Healthy eating

November 7, 2010

Thanks, Deb! Different folks have talked about ways to improve our nutrition. We haven't given it enough attention, although many of us have become convinced that it's an extremely important factor. Hopefully, this will begin a dialogue on healthy eating! Kat sent me info on a cookbook targeted for sarkies. I wish we could see a sample recipe before actually buying it. For those who are interested, here is the info. This author is associated with the Aden protocol, which seems to be very similar to the Standard Process that Tracie is using. My only concern is one of their websites claimed to be able to reverse lung damage caused by sarc. That's a red flag for me, but I'll admit that I haven't thoroughly researched the protocol. If anyone is familiar with the Aden protocol, would you give us some input--good or bad?

Dear Kat,

after 7 months of intense work on something very special, I am proud to write this email and inform you that finally, I have published the first Cookbook ever dedicated solely to sarcoidosis sufferers.

Presenting:

Sarcoidosis Freedom Cookbook

You can read all about it here: www.sarcoidosis-cookbook.com

What is Sarcoidosis Freedom Cookbook?

It is a 143 page ebook with hundreds of delicious recipes designed to avoid all the aggravating chemicals that lurk all around us. I started working on it in March this year. I did it because so many people were saying the same things about the Aden Protocol and sarcoidosis remission - they were saying that it is too hard to organize their lives to undertake such a complex task as eating for sarcoidosis remission. They were dazzled and confused by so many rules and things to keep in mind.

So I decided to take all that away.

Now, you don't have to worry about planning and endless hours of research and full time work on the right meals. This ebook will allow you to live life normally and still be proactive about your condition.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

> To: Neurosarcoidosis > Date: Sun, 7 Nov 2010 15:18:18 +0000> Subject: Re: FW: STANDARD PROCESS> > Thank you for posting this information! I've been waiting to hear how Tracie was doing and it sounds like she's doing wonderfully well!!! I've often wondered why this group doesn't discuss diet more as a means of reducing symptoms...then I think maybe I'm one of the lucky ones and just don't have Sarc as bad as most. But I can tell you that sweeteners...especially the artificial ones are terrible for me. Also red meat is a huge trigger of depression...I think maybe the uric acid??? I try to eat more veggies. I limit my meat consumption to fish or chicken. I do eat eggs and dairy in moderation. I rarely eat grains...maybe one - two slices of all natural whole grain bread per week. I try to get food that is organic or as chemical free as possible. Are my Sarc symptoms gone? Like Tracie...no, but they are better if I eat right. Do I cheat on my diet? Yes, but in very small amounts and never two days in a row. So my thoughts on the subject for those that don't want to do the whole detox thing....at least start taking at look at what you're eating. If its full of chemicals, it probably isn't helping your condition. Just my two cents worth.> > Glad you're doing better Tracie! Thanks for the update!!!> > Deb Z.> Michigan> > > > > >> > > > Tracie, thanks for explaining the process that you have been undergoing. As usual, you expressed it well. As we have said before, every body is different--reacts to disease & disorder differently, and responds to drugs & other treatments differently. We all have to learn as much as we can about the various options & then choose our path. We need to have doctors & other health care providers who are willing to be open to alternative treatments & supportive of our choices. In a perfect world, we would all have such providers. But since it's not a perfect world, we'll have to do the best we can in trying to find that support. > > > > We are not recommending that all of you stop your meds & go with a totally wholistic lifestyle. Tracie has been through just about everything a sarc patient can, and it would not be right for us to withhold this information about a program that has worked very well for her. This program requires total commitment, and I'm not ready myself to make that commitment. But I am now aware of this option & probably will explore & learn more about it. This is what we need to do with ALL of our options. It's very difficult when we are tired, depressed, in pain & can't think straight. It's so much easier to just leave the decisions to our doctors. But since we have to live with the outcomes, we really need to learn as much as we can about every treatment, including alternative treatment options. We may need an advocate to help us--a friend or family member who is willing to take on that responsibility. Final decisions should still be ours, but an advocate can help to gather the information needed for those decisions.> > > > > > Ramblin' Rose> > Moderator> > > > A merry heart is good medicine. Proverbs 17:22> > > > > > > > > > > > > > > > Date: Fri, 5 Nov 2010 15:20:37 -0700> > > Subject: STANDARD PROCESS> > To: mamadogrose@...; nsmods > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > oK, LET ME SEE IF i can clear this up.> > > > Standard Process Whole Food Supplements and Herbs are not another "fad." This company was started in 1929-- and is the oldest Whole Food Supplement Company in existence. > > We don't hear about it much, the providers of these supplements have to go through extensive training in Nutrition, Whole Food Supplements, Muscle Testing for sensitivities to food, enviromental toxins, heavy metals, pesticides, and so SO much more. Each "module of training" requires a minimum of 100 hrs of classroom time. Advanced levels require more time at each level. > > NO ONE is started on the supplements until you sit down with the Clinician, and a health history is taken. That history and Q & A is entered into a program where Standard Process evaluates it, and a "protocol" is suggested. > > The Clinician will test your muscle reaction to the various supplements, to make sure that the supplement will be effective for you. They may find that it will work on one body organ or site, but weaken another. So with that info, the Clinician can tweak YOUR supplements to what you need. > > They may have to do the Standard Process Liver Detox prior to starting on a protocol to address (for example) your lung issues. This Detox includes protein shakes that include the vitamins, nutrients, minerals and enyzmes that you need to help your liver clean itself out. The diet that you eat is one of raw veges the first week, steamed or baked veges the 2nd week (along with your shakes) and the 3rd week, you add back in lean meats. > > You stop all the grains, pastas, rice, potatoes, simple carbs, sugars, fruit, sodas, caffeine and alcholol during the detox. You'll find you don't want them back in your diet-- they are a HUGE trigger of inflammation. > > > > This program has saved my life. Since the 27th or March 2010-- I've lost 58 lbs, and the only medication I'm taking is Enalapril for blood pressure, and Levothyroid. > > > > My Effexor, my methotrexate, the plaquenil, the Remicade, the prednisone -- are gone, and no longer needed. My diabetes is gone-- no more insulin and glucophage. Thirty years of chronic pain from a back injury is at a 2-3/10 instead of the constant 8-12/10. The bone, lymph, and systemic joint pain is also decreased to a 2-3. The oramorph is gone. Don't need it. > > > > I still have fatigue- so I do have to listen to my body and if I'm tired-- I spend a day resting. I still have sarcoidosis-- but I am improving my cardio strength, my lung capacity -- the sarc induced arthritis and body pain-- like I said, have gotten so much better. My feet and ankles still have the granulomas and osteo-arthritis-- but they are NORMAL size-- unlike this last summer where my legs from my knees down to my toes where all one size-- and that size didn't fit my flesh. **> > > > **It took until the end of July before my legs and feet came back to normal size-- and for about 8 wks, it was as if I had a chemical burn (which I did --pharmaceutical chemicals) that went from mid-calf to my toes. The skin was bright red and hot to touch, and very painful. It was swollen 3x it's normal size. > > Through the use of a addl supplements, and Epsom Salt Baths (and ice plunges)-- my skin decided one day to slough off all that burnt, injured flesh, and the end result has only mild edema if I spend the day on my feet, and my legs haven't looked this good since I was in my 20's! **> > > > As far as the switch from touting the benefits of Humira, Remicade, Imuran, Prednisone, etc-- I have to say that what I know now is that they have their place. It may have to be the path some or most of the group decides to travel. That's ok. For me, I cannot recommend it without a lot of concerns. Many more than I had when I started researching these particular meds. > > > > Will I tell someone in ACUTE flare that they shouldn't use or accept steroid treatment "NO." ACUTE needs IMMEDIATE INTERVENTION. It also is going to cause the body pain, the extreme pain and fatigue, high blood pressure, diabetes. So please- wean off, when you get to a place where you're backsliding-- your doc should be having you go back up to the last level that worked, and stay there for awhile, then slowly attempt the wean off again. > > > > The medications that I was on had become what was killing me. Literally killing me- I had gotten to a place where I was having heart attacks nightly, and I seriously doubt that I'd be here now-- if I hadn't made the changes I made. > > > > Diet, changing my diet to more veges, lean meat-- and eliminating the carbs and empty calories- along with rebuilding my bodies ability to use my immunity to combat disease--instead of healthy tissue-- via these supplements-- is working for me. > > > > It isn't a fad, it isn't snake oil, no ones going to call you, market you, or put you on the spam list from hell-- and they don't claim to CURE any disease. These supplements bring your body bak to balance (homeostasis) and the closer you get--- the better you feel. > > > > Hope this helps,> > Tracie> >> > > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > >

November 10, 2010

I'm having a heck of a time finding someone who does the Standard Process Whole Food Supplement, Tracie suggested finding a Chiropractors, but I can't. I would like to go into someone who knows about it, and sit down come up with a plan?? Still looking.

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)

Thanks, Deb! Different folks have talked about ways to improve our nutrition. We haven't given it enough attention, although many of us have become convinced that it's an extremely important factor. Hopefully, this will begin a dialogue on healthy eating! Kat sent me info on a cookbook targeted for sarkies. I wish we could see a sample recipe before actually buying it. For those who are interested, here is the info. This author is associated with the Aden protocol, which seems to be very similar to the Standard Process that Tracie is using. My only concern is one of their websites claimed to be able to reverse lung damage caused by sarc. That's a red flag for me, but I'll admit that I haven't thoroughly researched the protocol. If anyone is familiar with the Aden protocol, would you give us some input--good or bad?

Dear Kat,

after 7 months of intense work on something very special, I am proud to write this email and inform you that finally, I have published the first Cookbook ever dedicated solely to sarcoidosis sufferers.

Presenting:

Sarcoidosis Freedom Cookbook

You can read all about it here: www.sarcoidosis-cookbook.com

What is Sarcoidosis Freedom Cookbook?

It is a 143 page ebook with hundreds of delicious recipes designed to avoid all the aggravating chemicals that lurk all around us. I started working on it in March this year. I did it because so many people were saying the same things about the Aden Protocol and sarcoidosis remission - they were saying that it is too hard to organize their lives to undertake such a complex task as eating for sarcoidosis remission. They were dazzled and confused by so many rules and things to keep in mind.

So I decided to take all that away.

Now, you don't have to worry about planning and endless hours of research and full time work on the right meals. This ebook will allow you to live life normally and still be proactive about your condition.

Ramblin' RoseModerator

A merry heart is good medicine. Proverbs 17:22

> To: Neurosarcoidosis > Date: Sun, 7 Nov 2010 15:18:18 +0000

> Subject: Re: FW: STANDARD PROCESS> > Thank you for posting this information! I've been waiting to hear how Tracie was doing and it sounds like she's doing wonderfully well!!! I've often wondered why this group doesn't discuss diet more as a means of reducing symptoms...then I think maybe I'm one of the lucky ones and just don't have Sarc as bad as most. But I can tell you that sweeteners...especially the artificial ones are terrible for me. Also red meat is a huge trigger of depression...I think maybe the uric acid??? I try to eat more veggies. I limit my meat consumption to fish or chicken. I do eat eggs and dairy in moderation. I rarely eat grains...maybe one - two slices of all natural whole grain bread per week. I try to get food that is organic or as chemical free as possible. Are my Sarc symptoms gone? Like Tracie...no, but they are better if I eat right. Do I cheat on my diet? Yes, but in very small amounts and never two days in a row. So my thoughts on the subject for those that don't want to do the whole detox thing....at least start taking at look at what you're eating. If its full of chemicals, it probably isn't helping your condition. Just my two cents worth.

> > Glad you're doing better Tracie! Thanks for the update!!!> > Deb Z.> Michigan> > > >

> >> > > > Tracie, thanks for explaining the process that you have been undergoing. As usual, you expressed it well. As we have said before, every body is different--reacts to disease & disorder differently, and responds to drugs & other treatments differently. We all have to learn as much as we can about the various options & then choose our path. We need to have doctors & other health care providers who are willing to be open to alternative treatments & supportive of our choices. In a perfect world, we would all have such providers. But since it's not a perfect world, we'll have to do the best we can in trying to find that support.

> > > > We are not recommending that all of you stop your meds & go with a totally wholistic lifestyle. Tracie has been through just about everything a sarc patient can, and it would not be right for us to withhold this information about a program that has worked very well for her. This program requires total commitment, and I'm not ready myself to make that commitment. But I am now aware of this option & probably will explore & learn more about it. This is what we need to do with ALL of our options. It's very difficult when we are tired, depressed, in pain & can't think straight. It's so much easier to just leave the decisions to our doctors. But since we have to live with the outcomes, we really need to learn as much as we can about every treatment, including alternative treatment options. We may need an advocate to help us--a friend or family member who is willing to take on that responsibility. Final decisions should still be ours, but an advocate can help to gather the information needed for those decisions.

> > > > > > Ramblin' Rose> > Moderator> > > > A merry heart is good medicine. Proverbs 17:22> > > > > > > > > >

> > > > > > Date: Fri, 5 Nov 2010 15:20:37 -0700> > > Subject: STANDARD PROCESS> > To: mamadogrose@...; nsmods

> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > oK, LET ME SEE IF i can clear this up.> > > > Standard Process Whole Food Supplements and Herbs are not another " fad. " This company was started in 1929-- and is the oldest Whole Food Supplement Company in existence.

> > We don't hear about it much, the providers of these supplements have to go through extensive training in Nutrition, Whole Food Supplements, Muscle Testing for sensitivities to food, enviromental toxins, heavy metals, pesticides, and so SO much more. Each " module of training " requires a minimum of 100 hrs of classroom time. Advanced levels require more time at each level.

> > NO ONE is started on the supplements until you sit down with the Clinician, and a health history is taken. That history and Q & A is entered into a program where Standard Process evaluates it, and a " protocol " is suggested.

> > The Clinician will test your muscle reaction to the various supplements, to make sure that the supplement will be effective for you. They may find that it will work on one body organ or site, but weaken another. So with that info, the Clinician can tweak YOUR supplements to what you need.

> > They may have to do the Standard Process Liver Detox prior to starting on a protocol to address (for example) your lung issues. This Detox includes protein shakes that include the vitamins, nutrients, minerals and enyzmes that you need to help your liver clean itself out. The diet that you eat is one of raw veges the first week, steamed or baked veges the 2nd week (along with your shakes) and the 3rd week, you add back in lean meats.

> > You stop all the grains, pastas, rice, potatoes, simple carbs, sugars, fruit, sodas, caffeine and alcholol during the detox. You'll find you don't want them back in your diet-- they are a HUGE trigger of inflammation.

> > > > This program has saved my life. Since the 27th or March 2010-- I've lost 58 lbs, and the only medication I'm taking is Enalapril for blood pressure, and Levothyroid. > > > > My Effexor, my methotrexate, the plaquenil, the Remicade, the prednisone -- are gone, and no longer needed. My diabetes is gone-- no more insulin and glucophage. Thirty years of chronic pain from a back injury is at a 2-3/10 instead of the constant 8-12/10. The bone, lymph, and systemic joint pain is also decreased to a 2-3. The oramorph is gone. Don't need it.

> > > > I still have fatigue- so I do have to listen to my body and if I'm tired-- I spend a day resting. I still have sarcoidosis-- but I am improving my cardio strength, my lung capacity -- the sarc induced arthritis and body pain-- like I said, have gotten so much better. My feet and ankles still have the granulomas and osteo-arthritis-- but they are NORMAL size-- unlike this last summer where my legs from my knees down to my toes where all one size-- and that size didn't fit my flesh. **

> > > > **It took until the end of July before my legs and feet came back to normal size-- and for about 8 wks, it was as if I had a chemical burn (which I did --pharmaceutical chemicals) that went from mid-calf to my toes. The skin was bright red and hot to touch, and very painful. It was swollen 3x it's normal size.

> > Through the use of a addl supplements, and Epsom Salt Baths (and ice plunges)-- my skin decided one day to slough off all that burnt, injured flesh, and the end result has only mild edema if I spend the day on my feet, and my legs haven't looked this good since I was in my 20's! **

> > > > As far as the switch from touting the benefits of Humira, Remicade, Imuran, Prednisone, etc-- I have to say that what I know now is that they have their place. It may have to be the path some or most of the group decides to travel. That's ok. For me, I cannot recommend it without a lot of concerns. Many more than I had when I started researching these particular meds.

> > > > Will I tell someone in ACUTE flare that they shouldn't use or accept steroid treatment " NO. " ACUTE needs IMMEDIATE INTERVENTION. It also is going to cause the body pain, the extreme pain and fatigue, high blood pressure, diabetes. So please- wean off, when you get to a place where you're backsliding-- your doc should be having you go back up to the last level that worked, and stay there for awhile, then slowly attempt the wean off again.

> > > > The medications that I was on had become what was killing me. Literally killing me- I had gotten to a place where I was having heart attacks nightly, and I seriously doubt that I'd be here now-- if I hadn't made the changes I made.

> > > > Diet, changing my diet to more veges, lean meat-- and eliminating the carbs and empty calories- along with rebuilding my bodies ability to use my immunity to combat disease--instead of healthy tissue-- via these supplements-- is working for me.

> > > > It isn't a fad, it isn't snake oil, no ones going to call you, market you, or put you on the spam list from hell-- and they don't claim to CURE any disease. These supplements bring your body bak to balance (homeostasis) and the closer you get--- the better you feel.

> > > > Hope this helps,> > Tracie> >> > > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community

> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-

> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database

> >

November 10, 2010

Did you go to the website she suggested & look for a provider? When I did that, 5 names popped up within 20 mi. of me; 4 chiropractors & one RN. This is how I did it:

WWW.STANDARDPROCESS.COM

Go to patient info-- and select get a referral.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Wed, 10 Nov 2010 18:58:41 -0700Subject: Re: Healthy eating

I'm having a heck of a time finding someone who does the Standard Process Whole Food Supplement, Tracie suggested finding a Chiropractors, but I can't. I would like to go into someone who knows about it, and sit down come up with a plan?? Still looking. MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)

Thanks, Deb! Different folks have talked about ways to improve our nutrition. We haven't given it enough attention, although many of us have become convinced that it's an extremely important factor. Hopefully, this will begin a dialogue on healthy eating! Kat sent me info on a cookbook targeted for sarkies. I wish we could see a sample recipe before actually buying it. For those who are interested, here is the info. This author is associated with the Aden protocol, which seems to be very similar to the Standard Process that Tracie is using. My only concern is one of their websites claimed to be able to reverse lung damage caused by sarc. That's a red flag for me, but I'll admit that I haven't thoroughly researched the protocol. If anyone is familiar with the Aden protocol, would you give us some input--good or bad?

Dear Kat,

after 7 months of intense work on something very special, I am proud to write this email and inform you that finally, I have published the first Cookbook ever dedicated solely to sarcoidosis sufferers.

Presenting:

Sarcoidosis Freedom Cookbook

You can read all about it here: www.sarcoidosis-cookbook.com

What is Sarcoidosis Freedom Cookbook?

It is a 143 page ebook with hundreds of delicious recipes designed to avoid all the aggravating chemicals that lurk all around us. I started working on it in March this year. I did it because so many people were saying the same things about the Aden Protocol and sarcoidosis remission - they were saying that it is too hard to organize their lives to undertake such a complex task as eating for sarcoidosis remission. They were dazzled and confused by so many rules and things to keep in mind.

So I decided to take all that away.

Now, you don't have to worry about planning and endless hours of research and full time work on the right meals. This ebook will allow you to live life normally and still be proactive about your condition.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

> To: Neurosarcoidosis > Date: Sun, 7 Nov 2010 15:18:18 +0000> Subject: Re: FW: STANDARD PROCESS> > Thank you for posting this information! I've been waiting to hear how Tracie was doing and it sounds like she's doing wonderfully well!!! I've often wondered why this group doesn't discuss diet more as a means of reducing symptoms...then I think maybe I'm one of the lucky ones and just don't have Sarc as bad as most. But I can tell you that sweeteners...especially the artificial ones are terrible for me. Also red meat is a huge trigger of depression...I think maybe the uric acid??? I try to eat more veggies. I limit my meat consumption to fish or chicken. I do eat eggs and dairy in moderation. I rarely eat grains...maybe one - two slices of all natural whole grain bread per week. I try to get food that is organic or as chemical free as possible. Are my Sarc symptoms gone? Like Tracie...no, but they are better if I eat right. Do I cheat on my diet? Yes, but in very small amounts and never two days in a row. So my thoughts on the subject for those that don't want to do the whole detox thing....at least start taking at look at what you're eating. If its full of chemicals, it probably isn't helping your condition. Just my two cents worth.> > Glad you're doing better Tracie! Thanks for the update!!!> > Deb Z.> Michigan> > > > > >> > > > Tracie, thanks for explaining the process that you have been undergoing. As usual, you expressed it well. As we have said before, every body is different--reacts to disease & disorder differently, and responds to drugs & other treatments differently. We all have to learn as much as we can about the various options & then choose our path. We need to have doctors & other health care providers who are willing to be open to alternative treatments & supportive of our choices. In a perfect world, we would all have such providers. But since it's not a perfect world, we'll have to do the best we can in trying to find that support. > > > > We are not recommending that all of you stop your meds & go with a totally wholistic lifestyle. Tracie has been through just about everything a sarc patient can, and it would not be right for us to withhold this information about a program that has worked very well for her. This program requires total commitment, and I'm not ready myself to make that commitment. But I am now aware of this option & probably will explore & learn more about it. This is what we need to do with ALL of our options. It's very difficult when we are tired, depressed, in pain & can't think straight. It's so much easier to just leave the decisions to our doctors. But since we have to live with the outcomes, we really need to learn as much as we can about every treatment, including alternative treatment options. We may need an advocate to help us--a friend or family member who is willing to take on that responsibility. Final decisions should still be ours, but an advocate can help to gather the information needed for those decisions.> > > > > > Ramblin' Rose> > Moderator> > > > A merry heart is good medicine. Proverbs 17:22> > > > > > > > > > > > > > > > Date: Fri, 5 Nov 2010 15:20:37 -0700> > > Subject: STANDARD PROCESS> > To: mamadogrose@...; nsmods > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > oK, LET ME SEE IF i can clear this up.> > > > Standard Process Whole Food Supplements and Herbs are not another "fad." This company was started in 1929-- and is the oldest Whole Food Supplement Company in existence. > > We don't hear about it much, the providers of these supplements have to go through extensive training in Nutrition, Whole Food Supplements, Muscle Testing for sensitivities to food, enviromental toxins, heavy metals, pesticides, and so SO much more. Each "module of training" requires a minimum of 100 hrs of classroom time. Advanced levels require more time at each level. > > NO ONE is started on the supplements until you sit down with the Clinician, and a health history is taken. That history and Q & A is entered into a program where Standard Process evaluates it, and a "protocol" is suggested. > > The Clinician will test your muscle reaction to the various supplements, to make sure that the supplement will be effective for you. They may find that it will work on one body organ or site, but weaken another. So with that info, the Clinician can tweak YOUR supplements to what you need. > > They may have to do the Standard Process Liver Detox prior to starting on a protocol to address (for example) your lung issues. This Detox includes protein shakes that include the vitamins, nutrients, minerals and enyzmes that you need to help your liver clean itself out. The diet that you eat is one of raw veges the first week, steamed or baked veges the 2nd week (along with your shakes) and the 3rd week, you add back in lean meats. > > You stop all the grains, pastas, rice, potatoes, simple carbs, sugars, fruit, sodas, caffeine and alcholol during the detox. You'll find you don't want them back in your diet-- they are a HUGE trigger of inflammation. > > > > This program has saved my life. Since the 27th or March 2010-- I've lost 58 lbs, and the only medication I'm taking is Enalapril for blood pressure, and Levothyroid. > > > > My Effexor, my methotrexate, the plaquenil, the Remicade, the prednisone -- are gone, and no longer needed. My diabetes is gone-- no more insulin and glucophage. Thirty years of chronic pain from a back injury is at a 2-3/10 instead of the constant 8-12/10. The bone, lymph, and systemic joint pain is also decreased to a 2-3. The oramorph is gone. Don't need it. > > > > I still have fatigue- so I do have to listen to my body and if I'm tired-- I spend a day resting. I still have sarcoidosis-- but I am improving my cardio strength, my lung capacity -- the sarc induced arthritis and body pain-- like I said, have gotten so much better. My feet and ankles still have the granulomas and osteo-arthritis-- but they are NORMAL size-- unlike this last summer where my legs from my knees down to my toes where all one size-- and that size didn't fit my flesh. **> > > > **It took until the end of July before my legs and feet came back to normal size-- and for about 8 wks, it was as if I had a chemical burn (which I did --pharmaceutical chemicals) that went from mid-calf to my toes. The skin was bright red and hot to touch, and very painful. It was swollen 3x it's normal size. > > Through the use of a addl supplements, and Epsom Salt Baths (and ice plunges)-- my skin decided one day to slough off all that burnt, injured flesh, and the end result has only mild edema if I spend the day on my feet, and my legs haven't looked this good since I was in my 20's! **> > > > As far as the switch from touting the benefits of Humira, Remicade, Imuran, Prednisone, etc-- I have to say that what I know now is that they have their place. It may have to be the path some or most of the group decides to travel. That's ok. For me, I cannot recommend it without a lot of concerns. Many more than I had when I started researching these particular meds. > > > > Will I tell someone in ACUTE flare that they shouldn't use or accept steroid treatment "NO." ACUTE needs IMMEDIATE INTERVENTION. It also is going to cause the body pain, the extreme pain and fatigue, high blood pressure, diabetes. So please- wean off, when you get to a place where you're backsliding-- your doc should be having you go back up to the last level that worked, and stay there for awhile, then slowly attempt the wean off again. > > > > The medications that I was on had become what was killing me. Literally killing me- I had gotten to a place where I was having heart attacks nightly, and I seriously doubt that I'd be here now-- if I hadn't made the changes I made. > > > > Diet, changing my diet to more veges, lean meat-- and eliminating the carbs and empty calories- along with rebuilding my bodies ability to use my immunity to combat disease--instead of healthy tissue-- via these supplements-- is working for me. > > > > It isn't a fad, it isn't snake oil, no ones going to call you, market you, or put you on the spam list from hell-- and they don't claim to CURE any disease. These supplements bring your body bak to balance (homeostasis) and the closer you get--- the better you feel. > > > > Hope this helps,> > Tracie> >> > > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > >

November 11, 2010

Thanks Rose, I did that and one came up for me, about 30 mins away, I'm going to call them, my husband is urging me to check into it, He knows how much Tracie has helped us, and I keep him informed of her, when she was really sick, he would ask me about her, so now that she is off the meds and doing so much better, he has been urging me to do the same. I wouldn't mind getting off some of these meds. I'm having more increase lower GI problems after my Remicade for a few days. So I will call this ONE person who should up.

Thanks for this information, sometimes I go to websites and just look lost? How are you feeling these days? MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too

is just today:)

Did you go to the website she suggested & look for a provider? When I did that, 5 names popped up within 20 mi. of me; 4 chiropractors & one RN. This is how I did it:

WWW.STANDARDPROCESS.COM

Go to patient info-- and select get a referral.

Ramblin' RoseModerator

A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: mebramer@...Date: Wed, 10 Nov 2010 18:58:41 -0700

Subject: Re: Healthy eating

I'm having a heck of a time finding someone who does the Standard Process Whole Food Supplement, Tracie suggested finding a Chiropractors, but I can't. I would like to go into someone who knows about it, and sit down come up with a plan?? Still looking.

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)

Thanks, Deb! Different folks have talked about ways to improve our nutrition. We haven't given it enough attention, although many of us have become convinced that it's an extremely important factor. Hopefully, this will begin a dialogue on healthy eating! Kat sent me info on a cookbook targeted for sarkies. I wish we could see a sample recipe before actually buying it. For those who are interested, here is the info. This author is associated with the Aden protocol, which seems to be very similar to the Standard Process that Tracie is using. My only concern is one of their websites claimed to be able to reverse lung damage caused by sarc. That's a red flag for me, but I'll admit that I haven't thoroughly researched the protocol. If anyone is familiar with the Aden protocol, would you give us some input--good or bad?

Dear Kat,

after 7 months of intense work on something very special, I am proud to write this email and inform you that finally, I have published the first Cookbook ever dedicated solely to sarcoidosis sufferers.

Presenting:

Sarcoidosis Freedom Cookbook

You can read all about it here: www.sarcoidosis-cookbook.com

What is Sarcoidosis Freedom Cookbook?

It is a 143 page ebook with hundreds of delicious recipes designed to avoid all the aggravating chemicals that lurk all around us. I started working on it in March this year. I did it because so many people were saying the same things about the Aden Protocol and sarcoidosis remission - they were saying that it is too hard to organize their lives to undertake such a complex task as eating for sarcoidosis remission. They were dazzled and confused by so many rules and things to keep in mind.

So I decided to take all that away.

Now, you don't have to worry about planning and endless hours of research and full time work on the right meals. This ebook will allow you to live life normally and still be proactive about your condition.

Ramblin' RoseModerator

A merry heart is good medicine. Proverbs 17:22

> To: Neurosarcoidosis

> Date: Sun, 7 Nov 2010 15:18:18 +0000> Subject: Re: FW: STANDARD PROCESS> > Thank you for posting this information! I've been waiting to hear how Tracie was doing and it sounds like she's doing wonderfully well!!! I've often wondered why this group doesn't discuss diet more as a means of reducing symptoms...then I think maybe I'm one of the lucky ones and just don't have Sarc as bad as most. But I can tell you that sweeteners...especially the artificial ones are terrible for me. Also red meat is a huge trigger of depression...I think maybe the uric acid??? I try to eat more veggies. I limit my meat consumption to fish or chicken. I do eat eggs and dairy in moderation. I rarely eat grains...maybe one - two slices of all natural whole grain bread per week. I try to get food that is organic or as chemical free as possible. Are my Sarc symptoms gone? Like Tracie...no, but they are better if I eat right. Do I cheat on my diet? Yes, but in very small amounts and never two days in a row. So my thoughts on the subject for those that don't want to do the whole detox thing....at least start taking at look at what you're eating. If its full of chemicals, it probably isn't helping your condition. Just my two cents worth.