New to Group

[Guest guest]

Kathleen,

thank you so much for responding! It's such a relief

to know that people at the day care can be so caring

and accomodating about the braces. I guess what i need

to do now if find a good day care center for him.

Does your son now only wear the shoes while sleeping?

Thanks

Anju

mom to abhay 5 months bcf

--- leenernd wrote:

> Anju-

> Welcome to the group! My son was in daycare(still

> is) during the

> whole hour reduction process. After the 3 months-our

> doctor had

> david go 3 more months at 20 hours(which put him to

> 9 mo of age). At

> 9 months we were reduced to 16 hours and at 1

> year-once he became

> weight bearing on his feet we were reduced to 14

> hours. Now that he

> is walking(at 20 months)-he wears them 12 hours a

> day(night only).

> We basically had the daycare take the shoes off at a

> prescribed

> time. If it was 20 hours-we had them remove at

> 2pm(since his bedtime

> was at 6pm). Our daycare was great about it-and even

> called me twice

> when I had forgotten to grab the fab at the end of

> day as they too

> know/knew how important the brace is!

> hth,

> kathleen

> mom to david bcf fab 12/7

>

>

> >

> > Hi,

> >

> > I just joined the group today and i have a

> question. My son is

> almost

> > 5 months old and has bilateral clubfeet. He's been

> wearing the

> Dennis

> > Browne shoes for 3 months now, for 22-23 hours a

> day. I wanted to

> know

> > when he goes to wearing the shoes for night time

> only, for how

> many

> > hours a day does he need to wear them? Does he

> need to wear it

> during

> > the day at nap time also?

> > Have any of you had any issues with sending your

> kids to day care

> and

> > them having to wear these shoes?

> > I'd really appreciate your responses to this...

> >

> > Thank you

> > Anju

> >

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Anju-

Yup! His " magic shoes " go on right at bedtime and he gets them off

first thing in the morning. Once I showed his teachers how easy it

was to take the shoes off, they had no misgivings. They were so kind

to david during his casting phase-very diligent about keeping his

casts clean. He's had some other medical issues-currently he is in a

cast that totally covers his right arm(hand surgery) and they make

sure he doesn't get in the sand box and help him with his lunch in

order to keep this cast clean. We didn't know about david's clubfeet

until he was born-by that time we had picked the daycare already.

They were so welcoming to us and to david and very supportive!!

hth,

kathleen

mom to david bcf fab 12/7

> > >

> > > Hi,

> > >

> > > I just joined the group today and i have a

> > question. My son is

> > almost

> > > 5 months old and has bilateral clubfeet. He's been

> > wearing the

> > Dennis

> > > Browne shoes for 3 months now, for 22-23 hours a

> > day. I wanted to

> > know

> > > when he goes to wearing the shoes for night time

> > only, for how

> > many

> > > hours a day does he need to wear them? Does he

> > need to wear it

> > during

> > > the day at nap time also?

> > > Have any of you had any issues with sending your

> > kids to day care

> > and

> > > them having to wear these shoes?

> > > I'd really appreciate your responses to this...

> > >

> > > Thank you

> > > Anju

> > >

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

This is great, I'm very glad it worked out so well for

you and david. Kids are such a blessing!

Thank you

Anju

Abhay 5 months, bcf

--- leenernd wrote:

> Anju-

> Yup! His " magic shoes " go on right at bedtime and he

> gets them off

> first thing in the morning. Once I showed his

> teachers how easy it

> was to take the shoes off, they had no misgivings.

> They were so kind

> to david during his casting phase-very diligent

> about keeping his

> casts clean. He's had some other medical

> issues-currently he is in a

> cast that totally covers his right arm(hand surgery)

> and they make

> sure he doesn't get in the sand box and help him

> with his lunch in

> order to keep this cast clean. We didn't know about

> david's clubfeet

> until he was born-by that time we had picked the

> daycare already.

> They were so welcoming to us and to david and very

> supportive!!

> hth,

> kathleen

> mom to david bcf fab 12/7

>

>

> > > >

> > > > Hi,

> > > >

> > > > I just joined the group today and i have a

> > > question. My son is

> > > almost

> > > > 5 months old and has bilateral clubfeet. He's

> been

> > > wearing the

> > > Dennis

> > > > Browne shoes for 3 months now, for 22-23 hours

> a

> > > day. I wanted to

> > > know

> > > > when he goes to wearing the shoes for night

> time

> > > only, for how

> > > many

> > > > hours a day does he need to wear them? Does he

> > > need to wear it

> > > during

> > > > the day at nap time also?

> > > > Have any of you had any issues with sending

> your

> > > kids to day care

> > > and

> > > > them having to wear these shoes?

> > > > I'd really appreciate your responses to

> this...

> > > >

> > > > Thank you

> > > > Anju

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

My son would get these alot (no CF) and my daughter has had a couple. I guess it

could be from the brace, but alot of CF babies have funny toenails. I would

guess that it is just one of those things. What I do is cut a V in the middle of

the toenail that was when the nail grows, it grows away more from the sides.

Funny looking kinda, but works

Christee

Mother of...

*Josh (9)~Learning/Speech Delays

**Aspen (6)~ Bilateral Metatarsus Adductus

***Dylan (4)~PTSD/Anxiety

****Lilee (10 months)~A-Typical ®

*P/M Brace 10/24 by request of Dr. P

*Special tongue pads f/ due to chubbyness of foot

---------------------------------

Sneak preview the all-new Yahoo.com. It's not radically different. Just

radically better.

[Guest guest]

Hi and welcome to you and Darby!

Glad to hear Darby is in such good hands with Dr. Pirani. As for the

toenail I think it is fairly common, not just with clubfoot kids, but

any child who has " funky " toenails. Does Darby have toenails that

sort of 'stick up'? The brace *could* be causing it if her toe is

being squished in the toe box of the shoe. Are you using the Markell

shoes or the Ponseti/s? If she is in the Markells then the

toe squishing is more common. You may want to look at getting a wider

or bigger shoe. It could also be her regular shoes if they are too

tight in the toe box or getting too small. Otherwise, ingrown

toenails are just something that happens, you want to try to cut the

toenail straight across and not too too short, otherwise this gives

the nail the opportunity to grow into the fleshy part of the side of

the nailbed which can then get infected.

Hope this helps,

Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 12-14 hrs/day)

>

> Hello My name is I have a daughter named Darby with clubfoot!

> I am with Dr.Pirani at Royal Columbian in New Westminster BC Canada. I

> have been meaning to join this group for a long time! I havn't needed

> much info until now. My daughters toe is infected it looks like an

> ingrown toenail or hangnail. Is this common I took her to the doctor

> and he gave me antiboitics and I don't want to bug Dr.Pirani unless it

> has something to do with the brace or club foot. I am also sorry but I

> forget Hayden's mothers name but if you see this Haydens mom thank you

> for the website name! Anyway hello to all and any help would be super!

> -

>

[Guest guest]

Hello ,

Welcome to the group ! My daughter Grace also sees Dr. Pirani, she'll

be 2 at the end of July, how old is Darby?

Which toe is infected? The big one? Is she comfy in the brace? You know

one of the mommies from this group set up another group so we could all

share pics of our kids feet & sweet faces...if you have a digital

camera, you could take a pic of the toe and send it to the group for us

to take a look. This site dosen't support attachments...heres the link

http://health.groups.yahoo.com/group/CFPics/

There is a short survey that needs to be filled out then cut and pasted

back for approval. But I would say to use the antibiotic cream and see

how it goes over the next couple of days. My ex had a pretty bad

infection on his thumb from a deep cut and 'finally' went in to see a

doc who perscribed him some antibiotic cream and it cleared it up in a

matter of days.

Anyway, glad to have you here!

& Grace 22mos

urcf FAB 12-14hrs

>

> Hello My name is I have a daughter named Darby with clubfoot!

> I am with Dr.Pirani at Royal Columbian in New Westminster BC Canada.

I

> have been meaning to join this group for a long time! I havn't needed

> much info until now. My daughters toe is infected it looks like an

> ingrown toenail or hangnail. Is this common I took her to the doctor

> and he gave me antiboitics and I don't want to bug Dr.Pirani unless

it

> has something to do with the brace or club foot. I am also sorry but

I

> forget Hayden's mothers name but if you see this Haydens mom thank

you

> for the website name! Anyway hello to all and any help would be super!

> -

>

[Guest guest]

Barby is 2 and a half months. Yes it is her big toe! Baby

Grace...have I met you yet? I have met alot of ladies and getting

names straight is hard. It is her big toe the doctor gave me oral

antibiotics and she won't take them she spits it out. She seesm to

not mind the brace now the first week was hell. I am so worried she

is goiing to hit herself in the head with her bar....is it possible

for her to do that?

> >

> > Hello My name is I have a daughter named Darby with

clubfoot!

> > I am with Dr.Pirani at Royal Columbian in New Westminster BC

Canada.

> I

> > have been meaning to join this group for a long time! I havn't

needed

> > much info until now. My daughters toe is infected it looks like

an

> > ingrown toenail or hangnail. Is this common I took her to the

doctor

> > and he gave me antiboitics and I don't want to bug Dr.Pirani

unless

> it

> > has something to do with the brace or club foot. I am also sorry

but

> I

> > forget Hayden's mothers name but if you see this Haydens mom

thank

> you

> > for the website name! Anyway hello to all and any help would be

super!

> > -

> >

>

[Guest guest]

Hi ! It was nice to see you and your husband at Hip Hip Hooray and to

meet Darby! She is waayyyy cute! I'm glad you joined the group. There are so

many supportive people here that can answer virtually any question, big or

small! I hope you can get some help with the infected toe....Hayden used to

get nastiness on his toes all the time but it was when he was in casts and his

big toes are so funky they'd cut the skin when it folded over. Probably the

best thing is to clean it and put a little polysporin or something like that on

it.

Glad to see you here!

darbysfeet wrote:

Hello My name is I have a daughter named Darby with clubfoot!

I am with Dr.Pirani at Royal Columbian in New Westminster BC Canada. I

have been meaning to join this group for a long time! I havn't needed

much info until now. My daughters toe is infected it looks like an

ingrown toenail or hangnail. Is this common I took her to the doctor

and he gave me antiboitics and I don't want to bug Dr.Pirani unless it

has something to do with the brace or club foot. I am also sorry but I

forget Hayden's mothers name but if you see this Haydens mom thank you

for the website name! Anyway hello to all and any help would be super!

-

__________________________________________________

[Guest guest]

I have not thought of whether or not could hit herself in her head with

the bar. She has not done so and is over seven months so I don't think it is

really possible.

Carol

Re: New to group

Barby is 2 and a half months. Yes it is her big toe! Baby

Grace...have I met you yet? I have met alot of ladies and getting

names straight is hard. It is her big toe the doctor gave me oral

antibiotics and she won't take them she spits it out. She seesm to

not mind the brace now the first week was hell. I am so worried she

is goiing to hit herself in the head with her bar....is it possible

for her to do that?

> >

> > Hello My name is I have a daughter named Darby with

clubfoot!

> > I am with Dr.Pirani at Royal Columbian in New Westminster BC

Canada.

> I

> > have been meaning to join this group for a long time! I havn't

needed

> > much info until now. My daughters toe is infected it looks like

an

> > ingrown toenail or hangnail. Is this common I took her to the

doctor

> > and he gave me antiboitics and I don't want to bug Dr.Pirani

unless

> it

> > has something to do with the brace or club foot. I am also sorry

but

> I

> > forget Hayden's mothers name but if you see this Haydens mom

thank

> you

> > for the website name! Anyway hello to all and any help would be

super!

> > -

> >

>

[Guest guest]

Oh it's very possible! LOL! When they are of the age/size that their legs are

only as long as their body. In fact I play with Garrison lifting his feet and

touching his bar to his forehead. Makes him laugh. Everett cracked his bar

against his forehead a few times on his own too, in the past, before his legs

becaem longer and he had more muscle control. I'd pad the bar at this age to

prevent head aches.

As for giving the oral meds, put the dropper way back in the side of their cheek

and squeeze it out real slow leaving the dropper in there cuz as they try to

spit out the dropper they actually move their tongue and end up swallowing the

medication.

s.

Re: New to group

Barby is 2 and a half months. Yes it is her big toe! Baby

Grace...have I met you yet? I have met alot of ladies and getting

names straight is hard. It is her big toe the doctor gave me oral

antibiotics and she won't take them she spits it out. She seesm to

not mind the brace now the first week was hell. I am so worried she

is goiing to hit herself in the head with her bar....is it possible

for her to do that?

> >

> > Hello My name is I have a daughter named Darby with

clubfoot!

> > I am with Dr.Pirani at Royal Columbian in New Westminster BC

Canada.

> I

> > have been meaning to join this group for a long time! I havn't

needed

> > much info until now. My daughters toe is infected it looks like

an

> > ingrown toenail or hangnail. Is this common I took her to the

doctor

> > and he gave me antiboitics and I don't want to bug Dr.Pirani

unless

> it

> > has something to do with the brace or club foot. I am also sorry

but

> I

> > forget Hayden's mothers name but if you see this Haydens mom

thank

> you

> > for the website name! Anyway hello to all and any help would be

super!

> > -

> >

>

[Guest guest]

if you blow on baby's face/nose when the medicine is in their mouth

it makes them swallow automatically. Try that in addition to what

ee said. I hate giving babies medicine, the blowing worked with

the first two but the last one, my CF baby would only get half in or

less even when I blew. she hated it THAT much.

grrrrr....

At 07:37 AM 6/7/2006, you wrote:

>Oh it's very possible! LOL! When they are of the age/size that their

>legs are only as long as their body. In fact I play with Garrison

>lifting his feet and touching his bar to his forehead. Makes him

>laugh. Everett cracked his bar against his forehead a few times on

>his own too, in the past, before his legs becaem longer and he had

>more muscle control. I'd pad the bar at this age to prevent head aches.

>

>As for giving the oral meds, put the dropper way back in the side of

>their cheek and squeeze it out real slow leaving the dropper in

>there cuz as they try to spit out the dropper they actually move

>their tongue and end up swallowing the medication.

>

>s.

>

> Re: New to group

>

>Barby is 2 and a half months. Yes it is her big toe! Baby

>Grace...have I met you yet? I have met alot of ladies and getting

>names straight is hard. It is her big toe the doctor gave me oral

>antibiotics and she won't take them she spits it out. She seesm to

>not mind the brace now the first week was hell. I am so worried she

>is goiing to hit herself in the head with her bar....is it possible

>for her to do that?

>

>

> > >

> > > Hello My name is I have a daughter named Darby with

>clubfoot!

> > > I am with Dr.Pirani at Royal Columbian in New Westminster BC

>Canada.

> > I

> > > have been meaning to join this group for a long time! I havn't

>needed

> > > much info until now. My daughters toe is infected it looks like

>an

> > > ingrown toenail or hangnail. Is this common I took her to the

>doctor

> > > and he gave me antiboitics and I don't want to bug Dr.Pirani

>unless

> > it

> > > has something to do with the brace or club foot. I am also sorry

>but

> > I

> > > forget Hayden's mothers name but if you see this Haydens mom

>thank

> > you

> > > for the website name! Anyway hello to all and any help would be

>super!

> > > -

> > >

> >

>

>

[Guest guest]

Hi ,

No I didn't get a chance to meet you at the Hip Hip Hooray....got

there a little late....ended up over the Pitallo (see I don't even

know how to spell it hahaha) bridge.

Hope her toe is doin better, how is it looking? That advise to cut

the toenails straight across is good. Are Darby's toes curved or a

bit funny looking? Grace's big toes curl upwards, they are MUCH

better now that her feet/toes are growing but we see lots of our cf

babies with odd shaped tosies so that may be a contributor.

Grace is due for a check up soon like real soon, gotta get on that!

I'll post when I'm taking her in and see if you're due for an appt,

it's been so long lol, is the casting clinic still on Tuesdays?

Let us know how Darby's doing and oh yes, Grace had to take oral meds

for the first 6 mo's of her life (she did come to really like them)

they tasted a bit like cherry icecream (no wonder haha) but for the

first week or so I did the syringe far back in the side of the mouth

trick that ee mentioned, workes great!

Smiles,

& Grace

> > >

> > > Hello My name is I have a daughter named Darby with

> clubfoot!

> > > I am with Dr.Pirani at Royal Columbian in New Westminster BC

> Canada.

> > I

> > > have been meaning to join this group for a long time! I havn't

> needed

> > > much info until now. My daughters toe is infected it looks like

> an

> > > ingrown toenail or hangnail. Is this common I took her to the

> doctor

> > > and he gave me antiboitics and I don't want to bug Dr.Pirani

> unless

> > it

> > > has something to do with the brace or club foot. I am also

sorry

> but

> > I

> > > forget Hayden's mothers name but if you see this Haydens mom

> thank

> > you

> > > for the website name! Anyway hello to all and any help would be

> super!

> > > -

> > >

> >

>

[Guest guest]

Hey - let's try and get appointments all on the same day. Dr. Pirani

told us to come back July/August. I'd like to go in July because we are going

to be away half of August. Does that sound good?

wrote:

Hi ,

No I didn't get a chance to meet you at the Hip Hip Hooray....got

there a little late....ended up over the Pitallo (see I don't even

know how to spell it hahaha) bridge.

Hope her toe is doin better, how is it looking? That advise to cut

the toenails straight across is good. Are Darby's toes curved or a

bit funny looking? Grace's big toes curl upwards, they are MUCH

better now that her feet/toes are growing but we see lots of our cf

babies with odd shaped tosies so that may be a contributor.

Grace is due for a check up soon like real soon, gotta get on that!

I'll post when I'm taking her in and see if you're due for an appt,

it's been so long lol, is the casting clinic still on Tuesdays?

Let us know how Darby's doing and oh yes, Grace had to take oral meds

for the first 6 mo's of her life (she did come to really like them)

they tasted a bit like cherry icecream (no wonder haha) but for the

first week or so I did the syringe far back in the side of the mouth

trick that ee mentioned, workes great!

Smiles,

& Grace

> > >

> > > Hello My name is I have a daughter named Darby with

> clubfoot!

> > > I am with Dr.Pirani at Royal Columbian in New Westminster BC

> Canada.

> > I

> > > have been meaning to join this group for a long time! I havn't

> needed

> > > much info until now. My daughters toe is infected it looks like

> an

> > > ingrown toenail or hangnail. Is this common I took her to the

> doctor

> > > and he gave me antiboitics and I don't want to bug Dr.Pirani

> unless

> > it

> > > has something to do with the brace or club foot. I am also

sorry

> but

> > I

> > > forget Hayden's mothers name but if you see this Haydens mom

> thank

> > you

> > > for the website name! Anyway hello to all and any help would be

> super!

> > > -

> > >

> >

>

__________________________________________________

[Guest guest]

Maybe is just so chubby she can't get her feet up to her head for her fat

tummy! LOL She plays with the bar and chews the straps but has never hit

herself in the head!

Carol

Re: New to group

Barby is 2 and a half months. Yes it is her big toe! Baby

Grace...have I met you yet? I have met alot of ladies and getting

names straight is hard. It is her big toe the doctor gave me oral

antibiotics and she won't take them she spits it out. She seesm to

not mind the brace now the first week was hell. I am so worried she

is goiing to hit herself in the head with her bar....is it possible

for her to do that?

> >

> > Hello My name is I have a daughter named Darby with

clubfoot!

> > I am with Dr.Pirani at Royal Columbian in New Westminster BC

Canada.

> I

> > have been meaning to join this group for a long time! I havn't

needed

> > much info until now. My daughters toe is infected it looks like

an

> > ingrown toenail or hangnail. Is this common I took her to the

doctor

> > and he gave me antiboitics and I don't want to bug Dr.Pirani

unless

> it

> > has something to do with the brace or club foot. I am also sorry

but

> I

> > forget Hayden's mothers name but if you see this Haydens mom

thank

> you

> > for the website name! Anyway hello to all and any help would be

super!

> > -

> >

>

[Guest guest]

HA! That's funny, I can just see her.

s.

Re: New to group

Barby is 2 and a half months. Yes it is her big toe! Baby

Grace...have I met you yet? I have met alot of ladies and getting

names straight is hard. It is her big toe the doctor gave me oral

antibiotics and she won't take them she spits it out. She seesm to

not mind the brace now the first week was hell. I am so worried she

is goiing to hit herself in the head with her bar....is it possible

for her to do that?

> >

> > Hello My name is I have a daughter named Darby with

clubfoot!

> > I am with Dr.Pirani at Royal Columbian in New Westminster BC

Canada.

> I

> > have been meaning to join this group for a long time! I havn't

needed

> > much info until now. My daughters toe is infected it looks like

an

> > ingrown toenail or hangnail. Is this common I took her to the

doctor

> > and he gave me antiboitics and I don't want to bug Dr.Pirani

unless

> it

> > has something to do with the brace or club foot. I am also sorry

but

> I

> > forget Hayden's mothers name but if you see this Haydens mom

thank

> you

> > for the website name! Anyway hello to all and any help would be

super!

> > -

> >

>

[Guest guest]

Hi my name is Lynn. I just finished reading " Breaking the Vicious Cycle " where

I found out about this group. I've also checked out scd.org. There's is so much

information and I hope that this will cure me. 5 months ago I was hospitalized

with diverticulitis of the sigmoid colon. I was in the hospital for 5 days on

iv antibiotics. I felt better for a few days but then pain in descending, and

also ascending colon. Back and forth to the dr, had a colonoscopy 5 weeks later

where they found severe diverticulosis in the sigmoid colon and bits of

diverticula throughout the colon. But they can't identify why I have more pain

in my ascending colon than my descending colon. I switched doctors abt 2 months

ago. My new dr. did many stool tests which all came back negative, tested for

celiac, came back negative. He put me on Xifaxin for 10 days. This helped and

for about 1 week after I finished the medication I felt pretty good. Then pain

came back, with constipation and diahrea. Dr. put me on a higher dose of

Xifaxin and 4 days later pain was worse so he took me off. That was last week.

Had a couple of good days and now feeling pain again. My best times are when I

go days without having a bowel movement (I know that's not healthy). My bad

days are when I have 1 or 2 or 3 bowel movements. I feel like I have little

people inside my colon with a scouring pad just scubbing away. I heard about

SCD and thought it couldn't hurt to try. I'm concerned that I'm not a good cook

and also that I hate to cook and the recipes overwhelm me. Also, I've lost 40

pounds in 5 months from lack of eating. I have another doctor's appt tomorrow.

Not sure what the next step is but I am also reading a book my Dr. Mark Pimintel

called the " New IBS Solution " and he mentioned a breath test for SIBO.

I wanted to introduce myself and was wondering if anyone could offer any advice

for beginners. Thanks.

Lynn

[Guest guest]

> Hi my name is Lynn. I just finished reading " Breaking the Vicious Cycle "

where I found out about this group. I've also checked out scd.org. There's is

so much information and I hope that this will cure me. 5 months ago I was

hospitalized with diverticulitis of the sigmoid colon. I was in the hospital

for 5 days on iv antibiotics. I felt better for a few days but then pain in

descending, and also ascending colon. Back and forth to the dr, had a

colonoscopy 5 weeks later where they found severe diverticulosis in the sigmoid

colon and bits of diverticula throughout the colon. But they can't identify why

I have more pain in my ascending colon than my descending colon. I switched

doctors abt 2 months ago. My new dr. did many stool tests which all came back

negative, tested for celiac, came back negative. He put me on Xifaxin for 10

days. This helped and for about 1 week after I finished the medication I felt

pretty good. Then pain came back, with constipation and diahre!

> a. Dr. put me on a higher dose of Xifaxin and 4 days later pain was worse so

he took me off. That was last week. Had a couple of good days and now feeling

pain again. My best times are when I go days without having a bowel movement (I

know that's not healthy). My bad days are when I have 1 or 2 or 3 bowel

movements. I feel like I have little people inside my colon with a scouring pad

just scubbing away.

Pretty much that is what is happening. You are irritating internal tissue which

is raw or just

beginning to heal and being rubbed raw again.

OTOH, having C isn't helping either, as you are just providing a non movable

feast, so to speak,

for your pathogenic bacteria to munch on and help them breed.

> I heard about SCD and thought it couldn't hurt to try. I'm concerned that I'm

not a good cook and also that I hate to cook and the recipes overwhelm me.

As I see it, the choice is: would you rather be ill and not cook or get much

healthier

as you learn to cook. IOW, what's more irritating, having bad health or

cooking?

OTOH, you get sicker. Or, OTOH, you acquire a useful

lifetime skill.

Lots of our members have learned to cook from beginning to implement this diet.

And the beginning recipes are all very simple. Not overwhelming at all.

> Also, I've lost 40 pounds in 5 months from lack of eating. I have another

doctor's appt tomorrow. Not sure what the next step is but I am also reading a

book my Dr. Mark Pimintel called the " New IBS Solution " and he mentioned a

breath test for SIBO.

>

> I wanted to introduce myself and was wondering if anyone could offer any

advice for beginners. Thanks.

The best thing you can do right now is put up a big, big pot of chicken or meat

bone soup.

Immediately. And let it begin to cook - take the meat off the bones when cooked

and return the meat

to the stock until they have cooked for up to 24 hours - the longer, the richer

the stock is

in gelatin which is an amazing substance for reducing inflammation in the

intestines and

inducing healing. Add 1 TB vinegar to help leach the gelatin from the bones.

Next, puree all your veggies. You basically don't want any fiber at all in your

guts

right now, since the fiber is more likely to irritate your gut walls. So all

food soft

like baby food - only simple veggies, well cooked and pureed and also avocados

mashed.

Farmer's cheese if you tolerate dairy.

Be extra slow at adding in new things to discover what you tolerate and what you

don't

because your intestines are so inflamed at certain points.

Good luck beginning,

Mara

[Guest guest]

And let it begin to cook - take the meat off the bones when cooked and return the meatto the stock until they have cooked for up to 24 hours Typo? Did you mean return the bones and other 'junk' to the stock? Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 12.5 mg 1x per day (trying to wean!!!!)

[Guest guest]

Yep, thanks Alyssa.Mara And let it begin to cook - take the meat off the bones when cooked and return the meatto the stock until they have cooked for up to 24 hours Typo? Did you mean return the bones and other 'junk' to the stock? Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 12.5 mg 1x per day (trying to wean!!!!)

[Guest guest]

Hi Lynn:

You definitely came to the right place. There are a lot of helpful and friendly

people here. If you go to the group files (logging into the group from Yahoo),

there is a Getting Started file that will help.

Don't worry about not being a good cook. Even the people that think they are the

worst often find that they become decent cooks on SCD. If you have any questions

about what a preparation nmethod means, ask the group.

For me, a stock pot and immersion blender ($15 from Wal Mart) were essential. It

was so daunting trying to blend everything in my blender and messy too. As I've

gone through the diet, I've acquired a lot more stuff that's made my life so

much easier. I already had a mini food processor which I use all the time. I

acquired a large food processor about 1.5 years into the diet which helps a lot.

I work full time and have my daughter half the time. My job the first 1.5 years

on the diet required me to be out of the office at client's offices most days.

Planning ahead and having all your food ready and go-to items in the fridge for

when you're really hungry is helpful. I kept boiled eggs in the fridge and

individually frozen cooked chicken patties in the freezer for when I needed to

grab something quick. Don't let yourself run out of food, that's when it's most

likely that you'll cheat.

My biggest piece of advice is take it slow. Start out with the chicken soup and

homemade gelatin and after 3 - 5 days slowly add in other foods that are well

cooked and pureed. Give about 3 days between each food.

www.pecanbread.com is geared toward autistic children following SCD but they

have a great guideline for introducing foods in stages that may help.

Good luck,

Misty Kimble

CD - no meds

SCD - Jan 2008

>

> I'm concerned that I'm not a good cook and also that I hate to cook and the

recipes overwhelm me. Also, I've lost 40 pounds in 5 months from lack of

eating. I have another doctor's appt tomorrow. Not sure what the next step is

but I am also reading a book my Dr. Mark Pimintel called the " New IBS Solution "

and he mentioned a breath test for SIBO.

>

> I wanted to introduce myself and was wondering if anyone could offer any

advice for beginners. Thanks.

>

> Lynn

>

[Guest guest]

At 08:33 AM 8/4/2010, you wrote:

I'm concerned that I'm not a

good cook and also that I hate to cook and the recipes overwhelm me.

Also, I've lost 40 pounds in 5 months from lack of eating. I have another

doctor's appt tomorrow. Not sure what the next step is but I am also

reading a book my Dr. Mark Pimintel called the " New IBS

Solution " and he mentioned a breath test for SIBO.

SCD works. It's not a FAST cure. But I can tell you that the lady who was

my mentor on the diet was told her gut looked like bloody lace. 14 months

later, her doctor said he would not have believed she was the same

patient if he had not diagnosed her himself.

SCD cooking doesn't require elaborate cooking. My husband, who can burn

water, if given a chance, can manage roasts and steamed

vegetables.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Marilyn just curious was she bleeding too at the time of the bloody lace??? just

trying to find hope for that lil girl

thanks

Eileen

> >I'm concerned that I'm not a good cook and also

> >that I hate to cook and the recipes overwhelm

> >me. Also, I've lost 40 pounds in 5 months from

> >lack of eating. I have another doctor's appt

> >tomorrow. Not sure what the next step is but I

> >am also reading a book my Dr. Mark Pimintel

> >called the " New IBS Solution " and he mentioned a breath test for SIBO.

>

> SCD works. It's not a FAST cure. But I can tell

> you that the lady who was my mentor on the diet

> was told her gut looked like bloody lace. 14

> months later, her doctor said he would not have

> believed she was the same patient if he had not diagnosed her himself.

>

> SCD cooking doesn't require elaborate cooking. My

> husband, who can burn water, if given a chance,

> can manage roasts and steamed vegetables.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

At 09:28 AM 8/5/2010, you wrote:

Marilyn just curious was she

bleeding too at the time of the bloody lace??? just trying to find hope

for that lil girl

Yes, she was -- if I remember what she told me about it correctly, she

was having something like 20 movements a day. She was absolutely

fanatical about SCD as it is in the book. Absolutely NOTHING she (or her

mom) did not make herself.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

I was just reading about ketosis and that's a sign of it.

http://diet.lovetoknow.com/wiki/Ketosis_Signs

Sorry, I haven't been following so this thread so it might have been mentioned

already.

Misty Kimble

CD - no meds

SCD - Jan 2008

>

> Hi everyone,

>  

> I'm really finding everyone posts very educational.  I just joined this group

and ordered the book " Breaking the Vicious Cycle " along with a couple of

cookbooks. I was diagnosed with UC a couple of months ago. I'm currently on

prednisone but from my own " gut " feelings  and after everything I've  been

reading in the  last week, I think I'm  seeing the big picture here. Every time

I start to lower it ever so slightly, my symptoms come back and get worse every

day. I haven't raised it back up yet because I'm trying get the recommended

supplements into my system.  However, as of the moment, no results. Since I've

read the premise on what the SCD is all about and why it's so necessary, I know

this is a must do.  My body is very intolerant of pharmaceuticals, so mostly I

do natural medicine. I tolerate the prednisone at the 20 mg that I'm taking but

when they had me on 25 mg I had to  taper it down to about 22 mg as 25 had

me jumping out of my skin

> and causing other intolerable reactions. But at 20 mg, I started bleeding and

other symptoms again, each day a little worse.  In my mind to complicate things

I have nasty hypoglycemia. So besides constant snacks of protein, I have found

that complex carbs are necessary..and this protocol has keep me alive as far as

the hypoglycemia. I don't know at this very moment how I  am going to be able to

do this diet without these carbs, but perhaps after I read the books  I'll have

more insight. If anyone has anything to share, please do, as I find this a

wrinkle that concerns me.. I'm 53, female and married  with a few four legged

kids. I was feeling positive about  healing until I saw how the bleeding and so

on came right back with a vengeance when I lowered the prednisone. I thought the

supplements would kick in as I was trying to taper off. Now that I've been

" enlightened " I'd appreciate feedback of any sort including the hypoglycemia

issue. I

> should be getting the books in the mail in a week or two the latest. I'm so

pleased for all the info I've been able to access in the files and on the

computer, as well as finding these lists.

>  

>  Healing to all, Duckie

>

[Guest guest]

Hi and Welcome...

Congratulations on finding an alternative to the meds so soon.. It is a big plus as for healing.. And it will give you a leg up on most of the foods.. at least for me it did.. I was diagnosed in September of last year. .My sister had UC for many years so I knew the signs and caught it early..Found and started SCD in July of this year and plan on being off of all meds soon..

Did you buy the book. Breaking the Vicious Cycle? If not ..go get it... Everything will make more sence after you read it..

As for Yogart "equiment" Finding a good starter is the hardest.. All you need after that is a temp probe..I change the light bulb in my electric oven and prop the door open with a pen. It kept it with in range..(have to play with it, if you drop the A.C cooler at night..) Now i do it with a heat lamp in an ice chest so it does not tie up my oven for 24 hours.

I would think having an office job would help.. READLY available bathroom!! I am an AC tech by trade.. Thankfully my boss makes sure there is a bathroom at every construction site. And the guys have been looking for a small micro wave that I can put in my truck with a adapter for my electricity. So i do not have to go back to the office at lunch to heat my food..My D is very much under control at this time and I only go once in the evening THANK GOD..

Check out the pecanbread web site for the stages of food.. It is a good guide.. but just that.. a guide.. we all tolorate different food at different rates...

Best of luck and happy healing... Ask away

40 year old (soon to be 41)

UC sept 09

SCD july of 10

To: BTVC-SCD Sent: Mon, September 6, 2010 8:53:50 AMSubject: New to Group

Thanks for allowing me in the group.I am 46 yrs old, and diagnosed with Ulcer Colitis days ago. I'm just searching prior topics now, but wanted to say hello and would appreciate any encouraging words, as I am trying to hold down an office job while suffering the headaches.I haven't made the yogurt yet - no equipment. I hope I can make a batch soon.Thank you, H.