Guest guest Posted December 6, 2009 Report Share Posted December 6, 2009 Hi , Welcome to the group! We live in Chico, so ended up coming to Sacramento to see a pediatric neurosurgeon specialist for our daughter's positional plagiocephaly. I'm not sure who you are seeing, but we saw Dr. Ciricillo. If this is who you will be seeing, let me know, as I would have a few words of advice. We also ended up going to CIRS in Oakland, based on a recommendation from another mom from this group, and were very happy with the service we got there. Do you know of another STARband location that is even closer? If not, I am of the opinion that CIRS is a great option and that going to Pasadena would be unnecessary. We were able to get in pretty quickly at the CIRS location and worked with the orthotist named Trish, whom we really liked. It seems like a good idea to me to go ahead and set up an appointment (wherever you decide you're comfortable) for right after the appointment with the pediatric neurologist, as you don't want to lose additional time. Though I would rest assured that 8+ months isn't too old to still get great results. There are plenty of parents in this group who could attest to this fact. For full disclosure, we ended up not banding our daughter, as her head shape did noticeably improve over the three months that we were closely monitoring it, with repeated scans at CIRS. I " owe " the group an update about our situation, but will have to wait until another day, as I need to get to bed. Good luck and please keep me/us posted. Amy, Chico daughter Zia, 11.5 months, mild plagio/mild-moderate brachy p.s. I suffered with a lot of guilt and regret as well, which is finally subsiding after many months. I think what ultimately helped was being in action to remedy the situation. I hope the same is true for you and that your guilt dissipates now that you are moving forward! >>> Hi all. I've just joined and have learned so much from perusing >>> this group's postings. What a nice support group. >>> A quick recap of my son's plagio history: At 3 months we noticed >>> a flat spot developing. Mentioned it to the Dr., who said it >>> would go away w/ tummy time and once he started rolling around. >>> It didn't. Over the course of the next 4 months, I also asked >>> two different nurse practitioner and another doctor in the office >>> about the flattening. All said it was nothing to be worried >>> about and would probably correct itself in time, or " it would >>> just be like that forever. " I even asked about whether we needed >>> a helmet (I was unfamiliar with plagio, but knew of some babies >>> who had worn helmets) and was told no. I started to forget about >>> his head shape. Fast forward to Thanksgiving, when our visit to >>> out of town relatives led my Sister-in-law (who works in the >>> medical field) to notice 's head shape and tell us we >>> should get a second opinion, and quickly. So this week I've >>> poured over all the plagio info on the Internet, and I feel >>> certain that he has positional plagiocephaly, and likely at least >>> a moderate case of it. I am just sick about the fact that it's >>> taken me so long to do this research and angry that I listened to >>> doctors who clearly didn't know what they were talking about. >>> How to deal with the guilt? >>> We have an appt. set up with a reputable pediatric neurologist >>> here in Sacramento next Friday. My main concern now is that this >>> process will all move too slowly and delay what is already a late >>> start for banding. He turned 8 months old this week. Any tips >>> on things I could do to speed up the process? Should I call my >>> insurance provider (United Healthcare) in advance of our Dr.'s >>> office to inquire about their coverage of cranial orthotics? Is >>> there usually a long wait at places that do fittings for >>> Starbands (in our area) or DOCbands (our nearest CranialTech is >>> in Pasadena, 6 hours away--yikes.)? If so, perhaps I should try >>> to make an appt. now so that it will be already set up if/when >>> the neurologist sends us that direction. I just hate that we >>> waited so long to take action, and now fear that the laborious >>> process of getting this all going will cut into the months of >>> prime effectiveness for banding. >>> Sorry for the long message. Any advice that anyone can give on >>> speeding up the process and/or dealing with UHC would be helpful >>> and much appreciated. I read UHC's medical policy about >>> plagiocephaly online and it states that " Cranial orthotic devices >>> are cosmetic in infants with mild to moderate plagiocephaly. >>> There are no definitive data demonstrating that there are adverse >>> health effects associated with a mild to moderate degree of >>> cranial asymmetry, and, therefore, it is unclear whether >>> treatment of these individuals provides a future health benefit, >>> or merely a cosmetic effect. " Doesn't sound good for our chances >>> of insurance paying. >>> Thanks for your help! I think this group is going to be a great >>> help to me as we navigate this road. >>> On Dec 6, 2009, at 6:54 PM, Plagiocephaly wrote: > There are 25 messages in this issue. > > Topics in this digest: > > 1a. Re: Just figured out 4 month old has Plagio and mild > torticollis - p > From: smccown615 > 1b. Re: Just figured out 4 month old has Plagio and mild > torticollis - p > From: Kathy Jensen > 1c. Re: Just figured out 4 month old has Plagio and mild > torticollis - p > From: Kathy Jensen > 1d. Re: Just figured out 4 month old has Plagio and mild > torticollis - p > From: smccown615 > 1e. Re: Just figured out 4 month old has Plagio and mild > torticollis - p > From: llcoler@... > 1f. Re: Just figured out 4 month old has Plagio and mild > torticollis - p > From: Kathy Jensen > 1g. Re: Just figured out 4 month old has Plagio and mild > torticollis - p > From: Kathy Jensen > > 2a. Re: How can I prevent my baby from sleeping on her flat spot? > From: stacyolagundoye > > 3a. Re: Tips for Speeding up the Process? > From: Jo AnneS > 3b. Re: Tips for Speeding up the Process? > From: stacyolagundoye > 3c. Re: Tips for Speeding up the Process? > From: Jill McKay > 3d. Re: Tips for Speeding up the Process? > From: Kathy Jensen > 3e. Re: Tips for Speeding up the Process? > From: Kathy Jensen > 3f. Re: Tips for Speeding up the Process? > From: blueskies0402 > 3g. Re: Tips for Speeding up the Process? > From: blueskies0402 > 3h. Re: Tips for Speeding up the Process? > From: blueskies0402 > 3i. Re: Tips for Speeding up the Process? > From: Kathy Jensen > 3j. Re: Tips for Speeding up the Process? > From: Kathy Jensen > 3k. Re: Tips for Speeding up the Process? > From: Foley, Molly > > 4a. Re: Starband helmet against left cheekbone? > From: Kathy Jensen > 4b. Re: Starband helmet against left cheekbone? > From: Kathy Jensen > > 5a. FSA > From: blueskies0402 > 5b. Re: FSA > From: > 5c. Re: FSA > From: nwilkens2275 > > 6a. Re: New to Group: My Son has Brachycephaly > From: romantykrobyn > > > Messages > ______________________________________________________________________ > __ > 1a. Re: Just figured out 4 month old has Plagio and mild > torticollis - p > Posted by: " smccown615 " smccown615@... smccown615 > Date: Sun Dec 6, 2009 6:58 am ((PST)) > > I just wanted to add that the photos are in a folder with my email > name (smccown615). > > Thanks! > Sharyn > > >>> >>> >>> Hi all. I've just joined and have learned so much from perusing this >>> group's postings. What a nice support group. >>> A quick recap of my son's plagio history: At 3 months we noticed a >>> flat spot developing. Mentioned it to the Dr., who said it would go >>> away w/ tummy time and once he started rolling around. It didn't. >>> Over >>> the course of the next 4 months, I also asked two different nurse >>> practitioner and another doctor in the office about the flattening. >>> All said it was nothing to be worried about and would probably >>> correct >>> itself in time, or " it would just be like that forever. " I even >>> asked >>> about whether we needed a helmet (I was unfamiliar with plagio, but >>> knew of some babies who had worn helmets) and was told no. I started >>> to forget about his head shape. Fast forward to Thanksgiving, >>> when our >>> visit to out of town relatives led my Sister-in-law (who works in >>> the >>> medical field) to notice 's head shape and tell us we should >>> get a second opinion, and quickly. So this week I've poured over all >>> the plagio info on the Internet, and I feel certain that he has >>> positional plagiocephaly, and likely at least a moderate case of >>> it. I >>> am just sick about the fact that it's taken me so long to do this >>> research and angry that I listened to doctors who clearly didn't >>> know >>> what they were talking about. How to deal with the guilt? >>> We have an appt. set up with a reputable pediatric neurologist >>> here in >>> Sacramento next Friday. My main concern now is that this process >>> will >>> all move too slowly and delay what is already a late start for >>> banding. He turned 8 months old this week. Any tips on things I >>> could >>> do to speed up the process? Should I call my insurance provider >>> (United Healthcare) in advance of our Dr.'s office to inquire about >>> their coverage of cranial orthotics? Is there usually a long wait at >>> places that do fittings for Starbands (in our area) or DOCbands (our >>> nearest CranialTech is in Pasadena, 6 hours away--yikes.)? If so, >>> perhaps I should try to make an appt. now so that it will be already >>> set up if/when the neurologist sends us that direction. I just hate >>> that we waited so long to take action, and now fear that the >>> laborious >>> process of getting this all going will cut into the months of prime >>> effectiveness for banding. >>> Sorry for the long message. Any advice that anyone can give on >>> speeding up the process and/or dealing with UHC would be helpful and >>> much appreciated. I read UHC's medical policy about plagiocephaly >>> online and it states that " Cranial orthotic devices are cosmetic in >>> infants with mild to moderate plagiocephaly. There are no definitive >>> data demonstrating that there are adverse health effects associated >>> with a mild to moderate degree of cranial asymmetry, and, therefore, >>> it is unclear whether treatment of these individuals provides a >>> future >>> health benefit, or merely a cosmetic effect. " Doesn't sound good for >>> our chances of insurance paying. >>> Thanks for your help! I think this group is going to be a great help >>> to me as we navigate this road. >>> >>> >>> >> > > > > > ------------------------------------ > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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