Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 I think Greg (Krumdawg) mentioned a group in Texas. I don't remember if he helped start it or just began attending it. Maybe he can enlighten us. Earth to Greg! Earth to Greg! Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: dmatt1960@...Date: Sun, 24 Oct 2010 17:23:34 -0700Subject: Re: Support Group in Tucson I would very much like to find a group in the Easton/ town area. I know there is one in Lancaster but that is a bit far for me to go for regular meetings etc. I know that my local hospital in town Pa has a support group, but it is a general group for caregivers and not specific to Neurosarcoidosis, etc.ThanksMatt Subject: Re: Support Group in TucsonTo: Neurosarcoidosis Date: Sunday, October 24, 2010, 3:31 PM Does anyone have a work up sheet about how to start a support group. Maybe we can use this a forum to get the word out and have each person in each area try and start a support group for Sarcoid in each area where we have a member. We should not isolate it to just NS but start Sarcoid support groups with all form of Sarcoid to get more people involved. If there is no manual we could use what we learn to form one. Any thoughts? Mitch Support Group in Tucson Just curious to know if there is a support group in Tucson as I will be visiting there Nov 12-Dec 4. Would be great to meet others with Sarc...b/c I am thinking of starting up a support group in my city in Canada. Any info would be appreciated...thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Ok let's do this right and make a list of how to How to Start a Sarcoid Support Group in your area 1- Post Greg 2- wait 3- TBC It's a start. Sorry for the bad humor. Havign a bad week. This attack went from a cough to 100 in 3.2 seconds. The last time I felt this bad so bad so fast I was in the hospital for a week. It went from a cough to 104 fever to severe SOB, increase to 40 mg of prednisone,Levaquin, lethargy, being told not to work and telling them I have to then being sorry I went and now having "THE" fight with my wife that I should be getting better but due to the disease I'm following protocols and just trying to stay out of the Hospital What fun pred Support Group in Tucson Just curious to know if there is a support group in Tucson as I will be visiting there Nov 12-Dec 4. Would be great to meet others with Sarc...b/c I am thinking of starting up a support group in my city in Canada. Any info would be appreciated...thank you! Quote Link to comment Share on other sites More sharing options...
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