Re: UTI

[Guest guest]

uti -- urinary tract infection?

yes

was treated with antibiotics

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: UTITo: Breathe-Support Date: Tuesday, December 29, 2009, 1:55 PM

I just had some lab work done from my primary doc yesterday. This morning I got a call saying I had a UTI(second one since ILD). Not being treated yet, as asymptomatic, and they want to see what the culture shows. Just curious as to whether this has happened to anyone else. Kathy ILD 3/08

[Guest guest]

I just finished meds for UTI, I was wondering same thing I am taking imuran you suppose this is it. How about you Kathy Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009To: Breathe-Support Sent: Tue, December 29, 2009 12:55:05 PMSubject: UTI

I just had some lab work done from my primary doc yesterday. This morning I got a call saying I had a UTI(second one since ILD). Not being treated yet, as asymptomatic, and they want to see what the culture shows. Just curious as to whether this has happened to anyone else. Kathy ILD 3/08

[Guest guest]

Been reading that some of us suffer from UTI's. Please make sure that you do not take Macrobid or Macrodantin (generic Nufurin). University of Chicago says there is a definite link with this drug and pulmonary fibrosis. I have taken this medication my entire life for various UTI's and they think it may have contributed to my PF.

Patti Indianapolis IPF 2007

[Guest guest]

Kathy.....they told me Bactrum or Septra (that might be sulfa) but to never ever take Marcobid again. If you do a search you will find all kinds of info about the link to IPF. Scarry since I have taken it since I was in my 20's and now I have IPF.

Happy New Year to you too!

Patti Indianapolis IPF 2007

[Guest guest]

I'm not on Imuran, but am on Cellcept.Kathy ILD 3/08Subject: Re: UTITo: Breathe-Support Date: Wednesday, December 30, 2009, 4:08 AM

I just finished meds for UTI, I was wondering same thing I am taking imuran you suppose this is it. How about you Kathy Gascoigne SD, 50 yrs old, Renaud's 2008, IPF 7/2009From: Kathy Lindquist <psychnursekathy@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Tue, December 29, 2009 12:55:05 PMSubject: UTI

I just had some lab work done from my primary doc yesterday. This morning I got a call saying I had a UTI(second one since ILD). Not being treated yet, as asymptomatic, and they want to see what the culture shows. Just curious as to whether this has happened to anyone else. Kathy ILD 3/08

[Guest guest]

Dyane,Yep, went back on Pred about a month ago. My BS does seem to be under fair control, but still, that is a thought, Thanks.Kathy ILD 3/08Subject: UTITo: Breathe-Support Date: Wednesday, December 30, 2009, 8:38 AM

Are you on Predinisone? Are your sugars elevated. High Sugar can cause UTI's

Dyane, 54, Phoenix, IIP 02 now NSIP 09, Breast Cancer, Psoriasis, Lipodermatosclerosi s, Diabetes, and now a RA like autoimmune component, yadda yadda yadda."Life is not a journey to the grave with intentions of arriving is a pretty, well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, chocolate in one hand, Margaritas in the other, loudly proclaiming "Holy **** What a ride!"."

[Guest guest]

Mara- I like the cranberry suplements sold at digestive wellness. I'm sure you

can find them near you. Stop caffein, drink lots of water.

Feel better,

PJ

>

> What do people do for lower UTIs? Got one, I think, out of the blue.

> Besides cranberry juice, that is.

>

> I applied some tea tree oil and some grapefruit seed extract. Just

> keep on doing stuff like that?

>

> Mara

>

[Guest guest]

Mara,

Go get yourself some D Manose at the health food store.

Willners Chemists carry it.

Jodi

>

> What do people do for lower UTIs? Got one, I think, out of the blue.

> Besides cranberry juice, that is.

>

> I applied some tea tree oil and some grapefruit seed extract. Just

> keep on doing stuff like that?

>

> Mara

>

[Guest guest]

Mara

Not

to be the voice of gloom, but thought I’d throw out the possibility that

you might be dealing with interstitial cystitis (IC), and not an UTI. It is a

common condition for women, per my gynecologist who is also an expert on IC. I’d

probably check in with my doctor to have a urinalysis and request a lab culture

to verify the presence of the bacterial infection. If nothing turns up, then

you can consider whether you might be dealing with IC.

The

reason I mention it is that things like cranberry juice make IC worse. In

fact, all the things you do to help with UTIs make IC worse. Dealing with a

yeast infection or gut dysbiosis also makes IC worse. Certain medications make

IC worse. Lots of toxins end up in the bladder. I’m speaking form

experience on this one [sigh].

So

if things don’t get better, than you can look into IC.

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>

What

do people do for lower UTIs? Got one, I think, out of the blue.

Besides cranberry juice, that is.

I applied some tea tree oil and some grapefruit seed extract. Just

keep on doing stuff like that?

Mara

[Guest guest]

uva-ursi is supposed to be a gentle anti-microbial that targets UTIs.

>

> What do people do for lower UTIs? Got one, I think, out of the blue.

> Besides cranberry juice, that is.

>

> I applied some tea tree oil and some grapefruit seed extract. Just

> keep on doing stuff like that?

>

> Mara

>

[Guest guest]

And if it is, in fact, a UTI and you absolutely have to take antibiotics, you

will get through it. I just had the same experience last month. Ended up having

to take Macrodantin for a week (I was in so much pain and bleeding- cranberry

pills weren't going to save me at that point). I ate yogurt 2 hours after every

dose or took my probiotic. All in all, I didn't notice too much of a difference

in my SCD progress from it.

Hope you feel better!!!

-Joanna

SCD 9/2009, Crohn's 1992, 30mg Prednisone

> >>>>>>>>>>>>>>

>

> What do people do for lower UTIs? Got one, I think, out of the blue.

> Besides cranberry juice, that is.

>

> I applied some tea tree oil and some grapefruit seed extract. Just

> keep on doing stuff like that?

>

> Mara

>

[Guest guest]

Only thing that ever helped my UTIs were antibiotics unfortunately

Stacey

>

> What do people do for lower UTIs? Got one, I think, out of the blue.

> Besides cranberry juice, that is.

>

> I applied some tea tree oil and some grapefruit seed extract. Just

> keep on doing stuff like that?

>

> Mara

>

[Guest guest]

So, let me just get some feedback to make sure I'm on the right track with

symptoms - since there are a few things it could be.

I'm having a lot of burning sensation in the genital area - nothing higher

up in the bladder area. I'm actually surprised by how intense the burning

feeling is at the moment.

Just, seeing as how it is the weekend, the idea of going to the ER is a huge

drag, but if it gets any worse, I'm going to go. Because the idea of 48+

hours like this is not pleasant. At the moment, I'm thinking vaginal ice pack.

<LOL>

Or maybe longterm immersion in cool water. Fortunately there's a seriously

underheated pool here, so I may go in in a little bit. Although the idea of

bathing suit is not something I'm looking forward to at the moment.

I suppose it could also be yeast just from that burning symptom - I looked it

up.

But am not having other symptoms of yeast. So UTI seems more likely

to me. But I don't have any experience with this. So am not 100% definite.

Mara

> And if it is, in fact, a UTI and you absolutely have to take antibiotics, you

will get through it. I just had the same experience last month. Ended up having

to take Macrodantin for a week (I was in so much pain and bleeding- cranberry

pills weren't going to save me at that point). I ate yogurt 2 hours after every

dose or took my probiotic. All in all, I didn't notice too much of a difference

in my SCD progress from it.

> Hope you feel better!!!

> -Joanna

> SCD 9/2009, Crohn's 1992, 30mg Prednisone

>

>

>>>>>>>>>>>>>>>>

>>

>> What do people do for lower UTIs? Got one, I think, out of the blue.

>> Besides cranberry juice, that is.

>>

>> I applied some tea tree oil and some grapefruit seed extract. Just

>> keep on doing stuff like that?

>>

>> Mara

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi Mara,

Can you pinpoint where in the genital area it is coming from?

The urethral opening?

Is it visibly red at all? I still have to ask but do you wax at all?

Does it burn more when you urinate?

Any fever?

Jodi

>

> > And if it is, in fact, a UTI and you absolutely have to take antibiotics,

you will get through it. I just had the same experience last month. Ended up

having to take Macrodantin for a week (I was in so much pain and bleeding-

cranberry pills weren't going to save me at that point). I ate yogurt 2 hours

after every dose or took my probiotic. All in all, I didn't notice too much of a

difference in my SCD progress from it.

> > Hope you feel better!!!

> > -Joanna

> > SCD 9/2009, Crohn's 1992, 30mg Prednisone

> >

> >

> >>>>>>>>>>>>>>>>

> >>

> >> What do people do for lower UTIs? Got one, I think, out of the blue.

> >> Besides cranberry juice, that is.

> >>

> >> I applied some tea tree oil and some grapefruit seed extract. Just

> >> keep on doing stuff like that?

> >>

> >> Mara

> >>

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Joanna,

 

How much bleeding did you have and for how long?  Did your GYN or regular doctor dx it?

 

Thanks,

Debbie cd 41

 

And if it is, in fact, a UTI and you absolutely have to take antibiotics, you will get through it. I just had the same experience last month. Ended up having to take Macrodantin for a week (I was in so much pain and bleeding- cranberry pills weren't going to save me at that point). I ate yogurt 2 hours after every dose or took my probiotic. All in all, I didn't notice too much of a difference in my SCD progress from it.

Hope you feel better!!!-JoannaSCD 9/2009, Crohn's 1992, 30mg Prednisone > >>>>>>>>>>>>>> > > What do people do for lower UTIs? Got one, I think, out of the blue. > Besides cranberry juice, that is.

> > I applied some tea tree oil and some grapefruit seed extract. Just > keep on doing stuff like that? > > Mara>

[Guest guest]

Mara,

You can buy a product in the drug store that tests for urinary tract infections.

It's called AZA Test strips. I notice in the package I have there is a sample of

a pain reliever for urinary burning. I can't read the ingredients but it says

it's for urinary burning.

I hope you feel better soon.

Phyllis

[Guest guest]

Mara,

A UTI needs to be diagnosed with a urine specimen, but--3 days of Macrodantin are all that are needed to clear up a mild one. If left untreated it can travel to your bladder, which becomes a whole different story and much more serious with more antibiotics.

Personally, I wouldn't try to treat it yourself.

Also, not to get personal, but if you are having a lot of intercourse, you can get what's called 'honeymoon cystitis"--not actually a UTI, but an irritation of the urethra that mimics a UTI symptoms.

Terry

[Guest guest]

Mara,

just read your post-- UTI symptoms: burning with urination, feeling like you have to urinate often, blood in the urine. Smelly urine, pelvic or abdominal pain, fatigue.

Terry

[Guest guest]

Thanks Phyllis,

I'm going to look for that. And keep some on hand if this ever happens again.

At the moment, the burning feeling seems to have gone down somewhat. Maybe

the cranberry kicking in?

Mara

> Mara,

>

> You can buy a product in the drug store that tests for urinary tract

infections. It's called AZA Test strips. I notice in the package I have there

is a sample of a pain reliever for urinary burning. I can't read the ingredients

but it says it's for urinary burning.

>

>

> I hope you feel better soon.

> Phyllis

>

>

>

> ------------------------------------

>

>

[Guest guest]

Be careful though if you take the azo for the pain. It works wonders but the doc cant run a quick culture because of what the stuff does to your urine...it will have to be cultured for 24 hrs...at least thats the way it was about 7 yrs ago!MarlaSent: Saturday, June 19, 2010 6:18 PMTo: BTVC-SCD Subject: Re: Re:Re: UTI Thanks Phyllis, I'm going to look for that. And keep some on hand if this ever happens again. At the moment, the burning feeling seems to have gone down somewhat. Maybe the cranberry kicking in? Mara > Mara, > > You can buy a product in the drug store that tests for urinary tract infections. It's called AZA Test strips. I notice in the package I have there is a sample of a pain reliever for urinary burning. I can't read the ingredients but it says it's for urinary burning. > > > I hope you feel better soon. > Phyllis > > > > ------------------------------------ > >

[Guest guest]

Could definitely be yeast, could also be hormones.

>

> > And if it is, in fact, a UTI and you absolutely have to take antibiotics,

you will get through it. I just had the same experience last month. Ended up

having to take Macrodantin for a week (I was in so much pain and bleeding-

cranberry pills weren't going to save me at that point). I ate yogurt 2 hours

after every dose or took my probiotic. All in all, I didn't notice too much of a

difference in my SCD progress from it.

> > Hope you feel better!!!

> > -Joanna

> > SCD 9/2009, Crohn's 1992, 30mg Prednisone

> >

> >

> >>>>>>>>>>>>>>>>

> >>

> >> What do people do for lower UTIs? Got one, I think, out of the blue.

> >> Besides cranberry juice, that is.

> >>

> >> I applied some tea tree oil and some grapefruit seed extract. Just

> >> keep on doing stuff like that?

> >>

> >> Mara

> >>

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

I agree with Terry. I think you can try cranberry and liquids at the first sign

of urinary discomfort, but if you have symptoms despite these efforts, you need

treatment. AZO will mask the symptoms, but can be useful for pain relief.

And yes, at any sign of a UTI, dear hubby is banished to the couch for quite a

while....

PJ

>

> Mara,

>

> A UTI needs to be diagnosed with a urine specimen, but--3 days of Macrodantin

are all that are needed to clear up a mild one. If left untreated it can travel

to your bladder, which becomes a whole different story and much more serious

with more antibiotics.

>

> Personally, I wouldn't try to treat it yourself.

> Also, not to get personal, but if you are having a lot of intercourse, you can

get what's called 'honeymoon cystitis " --not actually a UTI, but an irritation of

the urethra that mimics a UTI symptoms.

>

> Terry

>

[Guest guest]

Hey Debbie!

Well, it looks like everyone has absolutely steered you in the right direction.

But I felt horrible when I got on today and saw that I missed your message from

Saturday!

So, just to answer your question in case you are curious or for future

problems...

When I get bleeding with UTI's I am at the point where if I don't get an

antibiotic in me, I feel like I may die! I feel like I have to pee constantly,

and when I do it's very painful and not much comes out. It's enough blood that

you can see it in the toilet. I will keep bleeding until about 2 doses of

antibiotics (4-6 hours)- then the bleeding and pain miraculously clear up! Both

my OBGYN and GP have been about to dx it. It's just a simple urine test. Usually

they will prescribe the meds before I do the test since they know it's going to

turn up positive.

Hope that helps and you are over the hump!

As the other women have advised, if you can catch it earlier, usually the

cranberry pills or AZO and drinking lots of fluids will keep it under control.

-Joanna

SCD 9/2009, Crohn's 1992, 30mg Prednisone

>

> Joanna,

>

> How much bleeding did you have and for how long? Did your GYN or regular

> doctor dx it?

>

> Thanks,

> Debbie cd 41