Re: Balancing Time: was SCD questions - tea and yogurt

[Guest guest]

point well taken... I can bring my questions else were... Especially since none of that answered my question.. I have BTVC.... and because I am NEW.. I do not know WHERE to look for my answers... that are NOT in the book....And I have not figured out what PecanBread is to answer either way on your question to that...

To: BTVC-SCD Sent: Sun, August 1, 2010 8:56:46 PMSubject: Balancing Time: was SCD questions - tea and yogurt

At 01:18 PM 8/1/2010, you wrote:

And as a 'NEWBIE".. I am being made to feel as if my questions will be an interuption in the flow of conversation of the SEASONED SCDer's... Not a very welcoming feeling.. The constant reminders that a question or conversation was discussed in the past makes me feel as the interuption. ...A single parent working 45 hours a week.. It takes all the time I have to read each post much less find time to back up and read all of the pass conversations. . Even when I did do a search through past conversations I still did not find my answer and had no choice but to ask..First of all, the only "bad" question is the one you don't ask.There's no intent to make you feel as if you shouldn't be asking a question. You're stressed with the amount of work you're doing, between SCD and your paying job.Since you raised the question, I'd like your input on this. How do we keep

from having newcomers afraid to ask what may be a critical question while not driving long-term people and moderators stark raving crazy with repetitions? Particularly if the newcomers are, as you state, too busy to look things up?I know that when I joined the original SCD list, the first question asked of newcomers was "Do you have your copy of BTVC?" and if the person hadn't bought a copy, they would be told to get it at once, since you couldn't do the diet without it.It wasn't uncommon to be told "Check on page X of BTVC for the answer to that." Elaine had no web site and Pecanbread wouldn't be started for several more years, let alone have a website. (It's a little harder to do that now with several editions of BTVC out.) There was one recipe site. There were no blogs. And there were two, count 'em, two, SCD cookbooks.One of the goals of this list is to teach people how to help themselves. When you're sick and

stressed, it can be hard to find the gumption to do your own research. Yet everyone on this list is in the same boat. The people who answer questions are also sufferers with these wretched gut issues. Their time, too, is limited. How do we balance the time and needs of new members, longer-term members, and moderators?

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle

[Guest guest]

At 10:21 PM 8/1/2010, you wrote:

point well taken... I can bring

my questions else were... Especially since none of that answered my

question.. I have BTVC.... and because I am NEW.. I do not know WHERE to

look for my answers... that are NOT in the book....And I have not figured

out what PecanBread is to answer either way on your question to

that...

I did answer your questions about the juices in a separate message. If

that answer did not cover your question, then what else did you need to

know?

What other questions did you have that are not answered in the book?

So far I've seen only three posts from you since you joined four days

ago. Were there more that I've missed?

www.pecanbread.com is a web site primarily intended for parents of

children who are following SCD. It also has a list associated with

it. It's a very busy list, but one can learn a great deal from it

if your available time permits.

Have you yet found

www.breakingtheviciouscycle.info? That is Elaine's website, currently

being maintained by her family, and it may contain some of the answers to

your questions.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Maybe we could have a file for FAQ's? and refer to the files if it is a FAQ?

This would be a lot to write, but we could possibly divvy it up between some of

the older members and people could add to the file as needed as the common

questions arise. It could be a work in progress developed over time....

Gay also sends a list out to newbies who want to contact others in their area

for additional support off the list. We are busy, but it seems a lot of us are

trying to help as much as we can. We also come to the list with various

backgrounds- experienced cooks to none at all.

I would say that starting SCD is overwhelming at first. It is a whole new way of

cooking and eating and a volume of information. Nobody " gets " it right away, but

it does get better with time and new routines. So try to learn it one step at a

time- and know that practice makes it easier. I started with learning to make

yogurt- and I decided if I could make yogurt- I could do the rest-eventually. If

I did not know if something was legal or OK to eat- I did not eat it until I

figured it out- and I made several mistakes in the kitchen too. Spend time

reading the board and looking for information, and hang in there.

PJ

>

> And as a 'NEWBIE " .. I am being made to feel as if my questions will be an

> interuption in the flow of conversation of the SEASONED   SCDer's... Not a

very

> welcoming feeling.. The constant reminders that a question or conversation was

> discussed in the past makes me feel as the interuption. ...A single parent

> working 45 hours a week.. It takes all the time I have to read each post much

> less find time to back up and read all of the pass conversations. . Even when

I

> did do a search through past conversations I still did not find my answer and

> had no choice but to ask..

> First of all, the only " bad " question is the one you don't ask.

>

> There's no intent to make you feel as if you shouldn't be asking a question.

> You're stressed with the amount of work you're doing, between SCD and your

> paying job.

>

> Since you raised the question, I'd like your input on this.

>

> How do we keep from having newcomers afraid to ask what may be a critical

> question while not driving long-term people and moderators stark raving crazy

> with repetitions?  Particularly if the newcomers are, as you state, too busy

to

> look things up?

>

> I know that when I joined the original SCD list, the first question asked of

> newcomers was " Do you have your copy of BTVC? " and if the person hadn't bought

a

> copy, they would be told to get it at once, since you couldn't do the diet

> without it.

>

> It wasn't uncommon to be told " Check on page X of BTVC for the answer to

that. "

> Elaine had no web site and Pecanbread wouldn't be started for several more

> years, let alone have a website. (It's a little harder to do that now with

> several editions of BTVC out.) There was one recipe site. There were no

blogs. 

> And there were two, count 'em, two, SCD cookbooks.

>

> One of the goals of this list is to teach people how to help themselves. When

> you're sick and stressed, it can be hard to find the gumption to do your own

> research. Yet everyone on this list is in the same boat. The people who answer

> questions are also sufferers with these wretched gut issues. Their time, too,

is

> limited.

>

>

> How do we balance the time and needs of new members, longer-term members, and

> moderators?

>

>

> †" Marilyn

>     New Orleans, Louisiana, USA

>     Undiagnosed IBS since 1976, SCD since 2001

>     Darn Good SCD Cook

>     No Human Children

>     Shadow & Sunny Longhair Dachshund

>     Babette the Foundling Beagle

>

>        

>

[Guest guest]

How do we keep from having newcomers afraid to ask what may be a critical question while not driving long-term people and moderators stark raving crazy with repetitions? Particularly if the newcomers are, as you state, too busy to look things up?Like PJ said, an FAQ would be helpful, and couldn't we set yahoo up to send an email with the FAQs automatically to any new member? That way they could read all that and if they still have questions, they can ask here. I know when I joined the Autism group and a couple others, there were quite a few informational automatic emails sent to me right away. Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 12.5 mg 1x per day (trying to wean!!!!)

[Guest guest]

At 10:37 AM 8/2/2010, you wrote:

Like PJ said, an FAQ would be

helpful, and couldn't we set yahoo up to send an email with the FAQs

automatically to any new member? That way they could read all that and if

they still have questions, they can ask here. I know when I joined the

Autism group and a couple others, there were quite a few informational

automatic emails sent to me right away.

There is, as I said, an intro file with the basics, but it may need to be

updated.

One of the problems with a whole flurry of informational emails on

joining is that it can contribute to the information overload -- although

others may feel differently.

I know that on several lists, the instructions for doing this or that are

on the bottom of every email sent out by the group, and yet, inevitably,

every week, there are several people saying " How do

I...? "

http://health.groups.yahoo.com/group/BTVC-SCD/files/GettingStartedwithSCD/

is the folder which has the Getting Started stuff in it. Just FYI,

you might want to look at the Colonoscopy file in there.

<g>

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

I know what you are saying... I like to think of myself as a proactive and

independent person, but when it comes down to it, I am totally guilty of firing

questions that have already come up. We try to pay attention to all of the

postings, but sometimes we don't until it is a problem that we start to have.

I think the tough thing about SCD is that everyone's diseases are different, we

progress at different rates, and our reactions are different... so it's hard to

put a cut and dried information sheet out. Which brings us right back to where

we are... which is just answering the questions as they come!

-Joanna

>

> I know that on several lists, the instructions

> for doing this or that are on the bottom of every

> email sent out by the group, and yet, inevitably,

> every week, there are several people saying " How do I...? "

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

Before going SCD I was just gluten free for a few months and lived on the http://www.celiac.com/gluten-free/ forum website. I loved it because things were catagorized - ie pre-diagnosis, post-diagnosis, recipes, restaurants, traveling, etc. I can so see how that would be beneficial with this group. Each moderator would be assigned a section (some shared and then rotated at times). So, if someone only wanted to look for recipe posts then they would only ever read recipes. I realize then people wouldn't put in their input on what has helped them, etc. So it has it's drawbacks, but I do remember feeling stupid asking all my newbie questions. Maybe newbies could be assigned a moderator for a month and emails only go to the moderator then after the first month the newbie is "released" to ask questions to the group. I don't know - just thinking out loud here!

I certainly appreciate ALL the moderators do!!

Marla

From: Wizop Marilyn L. Alm

Sent: Sunday, August 01, 2010 9:56 PM

To: BTVC-SCD

Subject: Balancing Time: was SCD questions - tea and yogurt

At 01:18 PM 8/1/2010, you wrote:

And as a 'NEWBIE".. I am being made to feel as if my questions will be an interuption in the flow of conversation of the SEASONED SCDer's... Not a very welcoming feeling.. The constant reminders that a question or conversation was discussed in the past makes me feel as the interuption....A single parent working 45 hours a week.. It takes all the time I have to read each post much less find time to back up and read all of the pass conversations.. Even when I did do a search through past conversations I still did not find my answer and had no choice but to ask..First of all, the only "bad" question is the one you don't ask.There's no intent to make you feel as if you shouldn't be asking a question. You're stressed with the amount of work you're doing, between SCD and your paying job.Since you raised the question, I'd like your input on this. How do we keep from having newcomers afraid to ask what may be a critical question while not driving long-term people and moderators stark raving crazy with repetitions? Particularly if the newcomers are, as you state, too busy to look things up?I know that when I joined the original SCD list, the first question asked of newcomers was "Do you have your copy of BTVC?" and if the person hadn't bought a copy, they would be told to get it at once, since you couldn't do the diet without it.It wasn't uncommon to be told "Check on page X of BTVC for the answer to that." Elaine had no web site and Pecanbread wouldn't be started for several more years, let alone have a website. (It's a little harder to do that now with several editions of BTVC out.) There was one recipe site. There were no blogs. And there were two, count 'em, two, SCD cookbooks.One of the goals of this list is to teach people how to help themselves. When you're sick and stressed, it can be hard to find the gumption to do your own research. Yet everyone on this list is in the same boat. The people who answer questions are also sufferers with these wretched gut issues. Their time, too, is limited. How do we balance the time and needs of new members, longer-term members, and moderators?

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle

[Guest guest]

The high lighted link at the bottom of this email gave the following message.. Copy and pasted.. Not reworded....

The requested file or directory is not found on the server.

To: BTVC-SCD Sent: Mon, August 2, 2010 12:03:20 PMSubject: Re: Balancing Time: was SCD questions - tea and yogurt

At 10:37 AM 8/2/2010, you wrote:

Like PJ said, an FAQ would be helpful, and couldn't we set yahoo up to send an email with the FAQs automatically to any new member? That way they could read all that and if they still have questions, they can ask here. I know when I joined the Autism group and a couple others, there were quite a few informational automatic emails sent to me right away.There is, as I said, an intro file with the basics, but it may need to be updated.One of the problems with a whole flurry of informational emails on joining is that it can contribute to the information overload -- although others may feel differently.I know that on several lists, the instructions for doing this or that are on the bottom of every email sent out by the group, and yet, inevitably, every week, there are several people saying "How do I...?"http://health. groups.yahoo. com/group/ BTVC-SCD/ files/GettingSta rtedwithSCD/ is the folder which has the Getting Started stuff in it. Just FYI, you might want to look at the Colonoscopy file in there. <g>

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle

[Guest guest]

Hey - here is a different way to access the file:

1. Click on " Files " (on the vertical menu to the left)

2. It will show you a list of folders

3. Click on the third one down called " Getting Started with SCD "

-Joanna

>

> The high lighted link at the bottom of this email gave the following message..

> Copy and pasted.. Not reworded....

>

> The requested file or directory is not found on the server

[Guest guest]

At 08:28 PM 8/2/2010, you wrote:

The high lighted link at the

bottom of this email gave the following message.. Copy and pasted.. Not

reworded....

The requested file or directory is not found on the

server.

Yahoo has inserted a bunch of spaces and stuff into the URL.

Go to

http://health.groups.yahoo.com/group/BTVC-SCD/

the main BTVC-SCD site.

Make sure you are logged into Yahoo.

Click on Files at the left.

Then click on Getting Started.

You will find a number of files in that folder.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

The high lighted link at the bottom of this email gave the following message.. Copy and pasted.. Not reworded....The requested file or directory is not found on the server.Yahoo is certainly known for acting up on occasion =) Try going to the group site and then clicking on files. You should be able to access them all from there. Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 12.5 mg 1x per day (trying to wean!!!!)