Re: Check

[Guest guest]

Alice, I'm sorry that you haven't been feeling well. I've never heard of esophageal dismotility. Motility is movement, so I assume it means that the esophagus is not moving food along like it should. Bowel motility can be affected by some meds, especially narcotics, causing constipation. I really don't know about the esophagus. Have your docs suggested a cause for this & is there a treatment?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: aliceminyard@...Date: Thu, 22 Jul 2010 20:02:07 -0700Subject: Check

I haven't felt good in a while. It seems like every part of my body id falling apart. I have been to the neuro, Gi doctors, ENT, tomorrow I go to my pulm.I have been diagnosed with esophageal dismoltiliy. I was wondering if any one else has been diagnosed with this.

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

I have not been diagnosed with this, however I do have trouble swallowing, and sometimes food gets stuck.  The other thing I have trouble with is swallowing water, if it doesn't go down it comes out, not pretty, I have spit a whole mouth full of water into my plate, yuk.

so maybe this is the same thing, when I tell my doc he says it's all related.  I have been feeling like crap, headaches daily, some so bad I think I'm going crazy. Oh well such is life, Blessings,

Marla

 

I haven't felt good in a while. It seems like every part of my body id falling apart. I have been to the neuro, Gi doctors, ENT, tomorrow I go to my pulm.I have been diagnosed with esophageal dismoltiliy. I was wondering if  any one else has been diagnosed with this.

[Guest guest]

Marla, when the sarc was first active, I had trouble swallowing mostly liquids & small stuff, like small pills. I would even choke on my own saliva! I also had a tendency to choke on my meds (I toss them all in at once, big & little) & then start coughing, which would often lead to bladder incontinence. Once it happened when Theresa was standing there & I peed down my leg, we both started laughing which made me cough worse, which led to more incontinence. I didn't want to run to the bathroom & pee all over the house, so I just stood in the kitchen, filling up my sneakers while trying to pick pills out of the sink! Still one of our favorite mother-daughter memories; she'll probably tell that story at my funeral. Anyway, I had a swallowing study which--guess what?--was normal! Over the years the problem has gradually improved, although I'll still occasionally choke on a small pill (and yes, I still chuck them in all at once). I don't have enough saliva to choke on now, thanks to Sjogren's. I believe it was sarc-related, as there were no other potential suspects such as new meds, etc.

We haven't had many responses to the check-in call. I hope it's the heat & not that many are sicker. I hope that your headaches lessen, if not disappear.

Ramblin' RoseModerator

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: mebramer@...Date: Tue, 27 Jul 2010 13:27:32 -0600Subject: Re: Check

I have not been diagnosed with this, however I do have trouble swallowing, and sometimes food gets stuck. The other thing I have trouble with is swallowing water, if it doesn't go down it comes out, not pretty, I have spit a whole mouth full of water into my plate, yuk. so maybe this is the same thing, when I tell my doc he says it's all related. I have been feeling like crap, headaches daily, some so bad I think I'm going crazy. Oh well such is life, Blessings, Marla

I haven't felt good in a while. It seems like every part of my body id falling apart. I have been to the neuro, Gi doctors, ENT, tomorrow I go to my pulm.I have been diagnosed with esophageal dismoltiliy. I was wondering if any one else has been diagnosed with this.

[Guest guest]

Marla; when I had this problem I was found to be suffering from chronic gastric reflux for which I was placed on prescription medication. Before I was diagnosed I was hospitalized for dehydration because I was afraid to drink or eat because everything would come back up or back up into the wrong pipe/organ. L. -Maye (Baltimore MD)To:

Neurosarcoidosis Sent: Tue, July 27, 2010 3:27:32 PMSubject: Re: Check

I have not been diagnosed with this, however I do have trouble swallowing, and sometimes food gets stuck. The other thing I have trouble with is swallowing water, if it doesn't go down it comes out, not pretty, I have spit a whole mouth full of water into my plate, yuk.

so maybe this is the same thing, when I tell my doc he says it's all related. I have been feeling like crap, headaches daily, some so bad I think I'm going crazy. Oh well such is life, Blessings,

Marla

On Thu, Jul 22, 2010 at 9:02 PM, Alice Minyard <aliceminyard@ grouply.com> wrote:

I haven't felt good in a while. It seems like every part of my body id falling apart. I have been to the neuro, Gi doctors, ENT, tomorrow I go to my pulm.I have been diagnosed with esophageal dismoltiliy. I was wondering if any one else has been diagnosed with this.

[Guest guest]

, I tried medication for acid reflux it didn't help, I do get some acid from time to time, and it's totally different, I do believe mine is more related to the Sarcoid, as I find when

I'm tired its worse, and I will even " leak " from the left side of my mouth when drinking. Oh well, it' life. Marla

 

Marla; when I had this problem I was found to be suffering from chronic gastric reflux for which I was placed on prescription medication. Before I was diagnosed I was hospitalized for dehydration because I was afraid to drink or eat because everything would come back up or back up into the wrong pipe/organ.

L. -Maye (Baltimore MD)

To:

Neurosarcoidosis Sent: Tue, July 27, 2010 3:27:32 PMSubject: Re: Check

 

I have not been diagnosed with this, however I do have trouble swallowing, and sometimes food gets stuck.  The other thing I have trouble with is swallowing water, if it doesn't go down it comes out, not pretty, I have spit a whole mouth full of water into my plate, yuk.

so maybe this is the same thing, when I tell my doc he says it's all related.  I have been feeling like crap, headaches daily, some so bad I think I'm going crazy. Oh well such is life, Blessings,

Marla

On Thu, Jul 22, 2010 at 9:02 PM, Alice Minyard <aliceminyard@ grouply.com> wrote:

 

I haven't felt good in a while. It seems like every part of my body id falling apart. I have been to the neuro, Gi doctors, ENT, tomorrow I go to my pulm.I have been diagnosed with esophageal dismoltiliy. I was wondering if  any one else has been diagnosed with this.