Imuran

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Kat, I took Imuran for 2 years & never had any side effects. Well, my white blood cell count dropped some, but was still in the low normal range. I had no nausea or other GI symptoms. The only infection during this time (I was also on Pred) was cellulitis from a cat bite, but that often happens without immune suppressants. I'm very fortunate in that I tolerate pretty much all drugs really well; good quality to have with sarcoidosis! The thing is, you can always try a drug & if you can't tolerate it, then go to the next plan. You would most likely start at the lowest dose of Imuran, gradually increasing it. Good luck with whatever you decide.

Ramblin' RoseModerator

It's not that life is so short-------It's that we wait so long to begin.

(attributed to Wooden, among others)

To: Neurosarcoidosis From: topdat1@...Date: Sun, 24 Oct 2010 20:21:19 -0500Subject: Re: Re:How fast is too fast to get off the Pred?

I was on Imuran for 8 years, I had no symptoms or adverse reactions.. Imuran is a kidney rejection drug or that's what it was intended.. when they took me off of it, they just told me to stop.. I was scared to just stop, but I did.. and did fine..

Hugs,

Re: Re:How fast is too fast to get off the Pred?

I can't speak for Imuran, but I'm on Remicade, and have not had any reaction, until the last couple doses, and that's lower GI if you know what I mean. no nausea, Of course everyone is different. Maybe someone here who is on or used Imuran can tell you what they experienced. Be well as you can:)MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)

I, too, have been on prednisone. But I had the solumedrol IVs and oral prednisone. I finally got off the IVs with acupuncture. But, I realize everyone is different. I have been battling reducing prednisone, because, like you, my vision worsens when I reduce. I was at 60 mg initially with the IVs . I had IVs for close to 2 years.

Everytime I reduce the prednisone I would I get between 13 to 18 mg my vision for close would worsen where I could not make out 5 or 6s which is crucial in my job. So when my vision would get worse they would increase the prednisone to 30 mg and I would have to reduce again. I have had this happen 3 times. I am now at 16 and hoping I can get lower. They want to put me on Imuran and get me totally off prednisone but I am afraid of the side effects and my job. I am the only employee and responsible for running the facility and can't afford to have nausea or vomiting. I need to ensure that I am at work everyday.

Kat