Colonoscopy

[Guest guest]

It is practically impossible to find processed foods without

gluten. I thought Bob from Bob’s Red Mill was my friend. (I’m kidding) But

then, I found out about the 20 parts per million in all of his products. I

cannot understand how the government can allow a “gluten low” product be called

gluten free.

I am cooking everything from scratch now. We eat whole foods

almost exclusively.

From: BTVC-SCD [mailto:BTVC-SCD ]

On Behalf Of tte Hohnen

Sent: August-10-10 10:01 PM

To: BTVC-SCD

Subject: Re: Colonoscopy

I'm sorry that you still have to go to the bathroom so often

but I " m glad you don't suffer flare ups. I need to get my kids on a gluten

free diet but it's pretty impossible in America. There is just too much food

everywhere with gluten in it.

[Guest guest]

Hi Alyssa,

I am glad you got this over with and before school too. I'm impressed that your

doc is looking into LDN. I hope all will be well for you and that you have a

better year- health wise- in school.

PJ

>

> So, I had my colonoscopy today. It went off very easily, no passing

> out from the IV or anything. They actually put it in my hand, which

> was great!! I wish all IVs were in the hand! Anyways, we got the

> pictures and the doctor talked to my parents, but we're waiting for

> the biopsy and blood results (they took blood while I was out and

> apparently had a REALLY REALLY hard time getting a vein...).

>

> Anyways, the report said I was slightly inflamed everywhere, but

> mostly on my right side (ascending colon) where there was blood and

> pus. I definitely still have UC and not Crohn's though; my upper

> endoscopy was all clear =) My doctor is waiting on the other results

> to make any decisions, but she said she would do more research on LDN.

>

> Cheers!

> Alyssa 16 yo

> UC April 2008, dx Sept 2008

> SCD June 2009 (restarted)

> Prednisone 10 mg 1x per day (trying to wean!!!!)

>

[Guest guest]

Alyssa,

I am so glad you were able to go ahead and have the colonoscopy and get

rid of it. That's great news that is wasn't so bad. I'm like

you, they have a terrible time finding veins to get blood - often lots of

bruises. But I always insist they use my forearm for the IV!

Of course I'm sorry to hear you do still have inflammation and some blood

and pus, but definitely good news that the upper gut is clear. And

good you don't have Crohn's. And, obviously your liver enzymes are

OK again, too!

And it sounds like good news if the doctor is willing to research

LDN!

IBS

So, I had my colonoscopy today. It went off very easily, no passing out from the IV or anything. They actually put it in my hand, which was great!! I wish all IVs were in the hand! Anyways, we got the pictures and the doctor talked to my parents, but we're waiting for the biopsy and blood results (they took blood while I was out and apparently had a REALLY REALLY hard time getting a vein...).

Anyways, the report said I was slightly inflamed everywhere, but mostly on my right side (ascending colon) where there was blood and pus. I definitely still have UC and not Crohn's though; my upper endoscopy was all clear =) My doctor is waiting on the other results to make any decisions, but she said she would do more research on

LDN.

Cheers!

Alyssa 16 yo