Re: Getting Frustrated with no progess

[Guest guest]

how old is your son and has the head grown at all?

Getting Frustrated with no progess

My son has had a Hanger Helmet for about 4 months now. He was 7 months old when we first got it. He started out with a difference of 20 mm and after 6 weeks it went down to 13 mm. After the 6 week measurement that has not been any progress. I am really getting frustrated and want to take the helmet off but I want his head to round out so bad. His ears are still misaligned. I keep telling my self that we just need another growth spurt but when will that be. Has anyone put a helmet on their child and not received the results you were looking for? I definitely don't want to do an second band. The main reason is we can't afford it because insurance has't and will not pay for the first helmet. Please help.

[Guest guest]

Has the circumference grown in that time and just not the asym?

Has the band been adjusted along the way?

I would wonder if the band is acting more like a passive band if there

is no change in that length of time. Obviously, when you will have

change is during a growth spurt... and growth slows as the baby gets

older.

I understand that you don't want to go for a 2nd band if it is our of

pocket... that is alot. But I am surprised that the baby has not

outgrown the band in 4 months.

Jen

Mom to Luli - 3 yrs old

Torticollis, Plagio, Syringomyelia

Getting Frustrated with no progess

My son has had a Hanger Helmet for about 4 months now. He was 7

months old when we first got it. He started out with a difference of

20 mm and after 6 weeks it went down to 13 mm. After the 6 week

measurement that has not been any progress. I am really getting

frustrated and want to take the helmet off but I want his head to round

out so bad. His ears are still misaligned. I keep telling my self

that we just need another growth spurt but when will that be. Has

anyone put a helmet on their child and not received the results you

were looking for? I definitely don't want to do an second band. The

main reason is we can't afford it because insurance has't and will not

pay for the first helmet. Please help.

[Guest guest]

He is now 11 months old. I think the last time the ortho measured the size of

his head and it increased by 5 cm. That's why I don't understand why his head

isn't rounding out like it should. The ortho keeps saying that we need the

growth spurt that we had in the beginning but if I remember right his head only

increased by 6 cm at that time. Sometimes I wonder if we should find a

different ortho.

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> how old is your son and has the head grown at all?

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> Ticker id: IvP3   Ticker id: yZZP     Ticker id: lFno

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> Getting Frustrated with no progess

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> My son has had a Hanger Helmet for about 4 months now. He was 7 months old

when we first got it. He started out with a difference of 20 mm and after 6

weeks it went down to 13 mm. After the 6 week measurement that has not been any

progress. I am really getting frustrated and want to take the helmet off but I

want his head to round out so bad. His ears are still misaligned. I keep telling

my self that we just need another growth spurt but when will that be. Has anyone

put a helmet on their child and not received the results you were looking for? I

definitely don't want to do an second band. The main reason is we can't afford

it because insurance has't and will not pay for the first helmet. Please help.

>

[Guest guest]

Yes the last time he was measured his head grew 5 cm but there was no change in

the asym. We were there last Friday and he heated the helmet up and expanded

the back of it because he said doing that would make it last longer. I think he

is starting to grow out of it and the ortho just made more room to give him more

time in the helmet. Each time we go back he shaves off some in the key spots.

, my son, has a lot of hair right now so you really can't tell where the

flat spot is unless you sit him in front of a mirror and it doesn't look like

the helmet has helped much at all.

>

> Has the circumference grown in that time and just not the asym?

> Has the band been adjusted along the way?

> I would wonder if the band is acting more like a passive band if there

> is no change in that length of time. Obviously, when you will have

> change is during a growth spurt... and growth slows as the baby gets

> older.

> I understand that you don't want to go for a 2nd band if it is our of

> pocket... that is alot. But I am surprised that the baby has not

> outgrown the band in 4 months.

>

> Jen

> Mom to Luli - 3 yrs old

> Torticollis, Plagio, Syringomyelia

>

> Getting Frustrated with no progess

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> My son has had a Hanger Helmet for about 4 months now. He was 7

> months old when we first got it. He started out with a difference of

> 20 mm and after 6 weeks it went down to 13 mm. After the 6 week

> measurement that has not been any progress. I am really getting

> frustrated and want to take the helmet off but I want his head to round

> out so bad. His ears are still misaligned. I keep telling my self

> that we just need another growth spurt but when will that be. Has

> anyone put a helmet on their child and not received the results you

> were looking for? I definitely don't want to do an second band. The

> main reason is we can't afford it because insurance has't and will not

> pay for the first helmet. Please help.

>

[Guest guest]

My son got his band when he was 6.5 months old. He got some great

correction the first 5 weeks in the band and then his growth really slowed

down - only improved by 1 mm over a 9 week period. Like you, I was ready to

give up. However, I stuck it out and he had another growth spurt and

improved by a couple more mm. Has the circumference in his head been

changing much? If there hasn't been growth there then perhaps you are due

for another growth spurt soon.

Molly

Novato, California

Nicolas, 4, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 6.5

, 10

Getting Frustrated with no progess

My son has had a Hanger Helmet for about 4 months now. He was 7 months

old when we first got it. He started out with a difference of 20 mm and

after 6 weeks it went down to 13 mm. After the 6 week measurement that has

not been any progress. I am really getting frustrated and want to take the

helmet off but I want his head to round out so bad. His ears are still

misaligned. I keep telling my self that we just need another growth spurt

but when will that be. Has anyone put a helmet on their child and not

received the results you were looking for? I definitely don't want to do an

second band. The main reason is we can't afford it because insurance has't

and will not pay for the first helmet. Please help.

------------------------------------

For more plagio info

[Guest guest]

I'm assuming that you mean mm rather than cm. Growth in babies tends to occur more at that level. Are these hand measurements or computer scans?

I would be concerned about 5 mm of growth without any kind of change. Have you seen other kind of change besides the daigonal differences? The STARband computer scans show overall symmetry in the volume of the head, but I'm not sure what the Hanger scans show. What does the ortho say about the lack of change with 5 mm?

Getting Frustrated with no progess > > Â > > > > > My son has had a Hanger Helmet for about 4 months now. He was 7 months old when we first got it. He started out with a difference of 20 mm and after 6 weeks it went down to 13 mm. After the 6 week measurement that has not been any progress. I am really getting frustrated and want to take the helmet off but I want his head to round out so bad. His ears are still misaligned. I keep telling my self that we just need another growth spurt but when will that be. Has anyone put a helmet on their child and not received the results you were looking for? I definitely don't want to do an second band. The main reason is we can't afford it because insurance has't and will not pay for the first helmet. Please help.>