Guest guest Posted June 26, 2010 Report Share Posted June 26, 2010 Hi, I have just joined the Group. I was diagnosed around six months ago with neurosarcoidosis. This was proved through elevated ACE levels and the relevant bands from CSF tests. I was put on preds and methotrexate and felt good for a while with the ACE coming into the top end of the normal range. The preds were reduced to zero and the ACE levels raised again, which means that the methotrexate was not working. The next step is to raise the methotrexate. If that doesn't work, one option is to start on infliximab. The whole matter is in the Lord's hands, as he is the only one with real authority. Best regards, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.