Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 At 10:24 PM 7/28/2010, you wrote: I have a few thoughts and questions for the group: It's an interesting thought. The question is -- how would something like this be organized? I don't know. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2010 Report Share Posted July 28, 2010 The doctor (or researcher) would have to initiate the solicitation of study participants. Additionally, I don't know if samples sent through the mail could qualify for most legitimate research practices, as it would be quite easy to send fraudulent samples. Also, the researcher would need detailed medical records on each participant to verify that there is a "medical" condition which has been diagnosed, and I believe that in a research proposal write-up, most scientists would want to stick to one diagnosis as their research focus. Most likely, if such a study were to be conducted, the doctor would solicit patients with medical histories detailing a specific diagnosis. These patients would best come from a broad background, and would likely be invited to come in person to the hospital or institution where the research is taking place. The researchers would need to have thorough information on dietary practices, on going, in the form of some sort of diet diary, etc. The physical contact with researcher and participant would likely be ongoing. Thus, the group of study participants would likely come from a large urban area near the facility. This is all within the realm of possibility. The problem is that most gastroenterologists are so ignorant of diet!? It's infuriating. I have heard a Dr. Hoffman show (1 yr ago?), in which, his guest was a GI doc from the east coast who was about to publish a book regarding the diet and disease connection. He would be a perfect candidate to do such a study! I would love to see it! I'm sure we all would! I can't remember the GI doc's name! I think I might search around on google for that one! AMITo: BTVC-SCD From: LouisianaSCDLagniappe@...Date: Wed, 28 Jul 2010 22:33:33 -0500Subject: Re: SCD Scientific Study? At 10:24 PM 7/28/2010, you wrote: I have a few thoughts and questions for the group: It's an interesting thought. The question is -- how would something like this be organized? I don't know. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 I guess it is not SCD but Dr Ece Mutlu of Rush Univ is doing Clinical Trial  Dietary Treatment of Crohn's Disease. She might already be a member at another SCD yahoogroup… http://www.rush.edu/rumc/page-1144692715094.html I used to suggest to contact with http://www.ccfa.org/ as well.. Ozgur SCD 7 months. From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Amy brusca Sent: Thursday, July 29, 2010 8:31 AM To: btvc-scd Subject: RE: SCD Scientific Study? The doctor (or researcher) would have to initiate the solicitation of study participants. Additionally, I don't know if samples sent through the mail could qualify for most legitimate research practices, as it would be quite easy to send fraudulent samples. Also, the researcher would need detailed medical records on each participant to verify that there is a " medical " condition which has been diagnosed, and I believe that in a research proposal write-up, most scientists would want to stick to one diagnosis as their research focus. Most likely, if such a study were to be conducted, the doctor would solicit patients with medical histories detailing a specific diagnosis. These patients would best come from a broad background, and would likely be invited to come in person to the hospital or institution where the research is taking place. The researchers would need to have thorough information on dietary practices, on going, in the form of some sort of diet diary, etc. The physical contact with researcher and participant would likely be ongoing. Thus, the group of study participants would likely come from a large urban area near the facility. This is all within the realm of possibility. The problem is that most gastroenterologists are so ignorant of diet!? It's infuriating. I have heard a Dr. Hoffman show (1 yr ago?), in which, his guest was a GI doc from the east coast who was about to publish a book regarding the diet and disease connection. He would be a perfect candidate to do such a study! I would love to see it! I'm sure we all would! I can't remember the GI doc's name! I think I might search around on google for that one! AMI To: BTVC-SCD From: LouisianaSCDLagniappe@... Date: Wed, 28 Jul 2010 22:33:33 -0500 Subject: Re: SCD Scientific Study? At 10:24 PM 7/28/2010, you wrote: I have a few thoughts and questions for the group: It's an interesting thought. The question is -- how would something like this be organized? I don't know. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy. Fethiye Mahallesi Havacılık Bulvarı No:17 06980 Kazan Ankara Türkiye Tel: (0312) 811 18 00 (pbx)Faks: (0312) 811 14 25 www.tai.com.tr "Bu mesaj ve ekleri mesajda gönderildiği belirtilen kişi ya da kişilere özel olup gizli bilgiler içeriyor olabilir. Mesajın muhatabı ilgilisi ya da gönderileni değilseniz lütfen mesajı herhangi bir şekilde kullanmayınız çoğaltmayınız ve başkalarına ifşa etmeyiniz. Eğer mesaj yanlışlıkla size ulaşmışsa anılan mesaj ve ekinde yer alan bilgileri gizli tutunuz ve mesajı gönderen kişiyi bilgilendirerek söz konusu mesaj ile eklerini derhal imha ediniz. Bu mesaj ve ekindeki belgelerin bilinen virüslere karşı kontrolü yapılmıştır. Ancak e-posta sistemlerinin taşıdığı risklerden dolayı şirketimiz bu mesajın ve içerdiği bilgilerin size değişikliğe uğrayarak veya geç ulaşmasından bütünlüğünün ve gizliliğinin korunamamasından virüs içermesinden ve herhangi bir sebeple bilgisayarınıza ve sisteminize verebileceği zararlardan sorumlu tutulamaz.Şirketimiz hakkında bilgi almak için lütfen web sitemizi ziyaret ediniz. (http://www.tai.com.tr)”Fethiye Mh. Havacilik Blv. No:17 06980 Kazan Ankara Turkey Tel: (90312) 811 18 00 (pbx)Fax: (90312) 811 14 25 www.tai.com.tr“This message together with its attachments is intended solely for the address(es) and may contain confidential or privileged information. If you are not the intended recipient please do not use copy or disclose the message for any purpose. Should you receive this message by mistake please keep all information contained in the message or its attachments strictly confidential and advise the sender and delete it immediately without retaining a copy. This message and its attachments have been swept by anti-virus systems for the presence of known viruses. However due to the risks of e-mail systems our company cannot accept liability for any changes or delay in receiving loss of integrity and confidentiality containing viruses and any damages caused in any way to your computer and system. To get information about our company please visit our web site. (http://www.tai.com.tr)” Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2010 Report Share Posted July 31, 2010 It seems so incredibly logical to do this…but then logic seems to be a lost art these days… I would love to know how “normal” vs. UC poop compares! BTW Marilyn…how do you set up your closing where you sign your name? I am tired of always typing the same info. and know there MUST be an easier way. Thanks! Eileen Eileen Cawood email: parvus@... From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Wizop Marilyn L. Alm Sent: Wednesday, July 28, 2010 11:34 PM To: BTVC-SCD Subject: Re: SCD Scientific Study? At 10:24 PM 7/28/2010, you wrote: I have a few thoughts and questions for the group: It's an interesting thought. The question is -- how would something like this be organized? I don't know. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2010 Report Share Posted July 31, 2010 At 01:17 PM 7/31/2010, you wrote: BTW Marilyn…how do you set up your closing where you sign your name? I am tired of always typing the same info. and know there MUST be an easier way. I use a mail program, called Eudora, which lets me create a signature that goes automatically on any mail. (And create different signatures for different kinds of mail.) The best thing I can suggest is to type what you what to use in a text file and save it under " signature " or something, then have it open, and copy and paste it to your messages. I haven't yet found a way to do it automagically from Yahoo. If anyone knows of a way, please let ALL of us know! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.