Re: Re: I just wanna cry

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Thank you for your reply. I have been in tears most of the night. With zero family support and limited options I feel like the walls are closing in on me. I just want to do what's best for jayden. I never knew this condition before my son got it. I am aggrivated there are so few options around here. I just feel its so severe and noticable that that is all people see. I can see people just right off the bat staring at his head, or men who don't know how sensitive it is for me to say wow look at his big coconut. Gosh I just wish I could go back to day one and never put my son down. All he has endured trying to fix this issue and right now seems like for nothingSent via BlackBerry from T-MobileFrom: "christineashok" Date: Tue, 06 Jan 2009 05:04:35 -0000<Plagiocephaly >Subject: Re: I just wanna cry Hi Antonia, first you are not a bad mom, you are trying your best to help correct the problem. A lot of people start treatment later, and see good results. I'm so sorry things aren't working out with your ortho, and that you don't have other option. I'm really not sure what to recommend. It does look lik he has a combo of brachy and plagio. I think your ortho should refund your money if the helmet has made his head worse, but I have no idea how easy or hard this will be to accomplish. The best thing would be to get a band elsewhere, but I can understand not having any money, and also I know CO is very hard - lots of parents post here that it is very anti banding, and there are very few options. If you have absolutely no other options, I would talk to his current ortho and see what they say. Can they make a new helmet, and why would they expect it to work better? why hasn't the current one been working?... If they do make a new one I would definitely expect it to be at no cost. However this isn't really very appealing given what has happened so far. I hope someone will respond with more helpful suggestions, but I at least wanted you to know that you definitely have my sympathy, and I'm really sorry you are struggling so much with this. -christine sydney, 3 yrs, starband grad > > Well I could just cry. Or maybe throw something. I posted pics from > today under Plagio babies J title Jayden right now. They are pics I > took of him in the bath today. The sight of his head makes me cry. It > looks terrible. It doesnt even look like he's had a helmet on!!!! In > fact before he was just severely bracy at 95%. Now he looks as if > there is some plagio going on too on one side. I left a message > Thursday and Friday for the ortho at Hanger. I guess they just moved > to a new office so I hope to hear from them tomorrow. Ladies I just > want to lose it!!! I have dealt with family telling me what an awful > mom I am for subjecting my son to the helmet. All the blisters, > sores, boils and staph infections. He finally has stopped getting > them and has had a month of wear with no issues, but I look at his > head and I can tell without any measurements he has stayed the same > if not gotten worse. Even if I could get to CT, I literally have $0 > to pay out of pocket. I feel like the ortho office I'm working with > isnt as professional as they should be as they even went as far as to > email me through this board. I had never given them my email address. > They just recognized me through my posts. I know this is the internet > and I havent posted anything to be rude to the Ortho I simply shared > what Jayden went through. Should I ask that a new helmet be made > being that his head looks so terrible and he hasnt gotten any > correction? I can tell he's still severe. His head looks wider than > it is long. ANd just his pics alone I'm sure you can all feel my > pain. I feel like an awful mom for not getting treatment prior to 7 > months because the neuro surgeon we first saw said no one in colorado > did helmets. I feel like a bad mom for putting my son down enough to > even cause this. My daughter never had this issue. I blame the swing > that goes from side to side. He loved that thing as a tiny baby. > Someone please just give me some guidance. Is it even worth trying to > see the same clinic at this point being that they made me feel so > uncomfortable by contacting off this message board? If its not worth > it am I entitled to be refunded the money that I paid for the > deductible??? I feel sick right now having jut looked at my sons > pics. There really isnt any other good ortho's in colorado. I have > researched and researched and the only other name I could come up > with was a Greg Smits and the few parents who went with him said it > wasnt worth it and that he lacked experience. I'm running out of > correction time here. >