Re: Orofacial Pain Center

[Guest guest]

Wow, , what great news from your OD! Sorry to hear about your

continuous tongue pain - does this new Dr. know why you are in such

pain? I've never heard of a painful but numb tongue before - maybe

they'll name this phenomenon after you and you'll go down in history;

too bad you couldn't be famous for something good and positive

though. Take care - I'm sure this new guy will find the answer to the

problem and really fast too. ~~~ Diane

> Hi everyone

>

> Time for my update. I am still having a great deal for pain with my

> numb tongue. I Saw a new Dr yesterday. Orofacial pain specialist,

this

> is the only clinic of it's kind in the world. This is great for me.

We

> had a 2 hour appt. He has put me on another nerve blocker and I am

to

> rinse with lidocaine 4 times a day. The fun thing about this is it

> makes everything numb that isn't numb already. It does nothing for

my

> tongue pain. He was very honest and said that this is just going to

> have to be keep trying things until maybe something works. It's a

> pretty good bet I'm going to be in a medical book at some point.

>

> My very good new is that my surgery wire is gone, I have anormal

wire

> on now and the OD said next month the fine tuning and in Aug the

> braces will come off. I cried, and had all the gals in theoffice

> crying for me. The OD said we could keep them on longer if it makes

me

> that sad. Oh he's a funny guy.

>

> My teeth are perfect and that makes me very happy,having said that

> it's hard to be happy when I'm having so much pain.

>

> My best to all of you.

> Michele

[Guest guest]

Michele,

I'm sorry to hear that your pain is so bad. It sounds like you're in

the right place to get the best help possible. I hope that your new

doctor is able to help you.

Take care,

Carol

> Hi everyone

>

> Time for my update. I am still having a great deal for pain with my

> numb tongue. I Saw a new Dr yesterday. Orofacial pain specialist,

this

> is the only clinic of it's kind in the world. This is great for me.

We

> had a 2 hour appt. He has put me on another nerve blocker and I am

to

> rinse with lidocaine 4 times a day. The fun thing about this is it

> makes everything numb that isn't numb already. It does nothing for

my

> tongue pain. He was very honest and said that this is just going to

> have to be keep trying things until maybe something works. It's a

> pretty good bet I'm going to be in a medical book at some point.

>

> My very good new is that my surgery wire is gone, I have anormal

wire

> on now and the OD said next month the fine tuning and in Aug the

> braces will come off. I cried, and had all the gals in theoffice

> crying for me. The OD said we could keep them on longer if it makes

me

> that sad. Oh he's a funny guy.

>

> My teeth are perfect and that makes me very happy,having said that

> it's hard to be happy when I'm having so much pain.

>

> My best to all of you.

> Michele

[Guest guest]

Michele,

Even though I haven't posted back to you in a while I wanted you to

know that I have often thought of you and prayed that your doctors

would find a cure for your tongue pain/numbness or that your tongue

would eventually reawaken. Am still keeping my fingers crossed for you

but I'm glad to hear that at least you get some satisfaction by having

your braces taken off soon. You've been through so much. You deserve a

proper pick me up and finally being able to show off that pearly white

smile sounds grand to me. And I think I will cry the day they take the

braces off of me too. They seem to have been a permanent fixture of my

life since I was born. I know I'm exaggerating but you know what I mean.

Get well soon and keep us posted on your progress with the tongue pain.

Sending you a huge hug,

Sara