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I have not had to deal with the Iron infusions, but I have a friend (another

WLS person) who did have to do the infusions . It worked out well for her.

Got her iron levels right back to where the should be. In fact, that may be

my next step.

O'Connell

Haverhill Ma

Open RNY 2/7/02

Pre op weight:248

Now: 136

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  • 7 years later...
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, I am so sorry about your dad, on top of your own health crisis. Know that you are loved & appreciated.

Rose

Ramblin' RoseModerator "I child-proofed my home and they STILL get in!" (Bumper sticker)

To: Neurosarcoidosis CC: NSMods From: topdat1@...Date: Mon, 7 Mar 2011 21:23:54 -0600Subject: P

Hi everyone, I've been sick and in the hospital twice this last week, renal failure.. My Liver has Cirrhosis due to chronic illness, fatty liver, I already have acities which is free fluid in the stomach, and you can hear water sloshing, just as if its in a bucket.. So, since my liver is failing my kidneys are in harms way next.. and so I've had some renal failure.. I came home for a couple of days then suddenly one morning I tried to get out of bed and my legs didn't work, so I tried working with them and in a little bit I was able to make about 4 steps and passed cold out.. I ended back up in the hospital.. I was home two days.. and this is the worst.. My dad had parkinson's and was at endstage level hospice was seeing him.. He passed away quietly in his sleep Thursday evening.. around 7pm.. Please keep us in your prayers & /or thoughts.

Thanks all,

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I am sorry for your loss and your trials. You are now and always in my prayers.

With much love and Respect.

Jackie

P

Hi everyone, I've been sick and in the hospital twice this last week, renal failure.. My Liver has Cirrhosis due to chronic illness, fatty liver, I already have acities which is free fluid in the stomach, and you can hear water sloshing, just as if its in a bucket.. So, since my liver is failing my kidneys are in harms way next.. and so I've had some renal failure.. I came home for a couple of days then suddenly one morning I tried to get out of bed and my legs didn't work, so I tried working with them and in a little bit I was able to make about 4 steps and passed cold out.. I ended back up in the hospital.. I was home two days.. and this is the worst.. My dad had parkinson's and was at endstage level hospice was seeing him.. He passed away quietly in his sleep Thursday evening.. around 7pm.. Please keep us in your prayers & /or thoughts.

Thanks all,

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Rosie, I like your bumpersticker.. so no worries. :)

P

Hi everyone, I've been sick and in the hospital twice this last week, renal failure.. My Liver has Cirrhosis due to chronic illness, fatty liver, I already have acities which is free fluid in the stomach, and you can hear water sloshing, just as if its in a bucket.. So, since my liver is failing my kidneys are in harms way next.. and so I've had some renal failure.. I came home for a couple of days then suddenly one morning I tried to get out of bed and my legs didn't work, so I tried working with them and in a little bit I was able to make about 4 steps and passed cold out.. I ended back up in the hospital.. I was home two days.. and this is the worst.. My dad had parkinson's and was at endstage level hospice was seeing him.. He passed away quietly in his sleep Thursday evening.. around 7pm.. Please keep us in your prayers & /or thoughts.

Thanks all,

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,

I am so sorry for your illness and most of all, the loss of your father......it is never easy to lose a parent. Please keep us informed about YOU and know that we are praying for you and sending lots and lots of hugs! Have they determined a treatment for you yet?? You take care of YOU and do not worry about us..... I am home from the hospital after my colostomy reversal and altho I am terribly sore and limited to what I can do, I am able to be on the computer some, so I am back to help.............

Lots of hugs,

Darlene

P

Hi everyone, I've been sick and in the hospital twice this last week, renal failure.. My Liver has Cirrhosis due to chronic illness, fatty liver, I already have acities which is free fluid in the stomach, and you can hear water sloshing, just as if its in a bucket.. So, since my liver is failing my kidneys are in harms way next.. and so I've had some renal failure.. I came home for a couple of days then suddenly one morning I tried to get out of bed and my legs didn't work, so I tried working with them and in a little bit I was able to make about 4 steps and passed cold out.. I ended back up in the hospital.. I was home two days.. and this is the worst.. My dad had parkinson's and was at endstage level hospice was seeing him.. He passed away quietly in his sleep Thursday evening.. around 7pm.. Please keep us in your prayers & /or thoughts.

Thanks all,

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Darlene, Welcome back, I'm sorry your sore, don't over do it, I've been trying to check in at least 1-2 times a day, to keep the email flowing.  So rest and heal well.  Marla

" Fear less, hope more; Eat less, chew more; Whine less, breathe more; Talk less, say more; Love more, and all good things will be yours. " - Irish Proverb  

 

,

      I am so sorry for your illness and most of all, the loss of your father......it is never easy to lose a parent.  Please keep us informed about YOU and know that we are praying for you and sending lots and lots of hugs!   Have they determined a treatment for you yet??  You take care of YOU and do not worry about us..... I am home from  the hospital after my colostomy reversal and altho I am terribly sore and limited to what I can do, I am able to be on the computer some, so I am back to help............. 

 

Lots of hugs,

Darlene

 

 

 

 

P

 

Hi everyone, I've been sick and in the hospital twice this last week, renal failure.. My Liver has Cirrhosis due to chronic illness, fatty liver, I already have acities which is free fluid in the stomach, and you can hear water sloshing, just as if its in a bucket.. So, since my liver is failing my kidneys are in harms way next.. and so I've had some renal failure.. I came home for a couple of days then suddenly one morning I tried to get out of bed and my legs didn't work, so  I tried working with them and in a little bit I was able to make about 4 steps and passed cold out.. I ended back up in the hospital.. I was home two days.. and this is the worst.. My dad had parkinson's and was at endstage level hospice was seeing him.. He passed away quietly in his sleep Thursday evening.. around 7pm.. Please keep us in your prayers & /or thoughts.

 

Thanks all,

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Darlene,

I'm still in shock, I think over my dad.. he left us expecting his journey home, but we didn't expect it last Thursday night.. He was talking to us, and my mom came out fix her a sandwich and went back to check on him and he was gone.. within 10min.. He had endstage Parkinson's which is a very painful disease as it tightens the muscles,cartliage and joints.. he couldn't move he was so stiff and he didn't even ask for any pain meds the last couple of days.. He's gone home.. A journey we all have to make.. and he did it with grace, and splendor..

Thanks,

P

Hi everyone, I've been sick and in the hospital twice this last week, renal failure.. My Liver has Cirrhosis due to chronic illness, fatty liver, I already have acities which is free fluid in the stomach, and you can hear water sloshing, just as if its in a bucket.. So, since my liver is failing my kidneys are in harms way next.. and so I've had some renal failure.. I came home for a couple of days then suddenly one morning I tried to get out of bed and my legs didn't work, so I tried working with them and in a little bit I was able to make about 4 steps and passed cold out.. I ended back up in the hospital.. I was home two days.. and this is the worst.. My dad had parkinson's and was at endstage level hospice was seeing him.. He passed away quietly in his sleep Thursday evening.. around 7pm.. Please keep us in your prayers & /or thoughts.

Thanks all,

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You are in my prayers. My Dad died 2 and a half years ago and there are days that it is hard to not have him here. Remember the good times as they will carry you through the bad. Remember too that you have to take care of yourself during this difficult time. MattSubject: Re: PTo: Neurosarcoidosis Date: Tuesday, March 8, 2011, 7:52 PM

Darlene,

I'm still in shock, I think over my dad.. he left us expecting his journey home, but we didn't expect it last Thursday night.. He was talking to us, and my mom came out fix her a sandwich and went back to check on him and he was gone.. within 10min.. He had endstage Parkinson's which is a very painful disease as it tightens the muscles,cartliage and joints.. he couldn't move he was so stiff and he didn't even ask for any pain meds the last couple of days.. He's gone home.. A journey we all have to make.. and he did it with grace, and splendor..

Thanks,

P

Hi everyone, I've been sick and in the hospital twice this last week, renal failure.. My Liver has Cirrhosis due to chronic illness, fatty liver, I already have acities which is free fluid in the stomach, and you can hear water sloshing, just as if its in a bucket.. So, since my liver is failing my kidneys are in harms way next.. and so I've had some renal failure.. I came home for a couple of days then suddenly one morning I tried to get out of bed and my legs didn't work, so I tried working with them and in a little bit I was able to make about 4 steps and passed cold out.. I ended back up in the hospital.. I was home two days.. and this is the worst.. My dad had parkinson's and was at endstage level hospice was seeing him.. He passed away quietly in his sleep Thursday evening.. around 7pm.. Please keep us in your prayers & /or thoughts.

Thanks all,

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I'm so sorry about your father, and then to be so sick on top of it. I can not imagine what your going through. Please try to take care of yourself, I know it is close to impossible right now, but you are loved and needed no matter what shape your in. My very deepest condolences//connie

To: Neurosarcoidosis Cc: NSMods Sent: Mon, March 7, 2011 10:23:54 PMSubject: P

Hi everyone, I've been sick and in the hospital twice this last week, renal failure.. My Liver has Cirrhosis due to chronic illness, fatty liver, I already have acities which is free fluid in the stomach, and you can hear water sloshing, just as if its in a bucket.. So, since my liver is failing my kidneys are in harms way next.. and so I've had some renal failure.. I came home for a couple of days then suddenly one morning I tried to get out of bed and my legs didn't work, so I tried working with them and in a little bit I was able to make about 4 steps and passed cold out.. I ended back up in the hospital.. I was home two days.. and this is the worst.. My dad had parkinson's and was at endstage level hospice was seeing him.. He passed away quietly in his sleep Thursday evening.. around 7pm.. Please keep us in your prayers & /or thoughts.

Thanks all,

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Thank you Matt, I appreciate you're advise.

Hugs,

P

Hi everyone, I've been sick and in the hospital twice this last week, renal failure.. My Liver has Cirrhosis due to chronic illness, fatty liver, I already have acities which is free fluid in the stomach, and you can hear water sloshing, just as if its in a bucket.. So, since my liver is failing my kidneys are in harms way next.. and so I've had some renal failure.. I came home for a couple of days then suddenly one morning I tried to get out of bed and my legs didn't work, so I tried working with them and in a little bit I was able to make about 4 steps and passed cold out.. I ended back up in the hospital.. I was home two days.. and this is the worst.. My dad had parkinson's and was at endstage level hospice was seeing him.. He passed away quietly in his sleep Thursday evening.. around 7pm.. Please keep us in your prayers & /or thoughts.

Thanks all,

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