off meds

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Dawn, which meds were you on? Did you taper off them or stop suddenly? This must be a discouraging situation for you.Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: dawnschwartz@...Date: Sat, 5 Jun 2010 11:56:36 -0700Subject: Re: Atheist Holy DayI agree as well- we are all here to find support and should be willing to give it back as well. We can have differences of opinion, but we need to remember to treat others with respect. If you disagree with something that's posted, simply delete it. Our uniqueness and individuality are what make life so interesting- it would be sooo boring if we were all the same. We are all here because of a terrible illness, and need to look to each other for support- and hopefully some joy as well! I hope this finds you all well... I have just been weaned off all my meds because they were killing my liver, so back to square one for me. Take care! Dawn from NYTo: Neurosarcoidosis Sent: Sat, June 5, 2010 2:23:03 PMSubject: Re: Atheist Holy Day  AMEN, AMEN, TRACIE...... ...AND WELL SAID! I STAND BEHIND YOU 100%.IF ALL OF YOU ONLY KNEW WHAT TRACIE AND I HAVE BEEN THROUGHKEEPING THIS LIST STRONG WITH ALL THAT COULD GO WRONG, YOU WOULD NOT BELIEVE IT. I HAD THE FIRST SARCOIDOSIS LIST ON YAHOOWITH OVER 300 MEMBERS AND THE MEMBERS FOUGHT ALL THE TIME OVER EVERY LITTLE THING, BUT MOSTLY RELIGION! I FINALLY HAD HADENOUGH AND HAD TO DELETE IT ! IT WAS MAKING ME ILL. SO........ASTRAICE SAID, LIGHTEN UP AND LET'S ENJOY LIFE AS MUCH AS WE CAN. SINCERELY,DARLENENS Co-Owner/Moderator Atheist Holy DayTo: neurosarcoidosis@ yahoogroups. com, " Bettis" , Robosan (AT) sbcglobal (DOT) net, "Skot Stribolt" <Skotsteven@sbcgloba l.net>, "June Wittwer" <mzwitt01 (AT) yahoo (DOT) com>, "Steve and Sue Kirkwold" <iphoto (AT) comcast (DOT) net>Date: Saturday, June 5, 2010, 1:19 AM This is excellent !! Florida Court Sets Atheist Holy Day! Gotta love this Judge! You must read this.......a proper decision by the courts...for a change. FLORIDA COURT SETS ATHEIST HOLY DAY In Florida , an atheist created a case against Easter and Passover Holy days. He hired an attorney to bring a discrimination case against Christians and Jews and observances of their holy days. The argument was that it was unfair that atheists had no such recognized days. The case was brought before a judge. After listening to the passionate presentation by the lawyer, the judge banged his gavel declaring,"Case dismissed!" The lawyer immediately stood objecting to the ruling saying, "Your honor, How can you possibly dismiss this case? The Christians have Christmas, Easter and others. The Jews have Passover, Yom Kippur and Hanukkah, yet my client and all other atheists have no such holidays.." The judge leaned forward in his chair saying, "But you do. Your client, counsel, is woefully ignorant." The lawyer said, "Your Honor, we are unaware of any special observance or holiday for atheists." The judge said, "The calendar says April 1st is April Fools Day. Psalm 14:1 states, 'The fool says in his heart, there is no God.' Thus, it is the opinion of this court, that, if your client says there is no God, then he is a fool. Therefore, April 1st is his day. Court is ad jo urned.."; You gotta love a Judge that knows his scripture! This is too good not to forward Aspire to Inspire before you Expire Aging is not Optional Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how.

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Rose,

I was on high dose pred, methotrexate, and plaquenil. At one point cellcept too. I weaned off the pred gradually. I see my pulm doc in 2 weeks, and my neuro as well. This is my 2nd neurologist, and this one "doesn't think the multifocal lesions in my brain are sarcoid...perhaps an extendedmigraine with vascular effects". Is he joking??? A migraine every single day 24/7 for over 1 1/2 years?!? And lots of unexplained brain lesions (I was a previously healthy 40 year old), L sided facial paralysis that went away with 80mg of pred/day, constant fatigue, and biopsy proven sarcoid with HUGE hilar lymph nodes...UGH...Why is it so hard for us to get the care we need? My pulmonologist and the neuroradiologist agree that it is neurosarc, but the neuro docs are so reluctant to get involved...it is just crazy. I may have to go try a 3rd neuro doc. I am getting increasingly discouraged. Sorry to be such a downer- I haven't posted lately because I don't want to

drag you all down with me. Hugs to all!

Dawn

To: neurosarcoidosis Sent: Sat, June 5, 2010 7:16:02 PMSubject: off meds

Dawn, which meds were you on? Did you taper off them or stop suddenly? This must be a discouraging situation for you.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis@ yahoogroups. comFrom: dawnschwartz@ verizon.netDate: Sat, 5 Jun 2010 11:56:36 -0700Subject: Re: Atheist Holy Day

I agree as well- we are all here to find support and should be willing to give it back as well. We can have differences of opinion, but we need to remember to treat others with respect. If you disagree with something that's posted, simply delete it. Our uniqueness and individuality are what make life so interesting- it would be sooo boring if we were all the same. We are all here because of a terrible illness, and need to look to each other for support- and hopefully some joy as well! I hope this finds you all well... I have just been weaned off all my meds because they were killing my liver, so back to square one for me. Take care!

Dawn from NY

To: Neurosarcoidosis@ yahoogroups. comSent: Sat, June 5, 2010 2:23:03 PMSubject: Re: Atheist Holy Day  AMEN, AMEN, TRACIE...... ...AND WELL SAID! I STAND BEHIND YOU 100%.

IF ALL OF YOU ONLY KNEW WHAT TRACIE AND I HAVE BEEN THROUGH

KEEPING THIS LIST STRONG WITH ALL THAT COULD GO WRONG, YOU

WOULD NOT BELIEVE IT. I HAD THE FIRST SARCOIDOSIS LIST ON YAHOO

WITH OVER 300 MEMBERS AND THE MEMBERS FOUGHT ALL THE TIME

OVER EVERY LITTLE THING, BUT MOSTLY RELIGION! I FINALLY HAD HAD

ENOUGH AND HAD TO DELETE IT ! IT WAS MAKING ME ILL. SO........AS

TRAICE SAID, LIGHTEN UP AND LET'S ENJOY LIFE AS MUCH AS WE CAN.

SINCERELY,

DARLENE

NS Co-Owner/Moderator

Atheist Holy DayTo: neurosarcoidosis@ yahoogroups. com, " Bettis" , Robosan (AT) sbcglobal (DOT) net, "Skot Stribolt" <Skotsteven@sbcgloba l.net>, "June Wittwer" <mzwitt01 (AT) yahoo (DOT) com>, "Steve and Sue Kirkwold" <iphoto (AT) comcast (DOT) net>Date: Saturday, June 5, 2010, 1:19 AM

This is excellent !!

Florida Court Sets Atheist Holy Day!

Gotta love this Judge!

You must read this.......a proper decision by the courts...for a change.

FLORIDA COURT SETS ATHEIST HOLY DAY

In Florida , an atheist created a case against Easter and Passover Holy days. He hired an attorney to bring a discrimination case against Christians and Jews and observances of their holy days. The argument was that it was unfair that atheists had no such recognized days.

The case was brought before a judge. After listening to the passionate presentation by the lawyer, the judge banged his gavel declaring,"Case dismissed!"

The lawyer immediately stood objecting to the ruling saying, "Your honor, How can you possibly dismiss this case? The Christians have Christmas, Easter and others. The Jews have Passover, Yom Kippur and Hanukkah, yet my client and all other atheists have no such holidays.."

The judge leaned forward in his chair saying, "But you do. Your client, counsel, is woefully ignorant."

The lawyer said, "Your Honor, we are unaware of any special observance or holiday for atheists."

The judge said, "The calendar says April 1st is April Fools Day. Psalm 14:1 states, 'The fool says in his heart, there is no God.' Thus, it is the opinion of this court, that, if your client says there is no God, then he is a fool. Therefore, April 1st is his day. Court is ad jo urned.."; You gotta love a Judge that knows his scripture! This is too good not to forward

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[Guest guest]

Hello Dawn, Please don't think your troubles would be a burden. On the contrary, every time any of us post aboutour issues is a chance for others to feel good in helping, or for someone with similar issues to know theyare not alone. Either is a gift, as are you! Cheers,Darrin To: Neurosarcoidosis From: dawnschwartz@...Date: Sat, 5 Jun 2010 16:34:17 -0700Subject: Re: off meds Rose,I was on high dose pred, methotrexate, and plaquenil. At one point cellcept too. I weaned off the pred gradually. I see my pulm doc in 2 weeks, and my neuro as well. This is my 2nd neurologist, and this one "doesn't think the multifocal lesions in my brain are sarcoid...perhaps an extendedmigraine with vascular effects". Is he joking??? A migraine every single day 24/7 for over 1 1/2 years?!? And lots of unexplained brain lesions (I was a previously healthy 40 year old), L sided facial paralysis that went away with 80mg of pred/day, constant fatigue, and biopsy proven sarcoid with HUGE hilar lymph nodes...UGH...Why is it so hard for us to get the care we need? My pulmonologist and the neuroradiologist agree that it is neurosarc, but the neuro docs are so reluctant to get involved...it is just crazy. I may have to go try a 3rd neuro doc. I am getting increasingly discouraged. Sorry to be such a downer- I haven't posted lately because I don't want to drag you all down with me. Hugs to all! DawnFrom: Rose <mamadogrose (AT) hotmail (DOT) com>To: neurosarcoidosis Sent: Sat, June 5, 2010 7:16:02 PMSubject: off meds Dawn, which meds were you on? Did you taper off them or stop suddenly? This must be a discouraging situation for you.Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis@ yahoogroups. comFrom: dawnschwartz@ verizon.netDate: Sat, 5 Jun 2010 11:56:36 -0700Subject: Re: Atheist Holy DayI agree as well- we are all here to find support and should be willing to give it back as well. We can have differences of opinion, but we need to remember to treat others with respect. If you disagree with something that's posted, simply delete it. Our uniqueness and individuality are what make life so interesting- it would be sooo boring if we were all the same. We are all here because of a terrible illness, and need to look to each other for support- and hopefully some joy as well! I hope this finds you all well... I have just been weaned off all my meds because they were killing my liver, so back to square one for me. Take care! Dawn from NYTo: Neurosarcoidosis@ yahoogroups. comSent: Sat, June 5, 2010 2:23:03 PMSubject: Re: Atheist Holy Day  AMEN, AMEN, TRACIE...... ...AND WELL SAID! I STAND BEHIND YOU 100%.IF ALL OF YOU ONLY KNEW WHAT TRACIE AND I HAVE BEEN THROUGHKEEPING THIS LIST STRONG WITH ALL THAT COULD GO WRONG, YOU WOULD NOT BELIEVE IT. I HAD THE FIRST SARCOIDOSIS LIST ON YAHOOWITH OVER 300 MEMBERS AND THE MEMBERS FOUGHT ALL THE TIME OVER EVERY LITTLE THING, BUT MOSTLY RELIGION! I FINALLY HAD HADENOUGH AND HAD TO DELETE IT ! IT WAS MAKING ME ILL. SO........ASTRAICE SAID, LIGHTEN UP AND LET'S ENJOY LIFE AS MUCH AS WE CAN. SINCERELY,DARLENENS Co-Owner/Moderator Atheist Holy DayTo: neurosarcoidosis@ yahoogroups. com, " Bettis" , Robosan (AT) sbcglobal (DOT) net, "Skot Stribolt" <Skotsteven@sbcgloba l.net>, "June Wittwer" <mzwitt01 (AT) yahoo (DOT) com>, "Steve and Sue Kirkwold" <iphoto (AT) comcast (DOT) net>Date: Saturday, June 5, 2010, 1:19 AM This is excellent !! Florida Court Sets Atheist Holy Day! Gotta love this Judge! You must read this.......a proper decision by the courts...for a change. FLORIDA COURT SETS ATHEIST HOLY DAY In Florida , an atheist created a case against Easter and Passover Holy days. He hired an attorney to bring a discrimination case against Christians and Jews and observances of their holy days. The argument was that it was unfair that atheists had no such recognized days. The case was brought before a judge. After listening to the passionate presentation by the lawyer, the judge banged his gavel declaring,"Case dismissed!" The lawyer immediately stood objecting to the ruling saying, "Your honor, How can you possibly dismiss this case? The Christians have Christmas, Easter and others. The Jews have Passover, Yom Kippur and Hanukkah, yet my client and all other atheists have no such holidays.." The judge leaned forward in his chair saying, "But you do. Your client, counsel, is woefully ignorant." The lawyer said, "Your Honor, we are unaware of any special observance or holiday for atheists." The judge said, "The calendar says April 1st is April Fools Day. Psalm 14:1 states, 'The fool says in his heart, there is no God.' Thus, it is the opinion of this court, that, if your client says there is no God, then he is a fool. Therefore, April 1st is his day. Court is ad jo urned.."; You gotta love a Judge that knows his scripture! This is too good not to forward Aspire to Inspire before you Expire Aging is not Optional Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how.