Re: SCD - Intestinal Endometriosis

[Guest guest]

Did a Dr. suggest Intestinal Endometriosis? I've not heard of it but it certainly seems possible. Do you know what the ovarian abcess is due to? Is it a cyst and if so what kind? Have you had a OB-GYN pelvic exam and a C-125 blood test (for ovarian cancer)? I've had 20 yrs history of polycystic ovaries, primarily the right ovary. Similiarly, when I have had a flare of diarrhea, either testing a new food or inadvertantly eating something illegal, I'd also get low pelvic, predominately right side, and low back pain. I have been receiving some visceral manipulations on the pelvic area, low abdomen and low back, in an effort to reduce any adhesions which have formed due to the chronic inflammation from the PCO/IBS/Leaky Gut/CD. This has helped a great deal along with being as clean as possible with SCD. I am also

perimenopausal which doesn't help things, as I use to use transdermal 10% RX of Natural Progesterone which really kept my pelvic pain quiet for many years. This doesn't work for me now as my hormone balance has changed considerably in the past 2 years. The ovarian pain, which is now less intense, but can show up between ovulation and menses onset, then it diminishes. Can you track when you get the pain, repeatedly time of your cycle? I hope this helps. Maureen

[Guest guest]

No, I have done a lot of research on possibilities over the past year and a

half. The abscess was due to a large cyst that went away but the abscess seems

to remain? Yes, I have every single test under the sun. And my pain is

constant, it doesn't stop for any reason. It seems to feel worse when I am

sitting, I notice it more. And my bowels are loose every day, no matter what I

eat. Have been strict SCD since April 2010. My colonoscopy last November was

unremarkable, no active Crohn's (YAY!) and I just had another one done by my

current doctor and will find out the biopsy results on the 30th. He is ready to

discuss surgery if he doesn't see anything (have recently been through a few

pelvic ultrasounds,an MRI, a CAT scan, camera capsule endoscopy, and

colonoscopy). I am tired...sick and tired.

>

> Did a Dr. suggest Intestinal Endometriosis?  I've not heard of it but it

certainly seems possible.  Do you know what the ovarian abcess is due to? Is it

a cyst and if so what kind? Have you had a OB-GYN pelvic exam and a C-125 blood

test (for ovarian cancer)? I've had 20 yrs history of polycystic ovaries,

primarily the right ovary. 

> Similiarly, when I have had a flare of diarrhea, either testing a new food or

inadvertantly eating something illegal, I'd also get low pelvic, predominately

right side, and low back pain. I have been receiving some visceral manipulations

on the pelvic area, low abdomen and low back, in an effort to reduce any

adhesions which have formed due to the chronic inflammation from the

PCO/IBS/Leaky Gut/CD. This has helped a great deal along with being as clean as

possible with SCD.  I am also perimenopausal which doesn't help things, as I use

to use transdermal 10% RX of Natural Progesterone which really kept my pelvic

pain quiet for many years. This doesn't work for me now as my hormone balance

has changed considerably in the past 2 years. The ovarian pain, which is now

less intense, but can show up between ovulation and menses onset, then it

diminishes. Can you track when you get the pain, repeatedly time of your cycle?

 I hope this helps. Maureen

>

[Guest guest]

This may sound out there but have you tried an anti-candida version of SCD?

Candida has caused so many of my symptoms, especially the female problems. An

anti-candida version of SCD has resolved most of them.

Dawn

> >

> > Did a Dr. suggest Intestinal Endometriosis?  I've not heard of it but it

certainly seems possible.  Do you know what the ovarian abcess is due to? Is it

a cyst and if so what kind? Have you had a OB-GYN pelvic exam and a C-125 blood

test (for ovarian cancer)? I've had 20 yrs history of polycystic ovaries,

primarily the right ovary. 

> > Similiarly, when I have had a flare of diarrhea, either testing a new food

or inadvertantly eating something illegal, I'd also get low pelvic,

predominately right side, and low back pain. I have been receiving some visceral

manipulations on the pelvic area, low abdomen and low back, in an effort to

reduce any adhesions which have formed due to the chronic inflammation from the

PCO/IBS/Leaky Gut/CD. This has helped a great deal along with being as clean as

possible with SCD.  I am also perimenopausal which doesn't help things, as I use

to use transdermal 10% RX of Natural Progesterone which really kept my pelvic

pain quiet for many years. This doesn't work for me now as my hormone balance

has changed considerably in the past 2 years. The ovarian pain, which is now

less intense, but can show up between ovulation and menses onset, then it

diminishes. Can you track when you get the pain, repeatedly time of your cycle?

 I hope this helps. Maureen

> >

>

[Guest guest]

I

ended up dealing with intestinal endometriosis, it was suspected before I went

into surgery, so I was warned I might need a resection. Fortunately that

wasn’t the case, although my doctors told me there was extensive scarring

on my descending colon so I might have problems in the future. In my case,

the pelvic ultrasound indicated the source of the severe pelvic pain I

developed and the pelvic MRI confirmed it, it was a large and possibly

malignant ovarian cyst that caused extensive endometriosis, fibroids,

etc. I was rushed into surgery and had a complete hysterectomy and double

oopherectomy. So I was cleaned out! Fortunately the cyst hadn’t

become malignant in the sense of cancerous, but my gynecologist said it was

still malignant in the sense it made me quite ill. And that it did.

All

this occurred a month after my digestive disorder diagnosis, and two weeks

after my ERCP with sphincterotomy. I was lucky not to have a ruptured

ovarian cyst, apparently. At the time I felt too sick to care or worry

about it too much. Just wanted the surgery over with. But I

recovered eventually and now realize how sick I’d been for years from the

ovarian cysts (diagnosed with PCOS in my teens).

I

realize this doesn’t help you much, but I wanted to reassure you that

sometimes surgery ends up being the right course of action. And although

the abdominal surgery is tough, and takes time to recover from, eventually you

feel terrific and your body returns to health.

I

just wish my digestive disorder had disappeared with the hysterectomy as well

[sigh]. Unfortunately I still have chronic symptoms, but thanks to SCD I

can keep them minimal.

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

[Guest guest]

I am sure I will feel better after surgery and if my digestive problems still

remain, I will be trying an anti-candida diet.

>

> I ended up dealing with intestinal endometriosis, it was suspected before I

> went into surgery, so I was warned I might need a resection. Fortunately

> that wasn't the case, although my doctors told me there was extensive

> scarring on my descending colon so I might have problems in the future. In

> my case, the pelvic ultrasound indicated the source of the severe pelvic

> pain I developed and the pelvic MRI confirmed it, it was a large and

> possibly malignant ovarian cyst that caused extensive endometriosis,

> fibroids, etc. I was rushed into surgery and had a complete hysterectomy

> and double oopherectomy. So I was cleaned out! Fortunately the cyst hadn't

> become malignant in the sense of cancerous, but my gynecologist said it was

> still malignant in the sense it made me quite ill. And that it did.

>

>

>

> All this occurred a month after my digestive disorder diagnosis, and two

> weeks after my ERCP with sphincterotomy. I was lucky not to have a ruptured

> ovarian cyst, apparently. At the time I felt too sick to care or worry

> about it too much. Just wanted the surgery over with. But I recovered

> eventually and now realize how sick I'd been for years from the ovarian

> cysts (diagnosed with PCOS in my teens).

>

>

>

> I realize this doesn't help you much, but I wanted to reassure you that

> sometimes surgery ends up being the right course of action. And although

> the abdominal surgery is tough, and takes time to recover from, eventually

> you feel terrific and your body returns to health.

>

>

>

> I just wish my digestive disorder had disappeared with the hysterectomy as

> well [sigh]. Unfortunately I still have chronic symptoms, but thanks to SCD

> I can keep them minimal.

>

>

>

> Kim M.

>

> SCD 6 years

>

> Sphincter of Oddi dysfunction 6+ years

>

> neurological & spinal deterioration 3+ years

>

[Guest guest]

I think I am going to try a strict anti-candida diet for a couple of weeks and

see what happens...this will not be fun! I love my honey and hot tea.

> > >

> > > Did a Dr. suggest Intestinal Endometriosis?  I've not heard of it but it

certainly seems possible.  Do you know what the ovarian abcess is due to? Is it

a cyst and if so what kind? Have you had a OB-GYN pelvic exam and a C-125 blood

test (for ovarian cancer)? I've had 20 yrs history of polycystic ovaries,

primarily the right ovary. 

> > > Similiarly, when I have had a flare of diarrhea, either testing a new food

or inadvertantly eating something illegal, I'd also get low pelvic,

predominately right side, and low back pain. I have been receiving some visceral

manipulations on the pelvic area, low abdomen and low back, in an effort to

reduce any adhesions which have formed due to the chronic inflammation from the

PCO/IBS/Leaky Gut/CD. This has helped a great deal along with being as clean as

possible with SCD.  I am also perimenopausal which doesn't help things, as I use

to use transdermal 10% RX of Natural Progesterone which really kept my pelvic

pain quiet for many years. This doesn't work for me now as my hormone balance

has changed considerably in the past 2 years. The ovarian pain, which is now

less intense, but can show up between ovulation and menses onset, then it

diminishes. Can you track when you get the pain, repeatedly time of your cycle?

 I hope this helps. Maureen

> > >

> >

>

[Guest guest]

At 10:23 AM 6/15/2010, you wrote:

I think I am going to try a

strict anti-candida diet for a couple of weeks and see what

happens...this will not be fun! I love my honey and hot

tea.

It ain't easy, but you can learn to drink tea black, hot or

cold.

I used to like my cold tea dressed with lemon and honey.

And my hot tea with lots of cream and sugar or honey.

It's been 30 years since I had it that way....

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

What were your symptoms that made them believe you had intestinal endometriosis?

>

> I ended up dealing with intestinal endometriosis, it was suspected before I

> went into surgery, so I was warned I might need a resection. Fortunately

> that wasn't the case, although my doctors told me there was extensive

> scarring on my descending colon so I might have problems in the future. In

> my case, the pelvic ultrasound indicated the source of the severe pelvic

> pain I developed and the pelvic MRI confirmed it, it was a large and

> possibly malignant ovarian cyst that caused extensive endometriosis,

> fibroids, etc. I was rushed into surgery and had a complete hysterectomy

> and double oopherectomy. So I was cleaned out! Fortunately the cyst hadn't

> become malignant in the sense of cancerous, but my gynecologist said it was

> still malignant in the sense it made me quite ill. And that it did.

>

>

>

> All this occurred a month after my digestive disorder diagnosis, and two

> weeks after my ERCP with sphincterotomy. I was lucky not to have a ruptured

> ovarian cyst, apparently. At the time I felt too sick to care or worry

> about it too much. Just wanted the surgery over with. But I recovered

> eventually and now realize how sick I'd been for years from the ovarian

> cysts (diagnosed with PCOS in my teens).

>

>

>

> I realize this doesn't help you much, but I wanted to reassure you that

> sometimes surgery ends up being the right course of action. And although

> the abdominal surgery is tough, and takes time to recover from, eventually

> you feel terrific and your body returns to health.

>

>

>

> I just wish my digestive disorder had disappeared with the hysterectomy as

> well [sigh]. Unfortunately I still have chronic symptoms, but thanks to SCD

> I can keep them minimal.

>

>

>

> Kim M.

>

> SCD 6 years

>

> Sphincter of Oddi dysfunction 6+ years

>

> neurological & spinal deterioration 3+ years

>

[Guest guest]

If you are going to be strict about the candida diet for awhile, honey

isn't going to be on it.

I think I am going to try a strict anti-candida diet for a couple of

weeks and see what happens...this will not be fun! I love my honey and

hot tea.

[Guest guest]

Hi Kim,Diagnosising what's causing the pain is a very tricky event. Thanks for sharing this website, it's really informative and a must read for women!http://www.endo- resolved. com/symptoms. html The website mentions the increase in estrogen (which is why I was on the natural progesterone - for unmatched estrogen dominance - which greatly helped the pain from PCOS). It's interesting they recommend the anti candida diet but suggest so many grains (that's unusual for anticandida) and obviously not legal for SCD, but we know how to adapt this one. The information on prostaglandins is very helpful to me at this time, because I've been majorly craving the fats in cheddar cheese, eggs and nuts, which are the bad girls. Now I know to take more of the good girls, evening primrose oil, flax oil (too bad we can't get the satisfaction of 'eating' though.They do mention the adhesions too, and I have found positive relief from visceral manipulation or abdominal massage from someone knowledgeable, (very gentle touches on the abdomen, may produce a little burning for a few seconds when on a hot spot, but ongoing relief afterwards). I know someone who recently had surgery to remove adhesions years after colon surgery, and is on a diet similiar to SCD now and getting the abdominal massage to heal from the surgery to reduce further scarring or adhesions. Seems trying the massage or vm first might be a good route. There are some Dr. and PT's now who are trained in the VM if insurance coverage is an issue.MaureenSCD 15mos

[Guest guest]

Just read Kim's story of surgery for the int.endo - thanks! Glad to hear it wasn't cancerous/malignant. You make a very good point about the right action of surgery for screening out malignancies and also removing the damaged tissue. How has the recovery process been?Maureen

[Guest guest]

Maureen

I

had a long, difficult six months of recovery from the hysterectomy and double

oopherectomy. But I went into the surgery in bad shape -- I’d been

struggling for the previous six months with finding out what was going wrong

with my upper GI, been through lots of tests and procedures, had my gallbladder

removed (unnecessarily), so constant and draining health issues before

the surgery. The surgery was critical, however, had to be done. It just

didn’t help matters when I developed a systemic candida overgrowth from

all the antibiotics I was given before and after the surgery, and had severe

digestive symptoms every time I ate something [sigh].

Fortunately

I discovered SCD a month after the surgery, and began my healing journey.

I was able to resume most normal activities within a few weeks after the

surgery, but I didn’t really begin to feel OK until the sixth month.

By then I realized how sick I’d felt for years, which is a common experience

for women after a hysterectomy.

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>>>>>>>>>>>

Just

read Kim's story of surgery for the int.endo - thanks! Glad to hear it wasn't

cancerous/malignant. You make a very good point about the right action of

surgery for screening out malignancies and also removing the damaged tissue.

How has the recovery process been?

Maureen