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This is information from Aisha (founder of this group); it's written for the system in Australia, but adaptable to USA.

Things to tell the Disabilty people...

"Remember what I said before, you emphasize the things you CANT do not the things you can. I CANT take care of myself. I CANT take care of the house. I CANT remember what day it is. I CANT remember to take my medication. I CANT, I CANT, I CANT!!!!!!!!!!!!! These are the key words and are what the SSA disability examiners look for."

Here is a list from the Disability Checkers in Australia that might help you or give you ideas for your letter/appeal etc! Keep fighting. Most people dont get approved first go in the USA... just appeal and if you need to, get a lawyer.

This is the form a carer fills in. Its very similar to ones the Dr's fill in. I'm taking this straight off the form. These are the Questions and Answers. Use it as a guide so you know the type of thing they are looking for and are prepared. Hope it helps!

Day to Day care needs

Can you:-

move around the house without help/with some help/with alot of help/cannot do this

fall over indoors always/often/sometimes/never

fall out of wheelchair if unattended always/often/sometimes/never

move to and from bed, chairs, wheelchair and walking aids without help/with some help/with alot of help/cannot do this

have difficulty hearing clearlyalways/often/sometimes/never

have difficulty seeing clearlyalways/often/sometimes/never

need help or attention during the nightalways/often/sometimes/never

have loss of bladder and or bowel controlalways/often/sometimes/never

use continence aids or equipmentwithout help/with some help/with alot of help/does not use aids

use the toiletwithout help/with some help/with alot of help/cannot use a toilet

eat his/her foodwithout help/with some help/with alot of help/cannot feed themselves

shower, bathe him/herselfwithout help/with some help/with alot of help/cannot do this

dress him/herself (the want to know if you can tie shoe laces, do up buttons, zips etc)without help/with some help/with alot of help/cannot do this

look after personal grooming (shaving, caring for hair, teeth)without help/with some help/with alot of help/cannot do this

take care of own medication (takes right table at right time)without help/with some help/with alot of help/cannot do this/does not take medication

take care of his/her own treatments (oxygen/wound care/tube feeds)without help/with some help/with alot of help/cannot do this/does not use treatments

Cognitive function (Mental Capacities)

understands what you sayalways/often/sometimes/never

understands what other people sayalways/often/sometimes/never

lets others know how he/she feels and what he/she needsalways/often/sometimes/never

know where he/she isalways/often/sometimes/never

know whether it is morning, afternoon or nightalways/often/sometimes/never

remember things that happened todayalways/often/sometimes/never

wander away or run away from homnever/sometimes/often

shout, scream at or threaten other peoplenever/sometimes/often

physically harm other peoplenever/sometimes/often

damage furniture, posessions or objectsnever/sometimes/often

laugh or cry without apparent reasonnever/sometimes/often

withdraw from social contact with other people or appear depressed or worried or fearfulnever/sometimes/often

deliberately harm him/herselfnever/sometimes/often

have unusal, unappropriate behavioursnever/sometimes/often

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

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