Re: Connection between Plagio and Autism

[Guest guest]

Does anyone know of children who did not receive a helmet. How did their heads

progress with age? My daughter is 6 months and really does not have a flat head

anymore since we have kept her off of it for 2 months. One of her ears does

stick out a little more than the other though. We just found out today that

insurance will not cover a helmet for her. I am just wondering if $3600 is

worth it for her ears not being exactly level with eathother. No one in my

family even noticed it until it was brought to our attention. Has anyone

experienced this and chosen against a helmet? Did the symmetry get better or

worse over time? No money is too much if it is really something that she needs,

but $3600 is a lot of money and would be good to put towards some of the other

health issues we may be dealing with since she has been showing the early autism

signs.

> > > >

> > > > Hello,

> > > >

> > > > I am wondering if anyone out there has statistics on the amount of

> children with Plagio that end up getting diagnosed with Autism. My daughter

> is 6 months, and we are doing the preliminary visits with Cranial

> Technologies to get her a helmet. She was born with tort causing her to turn

> her head to the right when she slept. I am a new mom and do not have any

> friends who are parents so I didn't think it was an issue. That is until she

> had a noticeable flat head on the right side at 4 months. As soon as the

> doctor brought this to our attention, we started sleeping her on her side

> using a positioner. He head has improved very well in the last 2 months, but

> it is still a bit flat and her ears are not even so we are still planning to

> get the helmet. Since her 4 month well appointment, she has shown several

> signs of autism. Her smiling has regressed, she rarely makes eye contact,

> she doesn't respond very often when someone calls her name, she twirls her

> wrists and feet constantly, her head size has rapidly grown over the last 2

> months, she has no desire to sit up (she can though so she is still meeting

> milestones), she is obsessed with lights ceiling fans and televisions, she

> does not seem very interested in other babies or animals, she does not like

> when I try to hold her hands to teach her to wave or clap. She also had

> major reflux problems at 3 months which helped lead to the plagio since she

> refused tummy time and would push back even when we tried to sit her up on

> our laps. She has received no treatment other than our initial appt with CT.

> I did not even know that we should be doing exercises for the tort or take

> her to therapy for it. I feel like her autism signs have just suddenly

> appeared. Conveniently since the Plagio started. I followed the babywise

> schedule which had her sleeping through the night at 6 weeks. She has been a

> very good sleeper since 6 weeks which also contributed to the Plagio. She

> still sleeps between 14 and 18 hours a day at 6 months. She doesn't seem to

> have sensory issues other than that she like to hold soft materials when she

> sleeps, but I think that is pretty normal. Because we were trying to keep

> her off of her back at 4 months, we bought her a jumperoo and an exersaucer.

> She would refuse to sit in them unless the tv was on. I would try everything

> to get her to play without the tv and she would just scream. Tummy time was

> impossible because she would just roll right over to her back. She would

> almost suffocate herself on a boppy pillow during tummy time. So the

> jumperoo and exersaucer just seemed to make sense. After I started noticing

> signs of autism, I did research on the causes. It seems like A LOT of babies

> with plagio and tort have signs of autism. I also researched that some

> studies show that too much exposure to the tv may contribute to the increase

> in autism over the past decade. It just seems weird that autism started to

> be more common when pediatricians suggested sleeping babies on their backs.

> Since doing all of this research, I have no longer offered the television,

> and my husband and I do not even have it on at all until she goes to bed for

> the night. Since she is 6 months now, she is too big for her sleep

> positioner but she does still sleep on her side or stomach (on her own) so

> she is still pretty much off of the back of her head 24 hours a day. I keep

> her sitting up or I hold her all day to keep her from laying back. We do

> sometimes have long car rides though. Friends and family think it is not an

> issue since she does smile. The problem is that I know my baby and she does

> not smile nearly as much as she once did. I really feel that her plagio and

> tort are connected to these early signs of autism. I would like to know if

> there are any parents out there of children 3 or older who had plagio issues

> and do not show signs of autism. Also, are there any parents who decided not

> to get the helmet? I have read that it can bruise the brain. Maybe the

> helmets contribut to something? If there are parents of older children who

> opted not to do the helmet, how does your child's head look now? Did it

> correct itself? Do they have any semmetry problems like their ears not

> lining up? I am needing to make a decision on the corrective helmet ASAP

> since my daughter is 6 1/2 months and I know that it will take a while to

> get it as well. Time is running out if we want to have the best results from

> the helmet since she is getting to be older and her head will not be as easy

> to transform. Please help me understand what is happening to my baby.

> > > >

> > > > Thank you,

> > > >

> > > >

> > > > first time mom and new to the group

> > > >

> > >

> >

>

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