Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 Hi , I am glad you are doing well on SCD. So far, the majority of people that I know of on SCD are trying to address GI/ASD issues. One thing that de-legitimizes any alternative treatment is when it claims to " cure all " . I don't know of any cases where someone has used SCD to address migraines, so I would not be able to say that it has helped a number of people. That said, a number of things can trigger a migraine- sensitivities to foods, fatigue, stress, hormones, and lot of other things. Has your girlfriend identified any particular triggers? Does she have any GI symptoms or other symptoms at all? She should definitely see the neurologist to look at all possible causes of her migraines, and get the proper neuro work up. Then she needs to keep a diary of what happened before the migraine that may be a trigger. There are many medications that help with migraines. If she suspects gluten sensitivity as a trigger,or autoimmune problems, then SCD may help. I certainly would not subject someone to the rigors of SCD unless necessary. If food additives are a problem- then SCD would also help because we avoid them. If nothing else is the cause, then she could certainly try SCD because there is a gut-brain connection- and see what happens. However, we SCD'ers probably lack the numbers of people with migraines who have been helped by SCD ( as compared to all the testimonies from people with gut/ASD issues) to make a better recommendation for if it might work- or not work. She might be better off if she could identify her triggers and avoid them. That's my 2 cents PJ > > Does anyone have experience with using the SCD program to get ride of Head Aches > / Migraines / or Vertigo? I have been on the SCD for Crohn's since 2000 and > love the results I get from being on the diet, but my girlfriend has these > terrible headaches. She get's to the point where she cannot complete a sentence, > is dizzy, and vomits....all due to the migraines. Would the SCD help her you > think?? If not, any other ideas? She is scheduled for the Neurologist next > week. > > Thanks everyone > - WA state, Crohn's, no meds, SCD since 2000 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 My 15 year old daughter has been dizzy/faint feeling since April. We have seen many doctors and ran many tests. Migraines have been mentioned. and she was put on Topamax which is a preventative for migraines and after 2 days on it, we stopped it. It made her lethargic and worse. It all started in April when I started to lower her lexapro (anxiety med). We stopped the weaning process at that point and recently started it again. She has 4 more days and she will be off Lexapro. - something I'm rejoicing about. I think lexapro has caused alot of her issues. Also, the nutritionist caught something else. Rach was taking Zyrtec for seasonal allergies. Apparently the 2 meds are interactive. so the drug interactions could have caused her problems. She will be starting a cranial massage thing at our new chiropractor next week that will help with the dizziness. She's also starting physical therapy because she has VOR - vestibular occular reflex - something with her eyes contributing to the dizziness. She's having withdrawals due to the weaning of lexapro. As a side note she's been on SCD for almost 2 years. and it has helped her gut/anxiety issues. I'm just telling you what we found out so far which could be what is causing her dizziness/faint feeling. Her issue still could be migraines. Unfortunately the only way they can tell is by putting someone on a med and seeing if it helps. I also want to tell everyone that I found a website regarding zyrtec. and how kids should not be on it . and there were testimonies from parents about how bad it effected their kids. So, right now I am so anti-meds just because I see how it can screw people up with the side effects. Good luck to your girlfriend. Marla P. Subject: Re: Migraines/Vertigo - Will SCD Help???To: BTVC-SCD Date: Thursday, July 8, 2010, 9:59 PM Hi ,I am glad you are doing well on SCD. So far, the majority of people that I know of on SCD are trying to address GI/ASD issues. One thing that de-legitimizes any alternative treatment is when it claims to "cure all". I don't know of any cases where someone has used SCD to address migraines, so I would not be able to say that it has helped a number of people.That said, a number of things can trigger a migraine- sensitivities to foods, fatigue, stress, hormones, and lot of other things. Has your girlfriend identified any particular triggers? Does she have any GI symptoms or other symptoms at all?She should definitely see the neurologist to look at all possible causes of her migraines, and get the proper neuro work up. Then she needs to keep a diary of what happened before the migraine that may be a trigger. There are many medications that help with migraines.If she suspects gluten sensitivity as a trigger,or autoimmune problems, then SCD may help. I certainly would not subject someone to the rigors of SCD unless necessary. If food additives are a problem- then SCD would also help because we avoid them. If nothing else is the cause, then she could certainly try SCD because there is a gut-brain connection- and see what happens. However, we SCD'ers probably lack the numbers of people with migraines who have been helped by SCD ( as compared to all the testimonies from people with gut/ASD issues) to make a better recommendation for if it might work- or not work. She might be better off if she could identify her triggers and avoid them.That's my 2 cents :)PJ>> Does anyone have experience with using the SCD program to get ride of Head Aches > / Migraines / or Vertigo? I have been on the SCD for Crohn's since 2000 and > love the results I get from being on the diet, but my girlfriend has these > terrible headaches. She get's to the point where she cannot complete a sentence, > is dizzy, and vomits....all due to the migraines. Would the SCD help her you > think?? If not, any other ideas? She is scheduled for the Neurologist next > week.> > Thanks everyone> - WA state, Crohn's, no meds, SCD since 2000> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2010 Report Share Posted July 9, 2010 I’ve dealt with migraines since I was young child, so I know how debilitating they can be. I get the complete migraines with all the symptoms your girlfriend suffers, including the optical shifts. I also get vertigo without the migraine, which is not pleasant; fortunately doesn’t happen too often. I concur with PJ’s informative post. There are several possible triggers for migraines, and it helps to see a neurologist to get a thorough work-up. Food sensitivities can be one migraine trigger, as can fragrances, certain lights, stress, hormonal shifts, and several other neurological and endocrinological disorders. I have found SCD to help my neuropathies to some degree, which includes my digestive motility, but my neurological condition has continued its slow deterioration despite eating healthy foods. By the time I started SCD I’d learned what were my particular migraine triggers. Of course when you’re dealing with neuropathies, sometimes there isn’t an “outside” trigger but a shift from within the body that is often cyclical. I never went to the trouble to keep a migraine journal, but many find it helps them recognize their triggers. One interesting thing I’ve discovered about migraines since I developed Sphincter of Oddi dysfunction (which affects mostly people who get frequent migraines, there’s a neurological connection to the disorder) is that there can be abdominal migraines as well as brain. I’m not on any medications for migraines, my body rejected some and the others caused worse side-effects, but there are several that many migraine sufferers find helpful. I just go to bed for 24 to 36 hours when a migraine hits. I visit my neurologist regularly, and get a complete workup every ten years or so to see if something new has emerged to explain my symptoms. The frequency of my migraines were cut in half after I’d needed a complete hysterectomy six years ago, thank goodness. Now I just deal with migraines once a month instead of two or three times a month. Much better [grin]. All part of having a wonky neurological system…. Kim M. SCD 6 years Sphincter of Oddi dysfunction 6+ years neurological & spinal deterioration 3+ years >>>>>>>>>>>>>>>>>>>>>>>>>>> Does anyone have experience with using the SCD program to get ride of Head Aches / Migraines / or Vertigo? I have been on the SCD for Crohn's since 2000 and love the results I get from being on the diet, but my girlfriend has these terrible headaches. She get's to the point where she cannot complete a sentence, is dizzy, and vomits....all due to the migraines. Would the SCD help her you think?? If not, any other ideas? She is scheduled for the Neurologist next week. Thanks everyone - WA state, Crohn's, no meds, SCD since 2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2010 Report Share Posted July 9, 2010 Kim, Thanks for this! I never made the association before but the least exposure to perfumes, in particular, among chemicals, gives me a headache that is mighty close to a migraine, if not there. With luck I will be over it in 24 hours but it's sure one of the things that keeps me at home most of the time, those unavoidable chemical exposures. I've dealt with migraines since I was young child, so I know how debilitating they can be. I get the complete migraines with all the symptoms your girlfriend suffers, including the optical shifts. I also get vertigo without the migraine, which is not pleasant; fortunately doesn't happen too often. I concur with PJ's informative post. There are several possible triggers for migraines, and it helps to see a neurologist to get a thorough work-up. Food sensitivities can be one migraine trigger, as can fragrances, certain lights, stress, hormonal shifts, and several other neurological and endocrinological disorders. Kim M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 I’ve discovered certain fragrances can trigger a migraine within minutes, which is very frustrating at times when it is a particular perfume or after-shave lotion on someone at my work place… I can also react to certain brands of scented dryer sheets; just walking by a house using one of these brands starts my head pounding. Fortunately I can move away quickly enough that the migraine doesn’t completely form. I’ve noticed this more extreme reaction to fragrances has worsened over the past 15 years or so; not sure if it is me changing or the use of certain synthetic chemicals has become more pervasive. If it helps you any, I’ve known since I was a child that I was considered “highly sensitive.” While normally this is used to refer to an emotional state of being, there are plenty of us who also have extreme physiological sensitivities, making for a difficult combination of issues sometimes. My skin is abnormally sensitive, my body can’t handle stress, my nervous system overreacts (or doesn’t work normally at times), my body rarely tolerates supplements and medications, and now my digestive tract is super sensitive…. Every doctor across the specialities that I’ve seen since I was a child includes this label of “highly sensitive” in their diagnoses. I know there are plenty of us highly sensitive types around, since there are books about the subject, but sometimes it does make you feel alone, especially when no one else in your circle of family and friends is dealing with this issue. Anyway, it helps to pay attention to fragrances as a migraine triggers. Usually you can avoid the troubling fragrance or odor quickly enough to stop the headache from morphing into a migraine. You’ve probably discovered that once the migraine sets in, then everything you smell is aggravating, makes your head pound more, if that is possible [grin]. Smells are one of the sensory systems affected adversely by a migraine. Kim M. SCD 6 years Sphincter of Oddi dysfunction 6+ years neurological & spinal deterioration 3+ years >>>>>>>>>>>>>>>>>>>>>. Kim, Thanks for this! I never made the association before but the least exposure to perfumes, in particular, among chemicals, gives me a headache that is mighty close to a migraine, if not there. With luck I will be over it in 24 hours but it's sure one of the things that keeps me at home most of the time, those unavoidable chemical exposures. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 Kim, I'm just as sensitive as you are to the fragrances. almost all, in fact. A couple of comments here. I don't know if we get more sensitive as we age (I suspect so), but they are just plain putting more perfume in everything. I read a few years ago that International Flavors and Fragrances, who make all this junk, made an arbitrary decision that America was ready for more perfume, and they upped the standard amount from one half a percent to one percent. In other words, doubled their profits as they quintupled our misery. Also, another little point. One time I was complaining to my excellent doctor that I'd had a horrible reaction day that was like a perfume/chemical reaction but I hadn't been near any perfume. He said we can get very very sick on such a small amount that we can't even smell it! I've discovered certain fragrances can trigger a migraine within minutes, which is very frustrating at times when it is a particular perfume or after-shave lotion on someone at my work place. I can also react to certain brands of scented dryer sheets; just walking by a house using one of these brands starts my head pounding. Fortunately I can move away quickly enough that the migraine doesn't completely form. I've noticed this more extreme reaction to fragrances has worsened over the past 15 years or so; not sure if it is me changing or the use of certain synthetic chemicals has become more pervasive. Quote Link to comment Share on other sites More sharing options...
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