Re: HELP!!! ADOPTED 16 month with severe numbers

[Guest guest]

Hi-

I think it's definitely worth trying the band first, before considering surgery.

My son was banded at 17 months old, wore 2 DOCBands for 8 months and we went

from about 15 mm to 5 mm of assymetry in that time (one of our numbers was 19 mm

and we got that down to about 5 or 6 as well). I can still see the asym when he

is in the tub, but not when his hair is dry and no one else notices it but me.

It's way better then where we started and I'm thankful for that. Of course, head

growth is key to getting correction with the band, so as long as she's thriving

and growing, you should see at least some improvement (it will just be a longer

process than if she were younger and hitting a bunch of growth spurts). I think

CT just likes to keep your expectations realistic, which I think is the best

thing to do, better than giving you false hope and then being disappointed. We

also travelled 2.5 hours each way to CT (Charlotte), but it was well worth it.

Please let me know if you have any other questions. Good luck!

(Hi to everyone...sorry I've been MIA for a while)

Jake-3 (DOCBand Grad 9/08)

>

> So we drove 2.5 hours and talk to CT and they were like we should be able to

get our adopted daughters number cut in half so from 19 to like 9 she said.

Supposed to go monday for the digital image part and they were gonna RUSH the

helmet!

>

> I call back today to ask for all her numbers and had to talk to someone else

and she gave me the numbers and said that we may be throwing our money away

because she is older and severe.........What should we do? $4000 is not pocket

change!

>

> We consulted surgeons and the cost to help her would be $50000 which may not

be covered!

> they can do it, but don't think insurance will pay!

>

> If she was born from me we would have had the nipped in the butt! But we just

adopted her.....

>

> I would LOVE to hear from anyone that had an older child....i know there was

one case out there that they have on there website, but this girl told me and i

am glad she was blunt that we MiGHT Not see any results and the other worker

said we should be able to cut her numbers down some!

>

> HELp, worried mom!

>

> i just don't want her to grow up to be depressed because of severe head

abnormalness!

>

> i will try to post photos of her in a folder called adopted!

>