Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 Hey, . I'm sorry to hear about the liver damage. Hopefully it will be several years before you go on the transplant list. Meanwhile, scarf down that milk thistle! When you say that next month you will probably be starting your journey, I'm not clear what that means. Can you explain? I remember when I first joined this group, you had just moved back home with your parents; I think had to quit your nursing job, but were still trying to volunteer at a women's shelter. Do I have the right ? I'm thinking that later you were able to get your own place again. What a roller coaster ride we get, with all the scares & none of the thrills. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 > To: Neurosarcoidosis > Date: Sun, 7 Nov 2010 01:29:40 +0000> Subject: Liver Transplant> > Hey I am still lurking around.....> > I have been diagnosed with autoimmune hepatitis, back in 2002, my liver enzymes have been slowly on the rise, and keep getting higher...> > I have been following up at the Mayo Clinic in Rochester Minnesota. I am not yet on the liver transplant list, but I will probably be placed on it in 2 - 5 years...> > My MELD score is now at a 16. To be considered for a transplant your score needs to be 18-24. I saw the Liver transplant Dr at the Mayo yesterday. I like her alot... > > Next month I will probably be starting my journey...> > For the new people welcome to this group, its a great place to find answers and get awesome support......> > The OLDIES will remember me I am sure...> > I will try and post more later...> > Rose and will be able to get updates on me as I use a different program now.....> > Take care of you all,> > from Iowa....> > > > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2010 Report Share Posted November 8, 2010 Hey old friend. I'm sorry things are deteriorating so fastly for you.. Rose you've got the right .. I'm not familiar with the meld test but I'm asuming that has to do with the elevated liver enzymes.. Maybe, when you're feeling better you could fill us in on what exactly that means.. I hope that darling grandbaby of your's my name sake.. Guys, 's grandbaby was named after me.. OOOPPPPSSSS!!!! DID I SAY THAT.. Well, his name is and so is my last name.. lol Hope that made you laugh.. Miss talking to you alot! Hugs, Liver Transplant> > Hey I am still lurking around.....> > I have been diagnosed with autoimmune hepatitis, back in 2002, my liver enzymes have been slowly on the rise, and keep getting higher...> > I have been following up at the Mayo Clinic in Rochester Minnesota. I am not yet on the liver transplant list, but I will probably be placed on it in 2 - 5 years...> > My MELD score is now at a 16. To be considered for a transplant your score needs to be 18-24. I saw the Liver transplant Dr at the Mayo yesterday. I like her alot... > > Next month I will probably be starting my journey...> > For the new people welcome to this group, its a great place to find answers and get awesome support......> > The OLDIES will remember me I am sure...> > I will try and post more later...> > Rose and will be able to get updates on me as I use a different program now.....> > Take care of you all,> > from Iowa....> > > > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2010 Report Share Posted November 13, 2010 What kind of liver disease do you have? I have had NASH for the past four years, but I got my liver enzyme count under ontro by losing 70lbs and eating a low-fat diet. I know that probably has nothing to do with you, but when they found the fatty liver and the cirrhosis, I was told, too, that I would have to have a transplant down the road. On my last visit, the liver doc said that my problems were slowly reversing themselves. I wish this could be the case for you. If not, my best, best wishes for your future in that area, and my love for you in all you do.To: Neurosarcoidosis Sent: Sat, November 6, 2010 8:29:40 PMSubject: Liver Transplant Hey I am still lurking around..... I have been diagnosed with autoimmune hepatitis, back in 2002, my liver enzymes have been slowly on the rise, and keep getting higher... I have been following up at the Mayo Clinic in Rochester Minnesota. I am not yet on the liver transplant list, but I will probably be placed on it in 2 - 5 years... My MELD score is now at a 16. To be considered for a transplant your score needs to be 18-24. I saw the Liver transplant Dr at the Mayo yesterday. I like her alot... Next month I will probably be starting my journey... For the new people welcome to this group, its a great place to find answers and get awesome support...... The OLDIES will remember me I am sure... I will try and post more later... Rose and will be able to get updates on me as I use a different program now..... Take care of you all, from Iowa.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2010 Report Share Posted November 13, 2010 , sorry I addressed my response to you as one to Tracie. This old brain fog is a vicious thing!To: Neurosarcoidosis Sent: Mon, November 8, 2010 9:41:37 PMSubject: Re: Liver Transplant Hey old friend. I'm sorry things are deteriorating so fastly for you.. Rose you've got the right .. I'm not familiar with the meld test but I'm asuming that has to do with the elevated liver enzymes.. Maybe, when you're feeling better you could fill us in on what exactly that means.. I hope that darling grandbaby of your's my name sake.. Guys, 's grandbaby was named after me.. OOOPPPPSSSS!!!! DID I SAY THAT.. Well, his name is and so is my last name.. lol Hope that made you laugh.. Miss talking to you alot! Hugs, Liver Transplant> > Hey I am still lurking around.....> > I have been diagnosed with autoimmune hepatitis, back in 2002, my liver enzymes have been slowly on the rise, and keep getting higher...> > I have been following up at the Mayo Clinic in Rochester Minnesota. I am not yet on the liver transplant list, but I will probably be placed on it in 2 - 5 years...> > My MELD score is now at a 16. To be considered for a transplant your score needs to be 18-24. I saw the Liver transplant Dr at the Mayo yesterday. I like her alot... > > Next month I will probably be starting my journey...> > For the new people welcome to this group, its a great place to find answers and get awesome support......> > The OLDIES will remember me I am sure...> > I will try and post more later...> > Rose and will be able to get updates on me as I use a different program now.....> > Take care of you all,> > from Iowa....> > > > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
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