Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 , Glad your seeing a neurologist and get his input, your right, they really need to figure it out, so they can get you started on treatment, good luck, and lets us know. Marla Just one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:) Well, I saw my immunologist yesterday. He's still not sure whether I've got Sjögren's (my grandmother had it), CNS vasculitis, or neuro-sarcoid ... I really have to have a cranial angiogram (YUCK), a bone density scan, and a bunch of other tests. We really need to figure out what's going on, as it has implications for treatment and prognosis. He's concerned that I'm not responding well to the pred, and has mentioned Imuran and cyclophosphamide ... he thinks I'm going to need more long term immune-suppression therapy rather than just a few months on pred. Am seeing my neurologist today ... Cheers, ........................................................................................................ http://sutherland-studios.com.au Dummies author : http://tinyurl.com/CodesandCryptograms http://tinyurl.com/WordSearches ........................................................................................................ Quote Link to comment Share on other sites More sharing options...
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