Thanks

[Guest guest]

I was at wits end and got some advice here and on other boards.

No longer sure what to do next people told me biopsies may be the

only thing left. Rather than recruit yet another 'ologist' I decided to

go see an oral surgeon to find out whether he'd biopsy a salivary

gland. To my surprise he agreed and insisted on biopsying more than

the gland I'd noticed as problematic.

They said I didn't salivate at all during the procedure and noted on

extraction the upper gland was oddly 'granular'. Results are yet to

come back and there's no guarantee they'll find Sjogrens or granulomas

even if they are there but if they are I'll have saved myself a whole

lot of money, time, and trouble. Should the result be positive I'll likely

get a lot less resistance from doctors getting the lung biopsy as well.

In any case I feel like things are moving again after being stuck with

no idea what to do. Thanks to those whose input helped me get past

that.

If it's positive though I'm going to be quite irritated with the doctor

who turned down my request for the gland biopsy insisting on five

figures worth of CTs and PETs at my expense instead. lol

Cheers,

Darrin

[Guest guest]

,

So sorry you are feeling down. But don't worry too hard about

having bad days, or flares. We all do. Sometimes the bad days are

totally mysterious as to origin, and the flares we just have to think of

as progress. Not fun at the time but we come out the other side doing

better. As you said, this flare is nothing compared to your onset

of problems. That's progress!

Hang in there!

Hi All,

I don't think I am hitting the correct " reply " so I

apologize if this message is posting the wrong way (still trying to learn

this thing)...

I appreciate your input re: blood sugar. I had not thought about the

honey but that makes so much sense!

I think I spoke too soon about how well I am tolerating everything.

:-(

I had a really hard day today (stress) + my level of prednisone

decreased and I ate almond flour last night...I ended up in a lot of

pain.

So, I am making the chicken soup and going to try and start back with

intro diet.

I feel discouraged.

This flare is nothing compared to the profound onset back in 2001.

But it is the first time I have had to deal with anything crohn's related

in 7 years.

I feel alone and overwhelmed.

Thanks for your support