checking in

[Guest guest]

Helen, It's good to hear from you, I'm sorry your in the hospital and having so much trouble.  I will keep you in my prayers.  Blessings, Marla

HELLO GROUP.I HAVEN'T RESPONDED MUCH LATELY.I AM PRESENTLY IN THE HOSPITIAL IN MEMPHIS.METHODIST SOUTH HOSPITAL.I HAVE BEEN HOSPITIALIED SINNCE WED,JUNE 16TH.THE LAST TWO YEARS HAVE BEEN SPENT TRYING GET CHEMO TO GET MY BLOOD PLATETTES UP.NOTHING THUS FAR HAS WORKED.NO ONE SEEM TO KNOW WHAT IS CAUSING THE TO DROP.AS SOME OF YOU MA KNOW I HAVE SARCOIDOSIS IN FOUR PARTS OF MY BODY.THE EYES,BRAIN,THIRD STAGE LUNGS AND SARCOID-ARTHRITIS.I AM IN NEED OF LAZER SURGERY.I HAVE VASCULAR ISSUES WITH BOTH LOWEER LEGS.THE BLOOD ISN;T FOLLOWING PROPERLY THROUGH THE VEIN NOR VESSEL,NOR IS IT FOLLOWING CORRECTLY FROM THE MAIN VEIN THAT GOES TO MY GROIN IN BOTH LEGS.AS A RESULT OF THIS INFORMATION MY HEART DOCTOR DECIDED TO DO HIS TESESS AND A STRESS TEST.HE SAW A SHADOW AROUND MY HEAERT AND PLAN TO DO A A PROCEDURE TO MAKE

SURE THERE IS NO BLOCKAGE.IF SO HE PLAN TO CORRECT IT.THE ONLY CONCERNS I HAVE IS BEIND PUT TO SLEEP THREE TIMES.EACH LEG MUST ME DONE A WEEK APART

RT.NO ONE WILL TOUCH ME TO PREFORM ANY NEEDED SURGERY UNTIL MY PLATELETTS REMAIN HIGHER THAN 53 AND SOMETIMES LOWER.

 

I CAME TO THE EMERGENCY ROOM BECAUSE I WAS HURTING ALL OVER FROM THE SARCOID-ARTHRITIS.I TOOK A B.C POWDER BECAUSE I COULDN'T FIND MY TYLENOLS DESPITE EMPTING MY MEDICINE BAG FOUR TIMES.I WENT TO WEST CLINIC TO GE MY INFUSION OF CHEMO FOR MY PLATETTES.I CAME HOME SIX HOURS LATER AND TOOOK A HOT BATH DESPITE BEING DIABETIC.THE PAIN HAD BEEN GOING ON FOR OVERTWENTY FOUR HOURS AND I WAS DESPERATE FOR IT TO STOP.HAD MY PRIVATE DOCTOUR;S OFFICE BEEN OPEN I WOULD HAVE GONE TO GET A TEREDOL SHOT.

 

I LATER FOUND NY TYLENOL IN THE SAME BAG I EMPTIED FOUR TIME.AFTER I GOT OUT OF THE TIME I SAW RED CIRCLE MARKS ALL OVER BOTHLEGS AND THIGHS.THE BLOOD WAS CONTAINED TO THE INSIDE.THAT IS ANOTHER I WENT TO THE EMERGENCY ROOM.THE EMERGENCEY ROOM STAFF PUT ME ON A HEART MONITOR,PUT ME ON STEROIDS VIA IV AND ADMITTED ME THEY LATER GAVE ME SOMETHING FOR MY PAIN.IT HASN'D BEEN BACK THE STAFF WAS SURPRISED THAT I WASN'T AWARE OF MY RAPID HEART BEAT AND MY ACCELERATED HEART BEAT.THE PAIN OVERTOO EVERTING.THANK GOD FOR THE BONE PAIN OTHERWISE I WOULDN'T HAVE KNOW MY HEAARY AND LUNGS WERE IN TROUBLE.

 

PLEASE KEEP ME IN YPOR  PRAYERS.I WILL WISHES YOU ALL HAPPY BIRRTHDAYS AND TRY TO RSPOND WHEN I CAN.

 

 

HELEN WALKER

[Guest guest]

Helen,

Sorry to hear you have been so sick! I hope they can get you feeling better VERY soon! I'll keep you in my prayers!

Dawn from NY

To: Neurosarcoidosis Sent: Mon, June 21, 2010 10:15:03 PMSubject: CHECKING IN

HELLO GROUP.I HAVEN'T RESPONDED MUCH LATELY.I AM PRESENTLY IN THE HOSPITIAL IN MEMPHIS.METHODIST SOUTH HOSPITAL.I HAVE BEEN HOSPITIALIED SINNCE WED,JUNE 16TH.THE LAST TWO YEARS HAVE BEEN SPENT TRYING GET CHEMO TO GET MY BLOOD PLATETTES UP.NOTHING THUS FAR HAS WORKED.NO ONE SEEM TO KNOW WHAT IS CAUSING THE TO DROP.AS SOME OF YOU MA KNOW I HAVE SARCOIDOSIS IN FOUR PARTS OF MY BODY.THE EYES,BRAIN,THIRD STAGE LUNGS AND SARCOID-ARTHRITIS.I AM IN NEED OF LAZER SURGERY.I HAVE VASCULAR ISSUES WITH BOTH LOWEER LEGS.THE BLOOD ISN;T FOLLOWING PROPERLY THROUGH THE VEIN NOR VESSEL,NOR IS IT FOLLOWING CORRECTLY FROM THE MAIN VEIN THAT GOES TO MY GROIN IN BOTH LEGS.AS A RESULT OF THIS INFORMATION MY HEART DOCTOR DECIDED TO DO HIS TESESS AND A STRESS TEST.HE SAW A SHADOW AROUND MY

HEAERT AND PLAN TO DO A A PROCEDURE TO MAKE SURE THERE IS NO BLOCKAGE.IF SO HE PLAN TO CORRECT IT.THE ONLY CONCERNS I HAVE IS BEIND PUT TO SLEEP THREE TIMES.EACH LEG MUST ME DONE A WEEK APART

RT.NO ONE WILL TOUCH ME TO PREFORM ANY NEEDED SURGERY UNTIL MY PLATELETTS REMAIN HIGHER THAN 53 AND SOMETIMES LOWER.

I CAME TO THE EMERGENCY ROOM BECAUSE I WAS HURTING ALL OVER FROM THE SARCOID-ARTHRITIS.I TOOK A B.C POWDER BECAUSE I COULDN'T FIND MY TYLENOLS DESPITE EMPTING MY MEDICINE BAG FOUR TIMES.I WENT TO WEST CLINIC TO GE MY INFUSION OF CHEMO FOR MY PLATETTES.I CAME HOME SIX HOURS LATER AND TOOOK A HOT BATH DESPITE BEING DIABETIC.THE PAIN HAD BEEN GOING ON FOR OVERTWENTY FOUR HOURS AND I WAS DESPERATE FOR IT TO STOP.HAD MY PRIVATE DOCTOUR;S OFFICE BEEN OPEN I WOULD HAVE GONE TO GET A TEREDOL SHOT.

I LATER FOUND NY TYLENOL IN THE SAME BAG I EMPTIED FOUR TIME.AFTER I GOT OUT OF THE TIME I SAW RED CIRCLE MARKS ALL OVER BOTHLEGS AND THIGHS.THE BLOOD WAS CONTAINED TO THE INSIDE.THAT IS ANOTHER I WENT TO THE EMERGENCY ROOM.THE EMERGENCEY ROOM STAFF PUT ME ON A HEART MONITOR,PUT ME ON STEROIDS VIA IV AND ADMITTED ME THEY LATER GAVE ME SOMETHING FOR MY PAIN.IT HASN'D BEEN BACK THE STAFF WAS SURPRISED THAT I WASN'T AWARE OF MY RAPID HEART BEAT AND MY ACCELERATED HEART BEAT.THE PAIN OVERTOO EVERTING.THANK GOD FOR THE BONE PAIN OTHERWISE I WOULDN'T HAVE KNOW MY HEAARY AND LUNGS WERE IN TROUBLE.

PLEASE KEEP ME IN YPOR PRAYERS.I WILL WISHES YOU ALL HAPPY BIRRTHDAYS AND TRY TO RSPOND WHEN I CAN.

HELEN WALKER

[Guest guest]

Helen

My Family and I are saying many prayers for you in hopes you get relief soon.

Take care and Rest as much as you can.

Jackie

CHECKING IN

HELLO GROUP.I HAVEN'T RESPONDED MUCH LATELY.I AM PRESENTLY IN THE HOSPITIAL IN MEMPHIS.METHODIST SOUTH HOSPITAL.I HAVE BEEN HOSPITIALIED SINNCE WED,JUNE 16TH.THE LAST TWO YEARS HAVE BEEN SPENT TRYING GET CHEMO TO GET MY BLOOD PLATETTES UP.NOTHING THUS FAR HAS WORKED.NO ONE SEEM TO KNOW WHAT IS CAUSING THE TO DROP.AS SOME OF YOU MA KNOW I HAVE SARCOIDOSIS IN FOUR PARTS OF MY BODY.THE EYES,BRAIN,THIRD STAGE LUNGS AND SARCOID-ARTHRITIS.I AM IN NEED OF LAZER SURGERY.I HAVE VASCULAR ISSUES WITH BOTH LOWEER LEGS.THE BLOOD ISN;T FOLLOWING PROPERLY THROUGH THE VEIN NOR VESSEL,NOR IS IT FOLLOWING CORRECTLY FROM THE MAIN VEIN THAT GOES TO MY GROIN IN BOTH LEGS.AS A RESULT OF THIS INFORMATION MY HEART DOCTOR DECIDED TO DO HIS TESESS AND A STRESS TEST.HE SAW A SHADOW AROUND MY HEAERT AND PLAN TO DO A A PROCEDURE TO MAKE SURE THERE IS NO BLOCKAGE.IF SO HE PLAN TO CORRECT IT.THE ONLY CONCERNS I HAVE IS BEIND PUT TO SLEEP THREE TIMES.EACH LEG MUST ME DONE A WEEK APART

RT.NO ONE WILL TOUCH ME TO PREFORM ANY NEEDED SURGERY UNTIL MY PLATELETTS REMAIN HIGHER THAN 53 AND SOMETIMES LOWER.

I CAME TO THE EMERGENCY ROOM BECAUSE I WAS HURTING ALL OVER FROM THE SARCOID-ARTHRITIS.I TOOK A B.C POWDER BECAUSE I COULDN'T FIND MY TYLENOLS DESPITE EMPTING MY MEDICINE BAG FOUR TIMES.I WENT TO WEST CLINIC TO GE MY INFUSION OF CHEMO FOR MY PLATETTES.I CAME HOME SIX HOURS LATER AND TOOOK A HOT BATH DESPITE BEING DIABETIC.THE PAIN HAD BEEN GOING ON FOR OVERTWENTY FOUR HOURS AND I WAS DESPERATE FOR IT TO STOP.HAD MY PRIVATE DOCTOUR;S OFFICE BEEN OPEN I WOULD HAVE GONE TO GET A TEREDOL SHOT.

I LATER FOUND NY TYLENOL IN THE SAME BAG I EMPTIED FOUR TIME.AFTER I GOT OUT OF THE TIME I SAW RED CIRCLE MARKS ALL OVER BOTHLEGS AND THIGHS.THE BLOOD WAS CONTAINED TO THE INSIDE.THAT IS ANOTHER I WENT TO THE EMERGENCY ROOM.THE EMERGENCEY ROOM STAFF PUT ME ON A HEART MONITOR,PUT ME ON STEROIDS VIA IV AND ADMITTED ME THEY LATER GAVE ME SOMETHING FOR MY PAIN.IT HASN'D BEEN BACK THE STAFF WAS SURPRISED THAT I WASN'T AWARE OF MY RAPID HEART BEAT AND MY ACCELERATED HEART BEAT.THE PAIN OVERTOO EVERTING.THANK GOD FOR THE BONE PAIN OTHERWISE I WOULDN'T HAVE KNOW MY HEAARY AND LUNGS WERE IN TROUBLE.

PLEASE KEEP ME IN YPOR PRAYERS.I WILL WISHES YOU ALL HAPPY BIRRTHDAYS AND TRY TO RSPOND WHEN I CAN.

HELEN WALKER

[Guest guest]

I totally know of those nerves in the brain affecting things, My doc says the granulomas that form from this disease, block the message from one nerve to another, I too have trouble walking, and thinking, I just started noticing that if I've done too much, I start shaking, the walking is my big problem, I was standing today for about an hour, and fell right off my shoes:)  I have trouble swallowing sometimes too, and sometimes water/food just flies right out of my mouth, like instead of making it go down, the brain says spit it out, this is not a fun thing to have, believe me.

 I'm sorry you have to deal with this, but it's good to see you checking in. Marla

 

I don't remember when was the last time I checked in. This year has really been rough. I have been diagnosed with esophgeal dismoltility.T have a hard time swallowing. I have been having a real hard time breathing. My Pulmn. Dr. thinks that my neuro- sarc is affecting my lungs. He said something about the nerves that goes from the brain. Hs anyone heard of this? I also have a hard time walking , I have those shaking spells where I fall. Anyone have any suggestions?

I know I have missed a lot of birthdays and post, I am sorry. I hope to feel better soon.

[Guest guest]



Hi all,

I am having computer problems again.........will check in later

today if I can. Taking hubby to ville to Doctor for surgery.

Hope all is well with each of you.

Hugs, DarleneNS Co-Owner/Moderator