Re: Re: responses to Roll Call

[Guest guest]

Darlene,Believe it or not, my burning pain got so much better when I started taking zinc that I was able to cut my Neurontin by half. I still have some really bad days, but I am having more good days lately.Hope this helps.To: neurosarcoidosis Sent: Sun, September 26, 2010 3:35:10

PMSubject: Re: responses to Roll Call

A big thank you to all who have responded to the Roll Call. I started out trying to reply to each one, but I have been so sick these last three days that I have not been able to do so. I am so glad to hear from so many of you but it is still a long way from 600+. I just hope most are feeling well and able to carry on with their life. This Sarc Monster is a terrible thing and really steals your life away.

I would not wish any symptoms on anyone but I was glad to hear several of you describe the same ones I have.........especially the "burning" sensation that so many have. I have it and mine seems to be getting worse. Sometimes the pain is really horrible. I have several other symptoms that were mentioned, but I am very tired and do not feel like going into them now.

Hope all are doing as well as can be expected......I really do think of all of you each day and wish health and happiness to all.

Hugs,DarleneNS Co-Owner/Moderator