new here

[Guest guest]

hi all, am new here ... just got braces 2 months ago and scheduled to

have jaw surgery 18 months into treatment ... just wondering if I

made the right decision so joined up with this group to see

feedback

this is something I have been wanting to do for years, just have not

had the funds to do it! anyways looking forward to any replies

[Guest guest]

Thank you for the reply. I have been brushing my teeth on the

outside because I am wired shut. I also use the pres mouthwash. My

wires are being snipped this friday (10 days post-op) and I plan on

buying a wee toothbrush so I can get inside!! It just tastes so

metallic inside my mouth. Yesterday I was so happy because I was

finally starting to feel a minor improvement but today I had a real

setback. I had a glass of choclate millk that decided to curdle. Well

lets not go into details but I will tell you~I was scared and thought

I was going to choke to death before it was over!! I got out my wire

snips just in case. I was also home by myself....not sure if it the

oral meds that are causes upset stomach but it was a terribel

morning. This has got to be one of the worst things I have had to

endure....sorry but I am not being a very tropper on this one!! ---

In orthognathicsurgerysupport , miss_redagain2005

<no_reply@y...> wrote:

> Sherry,

> Welcome to the board and to the post-op side of the world.

> I too suffered from daily migraines. I woke up with one and lived

> with one all day and went to bed with one. I'm 5 1/2 weeks post-op

> from upper & lower surgery. Recovery has been difficult at times,

> but each day ( for the most part ) it gets a little bit easier.

Keep

> up your fluid intake and maybe try experimenting with blending some

> things you like. Keep cleaning your mouth as your doctor

prescribed -

> a baby toothbrush and prescription mouthwash should help you feel

> better. We all lose weight. Some of us can afford to ( like me )

> and some can't. Try drinking things like Ensure and Boost to keep

up

> your caloric intake to heal ... and know that you will put at least

> some of the weight back on, eventually.

> Hang in there ... vent when you need to ... and ask questions when

> you have them.

> We're all in the same boat ... and routing for each other!

> Carol

>

>

> > Hello--my name is Sherry. I just had suegery on June 7th for TMJ.

> > Terrible daily headaches etc! Apparently my lower jaw was too

small

> and

> > receeded etc...they put in correct position and pulled it

forward,

> > doing upper jaw at samw time. They seperated my palate into three

> > sections. I have 28 screws and 6 plates. Sounds gruesome...It is

6

> days

> > post-op and I am sooo discouraged. My mouth tastes totally aweful

> and

> > lacks feeling. It makes it very hard to be motivated to drink

> anything.

> > Of course, now I am weak and dizzy, already losing 10 lbs! I am

> keeping

> > myself hydrated though with protein drinks and water and pepsi

and

> > soups etc. Just not taking in 'a lot'. I am absolutely terrified

of

> > getting an infection b/c it would set me back so far. Please tell

> me it

> > is extremely rare!!I hope whoever reads this is recovering well

and

> are

> > happy they had it done.

> > Take care

> > Sherry

[Guest guest]

Sherry,

Good luck with your wire cutting. Mine is scheduled for the 29th.

I'd love to hear how it goes for you.

I'm sorry to hear about your setback. Just remember - if it goes

down liquid it will come up liquid. It's gross and it's scary and

it's sometimes painful ... but you won't choke ... and it will pass.

It did, right?! So, maybe the worst is now past you.

Hang in there!

Take care,

Carol

> > > Hello--my name is Sherry. I just had suegery on June 7th for

TMJ.

> > > Terrible daily headaches etc! Apparently my lower jaw was too

> small

> > and

> > > receeded etc...they put in correct position and pulled it

> forward,

> > > doing upper jaw at samw time. They seperated my palate into

three

> > > sections. I have 28 screws and 6 plates. Sounds gruesome...It

is

> 6

> > days

> > > post-op and I am sooo discouraged. My mouth tastes totally

aweful

> > and

> > > lacks feeling. It makes it very hard to be motivated to drink

> > anything.

> > > Of course, now I am weak and dizzy, already losing 10 lbs! I am

> > keeping

> > > myself hydrated though with protein drinks and water and pepsi

> and

> > > soups etc. Just not taking in 'a lot'. I am absolutely

terrified

> of

> > > getting an infection b/c it would set me back so far. Please

tell

> > me it

> > > is extremely rare!!I hope whoever reads this is recovering well

> and

> > are

> > > happy they had it done.

> > > Take care

> > > Sherry

[Guest guest]

HI there,

Thanks for all the encouragement! Yes, I got through it. It didnt

exactly come up liquid though (it was curtled---and I mean CURTLED---

ewwwwwww) anyhow---no more milk for me for a while!! I will let you

know how I make out with the wire cutting. How long have you had your

wires on? They are only leaving mine on for 10 days....then really

strong elastics but at least I can make some really creamy mashed

potatoes YUMMMMMMMMMMMMMMMMMMMMMMMMM.......lots of butter and

s & p....Did you guys get dizzy & weak from not eating solids?I feel

like such an airhead....

Sherry

> > > > Hello--my name is Sherry. I just had suegery on June 7th for

> TMJ.

> > > > Terrible daily headaches etc! Apparently my lower jaw was too

> > small

> > > and

> > > > receeded etc...they put in correct position and pulled it

> > forward,

> > > > doing upper jaw at samw time. They seperated my palate into

> three

> > > > sections. I have 28 screws and 6 plates. Sounds gruesome...It

> is

> > 6

> > > days

> > > > post-op and I am sooo discouraged. My mouth tastes totally

> aweful

> > > and

> > > > lacks feeling. It makes it very hard to be motivated to drink

> > > anything.

> > > > Of course, now I am weak and dizzy, already losing 10 lbs! I

am

> > > keeping

> > > > myself hydrated though with protein drinks and water and

pepsi

> > and

> > > > soups etc. Just not taking in 'a lot'. I am absolutely

> terrified

> > of

> > > > getting an infection b/c it would set me back so far. Please

> tell

> > > me it

> > > > is extremely rare!!I hope whoever reads this is recovering

well

> > and

> > > are

> > > > happy they had it done.

> > > > Take care

> > > > Sherry

[Guest guest]

Sherry,

Oh my! It sounds like you're a real trooper!

I've been wired shut and splinted for 6 weeks now and I have 2 more

to go.

Yes, in the beginning I got light headed and weak from poor intake of

calories and vitamins. It only lasted a couple of days before I was

able to keep myself drinking drinking drinking.

Hang in there!

Carol

> > > > Sherry,

> > > > Welcome to the board and to the post-op side of the world.

> > > > I too suffered from daily migraines. I woke up with one and

> > lived

> > > > with one all day and went to bed with one. I'm 5 1/2 weeks

> post-

> > op

> > > > from upper & lower surgery. Recovery has been difficult at

> > times,

> > > > but each day ( for the most part ) it gets a little bit

> easier.

> > > Keep

> > > > up your fluid intake and maybe try experimenting with

blending

> > some

> > > > things you like. Keep cleaning your mouth as your doctor

> > > prescribed -

> > > > a baby toothbrush and prescription mouthwash should help you

> > feel

> > > > better. We all lose weight. Some of us can afford to ( like

> > me )

> > > > and some can't. Try drinking things like Ensure and Boost to

> > keep

> > > up

> > > > your caloric intake to heal ... and know that you will put at

> > least

> > > > some of the weight back on, eventually.

> > > > Hang in there ... vent when you need to ... and ask questions

> > when

> > > > you have them.

> > > > We're all in the same boat ... and routing for each other!

> > > > Carol

[Guest guest]

hi heather!!

welcome to this great family of support and info!! check out the

mgic foundations web site too!! www.magicfoundation.org they are a

non-profit org for adults and families of children with growth

disorders, they supply their members with a world of support and

knowledge!! also i know you said you are in new zealand, but they

have an annual convention in chicago (its actually next week, july

21-24) which is just amaing to go to!!

my son christopher is 4yrs the middle child of 3. he now weighs

approx 28.5lbs and is approx 37 1/2 " (will get updated next week at

convention after his visit with dr harbison, the US expert on rss)

he is a happy, energentic young boy!! he is on an appiteite

stimulant 2x a day and on growth hormone once nightly. he has

assmentry of the left side (left leg is 1cm shorter than the right),

he has ADHD and possibly OCD but functions well in day to day life

with a structured routine!! he attends preschool 5x a week and has

been doing so since he was 2 1/2yrs(3 days a week back then). feel

free to ask any questions, i am sure someone will know the answere

or will try and find out for you!! i also breastfed christopher

until he was about 7 months old. you need to try and get extra

calories into your son hrough the solids you are giving him!!

once again welcome!!

jodie c(one of 3 jodis on this list, and i think you now make

heather #3 as well!!! LOL!!)