RE: Re:How fast is too fast to get off the Pred?

[Guest guest]

I can't speak for Imuran, but I'm on Remicade, and have not had any reaction, until the last couple doses, and that's lower GI if you know what I mean. no nausea,  Of course everyone is different. Maybe someone here who is on or used Imuran can tell you what they experienced. 

Be well as you can:)MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

 

I, too, have been on prednisone.  But I had the solumedrol IVs and oral prednisone.   I finally got off the IVs with acupuncture.  But, I realize everyone is different.   I have been battling reducing prednisone, because, like you, my vision worsens when I reduce.   I was at 60 mg initially with the IVs .   I had IVs for close to 2 years.  

 

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job.   So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again.   I have had this happen 3 times.  I am now at 16 and hoping I can get lower.  They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job.  I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting.  I need to ensure that I am at work everyday.

 

Kat

[Guest guest]

I think that they are planning to taper your Pred much too fast. Granted, you have only been on it for 5 weeks, but 100mg is a whopping big dose. Not only do you have to worry about your symptoms coming back, with a vengeance, or popping up somewhere else, but there is a risk of adrenal crisis. Adrenal crisis is a life-threatening condition where your body is not producing enough cortisol. When you take Prednisone or similar drugs for an extended period (not talking about the short courses for poison ivy, etc.), your body suppresses it's own production of cortisol. A slow taper allows your body to begin producing its own cortisol again. I couldn't figure out how to copy & paste a link on this laptop, but if you just type adrenal crisis in your search engine, lots of sources will come up. Medline has an article that is easy to understand. It's easy to assume that doctors know about this & will act accordingly, but unfortunately some doctors are inept or arrogant & don't want to take the time & patience to taper a patient very slowly. As an example of how you can't assume your doctor will know or do the correct thing, seveal years ago my daughter Ginny was on extremely high doses of opiates (Vicodin, Oxycontin, & Fentenyl) for chronic pancreatitis. She saw a pain specialist in San who recommended she try a celiac nerve block, often used for pancreatic cancer. I researched it & found that it was often effective for pancreatitis pain. The websites I read stressed that by the time a patient with chronic pancreatitis is offered a celiac nerve block, they have usually been on high doses of narcotics for a long time, and that even if the nerve block provides immediate pain relief, they need to be slowly weaned from the painkillers. Well, I told both Ginny & her husband this, but they took the doctor's word. The nerve block was very effective, he stopped all her meds except a Fentenyl patch, and within a couple of days she had a severe withdrawal reaction, including seizures, hallucinations & a psychotic break! All of this could have been avoided by a very slow taper. I'm a midwife & I found this information in an hour of researching the Internet, so why didn't this doctor know it?!? Maybe he had used this method with other patients & gotten away with it, but he nearly killed my daughter! It's possible that your doctor has rapidly tapered other patients from Pred & not triggered an adrenal crisis, but why the heck take the chance?!? Besides, as Marla pointed out, it's likely that stopping or greatly reducing Pred will result in symptoms returning, probably worse than before.

How are you doing on finding another doctor?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

It's not that life is so short-------It's that we wait so long to begin.

(attributed to Wooden, among others)

To: Neurosarcoidosis From: mebramer@...Date: Sun, 24 Oct 2010 12:09:31 -0600Subject: Re: Re:How fast is too fast to get off the Pred?

I can't speak for Imuran, but I'm on Remicade, and have not had any reaction, until the last couple doses, and that's lower GI if you know what I mean. no nausea, Of course everyone is different. Maybe someone here who is on or used Imuran can tell you what they experienced. Be well as you can:)MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)

I, too, have been on prednisone. But I had the solumedrol IVs and oral prednisone. I finally got off the IVs with acupuncture. But, I realize everyone is different. I have been battling reducing prednisone, because, like you, my vision worsens when I reduce. I was at 60 mg initially with the IVs . I had IVs for close to 2 years.

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job. So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again. I have had this happen 3 times. I am now at 16 and hoping I can get lower. They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job. I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting. I need to ensure that I am at work everyday.

Kat

[Guest guest]

I agree with the taper off the prednisone slowly. When jenn was on it and a a dose of 60 mg it took the doctors almost 6 months to get her dosage down and even then after that we were still at 15mg. It took almost anohte 3-4 months for the dose to finally get to around 7mg and now we are at 5mg. This after almost a year and a half or so. Please re-consult because form what we were told you can not just come off the prednisone that quickly. Take care.Matt

I, too, have been on prednisone. But I had the solumedrol IVs and oral prednisone. I finally got off the IVs with acupuncture. But, I realize everyone is different. I have been battling reducing prednisone, because, like you, my vision worsens when I reduce. I was at 60 mg initially with the IVs . I had IVs for close to 2 years.

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job. So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again. I have had this happen 3 times. I am now at 16 and hoping I can get lower. They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job. I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting. I need to ensure that I am at work everyday.

Kat

[Guest guest]

I was on Imuran for 8 years, I had no symptoms or adverse reactions.. Imuran is a kidney rejection drug or that's what it was intended.. when they took me off of it, they just told me to stop.. I was scared to just stop, but I did.. and did fine..

Hugs,

Re: Re:How fast is too fast to get off the Pred?

I can't speak for Imuran, but I'm on Remicade, and have not had any reaction, until the last couple doses, and that's lower GI if you know what I mean. no nausea, Of course everyone is different. Maybe someone here who is on or used Imuran can tell you what they experienced. Be well as you can:)MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)

I, too, have been on prednisone. But I had the solumedrol IVs and oral prednisone. I finally got off the IVs with acupuncture. But, I realize everyone is different. I have been battling reducing prednisone, because, like you, my vision worsens when I reduce. I was at 60 mg initially with the IVs . I had IVs for close to 2 years.

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job. So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again. I have had this happen 3 times. I am now at 16 and hoping I can get lower. They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job. I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting. I need to ensure that I am at work everyday.

Kat

[Guest guest]

Kat, I've been on Imuran for two years and I don't notice any side effects at all except I've lost a lot of hair--just thinner on top and i've lost most of my body hair. I still have to shave my legs, as the scruff is still there. I have almost no hair on my arms or underarms. Dr. Baughman just lowered my dose but I don't notice any hair growing back. Has anyone else had the hair problem and have it return after going off of Imuran?From:

"katskreations1@..." To: Neurosarcoidosis Sent: Sat, October 23, 2010 10:39:47 AMSubject: Re:How fast is too fast to get off the Pred?

I, too, have been on prednisone. But I had the solumedrol IVs and oral prednisone. I finally got off the IVs with acupuncture. But, I realize everyone is different. I have been battling reducing prednisone, because, like you, my vision worsens when I reduce. I was at 60 mg initially with the IVs . I had IVs for close to 2 years.

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job. So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again. I have had this happen 3 times. I am now at 16 and hoping I can get lower. They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job. I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting. I need to ensure that I am at work everyday.

Kat

[Guest guest]

I did notice more hair coming out in my brush & when I shampooed, but my hair was so thick that nobody else noticed. My hairdresser used to actually thin my hair occasionally because it was so thick, but I don't need that anymore! My eyelashes & eyebrows got thinner, although I never had lush eyelashes. They never got any thicker; I did take Methotrexate for 2 years after the Imuran & Pred, so maybe that was a factor. I have no hair on my shins & little armpit hair, but still got plenty on the rest of my leg areas. I wish it would all go away (except on my head).

Ramblin' RoseModerator

It's not that life is so short-------It's that we wait so long to begin.

(attributed to Wooden, among others)

To: Neurosarcoidosis From: rkelty99@...Date: Wed, 27 Oct 2010 07:50:53 -0700Subject: Re: Re:How fast is too fast to get off the Pred?

Kat, I've been on Imuran for two years and I don't notice any side effects at all except I've lost a lot of hair--just thinner on top and i've lost most of my body hair. I still have to shave my legs, as the scruff is still there. I have almost no hair on my arms or underarms. Dr. Baughman just lowered my dose but I don't notice any hair growing back. Has anyone else had the hair problem and have it return after going off of Imuran?

To: Neurosarcoidosis Sent: Sat, October 23, 2010 10:39:47 AMSubject: Re:How fast is too fast to get off the Pred?

I, too, have been on prednisone. But I had the solumedrol IVs and oral prednisone. I finally got off the IVs with acupuncture. But, I realize everyone is different. I have been battling reducing prednisone, because, like you, my vision worsens when I reduce. I was at 60 mg initially with the IVs . I had IVs for close to 2 years.

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job. So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again. I have had this happen 3 times. I am now at 16 and hoping I can get lower. They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job. I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting. I need to ensure that I am at work everyday.

Kat

[Guest guest]

I  notice hair loss when I started the Methotrexate, I have a ton of hair, so even though I was losing some it didn't show, I too like you Rose, use to have it thinned out, not anymore, but I still have more then enough on my legs and underarms, my mom says she has no hair on her legs anymore, and she never took drugs,  she's 89 so see we do have something to look forward to:)

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

 

I did notice more hair coming out in my brush & when I shampooed, but my hair was so thick that nobody else noticed.  My hairdresser used to actually thin my hair occasionally because it was so thick, but I don't need that anymore!  My eyelashes & eyebrows got thinner, although I never had lush eyelashes.  They never got any thicker; I did take Methotrexate for 2 years after the Imuran & Pred, so maybe that was a factor.  I have no hair on my shins & little armpit hair, but still got plenty on the rest of my leg areas.  I wish it would all go away (except on my head).

Ramblin' RoseModerator

 

 

It's not that life is so short-------It's that we wait so long to begin. 

(attributed to Wooden, among others)  

To: Neurosarcoidosis From: rkelty99@...Date: Wed, 27 Oct 2010 07:50:53 -0700

Subject: Re: Re:How fast is too fast to get off the Pred?

Kat, I've been on Imuran for two years and I don't notice any side effects at all except I've lost a lot of hair--just thinner on top and i've lost most of my body hair.  I still have to shave my legs, as the scruff is still there.  I have almost no hair on my arms or underarms.  Dr. Baughman just lowered my dose but I don't notice any hair growing back.  Has anyone else had the hair problem and have it return after going off of Imuran?

To: Neurosarcoidosis Sent: Sat, October 23, 2010 10:39:47 AM

Subject: Re:How fast is too fast to get off the Pred? 

I, too, have been on prednisone.  But I had the solumedrol IVs and oral prednisone.   I finally got off the IVs with acupuncture.  But, I realize everyone is different.   I have been battling reducing prednisone, because, like you, my vision worsens when I reduce.   I was at 60 mg initially with the IVs .   I had IVs for close to 2 years.  

 

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job.   So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again.   I have had this happen 3 times.  I am now at 16 and hoping I can get lower.  They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job.  I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting.  I need to ensure that I am at work everyday.

 

Kat

[Guest guest]

Yeah, Marla, then I won't have to fire up the ol' weedeater anymore!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Thu, 28 Oct 2010 10:41:44 -0600Subject: Re: Re:How fast is too fast to get off the Pred?

I notice hair loss when I started the Methotrexate, I have a ton of hair, so even though I was losing some it didn't show, I too like you Rose, use to have it thinned out, not anymore, but I still have more then enough on my legs and underarms, my mom says she has no hair on her legs anymore, and she never took drugs, she's 89 so see we do have something to look forward to:) MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)

I did notice more hair coming out in my brush & when I shampooed, but my hair was so thick that nobody else noticed. My hairdresser used to actually thin my hair occasionally because it was so thick, but I don't need that anymore! My eyelashes & eyebrows got thinner, although I never had lush eyelashes. They never got any thicker; I did take Methotrexate for 2 years after the Imuran & Pred, so maybe that was a factor. I have no hair on my shins & little armpit hair, but still got plenty on the rest of my leg areas. I wish it would all go away (except on my head).

Ramblin' RoseModerator

It's not that life is so short-------It's that we wait so long to begin.

(attributed to Wooden, among others)

To: Neurosarcoidosis From: rkelty99@...Date: Wed, 27 Oct 2010 07:50:53 -0700Subject: Re: Re:How fast is too fast to get off the Pred?

Kat, I've been on Imuran for two years and I don't notice any side effects at all except I've lost a lot of hair--just thinner on top and i've lost most of my body hair. I still have to shave my legs, as the scruff is still there. I have almost no hair on my arms or underarms. Dr. Baughman just lowered my dose but I don't notice any hair growing back. Has anyone else had the hair problem and have it return after going off of Imuran?

To: Neurosarcoidosis Sent: Sat, October 23, 2010 10:39:47 AMSubject: Re:How fast is too fast to get off the Pred?

I, too, have been on prednisone. But I had the solumedrol IVs and oral prednisone. I finally got off the IVs with acupuncture. But, I realize everyone is different. I have been battling reducing prednisone, because, like you, my vision worsens when I reduce. I was at 60 mg initially with the IVs . I had IVs for close to 2 years.

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job. So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again. I have had this happen 3 times. I am now at 16 and hoping I can get lower. They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job. I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting. I need to ensure that I am at work everyday.

Kat

[Guest guest]

yes something to look forward to yeahMarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

 

Yeah, Marla, then I won't have to fire up the ol' weedeater anymore!

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

 

To: Neurosarcoidosis From: mebramer@...Date: Thu, 28 Oct 2010 10:41:44 -0600

Subject: Re: Re:How fast is too fast to get off the Pred?

I  notice hair loss when I started the Methotrexate, I have a ton of hair, so even though I was losing some it didn't show, I too like you Rose, use to have it thinned out, not anymore, but I still have more then enough on my legs and underarms, my mom says she has no hair on her legs anymore, and she never took drugs,  she's 89 so see we do have something to look forward to:)

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

 

I did notice more hair coming out in my brush & when I shampooed, but my hair was so thick that nobody else noticed.  My hairdresser used to actually thin my hair occasionally because it was so thick, but I don't need that anymore!  My eyelashes & eyebrows got thinner, although I never had lush eyelashes.  They never got any thicker; I did take Methotrexate for 2 years after the Imuran & Pred, so maybe that was a factor.  I have no hair on my shins & little armpit hair, but still got plenty on the rest of my leg areas.  I wish it would all go away (except on my head).

Ramblin' RoseModerator

 

 

It's not that life is so short-------It's that we wait so long to begin. 

(attributed to Wooden, among others)  

To: Neurosarcoidosis From: rkelty99@...Date: Wed, 27 Oct 2010 07:50:53 -0700

Subject: Re: Re:How fast is too fast to get off the Pred?

Kat, I've been on Imuran for two years and I don't notice any side effects at all except I've lost a lot of hair--just thinner on top and i've lost most of my body hair.  I still have to shave my legs, as the scruff is still there.  I have almost no hair on my arms or underarms.  Dr. Baughman just lowered my dose but I don't notice any hair growing back.  Has anyone else had the hair problem and have it return after going off of Imuran?

To: Neurosarcoidosis Sent: Sat, October 23, 2010 10:39:47 AM

Subject: Re:How fast is too fast to get off the Pred? 

I, too, have been on prednisone.  But I had the solumedrol IVs and oral prednisone.   I finally got off the IVs with acupuncture.  But, I realize everyone is different.   I have been battling reducing prednisone, because, like you, my vision worsens when I reduce.   I was at 60 mg initially with the IVs .   I had IVs for close to 2 years.  

 

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job.   So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again.   I have had this happen 3 times.  I am now at 16 and hoping I can get lower.  They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job.  I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting.  I need to ensure that I am at work everyday.

 

Kat

[Guest guest]

Yes when was on the Methotrexate both the pill form & then the shots she too started to lose her hair. It would come out by the comb fulls for a while. Then when she stopped taking it there was a long tome before her hair seemed to get fuller again. Hope all are well and warm.Matt

I did notice more hair coming out in my brush & when I shampooed, but my hair was so thick that nobody else noticed. My hairdresser used to actually thin my hair occasionally because it was so thick, but I don't need that anymore! My eyelashes & eyebrows got thinner, although I never had lush eyelashes. They never got any thicker; I did take Methotrexate for 2 years after the Imuran & Pred, so maybe that was a factor. I have no hair on my shins & little armpit hair, but still got plenty on the rest of my leg areas. I wish it would all go away (except on my head).

Ramblin' RoseModerator

It's not that life is so short-------It's that we wait so long to begin.

(attributed to Wooden, among others)

To: Neurosarcoidosis From: rkelty99@...Date: Wed, 27 Oct 2010 07:50:53 -0700

Subject: Re: Re:How fast is too fast to get off the Pred?

Kat, I've been on Imuran for two years and I don't notice any side effects at all except I've lost a lot of hair--just thinner on top and i've lost most of my body hair. I still have to shave my legs, as the scruff is still there. I have almost no hair on my arms or underarms. Dr. Baughman just lowered my dose but I don't notice any hair growing back. Has anyone else had the hair problem and have it return after going off of Imuran?

To: Neurosarcoidosis Sent: Sat, October 23, 2010 10:39:47 AM

Subject: Re:How fast is too fast to get off the Pred?

I, too, have been on prednisone. But I had the solumedrol IVs and oral prednisone. I finally got off the IVs with acupuncture. But, I realize everyone is different. I have been battling reducing prednisone, because, like you, my vision worsens when I reduce. I was at 60 mg initially with the IVs . I had IVs for close to 2 years.

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job. So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again. I have had this happen 3 times. I am now at 16 and hoping I can get lower. They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job. I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting. I need to ensure that I am at work everyday.

Kat

[Guest guest]

I'm on Methotrexate for the 3rd time (this time for a while). I never lost my hair but it stopped growing. When not on it I need a hair cut every 3-4 weeks. While on it I need one (or just get it for a reason not to think there's a problem) every 3 months. It started growing at normal speed each time I stopped

Re:How fast is too fast to get off the Pred?

I, too, have been on prednisone. But I had the solumedrol IVs and oral prednisone. I finally got off the IVs with acupuncture. But, I realize everyone is different. I have been battling reducing prednisone, because, like you, my vision worsens when I reduce. I was at 60 mg initially with the IVs . I had IVs for close to 2 years.

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job. So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again. I have had this happen 3 times. I am now at 16 and hoping I can get lower. They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job. I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting. I need to ensure that I am at work everyday.

Kat

[Guest guest]

I'm not sure her dose, I have been off and on, now on Methotrexate for years, like 10, and even though I lose a little more hair then normal, I have never had all my hair come out, I think it's different for everyone, some can't take due to there liver, I never had liver problems until I started

Remicade, but then they found out it's just a fatty liver from gaining weight fast while on Pred. I was able to go back on the Metotrexate, and am still on it. Every drug effect us different, some have had terrible reactions to Remicade, but I breeze through that too so far.  My biggest problem is now being able to take pain medication and I know I'm not alone there, but just the other day, first cold day, I was in so much pain, I really wish I could of taken something stronger, I just suffer through it, I know I am very blessed, I don't have those days every day, so I'm not complaining I know many suffer every day, and you are all in my prayers. 

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

 

Yes when was on the Methotrexate both the pill form & then the shots she too started to lose her hair.  It would come out by the comb fulls for a while.  Then when she stopped taking it there was a long tome before her hair seemed to get fuller again.  Hope all are well and warm.

Matt

 

I did notice more hair coming out in my brush & when I shampooed, but my hair was so thick that nobody else noticed.  My hairdresser used to actually thin my hair occasionally because it was so thick, but I don't need that anymore!  My eyelashes & eyebrows got thinner, although I never had lush eyelashes.  They never got any thicker; I did take Methotrexate for 2 years after the Imuran & Pred, so maybe that was a factor.  I have no hair on my shins & little armpit hair, but still got plenty on the rest of my leg areas.  I wish it would all go away (except on my head).

Ramblin' RoseModerator

 

 

It's not that life is so short-------It's that we wait so long to begin. 

(attributed to Wooden, among others)  

To: Neurosarcoidosis From: rkelty99@...

Date: Wed, 27 Oct 2010 07:50:53 -0700

Subject: Re: Re:How fast is too fast to get off the Pred?

Kat, I've been on Imuran for two years and I don't notice any side effects at all except I've lost a lot of hair--just thinner on top and i've lost most of my body hair.  I still have to shave my legs, as the scruff is still there.  I have almost no hair on my arms or underarms.  Dr. Baughman just lowered my dose but I don't notice any hair growing back.  Has anyone else had the hair problem and have it return after going off of Imuran?

To: Neurosarcoidosis Sent: Sat, October 23, 2010 10:39:47 AM

Subject: Re:How fast is too fast to get off the Pred? 

I, too, have been on prednisone.  But I had the solumedrol IVs and oral prednisone.   I finally got off the IVs with acupuncture.  But, I realize everyone is different.   I have been battling reducing prednisone, because, like you, my vision worsens when I reduce.   I was at 60 mg initially with the IVs .   I had IVs for close to 2 years.  

 

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job.   So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again.   I have had this happen 3 times.  I am now at 16 and hoping I can get lower.  They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job.  I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting.  I need to ensure that I am at work everyday.

 

Kat