Vitamin D

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Different folks respond differently to the disease process, just as we respond differently to the various treatments. I've had no problems with vit D or calcium (some produce too much calcium, in the blood or in the urine). Even my sarc doc recommends I take calcium supp with vit D, as I'm not taking any other bone-protectant meds. I'm 61 & although my bone density dropped quite a bit after 2 years of Pred, since it was excellent to begin with, it's still in the low-normal range. The Pred wrecked my teeth, however, and I'm still having lots of dental problems. I would discuss this with your neuro or primary care provider; they can assess your individual status, labs, etc. Let us know how your doctor visit went.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

> To: Neurosarcoidosis > Date: Thu, 7 Oct 2010 16:48:35 +0000> Subject: Re: New to all of this.> > Why doesn't the D and Sarc. get along? I am taking alot - 50,000 units every other day for 10 days then once a week. I watched a really interesting topic on you tube about the great stuff vitamin D3 can do for people?> > I see the neur. today. My vision so far is coming back a lot better in my left eye (1 month on the pred.) but still on 100 mg per day of the pred. Not sure what he will recommend.> > Thanks for any information - I am specifically interested in more holistic ideas and dietary ideas. I am on the Inflammation Free Diet and over all health feel more energetic than I have in a long time.> > > > >> > No scarey stuff, but Vitamin D and Sarc don't get along. Alot of us have > > trouble with sun exposure because of this. There are many options other than > > prednisone when you get more stable. My neuro also recommended Lipoic Acid to > > help with the neuro-nerve damage Sarc does. There are others in this group who > > have specifically had issues with their eyes, and they can give a great deal of > > useful info. I'm so sorry you have needed to come to our group, but > > Welcome...you are among friends.> > > > > > > > > > ________________________________> > > > To: Neurosarcoidosis > > Sent: Sun, October 3, 2010 7:53:08 PM> > Subject: New to all of this.> > > >  > > Hi,> > > > I am new to all of this....I just finished my master's degree in teaching in > > May. In July I got laid off from my teaching job (I worked with sexual offenders > > ages 10 - 20). I began to work on my resume to look for work when I woke up with > > almost no sight in my left eye. This was really bad since my other eye (right > > eye) has bad astigmatism and I am almost blind in that eye. I was on IV steroids > > for 3 days and vision in left eye got better...but a week later (off steroids)my > > eye started to hurt and then my eye lid started to droop. Went back to eye > > doctor who said my vision was worse than when I started. He got me in with a > > neur. who gave me an MRI and CT. He and the radiologist disagreed with my MRI, > > doctor says I have NS. My B and D vitamins he says are low and my CRP is 12.5 I > > am on 100 mg of Pred. (steroids) a day now for the last month. My eye droop is > > almost gone, my vision is coming back...I have recently had tingling in my hands > > and feet on and off during the day. I am not really sure I have NS...I don't > > want to have it that is for sure. I am a bit nervous...reading everything seems > > to be overwhelming and I want to know if I am doing all that I need to do. I am > > taking B6 and D3 - on the Inflammation Free diet and supplementing also with > > Fish oil, and Acai. The steroids hardly bother me as I get up early to take it > > and have been exercising everyday = along with eating right. If you respond > > please don't scare me with worse case scenarios - I live in Wisconsin and am > > seeing an eye doctor and an neurologist. Is there anything I need to be doing > > right away or anything I need to know. This all started on Aug. 24th> >> > > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > >