Re: Kristy

[Guest guest]

I am glad all these things will betaken care of. Best wishes in next

visits and/or tests

LOVE & HUGS, GrandmomBEV

Kristy

We went to clinic on Monday, her lungs are fine and the recent sinus

infection seems to have responded to antibiotics. Had the " MILD " cf

thingy again, ho hum. Also saw the gastro doctor regarding Kristy's

continuing nausea (and now pain) problems and she's having an endoscopy

on 27th Feb. Her gallbladder ultrasound showed everything as normal.

Once again he questioned why the Pulmonary specialist thinks she has cf,

if I wasn't so tired and fed up I think I would have screamed or thrown

something.

Kristy also sees a counsellor starting Monday 9th Feb (locally thank

goodness) to help deal with the anxiety she's experiencing which has

been contributing to asthma/breathing episodes, mostly at bedtime. I

had realized that she was worried about her breathing at bedtime but she

broke my heart when she admitted she thought she would stop breathing

and not see christmas or the new year.

Lastly can anyone recommend a good list/messageboard/forum for Kristy to

frequent? I have mixed feelings due to her anxious state but she is

keen to chat.

Thanks

Barbara

Mum to Nicky 16wocf and Kristy 14 wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

Dear Barbara,

My loves to chat on line with other CF'ers, she has a few that talk with

her at night when she gets home from college she also is home all day as she

only takes class is 20 but a great kid, very positive, uplifting and

loves to listen and talk. She goes to some message boards but finds they get

too depressing. She has even talked with a mom and dad in Texas, and helped

them when their daughter was sick. She is good at talking because she has been

in this CF thing and doing things, I used to have a support group in CA and she

had lots of friends with CF, so she has lots of experiences. If you would like

to e-mail her here is her address E-mail Address: fuzzynfrank@.... I

will tell her to look for mail from your daughter.

Have a great day,

judy

Kristy

We went to clinic on Monday, her lungs are fine and the recent sinus

infection seems to have responded to antibiotics. Had the " MILD " cf

thingy again, ho hum. Also saw the gastro doctor regarding Kristy's

continuing nausea (and now pain) problems and she's having an

endoscopy on 27th Feb. Her gallbladder ultrasound showed everything

as normal. Once again he questioned why the Pulmonary specialist

thinks she has cf, if I wasn't so tired and fed up I think I would

have screamed or thrown something.

Kristy also sees a counsellor starting Monday 9th Feb (locally thank

goodness) to help deal with the anxiety she's experiencing which has

been contributing to asthma/breathing episodes, mostly at bedtime. I

had realized that she was worried about her breathing at bedtime but

she broke my heart when she admitted she thought she would stop

breathing and not see christmas or the new year.

Lastly can anyone recommend a good list/messageboard/forum for Kristy

to frequent? I have mixed feelings due to her anxious state but she

is keen to chat.

Thanks

Barbara

Mum to Nicky 16wocf and Kristy 14 wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Barbara,

There is a really good chat at

http://groups.msn.com/cysticfibrosis2chat<http://groups.msn.com/cysticfibrosis2c\

hat> it is really a mixed group of ages though. as young as 11 and people in

their 40's. They now have some nights that are designated specific topic nights

you might want to check it out before you send her there though because there

are occasionally some adult topics going on or being asked about (reproductive

issues and the like). The members are pretty conscientious of how old the

others that they are chatting with are so as not to get too adult with the young

ones around in the chat. They do not get raunchy or anything.

Kristy

We went to clinic on Monday, her lungs are fine and the recent sinus

infection seems to have responded to antibiotics. Had the " MILD " cf

thingy again, ho hum. Also saw the gastro doctor regarding Kristy's

continuing nausea (and now pain) problems and she's having an

endoscopy on 27th Feb. Her gallbladder ultrasound showed everything

as normal. Once again he questioned why the Pulmonary specialist

thinks she has cf, if I wasn't so tired and fed up I think I would

have screamed or thrown something.

Kristy also sees a counsellor starting Monday 9th Feb (locally thank

goodness) to help deal with the anxiety she's experiencing which has

been contributing to asthma/breathing episodes, mostly at bedtime. I

had realized that she was worried about her breathing at bedtime but

she broke my heart when she admitted she thought she would stop

breathing and not see christmas or the new year.

Lastly can anyone recommend a good list/messageboard/forum for Kristy

to frequent? I have mixed feelings due to her anxious state but she

is keen to chat.

Thanks

Barbara

Mum to Nicky 16wocf and Kristy 14 wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

,

Please just take care of yourself and family. Your home can be replaced

eventually but you can't and we don't want anything happening to you and yours.

Take care my friend and good luck. Please keep us posted. Your always welcome

to come up here to me in Ohio you know.

Laurette

4/23/04 open rny

309/290/231/150

St. Charity

Cleveland, Ohio

[Guest guest]

Kristy,

My husband was here when the last one went through and it was a

lesser category as Ivan...said it defistated Anniston/Oxford area

and electriciy was out for day's. So he's out looking to

borrow/rent cheap a generator...so far no luck. Money is alittle

light in our pockets after the hospital co-pay. I don't want to

leave our home but may have to if it gets really bad...we live in a

doublewide on several acres amongst hills which I would think helps

some for protection. I hate not being able to help with picking up

and preparing since most weigh's more than a milk jug...LOL!!!

Big hugs, in Al.

> Hi ,

>

> Ivan looks horrible. I wish you the best over in

> Alabama. I think we will be getting some heavy rain

> and strong wind where I live in Georgia. Let us know

> what it gets like where you live in Alabama.

>

> Kristy

[Guest guest]

Kristy,

Before surgery we stocked up on all kinds of flavored waters and

other items I'd need. I have been filling all the tubs and empty

containers with water so we will have excess than not enough. I

made a joke last night when we were making up our game plan that for

toliet water we have a creek up behind that house...just bucket it

in like the old day's, hubby wasn't too excited...LOL!!! Funny you

should ask how I am feeling...really great but alittle lightheaded

and I have this strange ache on my left hip bone. I wonder how long

after surgery does that silly gas stay in the body? Buddy our dog

takes me for my required walks to keep me blodclot free daily so I

am getting my exercise. Something else, I had heard most feel

warmer after this surgery and I still have the cold hands/feet and

get chilled easy...guess I am the odd one.

Thanks for asking!!

Hugs,

[Guest guest]

Good point about not enough liquids...I am on that 1 oz every 15

min's and forget sometimes to drink. I was wondering about that

heat/cold thing cause every list I saw for taking stuff to the

hospital was bringing a fan..dang I had to ask for more blankets for

me and my husband when he visited to wrap himself up in...LOL!!!

> I was freezing for the first 6 months after my

> surgery. It seemed like I could never get warm. I

> heard it's from the burning of fat in your system and

> losing weight rapidly. Also the lightheadedness may

> be from not enough liquids.

[Guest guest]

,

I am a country girl and I remember vividly having to haul water from the

creek to our house during the winter when our pipes would freeze. Hey,

you do what you gotta do. Just give him that story and tell him that at

least it is not freezing out while he has to haul the water.

And a couple of people in my support group at the hospital said that

they have been very cold. The nutritionist said that as your body is

rapidly loosing the weight your internal thermometer might not be able

to regulate your body temp correctly and therefore people get cold.

Dora in Tennessee

Open/Lap RNY 9/20/04

Vanderbilt Hospital

[Guest guest]

I am glad you said that about your water. I am going to buy myself a

cheap kitchen timer to make sure that I get the liquids in every 15

mins. I won't remember but the timer will. Do you just forego that

when you sleep? I know, stupid question.

Dora in Tennessee

Open/Lap RNY 9/20/04

Vanderbilt Hospital

[Guest guest]

, I am about a month ahead of you and the pain on my left side

just went away. The danger of blood clots goes away after a month

and my cold feet are just getting warm.

Tommorrow I go to the dietian to see when I go off soft food, since

I am alone I plan on TV dinners. Can't weight until I can have

veggies.

Thinking of you hauling water, upps you can't lift anything heavy so

Don will have to haul the water from the creek! LOL

Pat in RI

> Kristy,

> Before surgery we stocked up on all kinds of flavored waters and

> other items I'd need. I have been filling all the tubs and empty

> containers with water so we will have excess than not enough. I

> made a joke last night when we were making up our game plan that

for

> toliet water we have a creek up behind that house...just bucket it

> in like the old day's, hubby wasn't too excited...LOL!!! Funny

you

> should ask how I am feeling...really great but alittle lightheaded

> and I have this strange ache on my left hip bone. I wonder how

long

> after surgery does that silly gas stay in the body? Buddy our dog

> takes me for my required walks to keep me blodclot free daily so I

> am getting my exercise. Something else, I had heard most feel

> warmer after this surgery and I still have the cold hands/feet and

> get chilled easy...guess I am the odd one.

> Thanks for asking!!

> Hugs,