Guest guest Posted August 9, 2010 Report Share Posted August 9, 2010 Thank you. Sorry to hear her hair is still thin, what med is she on now? Sent via BlackBerry by AT&TSender: Neurosarcoidosis Date: Mon, 9 Aug 2010 17:40:14 -0700 (PDT)To: <Neurosarcoidosis >ReplyTo: Neurosarcoidosis Subject: Re: teresa I hope all works out for you. took Methotrexate injections for awhile & she started to lose her hair as well. Even though she no longer takes it her hair remains thin I believe as a result of the methotrexate and also the ones she is now on. Hang in there.MattFrom: JessicAbouhamama (AT) aol (DOT) com <JessicAbouhamama (AT) aol (DOT) com>Subject: Re: teresaTo:Neurosarcoidosis Date: Monday, August 9, 2010, 1:34 PM Thank you for the info I am glad I was not the only one to lose my hair on the meth injections. I know I hate taking so many pills a day BUT lol I don't like being bald. Lmao. Sent via BlackBerry by AT & TFrom: <topdat1 (AT) bellsouth (DOT) net>Sender: Neurosarcoidosis@ yahoogroups. comDate: Mon, 9 Aug 2010 08:40:14 -0700 (PDT)To: <Neurosarcoidosis@ yahoogroups. com>ReplyTo: Neurosarcoidosis@ yahoogroups. comSubject: Re: METHOTREXATE I , I'm so glad your hair did come back on its on.. I have always had problems with very thin hair but when I started with the meds from Sarc it was very embarrassing, so my doc's started me on some Biotin its a Bvitamin, along with some zinc, and right now I can't think of the other vitamin but will let the group know when I remember it.. My hair came back quickly and it was full and just as curly as if I had just had a perm.. I was so proud of it. Well of course when I did stop taking the vitamins the hair loss came back.. I am getting really tired of pill taking.. so I need to get to taking something again...This may not work for everyone, just wanted to let you guys know what worked for me in the past.. From: "JessicAbouhamama@ aol.com" <JessicAbouhamama@ aol.com>To: Neurosarcoidosis@ yahoogroups. comSent: Mon, August 9, 2010 10:25:34 AMSubject: Re: METHOTREXATE i have been on the metho injections now for about 9 months now and the sideffects i get , the night i give myself the injection and the next day i am sooooo tired. when i first started them i lost all my hair..yep i was bald but after about 4 months my hair started to grow back in. my hair is not growing fast but it stoped falling out. That is the only sideffects i got from the injections. i took the pills before and they didn't help me but the injection has calmed things down for me. good luck jessica In a message dated 8/9/2010 7:46:35 A.M. Eastern Daylight Time, mjcv29a (AT) aol (DOT) com writes: Hey, what's the longest anyone's been on Methotrexate and what doses. This is the 3rd time I was put on it and I had the same side effects the first two times and was able to deal with it. This time it's ripping up my bowels and I just feel like shit,. Anyone? Anyone? Buller? Anyone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 is now on Cellcept as well as Lamictal and Trileptal for the seizures caused by the neurosarcoidosis. I often feel like she is a walking pharmacy counter. Take care & be well.MattFrom: JessicAbouhamama@ aol.com <JessicAbouhamama@ aol.com>Subject: Re: teresaTo: Neurosarcoidosis@ yahoogroups. comDate: Monday, August 9, 2010, 1:34 PM Thank you for the info I am glad I was not the only one to lose my hair on the meth injections. I know I hate taking so many pills a day BUT lol I don't like being bald. Lmao. Sent via BlackBerry by AT & TFrom: <topdat1 (AT) bellsouth (DOT) net> Sender: Neurosarcoidosis@ yahoogroups. com Date: Mon, 9 Aug 2010 08:40:14 -0700 (PDT)To: <Neurosarcoidosis@ yahoogroups. com>ReplyTo: Neurosarcoidosis@ yahoogroups. com Subject: Re: METHOTREXATE I , I'm so glad your hair did come back on its on.. I have always had problems with very thin hair but when I started with the meds from Sarc it was very embarrassing, so my doc's started me on some Biotin its a Bvitamin, along with some zinc, and right now I can't think of the other vitamin but will let the group know when I remember it.. My hair came back quickly and it was full and just as curly as if I had just had a perm.. I was so proud of it. Well of course when I did stop taking the vitamins the hair loss came back.. I am getting really tired of pill taking.. so I need to get to taking something again...This may not work for everyone, just wanted to let you guys know what worked for me in the past.. From: "JessicAbouhamama@ aol.com" <JessicAbouhamama@ aol.com>To: Neurosarcoidosis@ yahoogroups. comSent: Mon, August 9, 2010 10:25:34 AMSubject: Re: METHOTREXATE i have been on the metho injections now for about 9 months now and the sideffects i get , the night i give myself the injection and the next day i am sooooo tired. when i first started them i lost all my hair..yep i was bald but after about 4 months my hair started to grow back in. my hair is not growing fast but it stoped falling out. That is the only sideffects i got from the injections. i took the pills before and they didn't help me but the injection has calmed things down for me. good luck jessica In a message dated 8/9/2010 7:46:35 A.M. Eastern Daylight Time, mjcv29a (AT) aol (DOT) com writes: Hey, what's the longest anyone's been on Methotrexate and what doses. This is the 3rd time I was put on it and I had the same side effects the first two times and was able to deal with it. This time it's ripping up my bowels and I just feel like shit,. Anyone? Anyone? Buller? Anyone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2010 Report Share Posted August 11, 2010 Matt, how is the home health care working out? Are you getting enough rest? Ramblin' RoseModerator It's not that life is so short-------It's that we wait so long to begin. (attributed to Wooden, among others) To: Neurosarcoidosis From: dmatt1960@...Date: Wed, 11 Aug 2010 18:31:49 -0700Subject: Re: teresa,matt is now on Cellcept as well as Lamictal and Trileptal for the seizures caused by the neurosarcoidosis. I often feel like she is a walking pharmacy counter. Take care & be well.Matt From: JessicAbouhamama@ aol.com <JessicAbouhamama@ aol.com>Subject: Re: teresaTo: Neurosarcoidosis@ yahoogroups. comDate: Monday, August 9, 2010, 1:34 PM Thank you for the info I am glad I was not the only one to lose my hair on the meth injections. I know I hate taking so many pills a day BUT lol I don't like being bald. Lmao. Sent via BlackBerry by AT & T From: <topdat1 (AT) bellsouth (DOT) net> Sender: Neurosarcoidosis@ yahoogroups. com Date: Mon, 9 Aug 2010 08:40:14 -0700 (PDT) To: <Neurosarcoidosis@ yahoogroups. com> ReplyTo: Neurosarcoidosis@ yahoogroups. com Subject: Re: METHOTREXATE I , I'm so glad your hair did come back on its on.. I have always had problems with very thin hair but when I started with the meds from Sarc it was very embarrassing, so my doc's started me on some Biotin its a Bvitamin, along with some zinc, and right now I can't think of the other vitamin but will let the group know when I remember it.. My hair came back quickly and it was full and just as curly as if I had just had a perm.. I was so proud of it. Well of course when I did stop taking the vitamins the hair loss came back.. I am getting really tired of pill taking.. so I need to get to taking something again...This may not work for everyone, just wanted to let you guys know what worked for me in the past.. From: "JessicAbouhamama@ aol.com" <JessicAbouhamama@ aol.com>To: Neurosarcoidosis@ yahoogroups. comSent: Mon, August 9, 2010 10:25:34 AMSubject: Re: METHOTREXATE i have been on the metho injections now for about 9 months now and the sideffects i get , the night i give myself the injection and the next day i am sooooo tired. when i first started them i lost all my hair..yep i was bald but after about 4 months my hair started to grow back in. my hair is not growing fast but it stoped falling out. That is the only sideffects i got from the injections. i took the pills before and they didn't help me but the injection has calmed things down for me. good luck jessica In a message dated 8/9/2010 7:46:35 A.M. Eastern Daylight Time, mjcv29a (AT) aol (DOT) com writes: Hey, what's the longest anyone's been on Methotrexate and what doses. This is the 3rd time I was put on it and I had the same side effects the first two times and was able to deal with it. This time it's ripping up my bowels and I just feel like shit,. Anyone? Anyone? Buller? Anyone? Quote Link to comment Share on other sites More sharing options...
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