Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 Well, I saw my immunologist yesterday. He's still not sure whether I've got Sjögren's (my grandmother had it), CNS vasculitis, or neuro-sarcoid ... I really have to have a cranial angiogram (YUCK), a bone density scan, and a bunch of other tests. We really need to figure out what's going on, as it has implications for treatment and prognosis. He's concerned that I'm not responding well to the pred, and has mentioned Imuran and cyclophosphamide ... he thinks I'm going to need more long term immune-suppression therapy rather than just a few months on pred. Am seeing my neurologist today ... Cheers, .................................................................................\ ........................ http://sutherland-studios.com.au Dummies author : http://tinyurl.com/CodesandCryptograms http://tinyurl.com/WordSearches .................................................................................\ ........................ Quote Link to comment Share on other sites More sharing options...
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