intro

November 13, 2003

congratulations on your success and welcome. I am originally from your

neck of the woods. My kids were born in Abington Hospital.

Fay Bayuk

**300/169

10/23/01

Dr.

Open RNY 150 cm

Click for My Profile

http://obesityhelp.com/morbidobesity/profile.phtml?N=Bayuk951061008

January 22, 2004

Welcome back.

Your posts were missed... we're stronger with you here.

Keltie

3yr post op, and white knuckling it

Intro

Hey there peeps,

I'm not new, but returning. Still have to do the introduction though!

RNY April 2001, lost 160lbs to goal, gained back 25-30 (depending on the

day) recently and holding...

Gaining back the 30 isn't a horrible thing, cause I had gotten that

" lollipop head " look at the last 10lbs of weight loss. I just don't want it

to get any higher and I'm back on the lists to keep my motivation going.

Those of you who have been staying away from carbs and sugars post-op BLESS

YOU AND KEEP IT UP!!

Once I let something slip past often enough, I lost the dumping thing and

boy did it go to hell in a handbasket fast after that!

I'm back on the protein shakes, eating low-glycemic foods and tons of

veggies and chicken and fish, and I feel a ton better, and after a week of

no sugar, the dumping is back (gee, who ever thought we'd cheer for

nausea?!) Woot!

Anyway, this, the Protein list and SB list rock and I'm glad to see so many

people are still here!!!

October 4, 2005

Hi ,

I am not suggesting you do something you don't want to do, but

please know that the orthognathic surgery that existed when your

Mother was younger is a far cry from what is available today. There

are some issues to be aware of for sure, and looking though a few

weeks of posts on this board would help you see what some of those

are, but for the most part, OS can help prevent further problems

caused by the current misalignment and malocclusion. Braces alone

will not correct an underlying skeletal deformity. It is sort of

like putting a bandaid on a severed artery. It might slow things

down, but it doesn't correct anything. The problem still exists.

For many of us, the nose problem is related to the jaw problem. And

correcting the lower and upper septum is all related to repairing

the lower part of the face structure. I am having a lower septal

repair performed with the jaw surgery, and will have a secondary

surgery to repair the upper septal region and for a

functional/cosmetic rhinoplasty. It is part of the underlying

problem.

So what I am suggesting, is that before you dismiss the surgery,

find out some more information on where OS is now. It is a process

and is invasive, but it has much better outcomes and less invasive

surgeries than it did even 15 years ago. They have come a long long

way. Maybe do some research and sit on the idea a while. And go to

some more consults too. Hearing a similar pronouncement from

another OD or two might give you a better balanced professional

assessment. Or if two or more OD's say you don't need jaw surgery,

you would have that to consider as well.

It is a hard step to take - it was for me too. I wish you luck in

looking at it with research and an objective view. You are at the

head of your class, so I know you have a good ability to do this.

Good luck with your research!

Hugs,

Fran

> Hi everyone!

>

> I just stumbled onto orthognathic surgery yesterday...so I'm really

> new at this.

>

> I had orthodontics when I was younger, but I had issues with being

a

> slobbering mess, in addition to having giant glasses, being the

> smartest kid in the class, the poorest, the most shy, and a speech

> impediment (which speech therapy more or less cured). So I wasn't

> keen on adding to my mess.

>

> I went for an orthodontic consultation last year or so, and the dr

> told me that the only way to fix my overbite was to take out

chunks of

> my jaw and use the invisalign pieces as well. My mom had the same

> surgery when she was younger, which she believes led to loss of

some

> of her teeth due to the jaw trauma. I refused to get this surgery

> done, and that was that.

>

> Now once again, I'm on the orthodontic path. I'd really like to

get

> my teeth and my nose fixed, but I have to figure out the timeline!

> I'm working on finding a different orthodontist to go to for a

> consultation; NOT going back to the one who insisted on the jaw-

chunk

> surgery. I'm in the Philadelphia area. Any recommendations?

>

> Thanks,

>

October 4, 2005

Hi Fran,

Thanks for the response. I wasn't very clear in the description of my

mom's surgery, and the surgery that the first orthodontist

suggested--I'm not sure what it's called, but it basically involved

sawing out a chunk of my jaw and removing teeth--not realigning the

jaw. I'm definitely looking into the ortho surgery--and NOT into the

jaw-chunk removal surgery. Hopefully that makes sense now.

Thanks!

> Hi ,

> I am not suggesting you do something you don't want to do, but

> please know that the orthognathic surgery that existed when your

> Mother was younger is a far cry from what is available today. There

> are some issues to be aware of for sure, and looking though a few

> weeks of posts on this board would help you see what some of those

> are, but for the most part, OS can help prevent further problems

> caused by the current misalignment and malocclusion. Braces alone

> will not correct an underlying skeletal deformity. It is sort of

> like putting a bandaid on a severed artery. It might slow things

> down, but it doesn't correct anything. The problem still exists.

>

October 5, 2005

Hi ,

Yes that does make it more clear! I am glad you are checking into

OS at this point. Where are you at in the process at this point?

Hugs,

Fran

> > Hi ,

> > I am not suggesting you do something you don't want to do, but

> > please know that the orthognathic surgery that existed when your

> > Mother was younger is a far cry from what is available today.

There

> > are some issues to be aware of for sure, and looking though a

few

> > weeks of posts on this board would help you see what some of

those

> > are, but for the most part, OS can help prevent further problems

> > caused by the current misalignment and malocclusion. Braces

alone

> > will not correct an underlying skeletal deformity. It is sort

of

> > like putting a bandaid on a severed artery. It might slow

things

> > down, but it doesn't correct anything. The problem still exists.

> >

October 6, 2005

My surgeon will be Lawrence Levin at University of Pennsylvania Hospital. He

performed a surgery on me last year that was fine and was highly

recommended.

>

>Reply-To: orthognathicsurgerysupport

>To: orthognathicsurgerysupport

>Subject: [Orthognathic Surgery Support ] Re: intro

>Date: Tue, 04 Oct 2005 19:42:28 -0000

>

>Hi ,

>I am not suggesting you do something you don't want to do, but

>please know that the orthognathic surgery that existed when your

>Mother was younger is a far cry from what is available today. There

>are some issues to be aware of for sure, and looking though a few

>weeks of posts on this board would help you see what some of those

>are, but for the most part, OS can help prevent further problems

>caused by the current misalignment and malocclusion. Braces alone

>will not correct an underlying skeletal deformity. It is sort of

>like putting a bandaid on a severed artery. It might slow things

>down, but it doesn't correct anything. The problem still exists.

>

>For many of us, the nose problem is related to the jaw problem. And

>correcting the lower and upper septum is all related to repairing

>the lower part of the face structure. I am having a lower septal

>repair performed with the jaw surgery, and will have a secondary

>surgery to repair the upper septal region and for a

>functional/cosmetic rhinoplasty. It is part of the underlying

>problem.

>

>So what I am suggesting, is that before you dismiss the surgery,

>find out some more information on where OS is now. It is a process

>and is invasive, but it has much better outcomes and less invasive

>surgeries than it did even 15 years ago. They have come a long long

>way. Maybe do some research and sit on the idea a while. And go to

>some more consults too. Hearing a similar pronouncement from

>another OD or two might give you a better balanced professional

>assessment. Or if two or more OD's say you don't need jaw surgery,

>you would have that to consider as well.

>

>It is a hard step to take - it was for me too. I wish you luck in

>looking at it with research and an objective view. You are at the

>head of your class, so I know you have a good ability to do this.

>Good luck with your research!

>Hugs,

>Fran

>

> > Hi everyone!

> >

> > I just stumbled onto orthognathic surgery yesterday...so I'm really

> > new at this.

> >

> > I had orthodontics when I was younger, but I had issues with being

>a

> > slobbering mess, in addition to having giant glasses, being the

> > smartest kid in the class, the poorest, the most shy, and a speech

> > impediment (which speech therapy more or less cured). So I wasn't

> > keen on adding to my mess.

> >

> > I went for an orthodontic consultation last year or so, and the dr

> > told me that the only way to fix my overbite was to take out

>chunks of

> > my jaw and use the invisalign pieces as well. My mom had the same

> > surgery when she was younger, which she believes led to loss of

>some

> > of her teeth due to the jaw trauma. I refused to get this surgery

> > done, and that was that.

> >

> > Now once again, I'm on the orthodontic path. I'd really like to

>get

> > my teeth and my nose fixed, but I have to figure out the timeline!

> > I'm working on finding a different orthodontist to go to for a

> > consultation; NOT going back to the one who insisted on the jaw-

>chunk

> > surgery. I'm in the Philadelphia area. Any recommendations?

> >

> > Thanks,

> >

>

April 15, 2007

Jen,

I don't really get what you're asking? Are you wondering if the diet caused the

stones, helped her pass them, or what? K drinks quite a bit of fluids normally,

doesn't she? My husband had kidney stones a couple of years ago, and they told

him that people get them from not drinking enough fluids. I don't think that's

an issue with K though, so I'm wondering where they came from. Anyway, just

wanting to clarify what you're trying to understand with the intro diet and the

kidney stones.

Meleah

intro

Why is it so important to make sure that the intro. only lasts for just 3

days? What would happen if a child went for 3 days with nothing but water & then

another 2 doing only half the intro foods? I'm not saying I want this to happen

to my child or anyone else's but, the fact is my dd was sick this last week with

kidney stones. Before she actually passed the tough one, she had stopped eating

like this. We haven't seen a regression in a long time and it wasn't your

typical regression. It was pain, crazy screaming fits,reaching down there

constantly, whining, bloody urine etc. Could something medically could've

happened to her that made her pass them? Jenn & K

April 15, 2007

Hi Jenn,

I just talked to you on the phone and found out that your daughter has

healed from this crisis and is doing well. I am so glad!

Mimi

> Why is it so important to make sure that the intro. only lasts for just 3

> days? What would happen if a child went for 3 days with nothing but water &

> then another 2 doing only half the intro foods? I'm not saying I want this

> to happen to my child or anyone else's but, the fact is my dd was sick this

> last week with kidney stones. Before she actually passed the tough one, she

> had stopped eating like this. We haven't seen a regression in a long time

> and it wasn't your typical regression. It was pain, crazy screaming

> fits,reaching down there constantly, whining, bloody urine etc. Could

> something medically could've happened to her that made her pass them? Jenn

> & K

>

August 12, 2010

Then I came across the book "HealingColitis and Crohn's" (have you all heard of the book?) that advocates a vegan diet, which made me sicker. That was the first diet I tried as well, and it also made me sicker. I see now that the logic behind it was wrong, though at the time the author had me totally convinced. Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Prednisone 10 mg 1x per day (trying to wean!!!!)

August 12, 2010

Hi ,no-energy and achiness could be die-off symptoms. It seems like people have really different die-off symptoms. Some have terrible D, some have headaches. For me it was EXTREME low energy, mental fog, and terrible crankiness. It lasted about 5 days (during which, like you, my GI symptoms did improve), and then my energy returned and I have felt normal again. In fact, I think I have more energy now on this diet than I did previously, probably because I'm not eating sugar or grains.

As many folks on this list will tell you, this is a gradual healing process, and there's lots of up and down at the beginning (and even later, so I hear--I'm still relatively new to this!). Try to stick with it, and do rely on this list--everyone is incredibly supportive!

Best wishes,Misha

Hi everyone.I am new to the group, and I have had UC since 2006ish. I have known I was gluten intolerant since about 2000, and obviously I am intolerant to a host of other foods as well.

I have struggled ever since. First, I was on meds from the doctor, but then began doing my own research and became terrifiedabout what I heard about the drugs I was taking so I quit (prednasone and asacol). I then went to see a " holistic " doctor who gave me some new drug that helped for a while. Then I came across the book " Healing

Colitis and Crohn's " (have you all heard of the book?) that advocates a vegan diet, which made me sicker. And then I ate according to " Eat Right for your Blood Type " which helped tremendously. I now go by that book and have been on SCD seriously for about two weeks. My bleeding and diarrhea have stopped, but I have no energy, and I am achy. (When I ate icecream

last month, it triggered all kinds of systemic problems which I have struggled with in the past which I had no idea what the cause was--iritis, sciatica, depression, etc. I was soooo sick for an entire week,

and then I began doing more research and became serious about this diet. So here I am.I lost a relationship because of how sick I was all the time for the last year. But I am on to greener pastures.

It has been completely debilitating. I sit here now feeling better than I have in months even though I am extremely low energy.I am going to the gastroenerologist today, and I am nervous. I do not want to go on any meds, but I feel that I need to be in the care of a doctor to test my hemoglobin and

to administer the yearly(???) colonoscopy. (ick). Is there anything else I should ask for? Oh, and isn't is strange how people look at you like you are a leper when you say you have food allergies? I think most people think we make it up.

I never say I have UC but instead food allergies to not call so much attention to it. But people definitely aren't interested.Thanks.

August 12, 2010

Exactly. While I would love to be a vegan, this book needs to be taken off the bookshelves.I could have saved a lot of time and money.Then I came across the book "HealingColitis and Crohn's" (have you all heard of the book?) that advocates a vegan diet, which made me sicker. That was the first diet I tried as well, and it also made me sicker. I see now that the logic behind it was wrong, though at the time the author had me totally convinced.Cheers!Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Prednisone 10 mg 1x per day (trying to wean!!!!)

August 12, 2010

Thank you so much.I can't tell you how nice it is to talk to people who understand.I do want to say that I tried to add fruit and I became bloated.Maybe down the road.Hi ,no-energy and achiness could be die-off symptoms. It seems like people have really different die-off symptoms. Some have terrible D, some have headaches. For me it was EXTREME low energy, mental fog, and terrible crankiness. It lasted about 5 days (during which, like you, my GI symptoms did improve), and then my energy returned and I have felt normal again. In fact, I think I have more energy now on this diet than I did previously, probably because I'm not eating sugar or grains.As many folks on this list will tell you, this is a gradual healing process, and there's lots of up and down at the beginning (and even later, so I hear--I'm still relatively new to this!). Try to stick with it, and do rely on this list--everyone is incredibly supportive!Best wishes,MishaOn Thu, Aug 12, 2010 at 9:39 AM, <ginkgotree12 (AT) gmail (DOT) com> wrote: Hi everyone.I am new to the group, and I have had UC since 2006ish. I have known I was gluten intolerant since about 2000, and obviously I am intolerant to a host of other foods as well.I have struggled ever since. First, I was on meds from the doctor, but then began doing my own research and became terrifiedabout what I heard about the drugs I was taking so I quit (prednasone and asacol). I then went to see a "holistic" doctor who gave me some new drug that helped for a while. Then I came across the book "HealingColitis and Crohn's" (have you all heard of the book?) that advocates a vegan diet, which made me sicker. And then I ate according to "Eat Right for your Blood Type" which helped tremendously. I now go by that book and have been on SCD seriously for about two weeks. My bleeding and diarrhea have stopped, but I have no energy, and I am achy. (When I ate icecreamlast month, it triggered all kinds of systemic problems which I have struggled with in the past which I had no idea what the cause was--iritis, sciatica, depression, etc. I was soooo sick for an entire week,and then I began doing more research and became serious about this diet. So here I am.I lost a relationship because of how sick I was all the time for the last year. But I am on to greener pastures. It has been completely debilitating. I sit here now feeling better than I have in months even though I am extremely low energy.I am going to the gastroenerologist today, and I am nervous. I do not want to go on any meds, but I feel that I need to be in the care of a doctor to test my hemoglobin andto administer the yearly(???) colonoscopy. (ick). Is there anything else I should ask for? Oh, and isn't is strange how people look at you like you are a leper when you say you have food allergies? I think most people think we make it up.I never say I have UC but instead food allergies to not call so much attention to it. But people definitely aren't interested.Thanks.

August 12, 2010

Also, I feel completely unmotivated, which is affecting my work.I really hope I get my mojo back.I don't feel like doing anything today even though my BM's are normal.This is making me drink a cup of coffee every morning which I think is making it worse.Hi ,no-energy and achiness could be die-off symptoms. It seems like people have really different die-off symptoms. Some have terrible D, some have headaches. For me it was EXTREME low energy, mental fog, and terrible crankiness. It lasted about 5 days (during which, like you, my GI symptoms did improve), and then my energy returned and I have felt normal again. In fact, I think I have more energy now on this diet than I did previously, probably because I'm not eating sugar or grains.As many folks on this list will tell you, this is a gradual healing process, and there's lots of up and down at the beginning (and even later, so I hear--I'm still relatively new to this!). Try to stick with it, and do rely on this list--everyone is incredibly supportive!Best wishes,MishaOn Thu, Aug 12, 2010 at 9:39 AM, <ginkgotree12 (AT) gmail (DOT) com> wrote: Hi everyone.I am new to the group, and I have had UC since 2006ish. I have known I was gluten intolerant since about 2000, and obviously I am intolerant to a host of other foods as well.I have struggled ever since. First, I was on meds from the doctor, but then began doing my own research and became terrifiedabout what I heard about the drugs I was taking so I quit (prednasone and asacol). I then went to see a "holistic" doctor who gave me some new drug that helped for a while. Then I came across the book "HealingColitis and Crohn's" (have you all heard of the book?) that advocates a vegan diet, which made me sicker. And then I ate according to "Eat Right for your Blood Type" which helped tremendously. I now go by that book and have been on SCD seriously for about two weeks. My bleeding and diarrhea have stopped, but I have no energy, and I am achy. (When I ate icecreamlast month, it triggered all kinds of systemic problems which I have struggled with in the past which I had no idea what the cause was--iritis, sciatica, depression, etc. I was soooo sick for an entire week,and then I began doing more research and became serious about this diet. So here I am.I lost a relationship because of how sick I was all the time for the last year. But I am on to greener pastures. It has been completely debilitating. I sit here now feeling better than I have in months even though I am extremely low energy.I am going to the gastroenerologist today, and I am nervous. I do not want to go on any meds, but I feel that I need to be in the care of a doctor to test my hemoglobin andto administer the yearly(???) colonoscopy. (ick). Is there anything else I should ask for? Oh, and isn't is strange how people look at you like you are a leper when you say you have food allergies? I think most people think we make it up.I never say I have UC but instead food allergies to not call so much attention to it. But people definitely aren't interested.Thanks.

August 12, 2010

The moderators and more seasoned folks can probably answer this better, but I believe " die-off " means that the bad bugs that are making you sick are now getting starved out and basically throw a big tantrum which makes you feel sick in various ways. Also, there is this whole gut-brain connection (Elaine talks about it in BTVC) which accounts for why die-off is sometimes mental fog, lethargy, lack of motivation, etc.

The first weeks on the diet are definitely the hardest! In addition to my fatigue (and I was taking care of a toddler and infant nearly full time) I felt like I was cooking *constantly*. Now I've developed more of a rhythm for making stuff, like on Sundays I throw 4 chicken legs, some carrots and celery and water and salt in my slow cooker and make chicken soup, so I have enough for a week's worth of lunches. It only takes me 20 minutes now to get my yogurt ready for the oven, so I can do that after the kids are in bed (as long as I remember to get milk and have starter on hand!). I hard-boil a couple of eggs while I'm making breakfast so I can have them as a snack during the day (I could also do this more efficiently by boiling a whole bunch at once, but one thing at a time). Gelatin is easy to make and can be done in a few minutes while making other stuff.

Hang in there! Reading about people's long-term success on this diet was a big motivator for me, too. I'm about 7 weeks into the diet now and it already feels much easier than it did in the first few weeks.

Take care,misha

Also, I feel completely unmotivated, which is affecting my work.I really hope I get my mojo back.I don't feel like doing anything today even though my BM's are normal.This is making me drink a cup of coffee every morning which I think is making it worse.

Hi ,no-energy and achiness could be die-off symptoms. It seems like people have really different die-off symptoms. Some have terrible D, some have headaches. For me it was EXTREME low energy, mental fog, and terrible crankiness. It lasted about 5 days (during which, like you, my GI symptoms did improve), and then my energy returned and I have felt normal again. In fact, I think I have more energy now on this diet than I did previously, probably because I'm not eating sugar or grains.

As many folks on this list will tell you, this is a gradual healing process, and there's lots of up and down at the beginning (and even later, so I hear--I'm still relatively new to this!). Try to stick with it, and do rely on this list--everyone is incredibly supportive!

Best wishes,MishaOn Thu, Aug 12, 2010 at 9:39 AM, wrote: