Re: S. Boulardi ??

[Guest guest]

> Hi there! My husband (who has Crohn's disease) used to take Florastor > when he started the SCD diet 4 months ago. Between the two, the smelly > gas went away. Now that he knows that Florastor is illegal, he just > takes legal acidophilus. Since stopping the Florastor, some of the gas > has come back. Will the acidophilus help with the gas? Should he take > S. Boulardi? If so, how long should he take it? Thanks for any help!>> T.>Yes, S. boulardii helps for gas; and diarrhea; and he needs to take it indefinitely.n, Crohn's, 30+ years ______________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of  a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com  

[Guest guest]

Is it safe to take S. Boulardii indefinitely? Everything I see says from weeks

to 6 months.

>

> > Hi there! My husband (who has Crohn's disease) used to take Florastor

> > when he started the SCD diet 4 months ago. Between the two, the smelly

> > gas went away. Now that he knows that Florastor is illegal, he justtakes

> > legal acidophilus. Since stopping the Florastor, some of the gashas come

> > back. Will the acidophilus help with the gas? Should he takeS. Boulardi?

> > If so, how long should he take it? Thanks for any help!

> >

> > T.

> >

> Yes, S. boulardii helps for gas; and diarrhea; and he needs to take it

> indefinitely.

>

> n, Crohn's, 30+ years

>

>

> ______________________________

>

> A funny, touching gift book for cat lovers. Signed copies, free shipping

> (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the

> 10 Cats Who Caused My Addiction by n Van Til

> www.wordpowerpublishing.com

>

[Guest guest]

Everything

I’ve seen also indicates that S. Boulardii is for short-term courses, not

taken indefinitely like L. Acidophilus. The general consensus is to use

S. Boulardii for 3 to 4 weeks, then stop. I believe some people find it

helpful to repeat another course of 3 to 4 weeks again in a few months if their

diarrhea hasn’t subsided.

http://www.giprohealth.com/saccharomycesboulardii.aspx

Of

course you can discuss using it for longer periods of time with your doctor.

S.

Boulardii only populates the GI tract, not the rest of the body’s mucuous

membranes. So you do want to take other probiotics as well, so that your

entire body benefits.

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>>>>>>>>>>>

Is

it safe to take S. Boulardii indefinitely? Everything I see says from weeks to

6 months.

[Guest guest]

> Is it safe to take S. Boulardii indefinitely? Everything I see says > from weeks to 6 months.Yes, it's "safe." The reason I've seen for stopping it periodically is that your body adjusts to it, and it may be more beneficial for some people to take it for a period, then not take, then take it again. I stop it for a few days or a week once in a while, usually when I run out and don't have more. I know I tend to get gas and bloating  when I'm not on it.n>> >>>> > Hi there! My husband (who has Crohn's disease) used to take Florastor>> > when he started the SCD diet 4 months ago. Between the two, the smelly>> > gas went away. Now that he knows that Florastor is illegal, he >> justtakes>> > legal acidophilus. Since stopping the Florastor, some of the gashas >> come>> > back. Will the acidophilus help with the gas? Should he takeS. >> Boulardi?>> > If so, how long should he take it? Thanks for any help!>> >>> > T.>> >>> Yes, S. boulardii helps for gas; and diarrhea; and he needs to take it>> indefinitely.>>>> n, Crohn's, 30+ years>>>>>> ______________________________>>>> A funny, touching gift book for cat lovers. Signed copies, free shipping>> (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the>> 10 Cats Who Caused My Addiction by n Van Til>> www.wordpowerpublishing.com>>>>-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

Hmm, when I asked about taking s. boulardii for extended periods of time on this list, I was told it can cause other yeasts, undesirable yeasts, to overgrow...Best!

> Is it safe to take S. Boulardii indefinitely? Everything I see says > from weeks to 6 months.Yes, it's " safe. " The reason I've seen for stopping it periodically is that your body adjusts to it, and it may be more beneficial for some people to take it for a period, then not take, then take it again. I stop it for a few days or a week once in a while, usually when I run out and don't have more. I know I tend to get gas and bloating  when I'm not on it.

n>> >>>> > Hi there! My husband (who has Crohn's disease) used to take Florastor>> > when he started the SCD diet 4 months ago. Between the two, the smelly

>> > gas went away. Now that he knows that Florastor is illegal, he >> justtakes>> > legal acidophilus. Since stopping the Florastor, some of the gashas >> come>> > back. Will the acidophilus help with the gas? Should he takeS.

>> Boulardi?>> > If so, how long should he take it? Thanks for any help!>> >>> > T.>> >>> Yes, S. boulardii helps for gas; and diarrhea; and he needs to take it

>> indefinitely.>>>> n, Crohn's, 30+ years>>>>>> ______________________________>>>> A funny, touching gift book for cat lovers. Signed copies, free shipping

>> (U.S., reduced elsewhere): Confessions of a Cataholic: My Life With the>> 10 Cats Who Caused My Addiction by n Van Til>> www.wordpowerpublishing.com

>>>>-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction

by n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

I've been questioning whether my " CROHN'S " is actually Candida gone beserk!

Would thrush in my mouth indicate a compelling argument to support that theory?

I also have a fungal problem on two fingernails.

My doctor (or soon to be " my previous doctor " seems bound and determined to put

me on Humira......one of those drugs where the first side effect mentioned is

" possible death " . It's like the Monty Python movie when the stewardess asks the

passenger whether they want

" cake or death " ...........I'LL TAKE THE CAKE PLEASE!

>

> Everything I've seen also indicates that S. Boulardii is for short-term

> courses, not taken indefinitely like L. Acidophilus. The general consensus

> is to use S. Boulardii for 3 to 4 weeks, then stop. I believe some people

> find it helpful to repeat another course of 3 to 4 weeks again in a few

> months if their diarrhea hasn't subsided.

>

>

>

> http://www.giprohealth.com/saccharomycesboulardii.aspx

>

>

>

> Of course you can discuss using it for longer periods of time with your

> doctor.

>

>

>

> S. Boulardii only populates the GI tract, not the rest of the body's mucuous

> membranes. So you do want to take other probiotics as well, so that your

> entire body benefits.

>

>

>

> Kim M.

>

> SCD 6 years

>

> Sphincter of Oddi dysfunction 6+ years

>

> neurological & spinal deterioration 3+ years

>

>

>

> >>>>>>>>>>>>>>>>>>>>>>>>

>

> Is it safe to take S. Boulardii indefinitely? Everything I see says from

> weeks to 6 months.

>

[Guest guest]

LOL!!!! yeah opt for the cake = leave that doc!!!

and try to find someone at least " open " to the yeast/scd idea -my GI still

states " yeast is controversial " BUT he knows of SCD and sees the benefits in us

patients that are on it -so he says do what you're doing

it's clear you have fungal issues and you're making me re-think here - i was dx

celiac then double dx with crohns - my GI (1st of 3) coudn't believe what he was

seeing, as it's so rare - but now that I know i'm loaded with so much yeast that

candida scd diet plus massive antifungals can't kill it all - maybe that's what

they saw (intestinal corrosion from yeast?)hhmmmmm........ - at any rate

whatever they saw was gone 9 months later and that was on plain scd - so do NOT

start the drugs - start the candida scd plus anti-fungals and then see just my

thoughts - i also had no symptoms but nausea which I do see increase now when i

get " yeasty " - interesting!!!

eileen 2 1/2 years scd

> >

> > Everything I've seen also indicates that S. Boulardii is for short-term

> > courses, not taken indefinitely like L. Acidophilus. The general consensus

> > is to use S. Boulardii for 3 to 4 weeks, then stop. I believe some people

> > find it helpful to repeat another course of 3 to 4 weeks again in a few

> > months if their diarrhea hasn't subsided.

> >

> >

> >

> > http://www.giprohealth.com/saccharomycesboulardii.aspx

> >

> >

> >

> > Of course you can discuss using it for longer periods of time with your

> > doctor.

> >

> >

> >

> > S. Boulardii only populates the GI tract, not the rest of the body's mucuous

> > membranes. So you do want to take other probiotics as well, so that your

> > entire body benefits.

> >

> >

> >

> > Kim M.

> >

> > SCD 6 years

> >

> > Sphincter of Oddi dysfunction 6+ years

> >

> > neurological & spinal deterioration 3+ years

> >

> >

> >

> > >>>>>>>>>>>>>>>>>>>>>>>>

> >

> > Is it safe to take S. Boulardii indefinitely? Everything I see says from

> > weeks to 6 months.

> >

>

[Guest guest]

I've been hospitalized for a total of two weeks over the last year....both times

I was in a hospital bed on Mother's Day - 4 kids and 6 grandkids. First

diagnosis: UC Second diaagnosis: Crohn's. Two different doctors, two different

hospitals.......BUT, I told all of them that I had taken two antibiotics early

in 2009 for a feverish sore throat. The next month I went on an all out

home-made bread, pizza baking binge! Thinking back on it I was sure that was

the root of my problem. Neither doctor would listen to me. The first one was

hell-bent on Remicade treatments and the second one is still pushing the Humira.

I'm convinced this is the " UNHOLY TRINITY " ......the Industrial Food Processing

Complex - The Industrial Pharmaceutical Complex - and The Medical Community.

Although, I have to admit.....when I was near death, the drugs saved my life!

But that is little consulation $80,000 + later and all the hell I went through!

And they'll never convince me that I suddently developed Crohn's at age 63! I'm

sure now this started with a yeast overgrowth and could have also had some

relationship to Celiac. I found two places where it confirmed Celiac symptoms

can mimmic the same ulceration as Crohn's, which symptom is Doctor #2's

confirmation that I have Crohn's - and the fact it haD made it's way into my

small intestines.

And lastly, I can come to no other conclusion than this: the doctors will not

acknowledge the OBVIOUS relationship between diet and healing for the fact they

would not need us and our $$ if the solution is based mainly on nutrition!

When I go to the doctors office I want to wear a t-shirt that says:

" Breaking The Vicious Cycle " SCD diet may be able to help you. I can't believe

all the misery that could probably be avoided.

Isn't there some way to make this more accessible? I searched and searched

until I accidentally found the book on Amazon and started reading the reviews.

The medical community says there is no research to back up the

claims...........we've got over 1600 members who could be the subjects of a

great research paper!

As for me, I don't know if I " ll continue to improve, but this is the path I'm

taking, with or without their help.

Janet

CROHN'S ? May 2010

SCD June 2010

Tapering off Asacol and Prednisone

Not going on Humira

> > >

> > > Everything I've seen also indicates that S. Boulardii is for short-term

> > > courses, not taken indefinitely like L. Acidophilus. The general

consensus

> > > is to use S. Boulardii for 3 to 4 weeks, then stop. I believe some people

> > > find it helpful to repeat another course of 3 to 4 weeks again in a few

> > > months if their diarrhea hasn't subsided.

> > >

> > >

> > >

> > > http://www.giprohealth.com/saccharomycesboulardii.aspx

> > >

> > >

> > >

> > > Of course you can discuss using it for longer periods of time with your

> > > doctor.

> > >

> > >

> > >

> > > S. Boulardii only populates the GI tract, not the rest of the body's

mucuous

> > > membranes. So you do want to take other probiotics as well, so that your

> > > entire body benefits.

> > >

> > >

> > >

> > > Kim M.

> > >

> > > SCD 6 years

> > >

> > > Sphincter of Oddi dysfunction 6+ years

> > >

> > > neurological & spinal deterioration 3+ years

> > >

> > >

> > >

> > > >>>>>>>>>>>>>>>>>>>>>>>>

> > >

> > > Is it safe to take S. Boulardii indefinitely? Everything I see says from

> > > weeks to 6 months.

> > >

> >

>

[Guest guest]

Yes, I am tempted to leave little evangelical SCD pamphlets all over my GI doc's

waiting room, but I just keep my mouth shut. They don't want to hear it.

I also wondered why I never had a GI problem before age 53, and I had also taken

antibiotics a few months before developing D and then spent a lot of time

traveling and eating out. It was a frightening time with an unsympathetic

medical staff.

Just stick to SCD and see how you feel. The success stories of those on this

board were enough for me. I do hope you feel better soon.

I do believe in working with my doctors, as they are competent, but I am also

wary of the " unholy trinity " as you said. Regardless of the diagnosis, I think

all roads lead to a gut that does not handle specific foods well, and SCD seemed

to be the logical approach.

PJ

> > > >

> > > > Everything I've seen also indicates that S. Boulardii is for short-term

> > > > courses, not taken indefinitely like L. Acidophilus. The general

consensus

> > > > is to use S. Boulardii for 3 to 4 weeks, then stop. I believe some

people

> > > > find it helpful to repeat another course of 3 to 4 weeks again in a few

> > > > months if their diarrhea hasn't subsided.

> > > >

> > > >

> > > >

> > > > http://www.giprohealth.com/saccharomycesboulardii.aspx

> > > >

> > > >

> > > >

> > > > Of course you can discuss using it for longer periods of time with your

> > > > doctor.

> > > >

> > > >

> > > >

> > > > S. Boulardii only populates the GI tract, not the rest of the body's

mucuous

> > > > membranes. So you do want to take other probiotics as well, so that

your

> > > > entire body benefits.

> > > >

> > > >

> > > >

> > > > Kim M.

> > > >

> > > > SCD 6 years

> > > >

> > > > Sphincter of Oddi dysfunction 6+ years

> > > >

> > > > neurological & spinal deterioration 3+ years

> > > >

> > > >

> > > >

> > > > >>>>>>>>>>>>>>>>>>>>>>>>

> > > >

> > > > Is it safe to take S. Boulardii indefinitely? Everything I see says from

> > > > weeks to 6 months.

> > > >

> > >

> >

>

[Guest guest]

LOL about the tee shirt! I design graphics for clothes for a living... would you

guys want these tees if I made them?

-Joanna

> When I go to the doctors office I want to wear a t-shirt that says:

> " Breaking The Vicious Cycle " SCD diet may be able to help you. I can't believe

all the misery that could probably be avoided.

[Guest guest]

Yeah!.........I think we should steal the " GOT MILK? " slogan, only ours will say

" GOT DIARRHEA? " However, I don't think I would wear that one!

> > When I go to the doctors office I want to wear a t-shirt that says:

> > " Breaking The Vicious Cycle " SCD diet may be able to help you. I can't

believe all the misery that could probably be avoided.

>

[Guest guest]

i leave note's on cars of people with autism awareness stickers etc - i so wish

everyone would know and try!!!

eileen

2 1/2 years scd

> > When I go to the doctors office I want to wear a t-shirt that says:

> > " Breaking The Vicious Cycle " SCD diet may be able to help you. I can't

believe all the misery that could probably be avoided.

>

[Guest guest]

maybe one that says " Got intestinal issues or autism? " - try the SCD diet

people would ask us!!

eileen

> > > When I go to the doctors office I want to wear a t-shirt that says:

> > > " Breaking The Vicious Cycle " SCD diet may be able to help you. I can't

believe all the misery that could probably be avoided.

> >

>

[Guest guest]

Speaking of, if anyone is interested, there is a new IBS advocacy group that

just

started on Yahoo - literally last week. It's unrelated to SCD completely, but

if anypne is interested,

let me know and I will forward the address.

Mara

> Yeah!.........I think we should steal the " GOT MILK? " slogan, only ours will

say " GOT DIARRHEA? " However, I don't think I would wear that one!

>

>

>>> When I go to the doctors office I want to wear a t-shirt that says:

>>> " Breaking The Vicious Cycle " SCD diet may be able to help you. I can't

believe all the misery that could probably be avoided.

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

At 04:20 PM 7/7/2010, you wrote:

I'm convinced this is the

" UNHOLY TRINITY " ......the Industrial Food Processing Complex -

The Industrial Pharmaceutical Complex - and The Medical Community.

Although, I have to admit.....when I was near death, the drugs saved my

life! But that is little consulation $80,000 + later and all the hell I

went through!

No arguments there -- I ended up with my gut issues thanks to taking

birth control pills when I was first married. Harry and I didn't want to

start a family right away, and thanks to the damage done, we never did

have kids.

For 25 years, I was told to " just take a little lomotil if it

bothers you. " Oh and let's not forget " Just stop stuffing your

face and lose some weight, and it'll all clear up. " We'll skip over

the fact that I was a normal weight when I started the birth control

pills.

Now, please don't get me wrong: there are a number of instances when

modern medicine has saved my life -- I was very prone to respiratory

infections when I was younger, infections that did not clear up without

antibiotics. I'm profoundly grateful for the diagnosis of sleep apnea,

and the better sleep I am getting with my BiPap. I'm grateful that my

cancer was discovered at a point that the only thing needed thus far (and

I just got my 2 year labs back -- negative!) was surgery.

But anyone who tells you the kind and quality of food you eat doesn't

matter is just plain nuts. Anyone who tells you your environment doesn't

matter is just plain nuts.

Now, not all of us can afford organic food or a chemical free home. We do

the best we can with the money and time we have available to us. No point

in stressing out over something we can't change... the stress will harm

us more than the item we're stressing about!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Marilyn,

My mother had chronic D, some nervous, much from drug side-effects. In

her case she could and did control it with Lomotil. So, her doctors

always said they didn't want her to take it! Go figure.

or 25 years, I was told to " just take a little lomotil if it bothers you. "

[Guest guest]

At 11:58 PM 7/8/2010, you wrote:

My mother had chronic D, some

nervous, much from drug side-effects. In her case she could and did

control it with Lomotil. So, her doctors always said they didn't want her

to take it! Go figure.

Yes, well! The implication that I got was that my issues were all in my

head.

Pretty much what I got when I went in with the cancer symptoms, which is

why that doc is no longer my PCP.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Way too many of the doctors still think it's all in our heads, I

fear. Mama's doctor did. That's why he was always telling her just

to stop the Lomotil, take a little Immodium now and then if she really

needed it. Well, Immodium did nothing!

It's really unfortunate, as you learned, when they dismiss symptoms that

turn out to be cancer. I had one of those with mine. And my sister

had one that, had my BIL not told the doctor he either sent sis to a

specialist or he'd be talking to the lawyer, that would have been cancer

within a few months, she was told after extensive D & C's etc to fix

it.

I can certainly understand why that doctor is no longer your PCP!

>My mother had chronic D, some nervous, much from >drug side-effects. In her case she could and did >control it with Lomotil. So, her doctors always >said they didn't want her to take it! Go figure.

Yes, well! The implication that I got was that my issues were all in

my head.

Pretty much what I got when I went in with the cancer symptoms, which is why that doc is no longer my PCP.

— Marilyn

[Guest guest]

At 04:27 PM 7/9/2010, you wrote:

I can certainly understand why

that doctor is no longer your PCP!

Another thing that's interesting is how many women get dismissed with it

being all in their heads, but the men get the full rigorous treatment.

Though considering what some of the meds are like, mebbe us gals are

occasionally lucky.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

I have a couple thoughts on this. One night/day my mom thought she was having a

heart attack, and I took her to the ER. The man in the cubicle next to us was

there for the same reason. Both my mom and the man's tests came back okay (yes,

I was nosy, but it's hard to help it when you're about a foot away). They

admitted the man for observation, " just to be safe, " even though it was

determined he probably just had a bad case of heartburn from something weird he

ate. They sent my mom home, even though they had no idea what caused her

problem. Sexist much?

I'm still struggling to get some thyroid tests done. I have 2 specialists who

think I should see an endo, but my primary care said no. I asked that he at

least do the test for hashimoto's, since an autoimmune problem like crohn's

often goes along with an autoimmune thyroid problem. Denied. I thought if I

pestered him enough, he would give in. But I've asked multiple times now, and

have given my long list of hypothyroid symptoms (ie. it's summer in Arizona, and

I'm cold all the time), and he says my thyroid is fine. How he knows that is a

mystery to me, because the only test he's run was the TSH and it was abnormally

high. I really want to throttle the man!!!

Holly

Crohn's

SCD 12/01/08

> >I can certainly understand why that doctor is no longer your PCP!

>

> Another thing that's interesting is how many

> women get dismissed with it being all in their

> heads, but the men get the full rigorous

> treatment. Though considering what some of the

> meds are like, mebbe us gals are occasionally lucky.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

can you leave him??? i'd be at a walk-in place or someplace real quick etc

requesting the appropriate thyroid tests which we all know will show you have a

prob - and then go back and throw them at him - yes I get fired up with dumb doc

stuff!!!

eileen

> > >I can certainly understand why that doctor is no longer your PCP!

> >

> > Another thing that's interesting is how many

> > women get dismissed with it being all in their

> > heads, but the men get the full rigorous

> > treatment. Though considering what some of the

> > meds are like, mebbe us gals are occasionally lucky.

> >

> >

> > — Marilyn

> > New Orleans, Louisiana, USA

> > Undiagnosed IBS since 1976, SCD since 2001

> > Darn Good SCD Cook

> > No Human Children

> > Shadow & Sunny Longhair Dachshund

> > Babette the Foundling Beagle

> >

>

[Guest guest]

I could leave him, but there's no guarantee the next doc will be any better. I

had a really good primary care for years, but he stopped taking my insurance

last year. Since then, I've had 2 bad docs, and it's such a hassle to change,

I'm not real excited about doing it for a third time in less then a year.

I'm going to ask my gyno to do the tests when I see her in November. If she

does, and they come back hypo (like I expect), I certainly do plan on throwing

the results in my docs face, right before filing a little ol' complaint :-).

I'd get the tests run myself, but ouch, they're expensive! Nothing I can afford

now or the foreseeable future :-(.

Holly

Crohn's

SCD 12/01/08

> >

> > I have a couple thoughts on this. One night/day my mom thought she was

having a heart attack, and I took her to the ER. The man in the cubicle next to

us was there for the same reason. Both my mom and the man's tests came back okay

(yes, I was nosy, but it's hard to help it when you're about a foot away). They

admitted the man for observation, " just to be safe, " even though it was

determined he probably just had a bad case of heartburn from something weird he

ate. They sent my mom home, even though they had no idea what caused her

problem. Sexist much?

> >

> > I'm still struggling to get some thyroid tests done. I have 2 specialists

who think I should see an endo, but my primary care said no. I asked that he at

least do the test for hashimoto's, since an autoimmune problem like crohn's

often goes along with an autoimmune thyroid problem. Denied. I thought if I

pestered him enough, he would give in. But I've asked multiple times now, and

have given my long list of hypothyroid symptoms (ie. it's summer in Arizona, and

I'm cold all the time), and he says my thyroid is fine. How he knows that is a

mystery to me, because the only test he's run was the TSH and it was abnormally

high. I really want to throttle the man!!!

> >

> > Holly

> > Crohn's

> > SCD 12/01/08

> >

[Guest guest]

have you heard of life extension ?they offer discounts on blood tests thru their

unique mail-order blood lab - i bought some suzanne somers books - all filled

with our type of docs and i get their info now

www.lifeextension.com/pricebreak gives a $25 year membership until 8/30/10 or

you can see what the tests cost without being a member - just saw endo today and

thank God both he and internist don't test just tsh which is ok again but low t3

still -back on i go

eileen

-

> > >

> > > I have a couple thoughts on this. One night/day my mom thought she was

having a heart attack, and I took her to the ER. The man in the cubicle next to

us was there for the same reason. Both my mom and the man's tests came back okay

(yes, I was nosy, but it's hard to help it when you're about a foot away). They

admitted the man for observation, " just to be safe, " even though it was

determined he probably just had a bad case of heartburn from something weird he

ate. They sent my mom home, even though they had no idea what caused her

problem. Sexist much?

> > >

> > > I'm still struggling to get some thyroid tests done. I have 2 specialists

who think I should see an endo, but my primary care said no. I asked that he at

least do the test for hashimoto's, since an autoimmune problem like crohn's

often goes along with an autoimmune thyroid problem. Denied. I thought if I

pestered him enough, he would give in. But I've asked multiple times now, and

have given my long list of hypothyroid symptoms (ie. it's summer in Arizona, and

I'm cold all the time), and he says my thyroid is fine. How he knows that is a

mystery to me, because the only test he's run was the TSH and it was abnormally

high. I really want to throttle the man!!!

> > >

> > > Holly

> > > Crohn's

> > > SCD 12/01/08

> > >

>

[Guest guest]

Thanks for the link, but it's still very pricey. $500 non-member, almost $400

member for the thyroid panel. Yikes! Hopefully come November, my gyno will be

willing to order the tests. Until then, I'll TRY to be patient, but boy, I've

certainly been irritable lately, and for no particular reason.

Holly

Crohn's

SCD 12/01/08

> >

> > I could leave him, but there's no guarantee the next doc will be any better.

I had a really good primary care for years, but he stopped taking my insurance

last year. Since then, I've had 2 bad docs, and it's such a hassle to change,

I'm not real excited about doing it for a third time in less then a year.

> >

> > I'm going to ask my gyno to do the tests when I see her in November. If she

does, and they come back hypo (like I expect), I certainly do plan on throwing

the results in my docs face, right before filing a little ol' complaint :-).

> >

> > I'd get the tests run myself, but ouch, they're expensive! Nothing I can

afford now or the foreseeable future :-(.

> >

> > Holly

> > Crohn's

> > SCD 12/01/08

> > > >

> >

>