Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 hi...i just got on this list and though i don't have anything to add to the current discussion, i just wanted some other folks besides me to know that tomorrow i take the last of my 144 shots of interferon that i was doing in combo with ribavarin...wednesday is the last of the oral meds...its been a long and difficult 48 weeks and because its a clinical trial i have never been allowed to know my viral load (though my liver enzymes seem to indicate that i was responding) anyhow, although my family & friends are aware of the ending of my treatment (though not of how scared i am that after all this, i still will be sick)...i wanted to tell others who really know what this disease and treatment can be like that, for better or worse, i'm finishing treatment this week, even though i really didn't know if i was going to be able to...if nothing else, i have climbed that mountain! thanks for providing me this space to share my good news Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 In a message dated 1/29/00 12:42:39 AM! First Boot!, BCSWDebra@... writes: << hi...i just got on this list and though i don't have anything to add to the current discussion, i just wanted some other folks besides me to know that tomorrow i take the last of my 144 shots of interferon that i was doing in combo with ribavarin...Wednesday is the last of the oral meds...its been a long and difficult 48 weeks and because its a clinical trial i have never been allowed to know my viral load (though my liver enzymes seem to indicate that i was responding) anyhow, although my family & friends are aware of the ending of my treatment (though not of how scared i am that after all this, i still will be sick)...i wanted to tell others who really know what this disease and treatment can be like that, for better or worse, I'm finishing treatment this week, even though i really didn't know if i was going to be able to...if nothing else, i have climbed that mountain! thanks for providing me this space to share my good news >> Hello Debra: Congratulation, on completing combo, I'm sure your PCR will come back undetectable. I'm praying for you. Let so know when you get your blood work back. Life is short, and the world is rough, and if your going to make it you gotta be tough! Have a good one, Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 The genotype may not be a 100% indicator of how one got the disease, especially if there are multiple different risks. But, it can offer more insight into whether the virus was from a transfusion, or IV Drugs, etc. Certain genotypes are more frequently seen in some types of transmissions. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 The genotype may not be a 100% indicator of how one got the disease, especially if there are multiple different risks. But, it can offer more insight into whether the virus was from a transfusion, or IV Drugs, etc. Certain genotypes are more frequently seen in some types of transmissions. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 congratulations! You made me smile. ! ) I am very happy for you. Take care and God Bless BCSWDebra@... wrote: > From: BCSWDebra@... > > hi...i just got on this list and though i don't have anything to add to the > current discussion, i just wanted some other folks besides me to know that > tomorrow i take the last of my 144 shots of interferon that i was doing in > combo with ribavarin...wednesday is the last of the oral meds...its been a > long and difficult 48 weeks and because its a clinical trial i have never > been allowed to know my viral load (though my liver enzymes seem to indicate > that i was responding) > anyhow, although my family & friends are aware of the ending of my treatment > (though not of how scared i am that after all this, i still will be > sick)...i wanted to tell others who really know what this disease and > treatment can be like that, for better or worse, i'm finishing treatment this > week, even though i really didn't know if i was going to be able to...if > nothing else, i have climbed that mountain! > thanks for providing me this space to share my good news > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2000 Report Share Posted January 28, 2000 congratulations! You made me smile. ! ) I am very happy for you. Take care and God Bless BCSWDebra@... wrote: > From: BCSWDebra@... > > hi...i just got on this list and though i don't have anything to add to the > current discussion, i just wanted some other folks besides me to know that > tomorrow i take the last of my 144 shots of interferon that i was doing in > combo with ribavarin...wednesday is the last of the oral meds...its been a > long and difficult 48 weeks and because its a clinical trial i have never > been allowed to know my viral load (though my liver enzymes seem to indicate > that i was responding) > anyhow, although my family & friends are aware of the ending of my treatment > (though not of how scared i am that after all this, i still will be > sick)...i wanted to tell others who really know what this disease and > treatment can be like that, for better or worse, i'm finishing treatment this > week, even though i really didn't know if i was going to be able to...if > nothing else, i have climbed that mountain! > thanks for providing me this space to share my good news > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 In a message dated 1/28/2000 9:22:37 PM Pacific Standard Time, isqazi@... writes: << ...i just got on this list and though i don't have anything to add to the > current discussion, i just wanted some other folks besides me to know that > tomorrow i take the last of my 144 shots of interferon that i was doing in > combo with ribavarin >> Nothing to add to the current discussion? Congratulations to you! You've added more then you can imagine by letting others know that it really is possible to make it through treatment! Some people drop out because of the side effects. I will pray that you sustain a negative response. Please let us know the outcome of your labs. If they're less then desirable, don't give up hope ok? We're here for you! Love, Bren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 BCSWDebra@.... WOOO HOOOO CONGRATULATIONS!!!!! I'm so proud of you! alley/ ICQ 12631861 alleypat@... <mailto:alleypat@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 BCSWDebra@.... WOOO HOOOO CONGRATULATIONS!!!!! I'm so proud of you! alley/ ICQ 12631861 alleypat@... <mailto:alleypat@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2000 Report Share Posted February 10, 2000 Hi, Everyone.............LOL at that TRS........perhaps we should all submit it to the Autism group as a required symptom!!!!!! Concerning the private religious schools (all faiths)..........it's just a REALLY SORE spot for me. I don't have the energy to fight them, and I wouldn't want Gareth in the school if I had to fight them. The head honcho for the Joliet Cath. schools sent me a letter stating 'it was one of the hardest times for her telling a family with a special needs child that they can't send their child there.' What really PISSES me off, is that they won't even try. Mardi..........I am glad your situation with Rose was different. You are a very fortunate family to have found a parish like that. It's difficult for me because my husband is Lutheran and they always take special needs kids. It's REALLY hard explaining your religious justifications in a situation like that. CK.........glad Ian did well. I love the Buddha belly.........Gareth has one too. Size 14 husky around the waist with these two spindly legs holding him up!!!!!!!! Dave.........on the potty training. If JJ was almost there 3 yrs. ago, and is understanding the reason of going potty (by watching you), then take it one step further. Ex. Come on JJ.......YOU and dad are going potty and THEN we will sit and watch TV (or whatever he thoroughly enjoys doing with you). Turn off the TV (or whatever distraction) until he at least TRIES to comply. Sounds like he's closer to it than you think. Best of luck. Medicines...........I talked to my favorite pharmacist who knows Gareth and she said giving Vit. A is good for anyone. The Urocholine (Bethanechol) is something she had not heard of. I remember the Peracitum from years ago............isn't that something that was to be given with Choline. Perhaps there is a connection. I think I may start him on Fish oil just to see if anything happens. It's one med she said won't harm and can't interfere with his other meds. Guess it's worth a try since my husband has to take it daily. Take care, everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2000 Report Share Posted February 12, 2000 The Urocholine (Bethanechol) is >something she had not heard of. Bethanechol makes on go to the bathroom (usually #1) and is often used in the hospital to get things moving. Kara > Post message: onelist > Subscribe: -subscribeonelist > Unsubscribe: -unsubscribeonelist > List owner: -owneronelist > >Shortcut URL to this page: > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 On the subject of Vioxx, I have been taking it for a couple of months now, at 25 mg. per day. I've been taking it with my dinner at about 6:30, and for the last couple of weeks have not been sleeping very well. Partly because of pain, but am not sure if the vioxx has anything to do with it. I've noticed some pain relief from my osterarthritis, and DDD, but not nearly enough. This week my Dr. added taking neurontin 300mg. once a day with the Vioxx. Has anyone had any pain relief from neurontin? I've only been on it a couple of days, but I can't see any chnge in my pain levels. I usually take 2 ultram in the afternoon for achiness & pain.At 09:08 AM 9/2/00 -0000, you wrote: > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 I took Neurontin for about two months. I didn't think I had any results from it at all. So I stopped. Some people have results though. It is used for fibremyalgia (spelling?). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 I took Vioxx for about 10 days recently, it helped with the pain but I broke out in huge blisters down my mouth, throat and stomach. Very painful for about 2 weeks. I took alot of Naprosyn several years ago and have just not been able to tolerate ANY anti-inflamatories since. Carey -- In Scoliosis Treatmentegroups, " Leger " <legerpj@n...> wrote: > I took Neurontin for about two months. I didn't think I had any > results from it at all. So I stopped. Some people have results > though. It is used for fibremyalgia (spelling?). > > Quote Link to comment Share on other sites More sharing options...
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