I want to give up...

[Guest guest]

This will be a long post.. But I really just need to write

down my frustration.

I want’t to give up. I don’t like SCD anymore. I have been

on strict scd for 323 days.

My diet is squash, pumpkin, carrot, green beans, green peas,

cauliflower, broccoli, meat and 2 types of fish. I could eat egg before. But

after the last flare I started react with huge melt downs after eating egg. 3

weeks ago I also tried a small amount orange juice diluted with water, I

started to use small amounts of lime in cooking. I had no reaction to it and

the bm’s was very good. I also used a bit honey for the first time!

I hate flares.

I was doing so fine! I was thinking to make curry paste and

add to my meat, I had so many planes for 3 weeks ago. I just needed to take the

CDSA stool test. And before taking the stool test I would go 5 days without

enzymes.

So I did the days without enzymes. I did not have so much

pain. I took the stool test and the sample look nice. It was a brown hot dog

with no undigested food. I have not gott he answer of the test yet.

But 1 day after the stool test I had ugly orange floating

bms. Several time every day. I posted a post on the group and I got some

responses (thanks).

I tried to do intro for a couple of days, but I failed. My

nutritionist talled me that I did not need to go all the way back to intro.

Just not eat any advanced food. I tried.. And the bm did change. Now it is not

any orange fluffy thin hot dogs that are floating. Now it is rabbit poop.

Dots.. 3-5 times every day.

I have had that before. I had it for 6 weeks before I did

intro again and it went away. But then I started to react to egg.

I started with Bio Gest for 6 weeks ago and that made me

tolerate more fat. And it is so good not to be hungry. Because I was very

hungry all the time before because I needed to limit my fat intake. With bio

gest I can eat more fat.

I am using Bio Gest, S.A.T, Calcium D glutarate from Thorne

and Creon (digestive enzymes).

The last wek have been hard. I want all the food I don’t

tolerate. The day before the stool test I ate a raw tomato. I lost

selfcontroll. I did lose it again today because I ate a strawberry. I did not

get pain after.

Every time I have a good periode and start to think about

introducing new food like curry paste or something asian I get in a flare.

EVERY time. And I hate it. I have been much more autistic the last 2 weeks.

Specially after the stool test.

I am so confused. I don’t know what to do. I don’t want

intro. I don’t want carrots. I don’t want chicken. I want all the other things

like tomatoes, strawberry, bread and bacon. F...

The next 2 weeks I am going on holiday to denmark and

germany. So it will not be easy with food.

Sometimes I wish I didn’t start SCD. I did tolerate much

more food before and I did do fine before.. I was just on strong antifungal

medication.. But I have made big progress both in my stomach and the autism

after SCD. But I did wish I didn’t start

Karianne

19 year old with ASD

Undiagnosed gut problems