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Re: 4 week update

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Hey ,

That's wonderful!!! Your doing so good too! Wow you get to skip

pureed and go onto a regular diet....makes all that clear stuff

you've been living on these past 4 weeks worth it then...I know your

like...nope!!!

Big hugs, in AL.

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,

That is awesome. I sure hope that I am lucky enough to hear that myself. The

thought of the pureed food is not appetizing. Keep up the good work!!

Dora in Tennessee

Lap/Open RNY 9/20/2004

Vanderbilt Hospital

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  • 10 months later...
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Ow! .

I'm so sorry you are having all this trouble.

One question: is there a chance that Neurontin or Trileptal might

help with the Bell's Palsy? They definitely make a difference in my

neuropathies.

I don't know of anybody who's gone that route -- and I've had two

friends who've had Bell's Palsy -- but I'd surely be asking a

neurologist.

I don't see how you can manage to work with all that going on. But I

hope you're feeling much better, and will get some much deserved rest.

Cammie

> Hi!

> How are my June buddies doing? Out of limbo, I hope. Yesterday, I

> needed an entire fleet of bulldozers but I couldn't even get out of

> bed to get to the computer.I had an appointment with my OS and he

> literally tried to yank and pull me out of limbo. I was concerned

> because my opening was decreasing instead of increasing. I went

from

> a 23 mm opening after PT to a 19 mm opening after aggressive

> stretching. My lower jaw was also shifted over to the left by

almost

> an entire tooth width. My OS took one look at me and said " muscle

> spasm " . First he tried stretching me to break the spasm without any

> pain meds. After much screaming and kicking on my part, he decided

> to numb me up. I don't know how many times he stuck me but he

> injected four vials of numbing medicine and steroids both on the

> outside and from the inside. Ouch, but when he was done, I felt so

> much better because the entire left side of my face was numb and

> pain-free! He then stretched me some more, still with me kicking

and

> screaming, and got me to 27 mm! The pain was so bad I almost threw

> up on him. I have not been able to open wide for three years now so

> my muscles have shortened and atrophied. It's going to take a lot

> more work to get to a somewhat normal opening. Afterwards, I felt

> really dizzy and the 35 minute drive home felt like hours. As soon

> as I got home, I started throwing up and couldn't keep anything

down

> including my meds. Eventually it took Zofran, Phenergan, Dramamine

> and hydrocodone to get the nausea under control. Then I weighed

> myself - I had gone from 91 lb that morning to 88.5 a few hours

> later. I had thrown up literally 2.5 lb of fluids. I actually

> contemplated going to the ER (which my surgeon recommended when I

> called him) but luckily I was able to avoid that. I have a friend

> who is a former ER nurse so she came over and gave me some IV

> fluids. I felt much better after that.

>

> Other than the muscle spasm, my OS was very pleased with my

> progress. The new joints are in good position and are functioning

> smoothly. My bite is a little off but bands and orthodontics and

> some dental work will be able to fix it. He has me back in bands

> again to pull my jaw back over to the midline. I actually feel

> better with the bands in because everything feels more stable and

my

> teeth come together a little better.

>

> Today, I'm sore but I feel a lot better than yesterday. No more

> nausea so I was able to keep down plenty of fluids today and got

> back to my normal weight. I had PT again today but because I'm

still

> sore and very swollen from yesterday, we only got to 23 mm. Still,

> it's better than last week! My PT also suggested that I get some

> speech therapy. After speaking through clenched teeth for the last

> three years, I need some help to learn to speak normally again. I

> tend to mumble.

>

> Tomorrow I'm going back to work for the first time. That should be

> interesting. I'm quite scary looking with my left side all swollen,

> Bell's palsy (facial paralysis, also left-sided), enstein

scars

> on my face and neck and to top it off, I missed my hair appointment

> yesterday so my gray roots are about an inch long. I'm working the

> night shift so hopefully my patients will be too sleepy to notice.

> I'm only scheduled for two shifts and then I have another week off.

>

> I hope everyone is doing well.

> minirascal-

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minirascal,

I haven't been around on the site much lately but I just wanted to say

that I am sending you a HUGE hug. You sound like you have been through

a heck of a lot ONCE AGAIN and I am so proud of you for surviving so

bravely and persistently as per your usual impeccable behavior.

Thinking of you and sending you lots of positive vibes that will

hopefully help strengthen those jaw muscles of yours.

Sara

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