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This is an old post from Aisha, but I like the suggestions she lists.

Things to tell the Disabilty people...

"Remember what I said before, you emphasize the things you CANT do not the things you can. I CANT take care of myself. I CANT take care of the house. I CANT remember what day it is. I CANT remember to take my medication. I CANT, I CANT, I CANT!!!!!!!!!!!!! These are the key words and are what the SSA disability examiners look for."

Love Shar

Absolutely!!!!

Here is a list from the Disability Checkers in Australia that might help you or give you ideas for your letter/appeal etc! Keep fighting. Most people dont get approved first go in the USA... just appeal and if you need to, get a lawyer.

This is the form a carer fills in. Its very similar to ones the Dr's fill in. I'm taking this straight off the form. These are the Questions and Answers. Use it as a guide so you know the type of thing they are looking for and are prepared. Hope it helps!

Love Aisha.

Day to Day care needs

Can you:-

move around the house without help/with some help/with alot of help/cannot do this

fall over indoors always/often/sometimes/never

fall out of wheelchair if unattended always/often/sometimes/never

move to and from bed, chairs, wheelchair and walking aids without help/with some help/with alot of help/cannot do this

have difficulty hearing clearlyalways/often/sometimes/never

have difficulty seeing clearlyalways/often/sometimes/never

need help or attention during the nightalways/often/sometimes/never

have loss of bladder and or bowel controlalways/often/sometimes/never

use continence aids or equipmentwithout help/with some help/with alot of help/does not use aids

use the toiletwithout help/with some help/with alot of help/cannot use a toilet

eat his/her foodwithout help/with some help/with alot of help/cannot feed themselves

shower, bathe him/herselfwithout help/with some help/with alot of help/cannot do this

dress him/herself (the want to know if you can tie shoe laces, do up buttons, zips etc)without help/with some help/with alot of help/cannot do this

look after personal grooming (shaving, caring for hair, teeth)without help/with some help/with alot of help/cannot do this

take care of own medication (takes right table at right time)without help/with some help/with alot of help/cannot do this/does not take medication

take care of his/her own treatments (oxygen/wound care/tube feeds)without help/with some help/with alot of help/cannot do this/does not use treatments

Cognitive function (Mental Capacities)

understands what you sayalways/often/sometimes/never

understands what other people sayalways/often/sometimes/never

lets others know how he/she feels and what he/she needsalways/often/sometimes/never

know where he/she isalways/often/sometimes/never

know whether it is morning, afternoon or nightalways/often/sometimes/never

remember things that happened todayalways/often/sometimes/never

wander away or run away from homnever/sometimes/often

shout, scream at or threaten other peoplenever/sometimes/often

physically harm other peoplenever/sometimes/often

damage furniture, posessions or objectsnever/sometimes/often

laugh or cry without apparent reasonnever/sometimes/often

withdraw from social contact with other people or appear depressed or worried or fearfulnever/sometimes/often

deliberately harm him/herselfnever/sometimes/often

have unusal, unappropriate behavioursnever/sometimes/often

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

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Rose Thank you so much,  I'm still thinking, should I or shouldn't I?  Thanks,Marla

 

Marla, here is one of Connie's posts about disability.  I'll be sending some more through today.

 

As to the bottom question, it is all offices on the initial or recon level.  You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same.  I do all initial cases now.  I don't understand why it is commonly thought that lawyers change our opinion.  They do not write up paperwork and send it to us.  They may help the client fill out their paperwork, or forward medical records; but that's about it.  Occasionally, the client will want us to talk through them, but that doesn't change anything either. 

 

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems.  Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me.  If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult.  If he can get his doctor to write a " Medical Source Statement " regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself " brutally " honestly, it will help  When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is.  How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does.  Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc.  Is he exposed to the weather (high heat, cold, etc.), and how does this affect him.   Medical records only tell us so much, and function is the key word as far as disability is concerned.  If it proceeds, and gets to the court appeal level he needs an atty then.  It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble.  I have found cases that should have been approved the first time and reopened them back to the first case, it happens.  Hope this helps, you can always ask a question, I will do my best to answer it.  I just can't work on cases of people I personally know.    connie   

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600

Subject: Re: Disability

Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think.  Thanks,

marla

 

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process.  We do have lots of stuff in the archives, but I have saved several especially good posts.  I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600

Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work

for me.  I guess I should check out the archives too, I will do that too.  But suggestions are appreciated.Thanks:)Marla

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Well, it wouldn't hurt to start the process, as it may take quite awhile. Now my daughter Ginny got approved on the first try, in about 3 months. I was astonished. She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them. Or maybe she just got lucky.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Tue, 24 Aug 2010 21:32:36 -0600Subject: Re: Disability

Rose Thank you so much, I'm still thinking, should I or shouldn't I? Thanks,Marla

Marla, here is one of Connie's posts about disability. I'll be sending some more through today.

As to the bottom question, it is all offices on the initial or recon level. You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same. I do all initial cases now. I don't understand why it is commonly thought that lawyers change our opinion. They do not write up paperwork and send it to us. They may help the client fill out their paperwork, or forward medical records; but that's about it. Occasionally, the client will want us to talk through them, but that doesn't change anything either.

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems. Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me. If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult. If he can get his doctor to write a "Medical Source Statement" regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself "brutally" honestly, it will help When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is. How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does. Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc. Is he exposed to the weather (high heat, cold, etc.), and how does this affect him. Medical records only tell us so much, and function is the key word as far as disability is concerned. If it proceeds, and gets to the court appeal level he needs an atty then. It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble. I have found cases that should have been approved the first time and reopened them back to the first case, it happens. Hope this helps, you can always ask a question, I will do my best to answer it. I just can't work on cases of people I personally know. connie

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600Subject: Re: Disability

Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think. Thanks, marla

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process. We do have lots of stuff in the archives, but I have saved several especially good posts. I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work for me. I guess I should check out the archives too, I will do that too. But suggestions are appreciated.Thanks:)Marla

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It probably did, it's hard when you don't look very sick, since selling MK I've always tried to look my best so I can sell it right.  Well that's where everyone gets this idea I must feel as good as I look, they just don't know it took some major plaster work:)  

I have a question, do you automatically get put on Medicare too?  Or if you have insurance through your husband can you just stay on that?  My husbands worried thatI will get put on Medicare and with this new Obama care, when I reach a certain old, they

will say I'm too old to be treated for anything,  you know like Solent Green,  remember that movie? lol I shouldn't laugh I guess anything possible?  Anyway just wondered if you knew?  Hey did I see leave us?   

Marla

 

Well, it wouldn't hurt to start the process, as it may take quite awhile.  Now my daughter Ginny got approved on the first try, in about 3 months.  I was astonished.  She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them.  Or maybe she just got lucky.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Tue, 24 Aug 2010 21:32:36 -0600

Subject: Re: Disability

Rose Thank you so much,  I'm still thinking, should I or shouldn't I?  Thanks,Marla

 

Marla, here is one of Connie's posts about disability.  I'll be sending some more through today. 

As to the bottom question, it is all offices on the initial or recon level.  You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same.  I do all initial cases now.  I don't understand why it is commonly thought that lawyers change our opinion.  They do not write up paperwork and send it to us.  They may help the client fill out their paperwork, or forward medical records; but that's about it.  Occasionally, the client will want us to talk through them, but that doesn't change anything either. 

 

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems.  Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me.  If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult.  If he can get his doctor to write a " Medical Source Statement " regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself " brutally " honestly, it will help  When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is.  How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does.  Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc.  Is he exposed to the weather (high heat, cold, etc.), and how does this affect him.   Medical records only tell us so much, and function is the key word as far as disability is concerned.  If it proceeds, and gets to the court appeal level he needs an atty then.  It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble.  I have found cases that should have been approved the first time and reopened them back to the first case, it happens.  Hope this helps, you can always ask a question, I will do my best to answer it.  I just can't work on cases of people I personally know.    connie   

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600

Subject: Re: Disability

Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think.  Thanks,

marla

 

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process.  We do have lots of stuff in the archives, but I have saved several especially good posts.  I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600

Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work

for me.  I guess I should check out the archives too, I will do that too.  But suggestions are appreciated.Thanks:)Marla

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I don't think I saw that movie. You aren't eligible for Medicare until you've had disability for 2 years, but I don't think it's mandatory. Seems like if you don't sign up when you are first eligible, you have to wait awhile before you get another chance & then it costs more money. I might have that wrong--it's been awhile--or the rules might have changed.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 14:25:45 -0600Subject: Re: Disability

It probably did, it's hard when you don't look very sick, since selling MK I've always tried to look my best so I can sell it right. Well that's where everyone gets this idea I must feel as good as I look, they just don't know it took some major plaster work:) I have a question, do you automatically get put on Medicare too? Or if you have insurance through your husband can you just stay on that? My husbands worried thatI will get put on Medicare and with this new Obama care, when I reach a certain old, they will say I'm too old to be treated for anything, you know like Solent Green, remember that movie? lol I shouldn't laugh I guess anything possible? Anyway just wondered if you knew? Hey did I see leave us? Marla

Well, it wouldn't hurt to start the process, as it may take quite awhile. Now my daughter Ginny got approved on the first try, in about 3 months. I was astonished. She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them. Or maybe she just got lucky.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Tue, 24 Aug 2010 21:32:36 -0600

Subject: Re: DisabilityRose Thank you so much, I'm still thinking, should I or shouldn't I? Thanks,Marla

Marla, here is one of Connie's posts about disability. I'll be sending some more through today.

As to the bottom question, it is all offices on the initial or recon level. You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same. I do all initial cases now. I don't understand why it is commonly thought that lawyers change our opinion. They do not write up paperwork and send it to us. They may help the client fill out their paperwork, or forward medical records; but that's about it. Occasionally, the client will want us to talk through them, but that doesn't change anything either.

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems. Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me. If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult. If he can get his doctor to write a "Medical Source Statement" regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself "brutally" honestly, it will help When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is. How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does. Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc. Is he exposed to the weather (high heat, cold, etc.), and how does this affect him. Medical records only tell us so much, and function is the key word as far as disability is concerned. If it proceeds, and gets to the court appeal level he needs an atty then. It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble. I have found cases that should have been approved the first time and reopened them back to the first case, it happens. Hope this helps, you can always ask a question, I will do my best to answer it. I just can't work on cases of people I personally know. connie

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600Subject: Re: Disability Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think. Thanks, marla

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process. We do have lots of stuff in the archives, but I have saved several especially good posts. I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work for me. I guess I should check out the archives too, I will do that too. But suggestions are appreciated.Thanks:)Marla

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Hey Rose, Thanks for the info, I really appreciate it, I bet you saw that movie and don't remember, at a certain age like 70 it was mandatory that you show up to basically die, they recycle you, and people line up daily to be fed, that's the jest of it! 

God forbid we ever get to that.  Thanks, again, Marla

 

I don't think I saw that movie.  You aren't eligible for Medicare until you've had disability for 2 years, but I don't think it's mandatory.  Seems like if you don't sign up when you are first eligible, you have to wait awhile before you get another chance & then it costs more money.  I might have that wrong--it's been awhile--or the rules might have changed.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 14:25:45 -0600

Subject: Re: Disability

It probably did, it's hard when you don't look very sick, since selling MK I've always tried to look my best so I can sell it right.  Well that's where everyone gets this idea I must feel as good as I look, they just don't know it took some major plaster work:)  

I have a question, do you automatically get put on Medicare too?  Or if you have insurance through your husband can you just stay on that?  My husbands worried thatI will get put on Medicare and with this new Obama care, when I reach a certain old, they

will say I'm too old to be treated for anything,  you know like Solent Green,  remember that movie? lol I shouldn't laugh I guess anything possible?  Anyway just wondered if you knew?  Hey did I see leave us?   

Marla

 

Well, it wouldn't hurt to start the process, as it may take quite awhile.  Now my daughter Ginny got approved on the first try, in about 3 months.  I was astonished.  She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them.  Or maybe she just got lucky.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Tue, 24 Aug 2010 21:32:36 -0600

Subject: Re: DisabilityRose Thank you so much,  I'm still thinking, should I or shouldn't I?  Thanks,Marla

 

Marla, here is one of Connie's posts about disability.  I'll be sending some more through today. 

As to the bottom question, it is all offices on the initial or recon level.  You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same.  I do all initial cases now.  I don't understand why it is commonly thought that lawyers change our opinion.  They do not write up paperwork and send it to us.  They may help the client fill out their paperwork, or forward medical records; but that's about it.  Occasionally, the client will want us to talk through them, but that doesn't change anything either. 

 

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems.  Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me.  If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult.  If he can get his doctor to write a " Medical Source Statement " regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself " brutally " honestly, it will help  When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is.  How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does.  Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc.  Is he exposed to the weather (high heat, cold, etc.), and how does this affect him.   Medical records only tell us so much, and function is the key word as far as disability is concerned.  If it proceeds, and gets to the court appeal level he needs an atty then.  It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble.  I have found cases that should have been approved the first time and reopened them back to the first case, it happens.  Hope this helps, you can always ask a question, I will do my best to answer it.  I just can't work on cases of people I personally know.    connie   

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

  

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600

Subject: Re: Disability Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think.  Thanks,

marla

 

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process.  We do have lots of stuff in the archives, but I have saved several especially good posts.  I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600

Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work

for me.  I guess I should check out the archives too, I will do that too.  But suggestions are appreciated.Thanks:)Marla

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Recycling is good!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 16:45:28 -0600Subject: Re: Disability

Hey Rose, Thanks for the info, I really appreciate it, I bet you saw that movie and don't remember, at a certain age like 70 it was mandatory that you show up to basically die, they recycle you, and people line up daily to be fed, that's the jest of it! God forbid we ever get to that. Thanks, again, Marla

I don't think I saw that movie. You aren't eligible for Medicare until you've had disability for 2 years, but I don't think it's mandatory. Seems like if you don't sign up when you are first eligible, you have to wait awhile before you get another chance & then it costs more money. I might have that wrong--it's been awhile--or the rules might have changed.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 14:25:45 -0600

Subject: Re: DisabilityIt probably did, it's hard when you don't look very sick, since selling MK I've always tried to look my best so I can sell it right. Well that's where everyone gets this idea I must feel as good as I look, they just don't know it took some major plaster work:) I have a question, do you automatically get put on Medicare too? Or if you have insurance through your husband can you just stay on that? My husbands worried thatI will get put on Medicare and with this new Obama care, when I reach a certain old, they will say I'm too old to be treated for anything, you know like Solent Green, remember that movie? lol I shouldn't laugh I guess anything possible? Anyway just wondered if you knew? Hey did I see leave us? Marla

Well, it wouldn't hurt to start the process, as it may take quite awhile. Now my daughter Ginny got approved on the first try, in about 3 months. I was astonished. She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them. Or maybe she just got lucky.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Tue, 24 Aug 2010 21:32:36 -0600

Subject: Re: DisabilityRose Thank you so much, I'm still thinking, should I or shouldn't I? Thanks,Marla

Marla, here is one of Connie's posts about disability. I'll be sending some more through today.

As to the bottom question, it is all offices on the initial or recon level. You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same. I do all initial cases now. I don't understand why it is commonly thought that lawyers change our opinion. They do not write up paperwork and send it to us. They may help the client fill out their paperwork, or forward medical records; but that's about it. Occasionally, the client will want us to talk through them, but that doesn't change anything either.

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems. Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me. If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult. If he can get his doctor to write a "Medical Source Statement" regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself "brutally" honestly, it will help When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is. How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does. Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc. Is he exposed to the weather (high heat, cold, etc.), and how does this affect him. Medical records only tell us so much, and function is the key word as far as disability is concerned. If it proceeds, and gets to the court appeal level he needs an atty then. It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble. I have found cases that should have been approved the first time and reopened them back to the first case, it happens. Hope this helps, you can always ask a question, I will do my best to answer it. I just can't work on cases of people I personally know. connie

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600Subject: Re: Disability Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think. Thanks, marla

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process. We do have lots of stuff in the archives, but I have saved several especially good posts. I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work for me. I guess I should check out the archives too, I will do that too. But suggestions are appreciated.Thanks:)Marla

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I knew someone would remember it:) 

 

Marla,  at the time, when that movie came out, it scared the bejeebees out of me.   Freaked me out.   It woulld be nothing nowadays but a real classic, to be sure.   hugs 

Life may not always be the party we hoped for, but while we're here we might as well dance!

 

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process.  We do have lots of stuff in the archives, but I have saved several especially good posts.  I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator

 A merry heart is good medicine.  Proverbs 17:22 

 

To: neurosarcoidosis From: mebramer@...

Date: Sun, 22 Aug 2010 15:20:25 -0600Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work

for me.  I guess I should check out the archives too, I will do that too.  But suggestions are appreciated.Thanks:)Marla

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  • 2 weeks later...

My pleasure

To: Neurosarcoidosis Sent: Sat, September 4, 2010 8:44:57 PMSubject: Re: Disability

Connie, Thank you, I am saving all these emails, and will be talking to my docs soon. Boy the memory issue is big for me, the other day I took my night pills in the am, and I take something that helps my restless legs, and makes me sleepy, well, I didn't realize I did that, even though they are clearly marked, and told my Mom, WOW I'm really tired today, took two naps, lol then couldn't stay asleep that night, so sleepy again the next day, it took a couple days to just recover from that:) Thank you for all your advice, you don't know how much I appreciate this. God Bless, Marla

I'm sorry I forgot something (does that sound familiar) The mental challeges we face, put all of them down; if you have short term memory problems, long term memory problems, trouble remembering to take your medicine, concentration problems, trouble finding words, trouble understanding or following directions sometimes, etc.

To: neurosarcoidosis Sent: Thu, August 26, 2010 9:26:08 PMSubject: RE: Disability

Ooooo, I wonder if I've already gotten recyclables?!?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

It's not that life is so short-------It's that we wait so long to begin.

(attributed to Wooden, among others)

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 16:50:59 -0600

Subject: Re: DisabilityI wonder do we get to pick, or do we just randomly get whatever?

Recycling is good!

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 16:45:28 -0600

Subject: Re: DisabilityHey Rose, Thanks for the info, I really appreciate it, I bet you saw that movie and don't remember, at a certain age like 70 it was mandatory that you show up to basically die, they recycle you, and people line up daily to be fed, that's the jest of it! God forbid we ever get to that. Thanks, again, Marla

I don't think I saw that movie. You aren't eligible for Medicare until you've had disability for 2 years, but I don't think it's mandatory. Seems like if you don't sign up when you are first eligible, you have to wait awhile before you get another chance & then it costs more money. I might have that wrong--it's been awhile--or the rules might have changed.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Thu, 26 Aug 2010 14:25:45 -0600

Subject: Re: DisabilityIt probably did, it's hard when you don't look very sick, since selling MK I've always tried to look my best so I can sell it right. Well that's where everyone gets this idea I must feel as good as I look, they just don't know it took some major plaster work:) I have a question, do you automatically get put on Medicare too? Or if you have insurance through your husband can you just stay on that? My husbands worried thatI will get put on Medicare and with this new Obama care, when I reach a certain old, they will say I'm too old to be treated for anything, you know like Solent Green, remember that movie? lol I shouldn't laugh I guess anything possible? Anyway just wondered if you knew? Hey did I see leave us? Marla

Well, it wouldn't hurt to start the process, as it may take quite awhile. Now my daughter Ginny got approved on the first try, in about 3 months. I was astonished. She was on long-term TPN (formula feedings through IV's for the non-medical folks out there), after about a year of j-tube feeding (tube directly into small bowel through her belly), so maybe that impressed them. Or maybe she just got lucky.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Tue, 24 Aug 2010 21:32:36 -0600

Subject: Re: DisabilityRose Thank you so much, I'm still thinking, should I or shouldn't I? Thanks,Marla

Marla, here is one of Connie's posts about disability. I'll be sending some more through today.

As to the bottom question, it is all offices on the initial or recon level. You just have to remember on the recon level, something has to change in the allegations or the decision will usually remain the same. I do all initial cases now. I don't understand why it is commonly thought that lawyers change our opinion. They do not write up paperwork and send it to us. They may help the client fill out their paperwork, or forward medical records; but that's about it. Occasionally, the client will want us to talk through them, but that doesn't change anything either.

Jackie, age, type of work, description of past work, and adult funtioning paperwork are all things that can cause a case to have problems. Even though I am older (53); the fact that I do what is considered a sedentary job (computer work-office work) this can hinder approval for someone like me. If you are 49 or younger, or if your job is less physical; such as mine it is a little more difficult. If he can get his doctor to write a "Medical Source Statement" regarding his limitations this is extremely helpful for him, and have family and friends write letters describing how limited he is, plus answer the adult functioning paperwork himself "brutally" honestly, it will help When someone is fighting fibromyalgia they need to tell us just how awfully limiting it is. How limited he is as far as standing, sitting, how much it affects his sleep, how much it limits the amount of weight he can pick

up, how far he can walk, how much household activity is limited, how severely it has changed his life; and then when he writes up his job sit down and think of all the things he does. Does he carry equipment, does he drive alot, does he walk alot, does he go long distances from building to building, is it painful for him to sit, is it painful to stand, walk, etc. Is he exposed to the weather (high heat, cold, etc.), and how does this affect him. Medical records only tell us so much, and function is the key word as far as disability is concerned. If it proceeds, and gets to the court appeal level he needs an atty then. It is also better if for some reason you are initially denied, that you refile a new case; recon cases seem to have more trouble. I have found cases that should have been approved the first time and reopened them back to the first case, it happens. Hope this

helps, you can always ask a question, I will do my best to answer it. I just can't work on cases of people I personally know. connie

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Mon, 23 Aug 2010 09:00:14 -0600Subject: Re: Disability Thanks Rose, I went through the archives and didn't find much, maybe I'm not using the right word to have them come up, not sure, I am in such brain fog right now, seems like I can't think. Thanks, marla

Marla, I know that Connie is a disability certifier (? title) in Florida, but she is very knowledgeable about the process. We do have lots of stuff in the archives, but I have saved several especially good posts. I'm fixin' to hit the sack now, but will look for those in the next couple of days.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: neurosarcoidosis From: mebramer@...Date: Sun, 22 Aug 2010 15:20:25 -0600Subject: Disability

I know there is someone or use to be, but with brain fog I can't remember who, that did or knew how to dodisability, I've put it off thinking I can just work more in my MK business, but I can't, it's still just too much work for me. I guess I should check out the archives too, I will do that too. But suggestions are appreciated.Thanks:)Marla

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  • 2 months later...

La, You are in a very difficult time of the disease process, and all your feelings are very common.  I also believe that just about everyone gets denied the first time.  I am one very blessed women, My Husband takes good care of me, I don't have to work, but since I've worked all my life, it's hard for me to do nothing, since I left Nursing (Labor and delivery) I've tired teaching at the community college, and that got to be too much for me.  I've been selling Kay Cosmetics since I left too, and I love that, and wanted to go up the ranks and become a Director, and after 7 years, I realized I just don't have the energy it takes to do that either, I do some home health for a small company, I do there certifications for there home care providers, and some teaching, it's less then a 1/4 time job.  My husband just started a new business and I try to help him out too. 

I guess what I'm saying is, it's just plain hard to know what to do, try and work again?  or try for Disability again?  I still keep thinking I should be working more, try the hospital again, then look for what jobs they have, as there's always nursing positions posted, then see 12 hour shift, there's NO Way I could do that, so I let it go for awhile.

What ever you decide will be the right thing for you, I will keep you in my prayers, and hope God will guide you. MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too

is just today:)  

 

Is anyone on disability or applied for disability? I have applied but of course was denied. In the process of appealing the decision. Should I keep trying or just try and go back to work. I fear going back to work because of the fatigue and the eye sight problems. I am torn as to what to do because I am only 36. I know none of you can make that decision for me. But I was curious how everyone else is dealing with sarc and working. I do not want to seem like I am using this as an excuse and not wanting to work but I have not gotten a handle on the disease yet and am still in the trial and error stage. I also fear if I go back to work and have to keep taking off for doctors appts and the remicade infusion drips that the my employer will not be as understanding and fire me. Then I will

right back where I started. I just dont know what to do and where to go from here.

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