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Welcome :

Have you tried Blue Diamond's Almond Milk? They're in Sacramento. Maybe

that's another option for you. I can't do soy at all in any way shape or

form and don't care for the water-like quality of rice milk. I then

discovered Almond Milk and won't go back. Too bad the coffee shops

haven't caught on to this yet.

Speaking of which, does anyone have problems with caffeine? Or histamine

type products like peppermint, etc. I'm beginning to think I can't have

any kind of caffeine and I'm thinking the red " bumps " all over my arms,

face, chest and sides of my body are from caffeine. It's so

embarrassing! I haven't worn a short sleeved top or tank top in years!

Does anyone else have this problem? If so, what is it and how do I get

ride of these red irritations? Is it a hive?

I had suggested the restaurant idea, too, but wonder how much money,

time, and effort it would take to get it started ~ along with the down

turned economy right now. I offered up my design and artistic services

to help create the logo, advertising materials, interior concepts,

décor, artwork, etc. I wouldn't mind helping with menu ideas, too. :-)

Also, I'd like to use my design skills to further educate the public

about this problem along with advertising the Celiac Walk-A-Thon we just

had in hopes of drawing more attention to this problem and finding a

" cure. " Can anyone think of an organization that would like to have a

designer create some marketing materials or logos for there research,

educational, or group programs in regard to celiac disease? I may be

able to orchestrate some free digital printing for some of these items

as well. I'd volunteer the design services of course.

~ Also, Sappi Papers just had a contest for designers to design an image

for their favorite non-profits and other charitable organizations in

which I wanted to create something for Celiac Disease, but I didn't know

who to ask. If they have the contest every year, and I'll check on it,

they basically ask how much money the organization will need to design,

print, and distribute the materials and then pay the winning designer &

organization the quoted amount in order for their designs to be put into

use. I thought it might be a nice way to get some " free " cash to put

together some educational and promotional materials for this cause. What

do you think? If not Sappi, I'm sure I can find another organization.

I think this is such an important issue, and America is so far behind.

We should be more concerned with what these conglomerates are putting in

our " food. " Well, it's more like lab produced, pre-packaged chemicals

that just happen to look like, smell like, and at times, taste like

food. Ha, ha. Well, I guess it really isn't that funny.

Please advise,

Louise Audell

Graphic Designer

Virtual Service Provider

Sugarcube Graphics

(415) 348-1022

louise@...

www.Sugarcube-Graphics.com (in progress)

-----Original Message-----

From: [mailto:wb7tts@...]

Sent: Thursday, May 08, 2003 3:31 PM

Subject: [ ] I'm new to the list

Hi all,

I live in Sacramento, is it close enough to the bay area?

I wanted to find a group that was some what active that I could chat

with about every thing to do with celiac.

I was reading the archives and noticed the notation about Dream Rice

containing gluten and checked and it says right on the box that it

has Barley gluten. Now I'm going out to get Pacific rice beverage.

I know that most people with Celiac also have other food alergies. I

am alergic to almost every thing from Mammal meats and such. Now my

doctor seems to think that it is the feed the animals are fed that

I'm reacting to and not the actual meats.

I have several family members with Celiac and was just diagnosed with

it last month.

I read about the idea of opening a gluten free resturant. I have

thought about that too.

One of my relitives with Celiac was thinking of starting one in

Spokane, but he was too busy with the businesses he already owned. I

told him that it would go right along with music stores.

Celiac is genetic so I am having my kids tested for it too. 2 of my 3

children have some symptoms that may indicate Celiac.

Bette Want

Sacramento California

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Hello,

I live in Boulder Creek, Santa Cruz County. I struggled with all sorts of

food intolerances after my initial CD diagnosis (dx). This, I truly

believe, is due to the damage that existed within my intestines and other

systemic damage to my immune, nervous, hormonal systems.

Now, I am 1 yr 3 mos GF and can tolerate most other foods except cow dairy

to which I react almost as violently and totally as gluten.

I think that you need to approach your diet as extremely limited, for now.

I existed upon salmon, eggs, GF/DF toast, Trader Joes Dynomite juice (hi in

viatmins), apricot nectar (TJs), rice, baked potatoe, olive oil in

moderation, no butter, no cheese no yoghurt. No hi fiber, no raw fruits or

veggies. Used a lot of almond butter for fat intake. Then, slowly as the

gut and immune system healed, I was able to re-introduce a more normal

regime.

Also, had to revisit lifestyle and stress. Did not force exercise, or any

activity upon myself.

You see, I was so il I was in Stanford for malnutrition and the MDS were

concerned about malignancies so I was MRI'd and had other asty testing

done.

Long story short, I went from 88 lbs at my sickest (Feb. 2002) to 118 now.

(Am 5'2 " ).

Thus far, my kids are ok. We routinely test them (blood panels) every 6mos

to a yr. This way, we are tracking levels if they begin to rise. Prior to

the tests, I load them up on glutonous foods for about 3 weeks.

Hiope this helps. If you would like to call me you can, and I can fill you

in my restaurant strategies.

best of health,

831 338 3195

>From: " " <wb7tts@...>

>Reply-

>

>Subject: [ ] I'm new to the list

>Date: Thu, 08 May 2003 22:30:35 -0000

>

>Hi all,

>

>I live in Sacramento, is it close enough to the bay area?

>

>I wanted to find a group that was some what active that I could chat

>with about every thing to do with celiac.

>

>

>I was reading the archives and noticed the notation about Dream Rice

>containing gluten and checked and it says right on the box that it

>has Barley gluten. Now I'm going out to get Pacific rice beverage.

>

>I know that most people with Celiac also have other food alergies. I

>am alergic to almost every thing from Mammal meats and such. Now my

>doctor seems to think that it is the feed the animals are fed that

>I'm reacting to and not the actual meats.

>

>I have several family members with Celiac and was just diagnosed with

>it last month.

>

>I read about the idea of opening a gluten free resturant. I have

>thought about that too.

>One of my relitives with Celiac was thinking of starting one in

>Spokane, but he was too busy with the businesses he already owned. I

>told him that it would go right along with music stores.

>

>Celiac is genetic so I am having my kids tested for it too. 2 of my 3

>children have some symptoms that may indicate Celiac.

>

>

>Bette Want

>Sacramento California

>

_________________________________________________________________

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In a message dated 5/8/03 8:21:15 PM Pacific Daylight Time, wb7tts@... writes:

Coffee, could it be that they grinders that are used for grinding

coffee are contaminated?

I've read that the processing involved in instant coffee and tea sometimes causes allergenic problems (not gluten-related) for some people with celiac disease. I'd be very surprised if coffee grinders were contaminated. When buying a coffee mill, try to get a burr grinder as opposed to a blade system; they work better and last longer.

Harper

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Thank you for the suggestion but I have tried it and for some reason

it does not taste quite right to me.

My cousin loves it and had me try it several times but I guess it is

just not to my liking. My grandfather used to drink Soya milk and I

hated the smell of it then and it brings back memories just thinking

about it.

As far as the water like quality of rice drink, I like it.

Coffee, could it be that they grinders that are used for grinding

coffee are contaminated? I grind my own coffee beans. I have found a

commercial supplier for beans and I get them there, at Smart and

Final. The bean grinders are not hard to get. Some food processors

have a bean grinder accessory to them or you can get one of the small

ones like from Mr. Coffee or such to grind one pot's worth at a time.

I have noticed too that sometimes an item will have large

letters " Wheat Free " and then I get home and the ingredients will

list barley in it. I got fig bars that said that. My husband has no

problems with gluten and they did say fat free so he enjoyed them. He

is on a low collesteral diet.

My younger son is an artist who has only sold a bit of his art. I

will tell him about the contest and see what he comes up with. He's

good at that sort of thing.

He works nights as a security guard so have to catch him on his days

off.

Bette

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