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Maggi,

I asked the same question at clinic b/c I thought food might get

stuck there :) He said that from peristalsis (movement in the

intestinal wall) it would automatically not. Sorry I cant help you

with the other question.

Jen

5/24/00

70 lbs gone...yeah

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  • 11 months later...

> First of all -

>

> Can anyone tell me what withdrawal symptoms will look like and what

> symptoms to look for if we have an " oops " ? I am assuming hellish

> behaviors worse than what we have now. :) I know nothing

> about " addictions " so I am sorta in the dark, but definitely

willing

> to try this out.

***

Hi Holly.

Well, yes, you will be seeing what you have seen up to now when on g

& c. The bad things I saw in my son were: endless tantruming,keeping

from eating (unless he would get what he wanted: G & C),extremely

hyper, and so on on this matter. :o)

When he has an infraction, he will go " up the walls " and will never

sleep, giggles like crazy and wakes up at night etc.

I think overall he'd drink more too, but that's not a thing really, I

believe. Also his stools started looking different, and did not get

better right away but worsen; then all went back to normal.

I have heard of kids searching for G & C in other things, like dog food

(pretty desperate); it's like for a drug addicted to try and find a

way to get " stoned " out of lighter fluid in those " bic " lighters or

the gas from the hair spray. Of course, your son will not look for

drugs, just G & C containing foods; so read labels carefully, and

always doubt yourself twice when you find something he really likes,

at least in the beginning.

***

> Second -

>

> How will taking all gluten and casien out of the diet help sleep?

We

> were using melatonin for two weeks and once I quit milk the

melatonin

> quit working too. I am thinking that juice is the culprit. So I

now

> took that away too. At least way before sleep times for my

> daughter. Doesn't seem to affect my son.

***

You took away milk, so you took away calcium. Calcium is a

big " soporifer " (sp?); so you need to supplement that. Calcium,

Magnesium, Folic acid, Zinc, are all great help for hyperactivity. if

you start any supplement, space them two to three weeks apart to be

able to confront results before and after the use of a specific

supplement.

We did melatonin too for seven weeks, and we still supplemeted so

that worked fine for us. But my son has a problem with highly

phenolic foods, so I cut those out after lunchtime, and that helps in

the evening (giggling and hyper has bettered and melatonin started

working).

***

> Third (sorta off the subject)-

>

> Does anyone know if g/c allergies can look like childhood

diabetes?

> Excessive thirst, bed wetting, moodiness, zoning (recent onset -

> coincides with new preschool)? This isn't for me...my SIL. She is

> having her son tested for diabetes (not that I think it is a bad

> idea), but he had to have soy as a baby and has a TON of

allergies.

> They don't think he has food allergies even though he has pollen,

> dander, etc. allergies and had ecsema problems as a baby. Just

> curious if anyone has any input or thoughts.

***

I am not sure of the connection between diabetes and ASD or GFCF

diet. But I always thought of being dehydrated for his first two

yrs of life before the dx, b/c he would never ask for anything. Now

he drinks a lot. the problem with that is if he drinks but not

urinate aenough; than that's abad symptom, b/c he takes in liquids,

but the liquids don't come out: tho, you should also notice water

retention in that case.

My understanding is, that soy is under study (or so) because it

showed as having the same amount of peptides that G & C have, thus the

same effects on the ASD brain. We try to avoid soy, tho we have not

eliminated it completely.

Hope this is of some help. :o)

Cristina-WA

Proud mom to 4.9 yo ASD, & 2.1 yo NT twins.

***

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> First of all -

>

> Can anyone tell me what withdrawal symptoms will look like and what

> symptoms to look for if we have an " oops " ? I am assuming hellish

> behaviors worse than what we have now. :) I know nothing

> about " addictions " so I am sorta in the dark, but definitely willing

> to try this out.

My son will twirl sticks in front of his eyes and have the giggles all

day long. This does not occur when I use enzymes with infractions. I

buy my enzymes from this url

http://www.houstonni.com/

>

> Second -

>

> How will taking all gluten and casien out of the diet help sleep?

We

> were using melatonin for two weeks and once I quit milk the

melatonin

> quit working too. I am thinking that juice is the culprit. So I

now

> took that away too. At least way before sleep times for my

> daughter. Doesn't seem to affect my son.

Milk, juice, and other high phenol items will make my son awake all

night. Here is my phenol information

http://home.pacbell.net/cscomp/phenol.htm

>

> Third (sorta off the subject)-

>

> Does anyone know if g/c allergies can look like childhood diabetes?

> Excessive thirst, bed wetting, moodiness, zoning (recent onset -

> coincides with new preschool)?

For my family, food allergies cause thirst, moodiness, and zoning out.

Mostly the high phenol foods from the link above.

Dana

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Thanks Dana and ...

Holly

> > First of all -

> >

> > Can anyone tell me what withdrawal symptoms will look like and

what

> > symptoms to look for if we have an " oops " ? I am assuming hellish

> > behaviors worse than what we have now. :) I know nothing

> > about " addictions " so I am sorta in the dark, but definitely

willing

> > to try this out.

>

> My son will twirl sticks in front of his eyes and have the giggles

all

> day long. This does not occur when I use enzymes with

infractions. I

> buy my enzymes from this url

>

> http://www.houstonni.com/

>

>

> >

> > Second -

> >

> > How will taking all gluten and casien out of the diet help

sleep?

> We

> > were using melatonin for two weeks and once I quit milk the

> melatonin

> > quit working too. I am thinking that juice is the culprit. So I

> now

> > took that away too. At least way before sleep times for my

> > daughter. Doesn't seem to affect my son.

>

> Milk, juice, and other high phenol items will make my son awake all

> night. Here is my phenol information

>

> http://home.pacbell.net/cscomp/phenol.htm

>

>

> >

> > Third (sorta off the subject)-

> >

> > Does anyone know if g/c allergies can look like childhood

diabetes?

>

> > Excessive thirst, bed wetting, moodiness, zoning (recent onset -

> > coincides with new preschool)?

>

> For my family, food allergies cause thirst, moodiness, and zoning

out.

> Mostly the high phenol foods from the link above.

>

> Dana

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  • 1 month later...

Hi Judy,

You do need to make a reservation at the Guest Residence. I made mine for

the day I was told I would be out of the hospital. I was not released that

day, but my husband went there and stayed that night anyway instead of where

he had been staying. I was only going to stay for a couple days and had to

extend it a few more, and there was no problem. There were very easy to work

with.

I don't know anything about private rooms at the hospital. I shared a room.

Sheri

Lap/open DS 9/28/01

Dr Herron/Mr Sinai/NYC

-39 lbs

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Hi, Judy.

I'm doing the whole Sinai Hospital/Guest Residence experience as I

type.

The private room at Sinai is worth every cent of the $300.00 per day

extra charge. Not only that, but TV and phone activation are FREE in

private rooms! <smirk> The hospital will make you pay for the

private room nights BEFORE you are admitted to the room. Yes, pay

with cash, check, or credit card UP FRONT. If you still want the

private room, call the admissions department at the hospital to find

out how to reserve it.

I never made an advance reservation for my private room last week.

The day of my surgery (last Tuesday) I was put into a room with a

woman who was (thankfully) not there until the next morning. But

when she came, she made a LOT of moaning and noise, and her daughter

was in and out and in and out and kept looking at me, and so on. At

that point I got my private room for the next couple nights. This

worked well not only because of the disturbance factor, but also

because hubby could have a cot in the room right next to my hospital

bed. He stayed with me the entire time I was in the hospital. He

showered there, too, and the nurses brought him delicious (NOT!)

hospital food.

Make reservations as far in advance as possible at the Guest

Residence. You have to give them 48 hours cancellation notice,

although the manager, Albert, might be flexible considering surgery

days and all. Since my original plan was to have hubby stay at the

Residence while I was in the hospital, I was double paying for the

two nights that he was with me in the hospital cot. Oh well. Didn't

work out so badly, I guess, because I brought a lot of shit with me

and hubby was able to go back and forth from the Residence to the

hospital.

Haven't tried the Newton since the Residence is so close to the

hospital. Your mom should stay at the Guest Residence while you're

in the hospital, and then when you're discharged you can move right

into that room with her, if you are planning to stay in town for the

recommended week's worth of time to see your doctor post-op.

Best,

> I have a surgery date of January 16th at Mt. Sinai. I have a few

questions.

> I asked for a private room but forgot to ask how much that will

cost me out

> of pocket. Does anyone know? I also was wondering how the guest

residence

> works there. Do you make reservations and if so how far in

advance? I won't

> know how long I will be in the hospital or how long I will stay at

their

> guest residence do you go day by day or what? I'm obviously a

little

> nervous now that I have a date for the surgery. I just want to get

> everything all lined up in advance. Also, my mom will be staying

at the

> Newton Hotel for the first few days in NYC has anyone stayed there

before?

>

> Thanks for all or any advice

> Judy

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Hey, Judy.

Basic rooms with one double bed are 155.00; two double beds, 175.00;

then there are suites with stoves for around 200.00 and up. All

rooms, however, have kitchenettes: microwave, coffee maker, toaster,

small refrigerator/freezer. This is the coolest thing about staying

at this place, especially after surgery. And, for Manhattan, you

can't beat the price.

Best,

> ,

>

> The private room in the hospital was $300.00 per night? How much

was it per

> night at the Guest Residence?

>

> Judy

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Hi!!

Is there a charge for a room at the residence inn at

Mt Sinai? Also can you get a room with 2 double beds?

My sister and DH want to be with me when I go in for

my surgery. Hope it will be soon?

=====

Debi-NH

Consult NYC 11/29/01

Dr Herron/Mt Sinai

BMI 63

__________________________________________________

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  • 2 years later...
Guest guest

I had surgery April 2, 2004 and so far I have lost 53 pounds. Am I

right on schedule or should i have lost more? I started at 271 and

now i am 218. I cant seem to lose any weight the past 3 weeks. I

went through a period of gettin sick when i ate the past 3 weeks and

had a upper GI study and the doc said everything is ok. when am i

going to lose again?! also my hair has been falling out so much the

past 3 days. any suggestions?! why is it falling out?! is there

anything i can do?! IM ONLY 18 I DONT WANT TO LOSE MY HAIR!!! please

help

Jenipooh85@...

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