Re: I need help!!!

[Guest guest]

Hi ,

Yes the diet will work with meds and many of us do take them. The diet was not

designed to replace medication and Elaine said it is important to stay on

medication. However, some people after being on the diet have elected to stop

their medication after being symptom-free for quite some time. This decision has

in most cases been against medical advice.

The diet was never intended to be in conflict with medication or medical advice.

It is wonderful that your husband has experienced such a great improvement on

SCD. I would encourage him to stay on it as it seems to be doing him a lot of

good. Being on meds is not a reason to stop SCD.

PJ

>

> My husband has been doing the SCD diet for 4 months and it has been like a

miracle for him!! He was diagnosed with Crohn's disease 6 years ago. He has

had 2 resections, 3 srtictureplasties, an abcess,a fistula and probably more

stuff I can't remember. He has tried sulfazalazine, endocort, prednisone,

imuran, remicade, humira, methotrexate, and tysabri. Nothing has worked for

long. Some have actually made things worse. In Feb. he ended up in the ER with

pain and a 104 fever from inflammation. That is when he started the diet. He

now has mostly normal bowel movements and no pain! He is off of all medicines

and feeling good. Well today he went for a colonoscopy. It was the first one he

has had since his resection a year ago. Many parts of his colon looked normal,

but there were some parts that showed colitis and he has a partial blockage with

active disease in that area. The Dr. wants to put him on Imuran and Cimzia ASAP

so that his blockage does not get worse. Should he go back on meds? Will the

diet keep working if he adds meds? If he takes immunosuppressants, can the diet

still heal his immune system? Thanks in advance for any advice. I really

appreciate the this yahoo group. (Even though I have never posted, I read the

other post daily). -

>

[Guest guest]

Hey !

I've taken Cimzia before and since it's an injection, it should not interfere

with SCD. I can't speak for Imuran- it's one of the few I actually haven't

tried. Necessary medications can work in conjunction with the diet. I take some

oral stuff (like Prednisone that I've been trying to taper off for years and

years) that have illegals in them, but I am still able to progress.

As for your question about the impact of suppressing his immune system with this

diet... I'm not sure? I don't *think* that would have an effect on the bacteria.

Does anyone know for sure?

I hope this helps! I am sure someone can advise you on the Imuran

-Joanna

SCD 9/2009, Crohn's 1992, 30mg Prednisone

>

> My husband has been doing the SCD diet for 4 months and it has been like a

miracle for him!! He was diagnosed with Crohn's disease 6 years ago. He has

had 2 resections, 3 srtictureplasties, an abcess,a fistula and probably more

stuff I can't remember. He has tried sulfazalazine, endocort, prednisone,

imuran, remicade, humira, methotrexate, and tysabri. Nothing has worked for

long. Some have actually made things worse. In Feb. he ended up in the ER with

pain and a 104 fever from inflammation. That is when he started the diet. He

now has mostly normal bowel movements and no pain! He is off of all medicines

and feeling good. Well today he went for a colonoscopy. It was the first one he

has had since his resection a year ago. Many parts of his colon looked normal,

but there were some parts that showed colitis and he has a partial blockage with

active disease in that area. The Dr. wants to put him on Imuran and Cimzia ASAP

so that his blockage does not get worse. Should he go back on meds? Will the

diet keep working if he adds meds? If he takes immunosuppressants, can the diet

still heal his immune system? Thanks in advance for any advice. I really

appreciate the this yahoo group. (Even though I have never posted, I read the

other post daily). -

>

[Guest guest]

I am in the same boat as your husband. My doc recommended both Cimzia and

Imuran today. My colonoscopy showed inflammation again in the ileum. I will go

on them because they will help me get better and I need something, the diet

isn't doing it alone. However, I didn't go slowly on the diet either. I am

re-starting the diet today using the Pecanbread stages. Which, I have some

questions for the group on that too! But, what I have a problem with is, when

would I know to come off the drugs once I start feeling better. I am afraid of

coming off of them and getting sick again.

>

> My husband has been doing the SCD diet for 4 months and it has been like a

miracle for him!! He was diagnosed with Crohn's disease 6 years ago. He has

had 2 resections, 3 srtictureplasties, an abcess,a fistula and probably more

stuff I can't remember. He has tried sulfazalazine, endocort, prednisone,

imuran, remicade, humira, methotrexate, and tysabri. Nothing has worked for

long. Some have actually made things worse. In Feb. he ended up in the ER with

pain and a 104 fever from inflammation. That is when he started the diet. He

now has mostly normal bowel movements and no pain! He is off of all medicines

and feeling good. Well today he went for a colonoscopy. It was the first one he

has had since his resection a year ago. Many parts of his colon looked normal,

but there were some parts that showed colitis and he has a partial blockage with

active disease in that area. The Dr. wants to put him on Imuran and Cimzia ASAP

so that his blockage does not get worse. Should he go back on meds? Will the

diet keep working if he adds meds? If he takes immunosuppressants, can the diet

still heal his immune system? Thanks in advance for any advice. I really

appreciate the this yahoo group. (Even though I have never posted, I read the

other post daily). -

>

[Guest guest]

I don't think anyone " knows " when to come off medications. We all would like

to, but it is not medically recommended.

The point is to do what you can to feel better. We are told IBD is not curable

but a chronic condition. There are people who seem to be healed on SCD but it

has not been confirmed by standard medical research. Yet the theory of SCD- to

stop the cycle makes sense and this is supported by medical research on gut

flora...but SCD itself has not been thoroughly investigated. The reason being

that a controlled study on diet would be difficult, expensive, and there is not

profit in it. Still, many of us are willing to give it a try and reap the

benefits.

The anecdotes of people who have stopped medication are from those who feel

perfectly well, and after a long while of feeling ok, they just slowly give up

the meds, and it does not seem to make a difference. At this point, their

doctors are not OK with that, but they take the risk anyway and are doing well.

So there really is no specific time to " stop meds " , or way to know when. I think

people just gradually slow down on taking them if they have had no symptoms for

a while.

PJ

> >

> > My husband has been doing the SCD diet for 4 months and it has been like a

miracle for him!! He was diagnosed with Crohn's disease 6 years ago. He has

had 2 resections, 3 srtictureplasties, an abcess,a fistula and probably more

stuff I can't remember. He has tried sulfazalazine, endocort, prednisone,

imuran, remicade, humira, methotrexate, and tysabri. Nothing has worked for

long. Some have actually made things worse. In Feb. he ended up in the ER with

pain and a 104 fever from inflammation. That is when he started the diet. He

now has mostly normal bowel movements and no pain! He is off of all medicines

and feeling good. Well today he went for a colonoscopy. It was the first one he

has had since his resection a year ago. Many parts of his colon looked normal,

but there were some parts that showed colitis and he has a partial blockage with

active disease in that area. The Dr. wants to put him on Imuran and Cimzia ASAP

so that his blockage does not get worse. Should he go back on meds? Will the

diet keep working if he adds meds? If he takes immunosuppressants, can the diet

still heal his immune system? Thanks in advance for any advice. I really

appreciate the this yahoo group. (Even though I have never posted, I read the

other post daily). -

> >

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