Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 I went to to Vanderbilt yesterday ( Wednesday August 25th 2010 ). I had to have bloodwoork. Which 10 of the tubes will be sent all over the world for sarcoidosis research, the nurse told be that they can test the blood for up to two years. I took what they call a loaded dose yesterday, then today I started on seven pills , which I take at the same time, There will be 15 people in the study, I'm number 12. The study will last for 12 weeks with me taking the meds for 8 weeks. I will go back in 4 weeks for test and pick up my meds, then at 8 weeks I will go back for 6 hours of test. I want get anyomre meds. I will continue to take the meds I am on for the sarcoidosis, I will start to taper off my other meds after 8 weeks. Then at 12 weeks, they will call me and if I am having probelms I will go up for more test. Of course they don't know of side affects. They could tell me the side affects of each drug. I do have to keep a diary. Dr. Drake is a Christian. She told me to go home take the medicine and pray. You had to meet a certain criteria to be in the study.She told me at any time I felt like I couldn't handle it to call and I could stop at anytime. I feel that God has blessed me with this chance to be on a cutting edge cure. The study is for the lung's.I did sk if she thought tht it might help my neuro-sarc. Of course she didn't know. She sid will can hope, tht it would be good if it did. Quote Link to comment Share on other sites More sharing options...
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