No more doctors care - I am done even though I am still having problems?

[Guest guest]

Okay, the new news is as follows after meeting with my Neurologist today:

My optic nerve has permanent damage.

My facial palsy is the same or a little better.

I have a slight reduction of vision in my eye, along with a pupil problem due to

the optic nerve damage. I am now on 40 mg of Pred. on my way to 30 this week. I

told him, that since my vision is so low in the eye and we have not been able to

get it anywhere near good - just keep on reducing the meds...as what use it to

take medicine so I can have like no vision - I can't read with that eye - even

at 200.

AND NOW>>>>>

He is on vacation from Nov 23rd until March....and that is it. No more

appointments. He said that my eye doctor will determine what is going to

happen. But he is not concerned with my taper off ...I should be just fine. If

need be the eye doctor can refer me to an neur-ophthalmologist.

Is this right...what do I do now...I have been looking for someone for a second

opinion...but what is the deal? Will I be fine - he said he has no concerns

with me and tapering off - what happens now? Am I suppose to still be under

doctor's care? This seems so weird to me, but what about to you guys?

Hope I explained it enough..help help help!