RE: Protein -- what does it mean

[Guest guest]

Tracie,

Thank you for your wise advice as usual. But I wonder how the study will be applied. I am hopeful that a binding inhibitor will be found for that Protein. Just an update I have already cut out all my comfort foods and such and I am down from 300 to an average of 215 and have lowered my blood pressure and sugar. I am at 11 months left on weaning off that Prednisone. And I am now on Humira. May you and all my friends be blessed by the lord.

Greg

From: tracie feldhaus

Sent: Saturday, May 08, 2010 12:59 AM

To: neurosarcoidosis

Subject: Protein -- what does it mean

It's exciting that they have discovered the specific protein and TNR receptor that is causing the formation of granulomas. As you all saw, they want to use this info to develop tests that will tell them who needs aggresive treatment and who doesn't. Then hopefully they'll get around to figuring out what will stop this hyper response to this protein TNR connection.

In the meantime, we may all want to talk to a Naturopath ND that understands the detoxification of the gut. Eighty (80) percent of your immune system is in your gut. Our liver is hit by sarcoidsosis as often as our lungs end up involved.

All the meds we take are majorally toxic to our livers. So to help salvage the liver (which is the sole organ that is capable of full regeneration-- -a good Liver Detox program is needed. We need to do this very slowly, so we don't put our bodies into a healing crisis-- where we flush so many toxins at once, our systems can't handle it.

Milk Thistle is a good start for daily maintainence.

I'm am undergoing a full detox regime right now, and I have the opportunity to have an appt with a biochemistry specialist that works for the oldest Whole Food Company in the world this next weekend.

So far, from the detox I've done, I have lost 12 lbs in 14 days. This was primarily bile laying in my gallbladder, stuck in my intestines for who knows how long... and the slower you clear your intestines, the more toxic your gut becomes. All that poop is just lying there fermenting. Even for those of us that don't deal with constipation-- the junk laying there is leaking toxins from the gut into our bodies. Our body becomes overwhelmed with all the systemic toxins, and so it sends out it's antibodies to heal us-- but over time, it is so overwhelmed by the constant barrage of shit-- literally, that it can no longer differentiate between good cells and bad cells. This is the foundation for ALL the autoimmune disease.

I won't go into the exact process that I'm doing, as it would need to be adjusted for YOUR specific issues, as it is not a "one size fits all."

This is not something I'd be doing without the absolute guidance of someone who knows how to guide you-- DO NOT TRY THIS ON YOUR OWN!!!!

It has meant that I've had to cut out all the meat, the refined sugars, the processed foods, the gluten and the grains for a 3 wk period-- ( I'm on week 2) and already my color is improved-- I'm not gray and pale looking, I have energy for the first time in years -- and right now, I'm pooping 3 to 4 times a day-- so this is a good thing. It means that all that fermented crap is leaving my body!

I am looking forward to next weekend, and the appt with the specialist. He will be guiding my mentor and I towards a more healthful future. I don't know if it'll cure my sarc-- but even this little improvement is huge!

One thing I highly recommend is that those of you fortunate enough to be near the facility where they did this study-- read the names referenced on the article- these are MD's that may not jusually see patients-- but they are the ones who are looking to help us find our way back to health.

Search for articles that they have written and had published-- and see what they say. Some may treat patients, and it may be that they are available through the faciltiy that ran this study-- who knows

In the meantime-- seriously study up on Leaky Gut Syndrome, and Liver Detoxification. Find a Health Food Store where the people are TRAINED, CERTIFIED, by the School of Naturopathy or are Doctors of Osteopathy-- D.O. They understand both homeopathy and natural medicine-- Whole Foods such as raw vegetables, organic whenever possible, fresh fruit -- use the "what is in season" rule-- and make sure you wash all your fruits and veges-- so that even the enviromental fallout pollution is as far gone as possible. You want 2x the amount of veges as fruit. And 1/2 of your veges can be cooked, the other half needs to be eaten raw. Fluids, fluids, fluids, -- and more fluids.

Guys, visualize yourself as "whole" and "well." See the answers to the issues of sarcoidosis coming together and the medical communities embracing all of us to help us get back to wellness. Our bodies want us to be healthy, and they are so excited about that end-- that all our systems are on overload. Help your body by feeding it correctly-- it is the ONE thing we do have control over. It may mean that you put your "comfort" food aside, and develop whole new habits-- (I love fresh carrot/apple/ginger juice with Vanilla Cream Whey Protein shakes) freshly juiced each morning!

The evening drink has been blackberries with Almond Milk and Vanilla Whey protein (along with some Whole Food Supplements) and raw veges--- for dinner. And the effect is showing promise!

Seeing us all getter "weller"

Tracie

NS Co-owner/moderator

Remember - a single candle gives only a small amount of light-- but when the flame is used to light another-- and another-- we can light up the world!

[Guest guest]

Tracie,

A lot of the advice you give is very solid with a lot of research behind it. The only thing I have to disagree with is that people that want advice on nutrition or Detox's shouldn't look for a DO or Osteopathic Physician. These doctors 40 years ago knew more about nutrition but now they are just MD's with an occasional one who manipulates the spine (and this is becoming rarer every year). You also don't want to just trust someone who works at a Vitamin or Health Food Store. Most of these people (there are a few who have degrees but few and far between) that went in to business to make money without any knowledge of

nutrition

and only learn what their reps tell them.

FYI-I have been a Chiropractic Orthopedist for over 21 years with a specialty in Nutrition. I have somewhere between 750 and 1500 hours (I lost track a long time ago) of additional

nutrition

courses.Far more then 50 that I had in school and much more then the average 3-6 hours that MD's and DO's get I have been told I am in the top 1% of the Doctors in Pa including most specialists in

nutrition

..And I don't feel like I know nearly as much as I can. I am not telling you all this to impress but rather to show that I have all of this and still don't know a fraction of what's out there and there are just too many people that put themselves out there as "experts", I just enjoy nutrition being a Chiropractor and helping people and it looks like I don't have much more time doing it because of this horrible disease.

There are so many types of Detox's and you absolutely right, if you don't do the right one all your going to do is waste your money and possible get and feel worse.

I use many different types of supplements, supplemental regimes and Detox's depending on the person. health, meds, blood work, symptoms among other factors. I don't believe in the "One Detox fits all" they sell in health food stores.

I have been on Plaquinil, Prednisone (between 10-80 day) for over 3 years and 2 long courses of Methotrexate, many other meds and a large variety of pain meds and to everyone (including myself) is amazed that my liver, kidney and other organs have not been affected one bit by the meds (knock wood <---Jewish Neurosis lol)!

I can give general guidelines but when we're talking about Detox's I use many different ones going from 2 weeks to 3-6 months,

Anyone around my area I would be glad to help at no charge except for the cost of the supplements. .Or answer anyone's questions on a one to one basis if you e-mail me.

For those that don't know me or forgot me (It's been a crazy couple of months)

I lost the use of my right arm almost 9 years ago. Over several months and a large amount of poking prodding and multiple specialists, nothing was found except a spot on my lung that didn't change.

3 years ago February I got very sick and nothing helped. I lost count of the number of times I have pneumonia Atelectisis etc. but this time it got so bad I thought my lung had collapsed, I ordered a Cat scan on my self and got a call from the Radiologist 15 minutes later who told me I had Non Hodgkins Lymphoma (the same Cancer i lost my Father to the year before) for the next 3 weeks after 6 years of mis-diagnosis's the worse one I could came, I had Cancer . But thank G-d the biopsy was done and the Sarcoid was diagnosed.

I became a freak show here in NE PA because not only had they not seen many Sarcoid cases but i had so many enlarged Lymph nodes that my films were being passed around more then the Paris tape. There were so many severely enlarge nodes that they stopped counting and the Pulmonologist (who was recommended to me by a friend who was on the board of the Hospital) told me he was so excited because he had never seen such a bad case and I was going to be his "test case" I don't think so, I'm no ones "test case".

Long story short (too late) I ended up with an excellent Pulmonologist at Mt. Sinai Hospital in NY. He is great at Pulmonary Sarcoid but is one of those guys who believes that Sarcoid is a painless disease and that all the severe pain I've been in had nothing to do with the sarcoid. I now have a great Neurologist who board certified in pain management and like the rest of you see my Opthomologist, Internist, Cardiologist, Rheumotologist regularly.

Sorry for the long response but I worked all day today and the pain is bad so I know I'll have a hard time sleeping so at least this took my mind off of it for a period.

i'm going to get the entire study and go over every line of to make sure that we all have something to look forward to. I know the initial things I've looked at looks very promising.

Well feel free to write me and to all the Mother's out there--Happy Mother's Day.

Again sorry about the length but i hope I can help

Mitch

Subject: Protein -- what does it mean

It's exciting that they have discovered the specific protein and TNR receptor that is causing the formation of granulomas. As you all saw, they want to use this info to develop tests that will tell them who needs aggresive treatment and who doesn't. Then hopefully they'll get around to figuring out what will stop this hyper response to this protein TNR connection.

In the meantime, we may all want to talk to a Naturopath ND that understands the detoxification of the gut. Eighty (80) percent of your immune system is in your gut. Our liver is hit by sarcoidsosis as often as our lungs end up involved.

All the meds we take are majorally toxic to our livers. So to help salvage the liver (which is the sole organ that is capable of full regeneration-- -a good Liver Detox program is needed. We need to do this very slowly, so we don't put our bodies into a healing crisis-- where we flush so many toxins at once, our systems can't handle it.

Milk Thistle is a good start for daily maintainence.

I'm am undergoing a full detox regime right now, and I have the opportunity to have an appt with a biochemistry specialist that works for the oldest Whole Food Company in the world this next weekend.

So far, from the detox I've done, I have lost 12 lbs in 14 days. This was primarily bile laying in my gallbladder, stuck in my intestines for who knows how long... and the slower you clear your intestines, the more toxic your gut becomes. All that poop is just lying there fermenting. Even for those of us that don't deal with constipation-- the junk laying there is leaking toxins from the gut into our bodies. Our body becomes overwhelmed with all the systemic toxins, and so it sends out it's antibodies to heal us-- but over time, it is so overwhelmed by the constant barrage of shit-- literally, that it can no longer differentiate between good cells and bad cells. This is the foundation for ALL the autoimmune disease.

I won't go into the exact process that I'm doing, as it would need to be adjusted for YOUR specific issues, as it is not a "one size fits all."

This is not something I'd be doing without the absolute guidance of someone who knows how to guide you-- DO NOT TRY THIS ON YOUR OWN!!!!

It has meant that I've had to cut out all the meat, the refined sugars, the processed foods, the gluten and the grains for a 3 wk period-- ( I'm on week 2) and already my color is improved-- I'm not gray and pale looking, I have energy for the first time in years -- and right now, I'm pooping 3 to 4 times a day-- so this is a good thing. It means that all that fermented crap is leaving my body!

I am looking forward to next weekend, and the appt with the specialist. He will be guiding my mentor and I towards a more healthful future. I don't know if it'll cure my sarc-- but even this little improvement is huge!

One thing I highly recommend is that those of you fortunate enough to be near the facility where they did this study-- read the names referenced on the article- these are MD's that may not jusually see patients-- but they are the ones who are looking to help us find our way back to health.

Search for articles that they have written and had published-- and see what they say. Some may treat patients, and it may be that they are available through the faciltiy that ran this study-- who knows

In the meantime-- seriously study up on Leaky Gut Syndrome, and Liver Detoxification. Find a Health Food Store where the people are TRAINED, CERTIFIED, by the School of Naturopathy or are Doctors of Osteopathy-- D.O. They understand both homeopathy and natural medicine-- Whole Foods such as raw vegetables, organic whenever possible, fresh fruit -- use the "what is in season" rule-- and make sure you wash all your fruits and veges-- so that even the enviromental fallout pollution is as far gone as possible. You want 2x the amount of veges as fruit. And 1/2 of your veges can be cooked, the other half needs to be eaten raw. Fluids, fluids, fluids, -- and more fluids.

Guys, visualize yourself as "whole" and "well." See the answers to the issues of sarcoidosis coming together and the medical communities embracing all of us to help us get back to wellness. Our bodies want us to be healthy, and they are so excited about that end-- that all our systems are on overload. Help your body by feeding it correctly-- it is the ONE thing we do have control over. It may mean that you put your "comfort" food aside, and develop whole new habits-- (I love fresh carrot/apple/ginger juice with Vanilla Cream Whey Protein shakes) freshly juiced each morning!

The evening drink has been blackberries with Almond Milk and Vanilla Whey protein (along with some Whole Food Supplements) and raw veges--- for dinner. And the effect is showing promise!

Seeing us all getter "weller"

Tracie

NS Co-owner/moderator

[Guest guest]

Greg, that is impressive! I'm disappointed in myself that I've gained back so much weight. I gained 90# on Pred, up to 261, got down to 195 over 3 years time, and then gained 25# over this past winter. I have lost 5# in the past 2 weeks, so if I stick to the program & exercise, I plan to get back below 200. But that up & down business is really hard on your body, especially the heart, so I need to keep my weight down. Mine's all around the middle, which is the worst place. My 8 yo grandson Jon is up to 125# now, which is a BMI of 35. He has to use oxygen at night & will probably need CPAP. He had his tonsils out & is getting a f/u sleep study in a couple of weeks. For his weight he should be about a foot taller. His dad is short & morbidly obese, as is most of his dad's family. Most of them are diabetic, so Jon's risk is very high. Amazingly, not only his blood sugar, but also his insulin levels, are normal at this point, but I know that will change. So he & I are working on exercise together, swimming, biking & playing Wii. Now we need to work on the intake. We have a family appt with a dietician who specializes in childhood obesity next week, so hopefully his mom & sister will also get on board. Neither one of them has a serious weight problem yet.

Wish us luck. Wow, I'm back living up to my nickname again, aren't I?!?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: krumdawg@...Date: Sat, 8 May 2010 01:09:44 -0500Subject: Re: Protein -- what does it mean

Tracie,

Thank you for your wise advice as usual. But I wonder how the study will be applied. I am hopeful that a binding inhibitor will be found for that Protein. Just an update I have already cut out all my comfort foods and such and I am down from 300 to an average of 215 and have lowered my blood pressure and sugar. I am at 11 months left on weaning off that Prednisone. And I am now on Humira. May you and all my friends be blessed by the lord.

Greg

From: tracie feldhaus

Sent: Saturday, May 08, 2010 12:59 AM

To: neurosarcoidosis

Subject: Protein -- what does it mean

It's exciting that they have discovered the specific protein and TNR receptor that is causing the formation of granulomas. As you all saw, they want to use this info to develop tests that will tell them who needs aggresive treatment and who doesn't. Then hopefully they'll get around to figuring out what will stop this hyper response to this protein TNR connection.

In the meantime, we may all want to talk to a Naturopath ND that understands the detoxification of the gut. Eighty (80) percent of your immune system is in your gut. Our liver is hit by sarcoidsosis as often as our lungs end up involved.

All the meds we take are majorally toxic to our livers. So to help salvage the liver (which is the sole organ that is capable of full regeneration-- -a good Liver Detox program is needed. We need to do this very slowly, so we don't put our bodies into a healing crisis-- where we flush so many toxins at once, our systems can't handle it.

Milk Thistle is a good start for daily maintainence.

I'm am undergoing a full detox regime right now, and I have the opportunity to have an appt with a biochemistry specialist that works for the oldest Whole Food Company in the world this next weekend.

So far, from the detox I've done, I have lost 12 lbs in 14 days. This was primarily bile laying in my gallbladder, stuck in my intestines for who knows how long... and the slower you clear your intestines, the more toxic your gut becomes. All that poop is just lying there fermenting. Even for those of us that don't deal with constipation-- the junk laying there is leaking toxins from the gut into our bodies. Our body becomes overwhelmed with all the systemic toxins, and so it sends out it's antibodies to heal us-- but over time, it is so overwhelmed by the constant barrage of shit-- literally, that it can no longer differentiate between good cells and bad cells. This is the foundation for ALL the autoimmune disease.

I won't go into the exact process that I'm doing, as it would need to be adjusted for YOUR specific issues, as it is not a "one size fits all."

This is not something I'd be doing without the absolute guidance of someone who knows how to guide you-- DO NOT TRY THIS ON YOUR OWN!!!!

It has meant that I've had to cut out all the meat, the refined sugars, the processed foods, the gluten and the grains for a 3 wk period-- ( I'm on week 2) and already my color is improved-- I'm not gray and pale looking, I have energy for the first time in years -- and right now, I'm pooping 3 to 4 times a day-- so this is a good thing. It means that all that fermented crap is leaving my body!

I am looking forward to next weekend, and the appt with the specialist. He will be guiding my mentor and I towards a more healthful future. I don't know if it'll cure my sarc-- but even this little improvement is huge!

One thing I highly recommend is that those of you fortunate enough to be near the facility where they did this study-- read the names referenced on the article- these are MD's that may not jusually see patients-- but they are the ones who are looking to help us find our way back to health.

Search for articles that they have written and had published-- and see what they say. Some may treat patients, and it may be that they are available through the faciltiy that ran this study-- who knows

In the meantime-- seriously study up on Leaky Gut Syndrome, and Liver Detoxification. Find a Health Food Store where the people are TRAINED, CERTIFIED, by the School of Naturopathy or are Doctors of Osteopathy-- D.O. They understand both homeopathy and natural medicine-- Whole Foods such as raw vegetables, organic whenever possible, fresh fruit -- use the "what is in season" rule-- and make sure you wash all your fruits and veges-- so that even the enviromental fallout pollution is as far gone as possible. You want 2x the amount of veges as fruit. And 1/2 of your veges can be cooked, the other half needs to be eaten raw. Fluids, fluids, fluids, -- and more fluids.

Guys, visualize yourself as "whole" and "well." See the answers to the issues of sarcoidosis coming together and the medical communities embracing all of us to help us get back to wellness. Our bodies want us to be healthy, and they are so excited about that end-- that all our systems are on overload. Help your body by feeding it correctly-- it is the ONE thing we do have control over. It may mean that you put your "comfort" food aside, and develop whole new habits-- (I love fresh carrot/apple/ginger juice with Vanilla Cream Whey Protein shakes) freshly juiced each morning!

The evening drink has been blackberries with Almond Milk and Vanilla Whey protein (along with some Whole Food Supplements) and raw veges--- for dinner. And the effect is showing promise!

Seeing us all getter "weller"

Tracie

NS Co-owner/moderator

Remember - a single candle gives only a small amount of light-- but when the flame is used to light another-- and another-- we can light up the world!

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

Mitch, thanks for the additional info. It is sad how so many medical specialties are losing the traits that made them "special." I'm a retired certified nurse-midwife, retired on disability 6 years ago after practicing for 20 years. I'm actually glad now that I had to retire, although at the time it was very difficult for me. The practice of midwifery, at least hospital-based midwifery, has changed so much in the last few years. Part of it is because the midwifery philosophy has changed, but mostly because the system (doctors & hospitals) do not support the kind of care midwives have traditionally provided. I still think most CNMs provide superior care, but the gap is narrowing.

I live near Indianapolis, IN. Do you know a reputable health food store in the area (all I know is GNC)? How about a DO or someone else for toxic cleansing?

Thanks for sharing your knowledge.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: mjcv29a@...Date: Sat, 8 May 2010 04:02:34 -0400Subject: Re: Protein -- what does it mean

Tracie,

A lot of the advice you give is very solid with a lot of research behind it. The only thing I have to disagree with is that people that want advice on nutrition or Detox's shouldn't look for a DO or Osteopathic Physician. These doctors 40 years ago knew more about nutrition but now they are just MD's with an occasional one who manipulates the spine (and this is becoming rarer every year). You also don't want to just trust someone who works at a Vitamin or Health Food Store. Most of these people (there are a few who have degrees but few and far between) that went in to business to make money without any knowledge of

nutrition

and only learn what their reps tell them.

FYI-I have been a Chiropractic Orthopedist for over 21 years with a specialty in Nutrition. I have somewhere between 750 and 1500 hours (I lost track a long time ago) of additional

nutrition

courses.Far more then 50 that I had in school and much more then the average 3-6 hours that MD's and DO's get I have been told I am in the top 1% of the Doctors in Pa including most specialists in

nutrition

..And I don't feel like I know nearly as much as I can. I am not telling you all this to impress but rather to show that I have all of this and still don't know a fraction of what's out there and there are just too many people that put themselves out there as "experts", I just enjoy nutrition being a Chiropractor and helping people and it looks like I don't have much more time doing it because of this horrible disease.

There are so many types of Detox's and you absolutely right, if you don't do the right one all your going to do is waste your money and possible get and feel worse.

I use many different types of supplements, supplemental regimes and Detox's depending on the person. health, meds, blood work, symptoms among other factors. I don't believe in the "One Detox fits all" they sell in health food stores.

I have been on Plaquinil, Prednisone (between 10-80 day) for over 3 years and 2 long courses of Methotrexate, many other meds and a large variety of pain meds and to everyone (including myself) is amazed that my liver, kidney and other organs have not been affected one bit by the meds (knock wood <---Jewish Neurosis lol)!

I can give general guidelines but when we're talking about Detox's I use many different ones going from 2 weeks to 3-6 months,

Anyone around my area I would be glad to help at no charge except for the cost of the supplements. .Or answer anyone's questions on a one to one basis if you e-mail me.

For those that don't know me or forgot me (It's been a crazy couple of months)

I lost the use of my right arm almost 9 years ago. Over several months and a large amount of poking prodding and multiple specialists, nothing was found except a spot on my lung that didn't change.

3 years ago February I got very sick and nothing helped. I lost count of the number of times I have pneumonia Atelectisis etc. but this time it got so bad I thought my lung had collapsed, I ordered a Cat scan on my self and got a call from the Radiologist 15 minutes later who told me I had Non Hodgkins Lymphoma (the same Cancer i lost my Father to the year before) for the next 3 weeks after 6 years of mis-diagnosis's the worse one I could came, I had Cancer . But thank G-d the biopsy was done and the Sarcoid was diagnosed.

I became a freak show here in NE PA because not only had they not seen many Sarcoid cases but i had so many enlarged Lymph nodes that my films were being passed around more then the Paris tape. There were so many severely enlarge nodes that they stopped counting and the Pulmonologist (who was recommended to me by a friend who was on the board of the Hospital) told me he was so excited because he had never seen such a bad case and I was going to be his "test case" I don't think so, I'm no ones "test case".

Long story short (too late) I ended up with an excellent Pulmonologist at Mt. Sinai Hospital in NY. He is great at Pulmonary Sarcoid but is one of those guys who believes that Sarcoid is a painless disease and that all the severe pain I've been in had nothing to do with the sarcoid. I now have a great Neurologist who board certified in pain management and like the rest of you see my Opthomologist, Internist, Cardiologist, Rheumotologist regularly.

Sorry for the long response but I worked all day today and the pain is bad so I know I'll have a hard time sleeping so at least this took my mind off of it for a period.

i'm going to get the entire study and go over every line of to make sure that we all have something to look forward to. I know the initial things I've looked at looks very promising.

Well feel free to write me and to all the Mother's out there--Happy Mother's Day.

Again sorry about the length but i hope I can help

Mitch

Subject: Protein -- what does it mean

It's exciting that they have discovered the specific protein and TNR receptor that is causing the formation of granulomas. As you all saw, they want to use this info to develop tests that will tell them who needs aggresive treatment and who doesn't. Then hopefully they'll get around to figuring out what will stop this hyper response to this protein TNR connection.

In the meantime, we may all want to talk to a Naturopath ND that understands the detoxification of the gut. Eighty (80) percent of your immune system is in your gut. Our liver is hit by sarcoidsosis as often as our lungs end up involved.

All the meds we take are majorally toxic to our livers. So to help salvage the liver (which is the sole organ that is capable of full regeneration-- -a good Liver Detox program is needed. We need to do this very slowly, so we don't put our bodies into a healing crisis-- where we flush so many toxins at once, our systems can't handle it.

Milk Thistle is a good start for daily maintainence.

I'm am undergoing a full detox regime right now, and I have the opportunity to have an appt with a biochemistry specialist that works for the oldest Whole Food Company in the world this next weekend.

So far, from the detox I've done, I have lost 12 lbs in 14 days. This was primarily bile laying in my gallbladder, stuck in my intestines for who knows how long... and the slower you clear your intestines, the more toxic your gut becomes. All that poop is just lying there fermenting. Even for those of us that don't deal with constipation-- the junk laying there is leaking toxins from the gut into our bodies. Our body becomes overwhelmed with all the systemic toxins, and so it sends out it's antibodies to heal us-- but over time, it is so overwhelmed by the constant barrage of shit-- literally, that it can no longer differentiate between good cells and bad cells. This is the foundation for ALL the autoimmune disease.

I won't go into the exact process that I'm doing, as it would need to be adjusted for YOUR specific issues, as it is not a "one size fits all."

This is not something I'd be doing without the absolute guidance of someone who knows how to guide you-- DO NOT TRY THIS ON YOUR OWN!!!!

It has meant that I've had to cut out all the meat, the refined sugars, the processed foods, the gluten and the grains for a 3 wk period-- ( I'm on week 2) and already my color is improved-- I'm not gray and pale looking, I have energy for the first time in years -- and right now, I'm pooping 3 to 4 times a day-- so this is a good thing. It means that all that fermented crap is leaving my body!

I am looking forward to next weekend, and the appt with the specialist. He will be guiding my mentor and I towards a more healthful future. I don't know if it'll cure my sarc-- but even this little improvement is huge!

One thing I highly recommend is that those of you fortunate enough to be near the facility where they did this study-- read the names referenced on the article- these are MD's that may not jusually see patients-- but they are the ones who are looking to help us find our way back to health.

Search for articles that they have written and had published-- and see what they say. Some may treat patients, and it may be that they are available through the faciltiy that ran this study-- who knows

In the meantime-- seriously study up on Leaky Gut Syndrome, and Liver Detoxification. Find a Health Food Store where the people are TRAINED, CERTIFIED, by the School of Naturopathy or are Doctors of Osteopathy-- D.O. They understand both homeopathy and natural medicine-- Whole Foods such as raw vegetables, organic whenever possible, fresh fruit -- use the "what is in season" rule-- and make sure you wash all your fruits and veges-- so that even the enviromental fallout pollution is as far gone as possible. You want 2x the amount of veges as fruit. And 1/2 of your veges can be cooked, the other half needs to be eaten raw. Fluids, fluids, fluids, -- and more fluids.

Guys, visualize yourself as "whole" and "well." See the answers to the issues of sarcoidosis coming together and the medical communities embracing all of us to help us get back to wellness. Our bodies want us to be healthy, and they are so excited about that end-- that all our systems are on overload. Help your body by feeding it correctly-- it is the ONE thing we do have control over. It may mean that you put your "comfort" food aside, and develop whole new habits-- (I love fresh carrot/apple/ginger juice with Vanilla Cream Whey Protein shakes) freshly juiced each morning!

The evening drink has been blackberries with Almond Milk and Vanilla Whey protein (along with some Whole Food Supplements) and raw veges--- for dinner. And the effect is showing promise!

Seeing us all getter "weller"

Tracie

NS Co-owner/moderator

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[Guest guest]

Tracie, that is an excellent explanation, but can you explain some of the technical terms, like poop, shit, crap?!? Really, you have a gift for putting medical stuff into a form anyone can understand. This is really an exciting development. I've been on Phase 1 of the South Beach Diet for a week, to break the carb cycle I had gotten into. For those unaware, a carb cycle is when you start eating so many carbs (breads, cereal, rice, potatoes, pasta, sugars, etc.) that your insulin level is bouncing up & down, making you feel hungry, which you usually answer with more carbs. The result is almost constant snacking, and usually not on broccoli. I don't believe in diets as such, but 3 years ago I did this program & it really worked to stop my cravings. You cut out almost all carbs, even fruit, & concentrate on veggies & lean meat or beans for protein. After 2 weeks you begin adding back the healthier carbs. You can buy the book or just get the info free from the Internet. The strange thing is that both times I have done this it's not been difficult. I just made up my mind I wasn't going back to Goodwill to buy bigger jeans & had no problem passing by all the cookies, chips, etc. that I usually buy, or ignoring them at home. For whatever reason, over the past year I had gotten back into the habit of eating junk, lots of cereal, etc. So now I'm breaking that cycle again. I'd really like to do the tox regime Tracie's talking about, but no extra money right now. Tracie, how would we find someone to work with on this? Would pretty much any D.O. be qualified? I just had to spend $1000 on sewer work, still paying dental & vet bills, need new tires & work on my car, so who knows when I can do this, but might as well get some info, right? I wonder if Medicare would pay to see a D.O. for something like this. Well, hope everyone is doing okay today. Temperature here in N. central Indiana dropped 20 degrees overnight (y'all know I'm loving that!!), it's windy & rainy & my granddaughter's prom is tonight. She's in panic mode, although the sky is supposed to clear & the wind drop by tonight. My niece is doing her hair right now, so has to protect it until tonight. Here's a picture of the practice run from a couple of weeks ago.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

Rose

May you and your grandson be Blessed and may you have a Blessed Mothers day tomorrow. I know for a fact that you and Tracie should be honored tomorrow and I wish you both love and Blessings. If you you need to my my diet I will tell you. My blood Pressure is now averaging approx. 115/72 and blood sugar average 98. Before diet my blood pressure was uppers of 180/110 and blood sugar excess of 200. I had to make some hard eating lifestyle changes due to that blessed and evil Prednisone. And because of that med I now have arthritis which is allowing me under my insurance to switch from Pred to Humira. Most of my exercise is cardio right now. I have had to add Folic Acid and B-12. When I started on the tread mill 8 months ago the fastest I could go for 15 minutes or more was 2.8 mph speed walking. Well now I am cooling down at 4 mph and doing walking sprints at over 5.8 mph. And when I do not have to make a latrine run I go for an hour or more. Matter of fact I am heading to the Apt. Fitness Center to some cardio here shortly. I am hopeful that in the next few months I will have my endurance and cardiovascular health increased enough to add in some good weight training. O and I have regained about 90% of my balance but only 45% of my short term memory. My PCP says I am not allowed back to work until both are at 100%. What a dang (OO I decided note to use cuss words anymore at all) Bummer. Well just a quick note to say hit all and update everybody what I have been doing. O well full disclosure I and seeing a therapist for Childhood and Military PTSD and Depression and it is helping me to cope. If you even think you might have some issue ands not even sure about still go find a therapist and talk to them. It has helped me with my anger issues and my immature responses. Be Blessed one and all and Know I pray every night for health and wellness for all I know and do not know as of yet.

With prayerful respect and Love,

Greg aka Krumdawg

"I am Trainable"

From: Rose

Sent: Saturday, May 08, 2010 10:19 AM

To: neurosarcoidosis

Subject: RE: Protein -- what does it mean

Greg, that is impressive! I'm disappointed in myself that I've gained back so much weight. I gained 90# on Pred, up to 261, got down to 195 over 3 years time, and then gained 25# over this past winter. I have lost 5# in the past 2 weeks, so if I stick to the program & exercise, I plan to get back below 200. But that up & down business is really hard on your body, especially the heart, so I need to keep my weight down. Mine's all around the middle, which is the worst place. My 8 yo grandson Jon is up to 125# now, which is a BMI of 35. He has to use oxygen at night & will probably need CPAP. He had his tonsils out & is getting a f/u sleep study in a couple of weeks. For his weight he should be about a foot taller. His dad is short & morbidly obese, as is most of his dad's family. Most of them are diabetic, so Jon's risk is very high. Amazingly, not only his blood sugar, but also his insulin levels, are normal at this point, but I know that will change. So he & I are working on exercise together, swimming, biking & playing Wii. Now we need to work on the intake. We have a family appt with a dietician who specializes in childhood obesity next week, so hopefully his mom & sister will also get on board. Neither one of them has a serious weight problem yet. Wish us luck. Wow, I'm back living up to my nickname again, aren't I?!?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: krumdawg (AT) tx (DOT) rr.comDate: Sat, 8 May 2010 01:09:44 -0500Subject: Re: Protein -- what does it mean

Tracie,

Thank you for your wise advice as usual. But I wonder how the study will be applied. I am hopeful that a binding inhibitor will be found for that Protein. Just an update I have already cut out all my comfort foods and such and I am down from 300 to an average of 215 and have lowered my blood pressure and sugar. I am at 11 months left on weaning off that Prednisone. And I am now on Humira. May you and all my friends be blessed by the lord.

Greg

From: tracie feldhaus

Sent: Saturday, May 08, 2010 12:59 AM

To: neurosarcoidosis

Subject: Protein -- what does it mean

It's exciting that they have discovered the specific protein and TNR receptor that is causing the formation of granulomas. As you all saw, they want to use this info to develop tests that will tell them who needs aggresive treatment and who doesn't. Then hopefully they'll get around to figuring out what will stop this hyper response to this protein TNR connection.

In the meantime, we may all want to talk to a Naturopath ND that understands the detoxification of the gut. Eighty (80) percent of your immune system is in your gut. Our liver is hit by sarcoidsosis as often as our lungs end up involved.

All the meds we take are majorally toxic to our livers. So to help salvage the liver (which is the sole organ that is capable of full regeneration-- -a good Liver Detox program is needed. We need to do this very slowly, so we don't put our bodies into a healing crisis-- where we flush so many toxins at once, our systems can't handle it.

Milk Thistle is a good start for daily maintainence.

I'm am undergoing a full detox regime right now, and I have the opportunity to have an appt with a biochemistry specialist that works for the oldest Whole Food Company in the world this next weekend.

So far, from the detox I've done, I have lost 12 lbs in 14 days. This was primarily bile laying in my gallbladder, stuck in my intestines for who knows how long... and the slower you clear your intestines, the more toxic your gut becomes. All that poop is just lying there fermenting. Even for those of us that don't deal with constipation-- the junk laying there is leaking toxins from the gut into our bodies. Our body becomes overwhelmed with all the systemic toxins, and so it sends out it's antibodies to heal us-- but over time, it is so overwhelmed by the constant barrage of shit-- literally, that it can no longer differentiate between good cells and bad cells. This is the foundation for ALL the autoimmune disease.

I won't go into the exact process that I'm doing, as it would need to be adjusted for YOUR specific issues, as it is not a "one size fits all."

This is not something I'd be doing without the absolute guidance of someone who knows how to guide you-- DO NOT TRY THIS ON YOUR OWN!!!!

It has meant that I've had to cut out all the meat, the refined sugars, the processed foods, the gluten and the grains for a 3 wk period-- ( I'm on week 2) and already my color is improved-- I'm not gray and pale looking, I have energy for the first time in years -- and right now, I'm pooping 3 to 4 times a day-- so this is a good thing. It means that all that fermented crap is leaving my body!

I am looking forward to next weekend, and the appt with the specialist. He will be guiding my mentor and I towards a more healthful future. I don't know if it'll cure my sarc-- but even this little improvement is huge!

One thing I highly recommend is that those of you fortunate enough to be near the facility where they did this study-- read the names referenced on the article- these are MD's that may not jusually see patients-- but they are the ones who are looking to help us find our way back to health.

Search for articles that they have written and had published-- and see what they say. Some may treat patients, and it may be that they are available through the faciltiy that ran this study-- who knows

In the meantime-- seriously study up on Leaky Gut Syndrome, and Liver Detoxification. Find a Health Food Store where the people are TRAINED, CERTIFIED, by the School of Naturopathy or are Doctors of Osteopathy-- D.O. They understand both homeopathy and natural medicine-- Whole Foods such as raw vegetables, organic whenever possible, fresh fruit -- use the "what is in season" rule-- and make sure you wash all your fruits and veges-- so that even the enviromental fallout pollution is as far gone as possible. You want 2x the amount of veges as fruit. And 1/2 of your veges can be cooked, the other half needs to be eaten raw. Fluids, fluids, fluids, -- and more fluids.

Guys, visualize yourself as "whole" and "well." See the answers to the issues of sarcoidosis coming together and the medical communities embracing all of us to help us get back to wellness. Our bodies want us to be healthy, and they are so excited about that end-- that all our systems are on overload. Help your body by feeding it correctly-- it is the ONE thing we do have control over. It may mean that you put your "comfort" food aside, and develop whole new habits-- (I love fresh carrot/apple/ginger juice with Vanilla Cream Whey Protein shakes) freshly juiced each morning!

The evening drink has been blackberries with Almond Milk and Vanilla Whey protein (along with some Whole Food Supplements) and raw veges--- for dinner. And the effect is showing promise!

Seeing us all getter "weller"

Tracie

NS Co-owner/moderator

Remember - a single candle gives only a small amount of light-- but when the flame is used to light another-- and another-- we can light up the world!

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

Thanks, Greg. I'd like to know what you are doing diet-wise. And I'm glad that you are finally "trainable!"

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: krumdawg@...Date: Sat, 8 May 2010 12:06:55 -0500Subject: Re: Protein -- what does it mean

Rose

May you and your grandson be Blessed and may you have a Blessed Mothers day tomorrow. I know for a fact that you and Tracie should be honored tomorrow and I wish you both love and Blessings. If you you need to my my diet I will tell you. My blood Pressure is now averaging approx. 115/72 and blood sugar average 98. Before diet my blood pressure was uppers of 180/110 and blood sugar excess of 200. I had to make some hard eating lifestyle changes due to that blessed and evil Prednisone. And because of that med I now have arthritis which is allowing me under my insurance to switch from Pred to Humira. Most of my exercise is cardio right now. I have had to add Folic Acid and B-12. When I started on the tread mill 8 months ago the fastest I could go for 15 minutes or more was 2.8 mph speed walking. Well now I am cooling down at 4 mph and doing walking sprints at over 5.8 mph. And when I do not have to make a latrine run I go for an hour or more. Matter of fact I am heading to the Apt. Fitness Center to some cardio here shortly. I am hopeful that in the next few months I will have my endurance and cardiovascular health increased enough to add in some good weight training. O and I have regained about 90% of my balance but only 45% of my short term memory. My PCP says I am not allowed back to work until both are at 100%. What a dang (OO I decided note to use cuss words anymore at all) Bummer. Well just a quick note to say hit all and update everybody what I have been doing. O well full disclosure I and seeing a therapist for Childhood and Military PTSD and Depression and it is helping me to cope. If you even think you might have some issue ands not even sure about still go find a therapist and talk to them. It has helped me with my anger issues and my immature responses. Be Blessed one and all and Know I pray every night for health and wellness for all I know and do not know as of yet.

With prayerful respect and Love,

Greg aka Krumdawg

"I am Trainable"

From: Rose

Sent: Saturday, May 08, 2010 10:19 AM

To: neurosarcoidosis

Subject: RE: Protein -- what does it mean

Greg, that is impressive! I'm disappointed in myself that I've gained back so much weight. I gained 90# on Pred, up to 261, got down to 195 over 3 years time, and then gained 25# over this past winter. I have lost 5# in the past 2 weeks, so if I stick to the program & exercise, I plan to get back below 200. But that up & down business is really hard on your body, especially the heart, so I need to keep my weight down. Mine's all around the middle, which is the worst place. My 8 yo grandson Jon is up to 125# now, which is a BMI of 35. He has to use oxygen at night & will probably need CPAP. He had his tonsils out & is getting a f/u sleep study in a couple of weeks. For his weight he should be about a foot taller. His dad is short & morbidly obese, as is most of his dad's family. Most of them are diabetic, so Jon's risk is very high. Amazingly, not only his blood sugar, but also his insulin levels, are normal at this point, but I know that will change. So he & I are working on exercise together, swimming, biking & playing Wii. Now we need to work on the intake. We have a family appt with a dietician who specializes in childhood obesity next week, so hopefully his mom & sister will also get on board. Neither one of them has a serious weight problem yet. Wish us luck. Wow, I'm back living up to my nickname again, aren't I?!?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: krumdawg (AT) tx (DOT) rr.comDate: Sat, 8 May 2010 01:09:44 -0500Subject: Re: Protein -- what does it mean

Tracie,

Thank you for your wise advice as usual. But I wonder how the study will be applied. I am hopeful that a binding inhibitor will be found for that Protein. Just an update I have already cut out all my comfort foods and such and I am down from 300 to an average of 215 and have lowered my blood pressure and sugar. I am at 11 months left on weaning off that Prednisone. And I am now on Humira. May you and all my friends be blessed by the lord.

Greg

From: tracie feldhaus

Sent: Saturday, May 08, 2010 12:59 AM

To: neurosarcoidosis

Subject: Protein -- what does it mean

It's exciting that they have discovered the specific protein and TNR receptor that is causing the formation of granulomas. As you all saw, they want to use this info to develop tests that will tell them who needs aggresive treatment and who doesn't. Then hopefully they'll get around to figuring out what will stop this hyper response to this protein TNR connection.

In the meantime, we may all want to talk to a Naturopath ND that understands the detoxification of the gut. Eighty (80) percent of your immune system is in your gut. Our liver is hit by sarcoidsosis as often as our lungs end up involved.

All the meds we take are majorally toxic to our livers. So to help salvage the liver (which is the sole organ that is capable of full regeneration-- -a good Liver Detox program is needed. We need to do this very slowly, so we don't put our bodies into a healing crisis-- where we flush so many toxins at once, our systems can't handle it.

Milk Thistle is a good start for daily maintainence.

I'm am undergoing a full detox regime right now, and I have the opportunity to have an appt with a biochemistry specialist that works for the oldest Whole Food Company in the world this next weekend.

So far, from the detox I've done, I have lost 12 lbs in 14 days. This was primarily bile laying in my gallbladder, stuck in my intestines for who knows how long... and the slower you clear your intestines, the more toxic your gut becomes. All that poop is just lying there fermenting. Even for those of us that don't deal with constipation-- the junk laying there is leaking toxins from the gut into our bodies. Our body becomes overwhelmed with all the systemic toxins, and so it sends out it's antibodies to heal us-- but over time, it is so overwhelmed by the constant barrage of shit-- literally, that it can no longer differentiate between good cells and bad cells. This is the foundation for ALL the autoimmune disease.

I won't go into the exact process that I'm doing, as it would need to be adjusted for YOUR specific issues, as it is not a "one size fits all."

This is not something I'd be doing without the absolute guidance of someone who knows how to guide you-- DO NOT TRY THIS ON YOUR OWN!!!!

It has meant that I've had to cut out all the meat, the refined sugars, the processed foods, the gluten and the grains for a 3 wk period-- ( I'm on week 2) and already my color is improved-- I'm not gray and pale looking, I have energy for the first time in years -- and right now, I'm pooping 3 to 4 times a day-- so this is a good thing. It means that all that fermented crap is leaving my body!

I am looking forward to next weekend, and the appt with the specialist. He will be guiding my mentor and I towards a more healthful future. I don't know if it'll cure my sarc-- but even this little improvement is huge!

One thing I highly recommend is that those of you fortunate enough to be near the facility where they did this study-- read the names referenced on the article- these are MD's that may not jusually see patients-- but they are the ones who are looking to help us find our way back to health.

Search for articles that they have written and had published-- and see what they say. Some may treat patients, and it may be that they are available through the faciltiy that ran this study-- who knows

In the meantime-- seriously study up on Leaky Gut Syndrome, and Liver Detoxification. Find a Health Food Store where the people are TRAINED, CERTIFIED, by the School of Naturopathy or are Doctors of Osteopathy-- D.O. They understand both homeopathy and natural medicine-- Whole Foods such as raw vegetables, organic whenever possible, fresh fruit -- use the "what is in season" rule-- and make sure you wash all your fruits and veges-- so that even the enviromental fallout pollution is as far gone as possible. You want 2x the amount of veges as fruit. And 1/2 of your veges can be cooked, the other half needs to be eaten raw. Fluids, fluids, fluids, -- and more fluids.

Guys, visualize yourself as "whole" and "well." See the answers to the issues of sarcoidosis coming together and the medical communities embracing all of us to help us get back to wellness. Our bodies want us to be healthy, and they are so excited about that end-- that all our systems are on overload. Help your body by feeding it correctly-- it is the ONE thing we do have control over. It may mean that you put your "comfort" food aside, and develop whole new habits-- (I love fresh carrot/apple/ginger juice with Vanilla Cream Whey Protein shakes) freshly juiced each morning!

The evening drink has been blackberries with Almond Milk and Vanilla Whey protein (along with some Whole Food Supplements) and raw veges--- for dinner. And the effect is showing promise!

Seeing us all getter "weller"

Tracie

NS Co-owner/moderator

Remember - a single candle gives only a small amount of light-- but when the flame is used to light another-- and another-- we can light up the world!

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

[Guest guest]

Mitch, thank you so much for the input! Truly!

I am working on this with my DC-- so that tells ya what direction I trust wholy!

I am right on with you that we DO NOT TRUST JUST ANYONE FROM A HEALTH FOOD STORE- as you say, most are in it for the money-- and their info is from the "Herbal Drug Rep."

I also totally agree-- if the D.O. is old school-- and there isn't very many around that are younger-- then their info is old school also.

Mitch, please interject anytime-- we need your expertise. I'm great at research, and fortunately have both M.D.'s and D.C's and one of the worlds top Health Food Store's owner and naturopath to guide me and answer these types of questions for me.

As we all know, the challenge is that most M.D.'s not only have NO CLUE about nutrition-- they also take offense at having to "explain" their thinking-- and they too are only puppets that prescribe what the drug rep says will help. I'm being harsh- and I know that some are willing to go there with us- but most don't have the time--- theirs is taken up with treating high cholestrol and diabetes and high blood pressure. Fortunately, they are pretty good at that stuff.

I will be sharing more info with all of you as my journey progresses-- I'm sure it's going to be a true "journey." Good or whatever-- it's gonna be another chapter... (I will only acknowledge the good--LOL!)

Anyway, do remember to get professional advice on these issues-- and yes, your chiropractor is a GREAT place to start. If they aren't up on nutrition find one that is.

For me, if I can cut the cost of my prescription drugs by replacing them with Whole Food Supplements-- I will save more money by cutting out the MD and the meds-- to be able to afford the WFS. (It isn't that expensive-- although the detox stuff is $165 for the 3 wks-- but it won't be something that I do month after month. Maybe 2x a year-- and then to maintain will be a much better diet overall (my blood sugars have been EXCELLANT since I started this! Wahoo!) So maybe the insulin will be history also!

One day at a time-- you know-- odaat---

Blessings - and yes, Happy Mothers Day to all the moms and dads-- that play duel roles in a single parent home-

Tracie

NS Co-owner/moderator

To: Neurosarcoidosis Sent: Sat, May 8, 2010 1:02:34 AMSubject: Re: Protein -- what does it mean

Tracie,

A lot of the advice you give is very solid with a lot of research behind it. The only thing I have to disagree with is that people that want advice on nutrition or Detox's shouldn't look for a DO or Osteopathic Physician. These doctors 40 years ago knew more about nutrition but now they are just MD's with an occasional one who manipulates the spine (and this is becoming rarer every year). You also don't want to just trust someone who works at a Vitamin or Health Food Store. Most of these people (there are a few who have degrees but few and far between) that went in to business to make money without any knowledge of

nutrition

and only learn what their reps tell them.

FYI-I have been a Chiropractic Orthopedist for over 21 years with a specialty in Nutrition. I have somewhere between 750 and 1500 hours (I lost track a long time ago) of additional

nutrition

courses.Far more then 50 that I had in school and much more then the average 3-6 hours that MD's and DO's get I have been told I am in the top 1% of the Doctors in Pa including most specialists in

nutrition

..And I don't feel like I know nearly as much as I can. I am not telling you all this to impress but rather to show that I have all of this and still don't know a fraction of what's out there and there are just too many people that put themselves out there as "experts", I just enjoy nutrition being a Chiropractor and helping people and it looks like I don't have much more time doing it because of this horrible disease.

There are so many types of Detox's and you absolutely right, if you don't do the right one all your going to do is waste your money and possible get and feel worse.

I use many different types of supplements, supplemental regimes and Detox's depending on the person. health, meds, blood work, symptoms among other factors. I don't believe in the "One Detox fits all" they sell in health food stores.

I have been on Plaquinil, Prednisone (between 10-80 day) for over 3 years and 2 long courses of Methotrexate, many other meds and a large variety of pain meds and to everyone (including myself) is amazed that my liver, kidney and other organs have not been affected one bit by the meds (knock wood <---Jewish Neurosis lol)!

I can give general guidelines but when we're talking about Detox's I use many different ones going from 2 weeks to 3-6 months,

Anyone around my area I would be glad to help at no charge except for the cost of the supplements. .Or answer anyone's questions on a one to one basis if you e-mail me.

For those that don't know me or forgot me (It's been a crazy couple of months)

I lost the use of my right arm almost 9 years ago. Over several months and a large amount of poking prodding and multiple specialists, nothing was found except a spot on my lung that didn't change.

3 years ago February I got very sick and nothing helped. I lost count of the number of times I have pneumonia Atelectisis etc. but this time it got so bad I thought my lung had collapsed, I ordered a Cat scan on my self and got a call from the Radiologist 15 minutes later who told me I had Non Hodgkins Lymphoma (the same Cancer i lost my Father to the year before) for the next 3 weeks after 6 years of mis-diagnosis' s the worse one I could came, I had Cancer . But thank G-d the biopsy was done and the Sarcoid was diagnosed.

I became a freak show here in NE PA because not only had they not seen many Sarcoid cases but i had so many enlarged Lymph nodes that my films were being passed around more then the Paris tape. There were so many severely enlarge nodes that they stopped counting and the Pulmonologist (who was recommended to me by a friend who was on the board of the Hospital) told me he was so excited because he had never seen such a bad case and I was going to be his "test case" I don't think so, I'm no ones "test case".

Long story short (too late) I ended up with an excellent Pulmonologist at Mt. Sinai Hospital in NY. He is great at Pulmonary Sarcoid but is one of those guys who believes that Sarcoid is a painless disease and that all the severe pain I've been in had nothing to do with the sarcoid. I now have a great Neurologist who board certified in pain management and like the rest of you see my Opthomologist, Internist, Cardiologist, Rheumotologist regularly.

Sorry for the long response but I worked all day today and the pain is bad so I know I'll have a hard time sleeping so at least this took my mind off of it for a period.

i'm going to get the entire study and go over every line of to make sure that we all have something to look forward to. I know the initial things I've looked at looks very promising.

Well feel free to write me and to all the Mother's out there--Happy Mother's Day.

Again sorry about the length but i hope I can help

Mitch

Subject: Protein -- what does it mean

It's exciting that they have discovered the specific protein and TNR receptor that is causing the formation of granulomas. As you all saw, they want to use this info to develop tests that will tell them who needs aggresive treatment and who doesn't. Then hopefully they'll get around to figuring out what will stop this hyper response to this protein TNR connection.

In the meantime, we may all want to talk to a Naturopath ND that understands the detoxification of the gut. Eighty (80) percent of your immune system is in your gut. Our liver is hit by sarcoidsosis as often as our lungs end up involved.

All the meds we take are majorally toxic to our livers. So to help salvage the liver (which is the sole organ that is capable of full regeneration- - -a good Liver Detox program is needed. We need to do this very slowly, so we don't put our bodies into a healing crisis-- where we flush so many toxins at once, our systems can't handle it.

Milk Thistle is a good start for daily maintainence.

I'm am undergoing a full detox regime right now, and I have the opportunity to have an appt with a biochemistry specialist that works for the oldest Whole Food Company in the world this next weekend.

So far, from the detox I've done, I have lost 12 lbs in 14 days. This was primarily bile laying in my gallbladder, stuck in my intestines for who knows how long... and the slower you clear your intestines, the more toxic your gut becomes. All that poop is just lying there fermenting. Even for those of us that don't deal with constipation- - the junk laying there is leaking toxins from the gut into our bodies. Our body becomes overwhelmed with all the systemic toxins, and so it sends out it's antibodies to heal us-- but over time, it is so overwhelmed by the constant barrage of shit-- literally, that it can no longer differentiate between good cells and bad cells. This is the foundation for ALL the autoimmune disease.

I won't go into the exact process that I'm doing, as it would need to be adjusted for YOUR specific issues, as it is not a "one size fits all."

This is not something I'd be doing without the absolute guidance of someone who knows how to guide you-- DO NOT TRY THIS ON YOUR OWN!!!!

It has meant that I've had to cut out all the meat, the refined sugars, the processed foods, the gluten and the grains for a 3 wk period-- ( I'm on week 2) and already my color is improved-- I'm not gray and pale looking, I have energy for the first time in years -- and right now, I'm pooping 3 to 4 times a day-- so this is a good thing. It means that all that fermented crap is leaving my body!

I am looking forward to next weekend, and the appt with the specialist. He will be guiding my mentor and I towards a more healthful future. I don't know if it'll cure my sarc-- but even this little improvement is huge!

One thing I highly recommend is that those of you fortunate enough to be near the facility where they did this study-- read the names referenced on the article- these are MD's that may not jusually see patients-- but they are the ones who are looking to help us find our way back to health.

Search for articles that they have written and had published-- and see what they say. Some may treat patients, and it may be that they are available through the faciltiy that ran this study-- who knows

In the meantime-- seriously study up on Leaky Gut Syndrome, and Liver Detoxification. Find a Health Food Store where the people are TRAINED, CERTIFIED, by the School of Naturopathy or are Doctors of Osteopathy-- D.O. They understand both homeopathy and natural medicine-- Whole Foods such as raw vegetables, organic whenever possible, fresh fruit -- use the "what is in season" rule-- and make sure you wash all your fruits and veges-- so that even the enviromental fallout pollution is as far gone as possible. You want 2x the amount of veges as fruit. And 1/2 of your veges can be cooked, the other half needs to be eaten raw. Fluids, fluids, fluids, -- and more fluids.

Guys, visualize yourself as "whole" and "well." See the answers to the issues of sarcoidosis coming together and the medical communities embracing all of us to help us get back to wellness. Our bodies want us to be healthy, and they are so excited about that end-- that all our systems are on overload. Help your body by feeding it correctly-- it is the ONE thing we do have control over. It may mean that you put your "comfort" food aside, and develop whole new habits-- (I love fresh carrot/apple/ ginger juice with Vanilla Cream Whey Protein shakes) freshly juiced each morning!

The evening drink has been blackberries with Almond Milk and Vanilla Whey protein (along with some Whole Food Supplements) and raw veges--- for dinner. And the effect is showing promise!

Seeing us all getter "weller"

Tracie

NS Co-owner/moderator

[Guest guest]

I have the same Neurosis Mitch. Good note

Subject: Re: Protein -- what does it meanTo: Neurosarcoidosis Date: Saturday, May 8, 2010, 3:02 AM

Tracie,

A lot of the advice you give is very solid with a lot of research behind it. The only thing I have to disagree with is that people that want advice on nutrition or Detox's shouldn't look for a DO or Osteopathic Physician. These doctors 40 years ago knew more about nutrition but now they are just MD's with an occasional one who manipulates the spine (and this is becoming rarer every year). You also don't want to just trust someone who works at a Vitamin or Health Food Store. Most of these people (there are a few who have degrees but few and far between) that went in to business to make money without any knowledge of

nutrition

and only learn what their reps tell them.

FYI-I have been a Chiropractic Orthopedist for over 21 years with a specialty in Nutrition. I have somewhere between 750 and 1500 hours (I lost track a long time ago) of additional

nutrition

courses.Far more then 50 that I had in school and much more then the average 3-6 hours that MD's and DO's get I have been told I am in the top 1% of the Doctors in Pa including most specialists in

nutrition

..And I don't feel like I know nearly as much as I can. I am not telling you all this to impress but rather to show that I have all of this and still don't know a fraction of what's out there and there are just too many people that put themselves out there as "experts", I just enjoy nutrition being a Chiropractor and helping people and it looks like I don't have much more time doing it because of this horrible disease.

There are so many types of Detox's and you absolutely right, if you don't do the right one all your going to do is waste your money and possible get and feel worse.

I use many different types of supplements, supplemental regimes and Detox's depending on the person. health, meds, blood work, symptoms among other factors. I don't believe in the "One Detox fits all" they sell in health food stores.

I have been on Plaquinil, Prednisone (between 10-80 day) for over 3 years and 2 long courses of Methotrexate, many other meds and a large variety of pain meds and to everyone (including myself) is amazed that my liver, kidney and other organs have not been affected one bit by the meds (knock wood <---Jewish Neurosis lol)!

I can give general guidelines but when we're talking about Detox's I use many different ones going from 2 weeks to 3-6 months,

Anyone around my area I would be glad to help at no charge except for the cost of the supplements. .Or answer anyone's questions on a one to one basis if you e-mail me.

For those that don't know me or forgot me (It's been a crazy couple of months)

I lost the use of my right arm almost 9 years ago. Over several months and a large amount of poking prodding and multiple specialists, nothing was found except a spot on my lung that didn't change.

3 years ago February I got very sick and nothing helped. I lost count of the number of times I have pneumonia Atelectisis etc. but this time it got so bad I thought my lung had collapsed, I ordered a Cat scan on my self and got a call from the Radiologist 15 minutes later who told me I had Non Hodgkins Lymphoma (the same Cancer i lost my Father to the year before) for the next 3 weeks after 6 years of mis-diagnosis' s the worse one I could came, I had Cancer . But thank G-d the biopsy was done and the Sarcoid was diagnosed.

I became a freak show here in NE PA because not only had they not seen many Sarcoid cases but i had so many enlarged Lymph nodes that my films were being passed around more then the Paris tape. There were so many severely enlarge nodes that they stopped counting and the Pulmonologist (who was recommended to me by a friend who was on the board of the Hospital) told me he was so excited because he had never seen such a bad case and I was going to be his "test case" I don't think so, I'm no ones "test case".

Long story short (too late) I ended up with an excellent Pulmonologist at Mt. Sinai Hospital in NY. He is great at Pulmonary Sarcoid but is one of those guys who believes that Sarcoid is a painless disease and that all the severe pain I've been in had nothing to do with the sarcoid. I now have a great Neurologist who board certified in pain management and like the rest of you see my Opthomologist, Internist, Cardiologist, Rheumotologist regularly.

Sorry for the long response but I worked all day today and the pain is bad so I know I'll have a hard time sleeping so at least this took my mind off of it for a period.

i'm going to get the entire study and go over every line of to make sure that we all have something to look forward to. I know the initial things I've looked at looks very promising.

Well feel free to write me and to all the Mother's out there--Happy Mother's Day.

Again sorry about the length but i hope I can help

Mitch

Subject: Protein -- what does it mean

It's exciting that they have discovered the specific protein and TNR receptor that is causing the formation of granulomas. As you all saw, they want to use this info to develop tests that will tell them who needs aggresive treatment and who doesn't. Then hopefully they'll get around to figuring out what will stop this hyper response to this protein TNR connection.

In the meantime, we may all want to talk to a Naturopath ND that understands the detoxification of the gut. Eighty (80) percent of your immune system is in your gut. Our liver is hit by sarcoidsosis as often as our lungs end up involved.

All the meds we take are majorally toxic to our livers. So to help salvage the liver (which is the sole organ that is capable of full regeneration- - -a good Liver Detox program is needed. We need to do this very slowly, so we don't put our bodies into a healing crisis-- where we flush so many toxins at once, our systems can't handle it.

Milk Thistle is a good start for daily maintainence.

I'm am undergoing a full detox regime right now, and I have the opportunity to have an appt with a biochemistry specialist that works for the oldest Whole Food Company in the world this next weekend.

So far, from the detox I've done, I have lost 12 lbs in 14 days. This was primarily bile laying in my gallbladder, stuck in my intestines for who knows how long... and the slower you clear your intestines, the more toxic your gut becomes. All that poop is just lying there fermenting. Even for those of us that don't deal with constipation- - the junk laying there is leaking toxins from the gut into our bodies. Our body becomes overwhelmed with all the systemic toxins, and so it sends out it's antibodies to heal us-- but over time, it is so overwhelmed by the constant barrage of shit-- literally, that it can no longer differentiate between good cells and bad cells. This is the foundation for ALL the autoimmune disease.

I won't go into the exact process that I'm doing, as it would need to be adjusted for YOUR specific issues, as it is not a "one size fits all."

This is not something I'd be doing without the absolute guidance of someone who knows how to guide you-- DO NOT TRY THIS ON YOUR OWN!!!!

It has meant that I've had to cut out all the meat, the refined sugars, the processed foods, the gluten and the grains for a 3 wk period-- ( I'm on week 2) and already my color is improved-- I'm not gray and pale looking, I have energy for the first time in years -- and right now, I'm pooping 3 to 4 times a day-- so this is a good thing. It means that all that fermented crap is leaving my body!

I am looking forward to next weekend, and the appt with the specialist. He will be guiding my mentor and I towards a more healthful future. I don't know if it'll cure my sarc-- but even this little improvement is huge!

One thing I highly recommend is that those of you fortunate enough to be near the facility where they did this study-- read the names referenced on the article- these are MD's that may not jusually see patients-- but they are the ones who are looking to help us find our way back to health.

Search for articles that they have written and had published-- and see what they say. Some may treat patients, and it may be that they are available through the faciltiy that ran this study-- who knows

In the meantime-- seriously study up on Leaky Gut Syndrome, and Liver Detoxification. Find a Health Food Store where the people are TRAINED, CERTIFIED, by the School of Naturopathy or are Doctors of Osteopathy-- D.O. They understand both homeopathy and natural medicine-- Whole Foods such as raw vegetables, organic whenever possible, fresh fruit -- use the "what is in season" rule-- and make sure you wash all your fruits and veges-- so that even the enviromental fallout pollution is as far gone as possible. You want 2x the amount of veges as fruit. And 1/2 of your veges can be cooked, the other half needs to be eaten raw. Fluids, fluids, fluids, -- and more fluids.

Guys, visualize yourself as "whole" and "well." See the answers to the issues of sarcoidosis coming together and the medical communities embracing all of us to help us get back to wellness. Our bodies want us to be healthy, and they are so excited about that end-- that all our systems are on overload. Help your body by feeding it correctly-- it is the ONE thing we do have control over. It may mean that you put your "comfort" food aside, and develop whole new habits-- (I love fresh carrot/apple/ ginger juice with Vanilla Cream Whey Protein shakes) freshly juiced each morning!

The evening drink has been blackberries with Almond Milk and Vanilla Whey protein (along with some Whole Food Supplements) and raw veges--- for dinner. And the effect is showing promise!

Seeing us all getter "weller"

Tracie

NS Co-owner/moderator