Re: Flare after 3 years on SCD

[Guest guest]

I looked up Epicor and it contains:

Serving Size (1 Vegetarian Capsule):

Servings Per Container: 60

EpiCor Dried Yeast Fermentate 500mg

Other Ingredients: Vegetable Capsule, Silicon Dioxide, Magnesium Stearate

(Vegetable Source)

Add this to the lactose in the S bouilardi and it looks like you gave your gut a

dose of illegals.

Since SCD worked so well for you, I think returning to it strictly will turn

things around.

PJ

>

> Hi Everyone,

> I have been on SCD for about 3 and 1/2 years now and was doing really

> well until the past couple of months when I have been in a flare. I

> believe I was perhaps eating too many advanced foods in a day and

> increased hours and stress at work may have contributed. However, I

> also got some advice from 2 so called " experts on SCD " that may have

> led me astray.

>

> Since I learned how to follow this diet correctly from all of the

> generous people on this list serve, I feel I really need to come back

> and ask your opinion on the advice I received. And also check in

> about the legality of some supplements I have been taking.

>

> 1) About 6 months ago I started taking Epicor (please see link below

> for ingredients) because the environmental doc who told me about SCD

> told me she had checked with the SCD expert at a DAN doctors

> conference and been told that it would be fine for me while on SCD.

> Now I am questioning whether it might have contributed to the flare.

> I am guessing it is illegal, but does anyone have an opinion on it?

> http://www.iherb.com/Healthy-Origins-EpiCor-500-mg-150-Capsules/8352?at=0

>

>

> 2) This week I saw a nutritionist who supposedly knows SCD well. I

> was especially happy because I was in a flare so I thought it would be

> great. She was recommended by my primary care doc who has tried SCD

> herself. The nutritionist told me to take Kombu and Nori seaweed

> every day. I told her it was illegal and she insisted that on an

> earlier form of the diet it was allowed. I looked it up when I got

> home and it's loaded with polysaccharides, so I didn't take it.

>

> I did take the form of S Boulardii she recommended: Florastor:

> Ingredients: S boulardii 250 mg and lactose 33 mg. I told her the

> lactose was illegal and she said it would be eaten by the S

> Boulardii. I took it twice and got an awful stomach ache, so

> discontinued and ordered the legal one from GI Pro health. I am

> curious to see if the one she ordered was legal though, for future

> reference.

>

> She also recommended PB8-- a totally illegal probiotic that has lots

> of strains and maltodextrin. I of course did not take that.

>

> I am on day 4 of the intro diet now-----long story but it's the third

> time in about 2 months because I didn't really get it right the last 2

> times for various reasons. I am staying home and resting and my tummy

> if feeling a bit better. I think the combination of work, stress and

> tummy problems has created some exhaustion and I need to give in and

> just rest up. It is a bit discouraging to have been doing so well and

> to find myself here again.

>

> I have been reading people's posts about flares though and realize

> that this is just part of the process for people with gut disorders.

> We do have set backs and we have to do all we know about SCD to get

> out of them.

>

> I guess I'd like to warn people about " experts " on SCD who may be out

> in the medical field. So far, I've not met anyone who understands

> what fanatical adherence means.

>

> And I want to thank the incredible people on this list for your advice

> and support over the years. I don't post often and lately I save the

> posts and read them as I need info.

>

> I am so grateful to know that you are there.

>

> Thank you for your opinion on these supplements

> Take care

> Jeanine

> SCD 31/2 years

> celiac

>

[Guest guest]

Thank you PJ That is what I was thinking. I am going to have to give my environmental doctor some feedback about how risky her advice was. I thought that I just read that people who speak at conferences on SCD have to be approved by the Gottschall people. I wonder how the DAN doctor she asked got approved since the person is obviously not knowledgeable enough about it.JeanineSCD 3 1/2 yearsceliacI looked up Epicor and it contains:Serving Size (1 Vegetarian Capsule):Servings Per Container: 60 EpiCor Dried Yeast Fermentate 500mgOther Ingredients: Vegetable Capsule, Silicon Dioxide, Magnesium Stearate (Vegetable Source) Add this to the lactose in the S bouilardi and it looks like you gave your gut a dose of illegals.Since SCD worked so well for you, I think returning to it strictly will turn things around.PJ>> Hi Everyone,> I have been on SCD for about 3 and 1/2 years now and was doing really > well until the past couple of months when I have been in a flare. I > believe I was perhaps eating too many advanced foods in a day and > increased hours and stress at work may have contributed. However, I > also got some advice from 2 so called "experts on SCD" that may have > led me astray.> > Since I learned how to follow this diet correctly from all of the > generous people on this list serve, I feel I really need to come back > and ask your opinion on the advice I received. And also check in > about the legality of some supplements I have been taking.> > 1) About 6 months ago I started taking Epicor (please see link below > for ingredients) because the environmental doc who told me about SCD > told me she had checked with the SCD expert at a DAN doctors > conference and been told that it would be fine for me while on SCD. > Now I am questioning whether it might have contributed to the flare. > I am guessing it is illegal, but does anyone have an opinion on it?> http://www.iherb.com/Healthy-Origins-EpiCor-500-mg-150-Capsules/8352?at=0> > > 2) This week I saw a nutritionist who supposedly knows SCD well. I > was especially happy because I was in a flare so I thought it would be > great. She was recommended by my primary care doc who has tried SCD > herself. The nutritionist told me to take Kombu and Nori seaweed > every day. I told her it was illegal and she insisted that on an > earlier form of the diet it was allowed. I looked it up when I got > home and it's loaded with polysaccharides, so I didn't take it.> > I did take the form of S Boulardii she recommended: Florastor: > Ingredients: S boulardii 250 mg and lactose 33 mg. I told her the > lactose was illegal and she said it would be eaten by the S > Boulardii. I took it twice and got an awful stomach ache, so > discontinued and ordered the legal one from GI Pro health. I am > curious to see if the one she ordered was legal though, for future > reference.> > She also recommended PB8-- a totally illegal probiotic that has lots > of strains and maltodextrin. I of course did not take that.> > I am on day 4 of the intro diet now-----long story but it's the third > time in about 2 months because I didn't really get it right the last 2 > times for various reasons. I am staying home and resting and my tummy > if feeling a bit better. I think the combination of work, stress and > tummy problems has created some exhaustion and I need to give in and > just rest up. It is a bit discouraging to have been doing so well and > to find myself here again.> > I have been reading people's posts about flares though and realize > that this is just part of the process for people with gut disorders. > We do have set backs and we have to do all we know about SCD to get > out of them.> > I guess I'd like to warn people about "experts" on SCD who may be out > in the medical field. So far, I've not met anyone who understands > what fanatical adherence means.> > And I want to thank the incredible people on this list for your advice > and support over the years. I don't post often and lately I save the > posts and read them as I need info.> > I am so grateful to know that you are there.> > Thank you for your opinion on these supplements> Take care> Jeanine> SCD 31/2 years> celiac>

[Guest guest]

At 05:29 PM 6/7/2010, you wrote:

1) About 6 months ago I

started taking Epicor (please see link below for ingredients)

because the environmental doc who told me about SCD told me she had

checked with the SCD expert at a DAN doctors conference and been told

that it would be fine for me while on SCD. Now I am questioning

whether it might have contributed to the flare. I am guessing it is

illegal, but does anyone have an opinion on it?

http://www.iherb.com/Healthy-Origins-EpiCor-500-mg-150-Capsules/8352?at=0

Epicor is not SCD-legal. It's Sacchromyces Cerevisiae, and it is

not permitted.

>> 2) This week I saw a nutritionist who supposedly knows SCD

well. I was especially happy because I was in a flare so I thought

it would be great. She was recommended by my primary care doc who

has tried SCD herself. The nutritionist told me to take Kombu and

Nori seaweed every day. I told her it was illegal and she insisted

that on an earlier form of the diet it was allowed. I looked it up

when I got home and it's loaded with polysaccharides, so I didn't take

it. <<

No. Seaweed has never been allowed on SCD. You were wise not to

take it.

>> I did take the form of S Boulardii she recommended:

Florastor: Ingredients: S boulardii 250 mg and

lactose 33 mg. I told her the lactose was illegal and she said it

would be eaten by the S Boulardii. I took it twice and got an awful

stomach ache, <<

I have to shake my head. I was taking both l. acidophilus and s.

boulardii after my uterine cancer surgery -- and ended up on Motrin,

which is formulated with lactose. My probiotics sure as Hades didn't

touch the lactose in the Motrin -- and I can guarantee you that leaping

out of bed to rush to the toilet with explosive diarrhea when you have a

24 " incision across your gut is NOT entertaining.

I sometimes get really ticked that people give poor advice like this --

and get paid for it -- and then their victims have to come to us, the

unpaid volunteers, to clear up the issues created by the poor

advice.

Basically, you handed your poor gut a major whack of illegals, and

bollixed your gut ecology. Since SCD has worked well for you, you might

wish to return to fanatical adherence -- and step back to more easily

digested foods for a bit.

S. boulardii is good stuff, but you need a brand without illegals in

it.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Thank you MarilynAnd you know, when the doctor told me to take the epicor I remembered that you said there was only one yeast allowed on SCD---but somehow the fact that this is a doc who has helped me a lot in other ways held sway over that little voice in my head---and over your excellent and wise advice. I can be pretty dumb sometimes.And yes, it is really awful that the people getting the big bucks are causing more work for you generous kind volunteers. I am going to try to do my best to educate the 2 I have contact with so maybe they won't send any more of their victims your way. Back to being fanatical! Thank you so much!JeanineSCD 31/2 yearsceliac At 05:29 PM 6/7/2010, you wrote:1) About 6 months ago I started taking Epicor (please see link below for ingredients) because the environmental doc who told me about SCD told me she had checked with the SCD expert at a DAN doctors conference and been told that it would be fine for me while on SCD. Now I am questioning whether it might have contributed to the flare. I am guessing it is illegal, but does anyone have an opinion on it?http://www.iherb.com/Healthy-Origins-EpiCor-500-mg-150-Capsules/8352?at=0Epicor is not SCD-legal. It's Sacchromyces Cerevisiae, and it is not permitted.>> 2) This week I saw a nutritionist who supposedly knows SCD well. I was especially happy because I was in a flare so I thought it would be great. She was recommended by my primary care doc who has tried SCD herself. The nutritionist told me to take Kombu and Nori seaweed every day. I told her it was illegal and she insisted that on an earlier form of the diet it was allowed. I looked it up when I got home and it's loaded with polysaccharides, so I didn't take it. <<No. Seaweed has never been allowed on SCD. You were wise not to take it.>> I did take the form of S Boulardii she recommended: Florastor: Ingredients: S boulardii 250 mg and lactose 33 mg. I told her the lactose was illegal and she said it would be eaten by the S Boulardii. I took it twice and got an awful stomach ache, <<I have to shake my head. I was taking both l. acidophilus and s. boulardii after my uterine cancer surgery -- and ended up on Motrin, which is formulated with lactose. My probiotics sure as Hades didn't touch the lactose in the Motrin -- and I can guarantee you that leaping out of bed to rush to the toilet with explosive diarrhea when you have a 24" incision across your gut is NOT entertaining.I sometimes get really ticked that people give poor advice like this -- and get paid for it -- and then their victims have to come to us, the unpaid volunteers, to clear up the issues created by the poor advice.Basically, you handed your poor gut a major whack of illegals, and bollixed your gut ecology. Since SCD has worked well for you, you might wish to return to fanatical adherence -- and step back to more easily digested foods for a bit.S. boulardii is good stuff, but you need a brand without illegals in it.— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle

[Guest guest]

1) About 6 months ago I started taking Epicor (please see link below for ingredientsHi Jeanine,I found this info about Epicor:Antibodies against S. cerevisiae are found in 60–70% of patients with Crohn's disease and 10–15% of patients with ulcerative colitis."Saccharomyces" derives from Latinized Greek and means "sugar mold" or "sugar fungus", saccharo- being the combining form "sugar-" and myces being "fungus". cerevisiae comes from Latin and means "of beer". Other names for the organism are:S. cerevisiae short form of the scientific nameBrewer's yeast though other species are also used in brewingAle yeastTop-fermenting yeastBaker's yeastBudding yeastThe only Saccharomyces approved is S. Boulardii ( without the lactose) because it is a non-colonizing yeast.Hope this helps,Pat

[Guest guest]

1) About 6 months ago I started taking Epicor (please see link below for ingredientsHi Jeanine,I found this info about Epicor:Antibodies against S. cerevisiae are found in 60–70% of patients with Crohn's disease and 10–15% of patients with ulcerative colitis."Saccharomyces" derives from Latinized Greek and means "sugar mold" or "sugar fungus", saccharo- being the combining form "sugar-" and myces being "fungus". cerevisiae comes from Latin and means "of beer". Other names for the organism are:S. cerevisiae short form of the scientific nameBrewer's yeast though other species are also used in brewingAle yeastTop-fermenting yeastBaker's yeastBudding yeastCool. Thanks for the etymology.Mara