Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Thanks, Amy Poe. You helped me get here. Hold us all in your heart on the 3rd when we cross over and become the newest bunch of post-oppers!!!!! PhillyJude Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 You're already there sweetie - along with your litter mates! I'm so excited for each of you!!! Blessings, Amy. _____________________________________________ Amy S. Poe MGB 5/22/2000 280 * 210 * 140 READ MY STORY ONLINE: http://onhealth.webmd.com/women/in-depth/item/item%2C91744_1_1.asp Re: Thanks Thanks, Amy Poe. You helped me get here. Hold us all in your heart on the 3rd when we cross over and become the newest bunch of post-oppers!!!!! PhillyJude Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 Call them and say that you are calling for Dr. Rutledge. He authorizes you to do that; then you'll be able to know the progress. They'll ask you your name, I used middle and maiden. I wasn't lying! Not really. Besides, it's MY future! PhillyJude Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 Hi Steve, Thank you for another great success story and for answering that very important question, " Would I do it again? I am glad to see you would. So far there have been few complications, and most seem quite manageable. Thank you for your feedback and congratulations on your success! Happy holidays, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 Hi Ellen(Pam Another success story (I have a hernia, before surgery)! Congratulations, and thank you. Happy Holidays! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Ali. I used to live in Northern Virginia, but have recently relocated to Charlotte. My daughter, has bilteral clubfoot. She is 2 now. I wanted to tell you there is a clubfoot support group that meets in Fairfax, Virginia once a month. I don't know if that is too far for you to go. It is nice to meet and talk with other parents who are going through the same experience you are. If you are interested, please contact Joanne at joannewalton2003 @ yahoo.com (without the spaces). She is the group leader and can give you all the details. HTH. alisontatum wrote: Thanks, . It looks like Hayden is not that much older than Paddy. I posted an album under " Paddy " that documents his progress. I love seeing all the other albums. I don't know anyone else around here who has cf. Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 Thanks Rose. I'm prepared for any outcome including none but mostly I'm thankful to fellow posters for getting me out of my rut. Cheers, Darrin To: neurosarcoidosis From: mamadogrose@...Date: Sat, 5 Jun 2010 19:13:52 -0400Subject: RE: Thanks Darrin, I'm glad that your oral surgeon went right after the problem & took action. Let's hope the results, whatever they are, help you choose the next best step. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: neurosarcoidosis From: gphx@...Date: Sat, 5 Jun 2010 11:44:01 -0700Subject: ThanksI was at wits end and got some advice here and on other boards.No longer sure what to do next people told me biopsies may be theonly thing left. Rather than recruit yet another 'ologist' I decided togo see an oral surgeon to find out whether he'd biopsy a salivarygland. To my surprise he agreed and insisted on biopsying more thanthe gland I'd noticed as problematic. They said I didn't salivate at all during the procedure and noted onextraction the upper gland was oddly 'granular'. Results are yet tocome back and there's no guarantee they'll find Sjogrens or granulomaseven if they are there but if they are I'll have saved myself a whole lot of money, time, and trouble. Should the result be positive I'll likelyget a lot less resistance from doctors getting the lung biopsy as well. In any case I feel like things are moving again after being stuck withno idea what to do. Thanks to those whose input helped me get pastthat. If it's positive though I'm going to be quite irritated with the doctor who turned down my request for the gland biopsy insisting on fivefigures worth of CTs and PETs at my expense instead. lol Cheers,Darrin The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 Darrin,I hope you get the answers you need. I have found over the years that the patient and often the care givers have to become very proactive in our own behalf when dealing with the doctors. Take care & be wellMattSubject: ThanksTo: "neurosarcoidosis " <neurosarcoidosis >Date: Saturday, June 5, 2010, 2:44 PM I was at wits end and got some advice here and on other boards. No longer sure what to do next people told me biopsies may be the only thing left. Rather than recruit yet another 'ologist' I decided to go see an oral surgeon to find out whether he'd biopsy a salivary gland. To my surprise he agreed and insisted on biopsying more than the gland I'd noticed as problematic. They said I didn't salivate at all during the procedure and noted on extraction the upper gland was oddly 'granular'. Results are yet to come back and there's no guarantee they'll find Sjogrens or granulomas even if they are there but if they are I'll have saved myself a whole lot of money, time, and trouble. Should the result be positive I'll likely get a lot less resistance from doctors getting the lung biopsy as well. In any case I feel like things are moving again after being stuck with no idea what to do. Thanks to those whose input helped me get past that. If it's positive though I'm going to be quite irritated with the doctor who turned down my request for the gland biopsy insisting on five figures worth of CTs and PETs at my expense instead. lol Cheers, Darrin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 Darrin, I'm glad things are moving forward for you. I know to say I hope you get a real diagnosis sounds funny, but I hope you do, so that treatment can then be put into place. Blessings, Marla I was at wits end and got some advice here and on other boards. No longer sure what to do next people told me biopsies may be the only thing left. Rather than recruit yet another 'ologist' I decided to go see an oral surgeon to find out whether he'd biopsy a salivary gland. To my surprise he agreed and insisted on biopsying more than the gland I'd noticed as problematic. They said I didn't salivate at all during the procedure and noted on extraction the upper gland was oddly 'granular'. Results are yet to come back and there's no guarantee they'll find Sjogrens or granulomas even if they are there but if they are I'll have saved myself a whole lot of money, time, and trouble. Should the result be positive I'll likely get a lot less resistance from doctors getting the lung biopsy as well. In any case I feel like things are moving again after being stuck with no idea what to do. Thanks to those whose input helped me get past that. If it's positive though I'm going to be quite irritated with the doctor who turned down my request for the gland biopsy insisting on five figures worth of CTs and PETs at my expense instead. lol Cheers, Darrin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Hi All,I don't think I am hitting the correct "reply" so I apologize if this message is posting the wrong way (still trying to learn this thing)...I appreciate your input re: blood sugar. I had not thought about the honey but that makes so much sense!I think I spoke too soon about how well I am tolerating everything. :-(I had a really hard day today (stress) + my level of prednisone decreased and I ate almond flour last night...I ended up in a lot of pain.So, I am making the chicken soup and going to try and start back with intro diet. I feel discouraged. This flare is nothing compared to the profound onset back in 2001. But it is the first time I have had to deal with anything crohn's related in 7 years. I feel alone and overwhelmed.Thanks for your supportCD 2001SCD (followed it religiously for 3 years and then fell off the wagon). Back on for 3 weeks75 mg mercaptopurine15 mg pred Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.