specialist and have an MRI or CT scan afterwards to find out how the> procedure has affected the brain and cranial pressures. Maybe I am overly> cautious because of everything that we have been through with my grandson,> but I am just surprised someone practicing chiropractic or alternative> medicine could do such a procedure. Just my thoughts! > > > > Sandi in No CA> > > > _____ > > From: achalasia [mailto:achalasia ] On Behalf> Of his3princess> Sent: Wednesday, April 09, 2008 8:52 PM> achalasia > Subject: Neuro Cranial Restructuring> > > > Has anyone here ever heard of Neuro Cranial Restructuring? I've been > speaking with a doctor who practices NCR, and he thinks he can help me > with A. I've done a lot of research on it online, and while I haven't > found anything specifically regarding A, it has helped many people with > many other neurological problems. The doctor I spoke with has actually > heard of A, which I found hopeful. The fact that I haven't found > anthing connecting this treatment with A isn't too surprizing, > considerring the rarity of A.> Anyway, I'm hoping to give the procedure a try before resorting to > surgery, so if anyone has any info, please let me know.> Thanks!> >

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wrote:

> For those of you who share my jaded sense of humor,

>

We probably do share that, but on a more serious note:

INFORMED CONSENT

For NeuroCranial Restructuring

http://www.dreversage.com/Consent%20Form.pdf

(Take a look as 2 and 3 and then think between the lines.)

A complication from neurocranial restructuring: nasal septum fracture.

http://www.ncbi.nlm.nih.gov/pubmed/12707197

(Not much there to read but notice the location. I wonder who's patient

it was. I don't remember septum fracture on the consent form.)

Washington State Medical Quality Assurance Commission

https://fortress.wa.gov/doh/hpqa1/hps5/Medical/documents/m01162004.pdf

" 2.5 Review of the Board of Naturopathic Physicians (sic) Development of

an Interpretive

Statement Regarding the Practice of Neuro Cranial Restructuring

The Commission discussed the issue of the practice of Neuro Cranial

Restructuring which

involves the introduction of balloons into the sinus cavities which are

then inflated to produce

structural changes. There are known complications of this practice, many

of which can be

disastrous. The Commission determined they have a very deep concern as

this is considered the

practice of medicine. It was further determined to draft a letter

outlining the Commission’s

concerns and have it submitted to the Naturopathy Advisory Committee. "

I don't know what became of the letter or what was in it. I don't think

we saw any of those " known complications " in the consent form. The one

septum fracture above is the only " disastrous " complication I could

find. There was a child that died, not from NCR but a similar procedure,

when part of the balloon device came apart and blocked the child's

airway. If they do thousands of these (I have no idea how many are done)

and these were the only two bad results then the risks would still be

low, but there is the risk however small or large it may be that

something " disastrous " could happen.

I think if I was going to have a balloon expand some part of me for

achalasia I would just go ahead and have done to my LES.

I know there is something about the idea of manipulating the position of

bones that people buy into but I have some problems with the logic of

it. I may be missing something about NCR but if you think about a skull,

even after the flesh has decayed away the main bones of the skull are

fussed together, other than the jaw. I just don't see how you would ever

do any " restructuring " of the other bones by using a balloon in that

way. I could see opening some space in the sinus cavities but not much

beyond that. But even the idea of manipulating the spine is not what

most people think it is. We hear that pop or snap when we have our backs

adjusted and we picture a vertebra that was out of place popping back

into place. It just isn't like that. That sound is actually from the

sudden formation of a gas bubble. Try to adjust the bones in a chicken

neck the next time you have one, before it is cooked. Notice how the

muscles and connective tissue hold the bones in place. The human spine

is much stronger. The vertebra are very much held in place. It is a bit

flexible but it flexes back into place. " Slipped disk " is a misnomer.

This is not to say spinal " manipulation " doesn't do anything. It may

make you feel better even if it isn't for the reasons you think it is.

It may also produce changes but these take time and are not things just

popping back into place. I say this to say that any bone movement in NCR

seems like it would be a completely different thing than " manipulating "

the spine and a misunderstanding of that is not a good way to justify NCR.

notan

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Regarding the wrinkles disappearing….I

have to wonder how much the sutures of the skull are pulled apart in order to

allow the brain to fill to its full capacity and get rid of the wrinkles…..if

you had a lot of wrinkles, how large would the head get? Would the brain keep

pushing the skull apart until all the wrinkles become tight? LOL

Also, when had his cranial vault

reconstruction, he needed to wear a helmet for months until the sutures fused

back into place; otherwise the head would flatten in the back when he slept and

would get out of shape. He also has dissolvable plates and screws to hold the

skull in place until it fuses…..they are just now beginning to dissolve a

year after surgery. His medical team consisted of a highly specialized plastic

surgeon along with one of the top neurosurgeons in the country, Dr Lazareff,

the neurosurgeon who separated the Guatemalan twins who were conjoined at the

head.

Sandi in no CA

From: achalasia

[mailto:achalasia ] On Behalf

Of toomuchclutter

Sent: Friday, April 11, 2008 7:24

AM

achalasia

Subject: Re: Neuro

Cranial Restructuring

Check out number 4 also...

would freak me out, 'piece of balloon landing in my throat', then what

happens? Suffocation? Where do they get the balloons, Target?

INFORMED CONSENT

For NeuroCranial Restructuring

http://www.dreversage.com/Consent%20Form.pdf

(Take a look as 2 and 3 and then think between the lines.)

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OK, first of all, thank you all for your concern. You can rest

assured, I'm not running around trying every alternative therapy I

can find. I found this specific doctor through a co-worker who went

to see him for TMJ with obvious results. This is a woman I knew

before and now after treatment, and the change in her health is plain

to see.

Sandy said:

" When he said he knew about achalasia, did he understand all about

it, such as white foam, not being able to drink water, or was he just

bluffing his way through? "

The first time I talked to the doctor, I told him I had A, and asked

if he thought NCR could help. He started talking and didn't stop.

He spoke of the nerves that cause the problem, and of reasons certain

nerves can start malfunctioning. I didn't tell him anything about

A. He may not be an expert, but he wasn't bluffing about what he did

know.

Notan said:

" I think if I was going to have a balloon expand some part of me for

achalasia I would just go ahead and have done to my LES. "

And Sandy:

" Makes as much logic to me as if they wanted to work on achalasia via

knee structure. "

I'm sure you already know this, but achalasia is not just a muscle

problem. It's largely, if not completely neurological. Surgeries

and dilations on the LES only treat the symptoms. This might treat

the cause. There's a set of cranial nerves(nerves attached to the

skull bones) that controls the muscles in the throat. Look it up.

When skull bones are moved from their natural positions, they can

pinch cranial nerves, which restricts the flow of spinal fluid to

those nerves. When the nerves get dehydrated, from lack of spinal

fluid, they start to malfunction, and eventually die. Everyone here

knows that the cause of A is currently unknown. How do you know this

isn't it?

Sandy, you also said:

" The choices are really pretty minimal, but there are hundreds and

thousands of us that have made it through. If you want to try NCR,

try to find hundreds and thousands that have been improved or at

least been through that experience with achalasia. I'm not saying it

won't work, but I'd follow the more travelled paths. "

I've read the results of those " more travelled paths " on this message

board, and it's a large part of my reason to try something

different. Even if the surgery or dilation goes perfectly, there are

complications, and the symptoms are not completely resolved. At one

time, surgery and dilation were new forms of treatment. I agree they

have results, but I still think there might be a better option. I'm

not going to accept it as the only way just because it's what the

doctors currently recommend. Doctors used to " bleed " people who were

sick to " let out the bad blood. " The medical field is always

changing, and if no one will try the newer ideas, it won't change for

the better.

Notan, you mentioned the possibly disasterous results of this

procedure, but what about the disasters resulting from botched

surgeries? You mentioned the woman with the broken septum, and the

baby who died. I've read up on both of those cases. The woman had

sinus surgery prior to NCR, and didn't disclose that to her doctor.

The baby was in northern Canada, about 5 hours from the nearsest

hospital. The doctors at the hospital said that if they'd been only

2 or 3 hours away, the bably would have probably lived.

Sandy, you also said:

" I'd love to be warm loving and supportive, but perhaps, dear ,

you are reaching for a miracle. "

Yes, Sandy, I am reaching for a miracle. Why aren't you? Maybe I'm

just too new at this, or maybe I'm just an optimist, but I'm not

going to give up the hope that this can be completely cured, not just

treated, or managed.

Thanks everyone for your responses. So far, I've not seen anything

here that I hadn't already learned, but thank you for the concern.

I'm not sure this will work, but I do plan to try it, and I will let

you know how it goes.

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Dear ,

I'm so glad you are still here. You have investigated and researched and are making your own informed decision. I too skimmed those articles about NCR and as you say there are horror articles also with myotomies, the key is the % of each, and not sure there are any studies.

I have a friend in Miles City that is retiring from the state and is planning on doing her healing medicine full time. Her mother is a very traditional nurse, more of the theme of "cut it open and we'll see what is going on." She and a local doctor performed surgery on my Grandmother (in Ekalaka) when my Grandmother had mysterious pain and x-rays didn't show anything. They cut her open and a whole toothpick had perforated her colon. My Grandmother had no clue how it got there. She was from Butte, and Irish Catholic, and as you may or may not know, "they drink their likker straight". Although she didn't drink often apparently one time she was proving her point and swallowed a toothpick, probably off an appetizer plate.

So, back to my friend, from this background, she has some kind of license to practice healing medicine. If you like, I'll put you in touch with her, she is moving back to Miles City from Billings.

Please tell us what happens and your impressions and the results.

But one thing, you said," Yes, Sandy, I am reaching for a miracle. Why aren't you?" Well, I DID find the miracle for me. I just ate a bowl of dry frosted shredded wheat, followed by a cup of coffee. I have a preference for dry cereal. Last night I ate a California Roll Sushi (rice, shrimp etc.) and some potato chips. The night before a salad. If that isn't a miracle when a few years before I couldn't eat or drink water, then I don't know what a miracle is. My miracle was also found by others at their respective hospitals and doctors.

To step just once into deeper philosophical territory. I don't know what is "unnatural" about surgery and mainstream hospitals. As far as I can tell all were developed by men and women using their natural brains and skills to invent ways and means to help cure and prevent common ailments, such as polio, knee replacement, heart valve replacement. Humans are behind all those inventions, why aren't they natural and a miracle? All these things came from the human brain.

I wish you the very best, if you would like to talk to my friend, let me know.

Sandy

>> OK, first of all, thank you all for your concern. You can rest > assured, I'm not running around trying every alternative therapy I > can find. I found this specific doctor through a co-worker who went > to see him for TMJ with obvious results. This is a woman I knew > before and now after treatment, and the change in her health is plain > to see.> > Sandy said:> "When he said he knew about achalasia, did he understand all about > it, such as white foam, not being able to drink water, or was he just > bluffing his way through?"> > The first time I talked to the doctor, I told him I had A, and asked > if he thought NCR could help. He started talking and didn't stop. > He spoke of the nerves that cause the problem, and of reasons certain > nerves can start malfunctioning. I didn't tell him anything about > A. He may not be an expert, but he wasn't bluffing about what he did > know.> > Notan said:> "I think if I was going to have a balloon expand some part of me for> achalasia I would just go ahead and have done to my LES."> > And Sandy:> "Makes as much logic to me as if they wanted to work on achalasia via > knee structure."> > I'm sure you already know this, but achalasia is not just a muscle > problem. It's largely, if not completely neurological. Surgeries > and dilations on the LES only treat the symptoms. This might treat > the cause. There's a set of cranial nerves(nerves attached to the > skull bones) that controls the muscles in the throat. Look it up. > When skull bones are moved from their natural positions, they can > pinch cranial nerves, which restricts the flow of spinal fluid to > those nerves. When the nerves get dehydrated, from lack of spinal > fluid, they start to malfunction, and eventually die. Everyone here > knows that the cause of A is currently unknown. How do you know this > isn't it?> > Sandy, you also said:> "The choices are really pretty minimal, but there are hundreds and > thousands of us that have made it through. If you want to try NCR, > try to find hundreds and thousands that have been improved or at > least been through that experience with achalasia. I'm not saying it > won't work, but I'd follow the more travelled paths."> > I've read the results of those "more travelled paths" on this message > board, and it's a large part of my reason to try something > different. Even if the surgery or dilation goes perfectly, there are > complications, and the symptoms are not completely resolved. At one > time, surgery and dilation were new forms of treatment. I agree they > have results, but I still think there might be a better option. I'm > not going to accept it as the only way just because it's what the > doctors currently recommend. Doctors used to "bleed" people who were > sick to "let out the bad blood." The medical field is always > changing, and if no one will try the newer ideas, it won't change for > the better.> > Notan, you mentioned the possibly disasterous results of this > procedure, but what about the disasters resulting from botched > surgeries? You mentioned the woman with the broken septum, and the > baby who died. I've read up on both of those cases. The woman had > sinus surgery prior to NCR, and didn't disclose that to her doctor. > The baby was in northern Canada, about 5 hours from the nearsest > hospital. The doctors at the hospital said that if they'd been only > 2 or 3 hours away, the bably would have probably lived.> > Sandy, you also said:> "I'd love to be warm loving and supportive, but perhaps, dear , > you are reaching for a miracle."> > Yes, Sandy, I am reaching for a miracle. Why aren't you? Maybe I'm > just too new at this, or maybe I'm just an optimist, but I'm not > going to give up the hope that this can be completely cured, not just > treated, or managed.> > Thanks everyone for your responses. So far, I've not seen anything > here that I hadn't already learned, but thank you for the concern. > I'm not sure this will work, but I do plan to try it, and I will let > you know how it goes.> > >

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  • 8 months later...

Hi

Please can anyone help me, you may have seen my earlier post my son has

brachyocephaly he is 5.5 years old and he was not diagnosed until he

was 4, I always thought he just had a big head and that it would even

out as he got older, sounds ignorant I know but here in the UK there

has been so little advice and publicity about this condition and there

was nothing when he was born.

I have been looking at the following website

ttp://www.drdeanhowell.com/ and have emailed them they are doing a

series in London in January and have invited me along they tell me they

can change the shape of my sons head with a few sessions, I am

sceptical but also desperate, however, they use something like mini

baloons in the nose has anyone ever heared of this,he is based in the

States and there seems to be so much more awareness over there?

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I think this treatment involves putting a balloon in the nostril and

inflating it briefly. I think it sounds hokey and unsafe. I think it

is controversial to say the least. One of those treatment that can

cure almost everything - always makes me suspicious. Plus the

treatment seems dangerous.

-christine

sydney, 3 yrs starband grad

>

> Hi

>

> Please can anyone help me, you may have seen my earlier post my son has

> brachyocephaly he is 5.5 years old and he was not diagnosed until he

> was 4, I always thought he just had a big head and that it would even

> out as he got older, sounds ignorant I know but here in the UK there

> has been so little advice and publicity about this condition and there

> was nothing when he was born.

>

> I have been looking at the following website

> ttp://www.drdeanhowell.com/ and have emailed them they are doing a

> series in London in January and have invited me along they tell me they

> can change the shape of my sons head with a few sessions, I am

> sceptical but also desperate, however, they use something like mini

> baloons in the nose has anyone ever heared of this,he is based in the

> States and there seems to be so much more awareness over there?

>

>

>

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You should post this on the Older Plagio website as I believe

that several members there have used NCR.

OlderPlag/

Molly

Novato, California

Nicolas, 3, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 5.5

, 9

Neuro Cranial Restructuring

Hi

Please can anyone help me, you may have seen my earlier post my son has

brachyocephaly he is 5.5 years old and he was not diagnosed until he

was 4, I always thought he just had a big head and that it would even

out as he got older, sounds ignorant I know but here in the UK there

has been so little advice and publicity about this condition and there

was nothing when he was born.

I have been looking at the following website

ttp://www.drdeanhowell.com/ and have emailed them they are doing a

series in London in January and have invited me along they tell me they

can change the shape of my sons head with a few sessions, I am

sceptical but also desperate, however, they use something like mini

baloons in the nose has anyone ever heared of this,he is based in the

States and there seems to be so much more awareness over there?

------------------------------------

For more plagio info

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Thank you so much I had no idea this group existed.

and Greg Kennedy wrote

From: Foley, Molly <mafoley@...>Subject: RE: Neuro Cranial RestructuringPlagiocephaly Date: Thursday, 8 January, 2009, 6:01 AM

You should post this on the Older Plagio website as I believethat several members there have used NCR.http://groups. / group/OlderPlag/MollyNovato, CaliforniaNicolas, 3, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/ 06,Graduate!, 5.5, 9 Neuro Cranial RestructuringHiPlease can anyone help me, you may have

seen my earlier post my son has brachyocephaly he is 5.5 years old and he was not diagnosed until he was 4, I always thought he just had a big head and that it would even out as he got older, sounds ignorant I know but here in the UK there has been so little advice and publicity about this condition and there was nothing when he was born.I have been looking at the following website ttp://www.drdeanhow ell.com/ and have emailed them they are doing a series in London in January and have invited me along they tell me they can change the shape of my sons head with a few sessions, I am sceptical but also desperate, however, they use something like mini baloons in the nose has anyone ever heared of this,he is based in the States and there seems to be so much more awareness over there?------------ --------- --------- ------For more plagio info, go to

www.plagiocephaly. org/support

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