Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 At 01:24 PM 6/15/2010, you wrote: Since I'm having some symptoms come back--I thought of doing the twice per day or upping the doseage from 1.5mg at night. I started March 11, 2010. Now I'm thinking of stopping completely. Well, I'm not sure what is meant by " an immuno. " I do know that the discussion of twice daily dosing is really wacky and confusing, and I don't think some of the people have any concept of what they're talking about. I think that I would try moving to 3.0, or maybe even 2.0 before I'd go to twice daily dosing. LDN doesn't work the way other gut drugs do. The standard dose is 4.5 mg, but some people are too sensitive for that. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 Debbie--could you please clarify what you mean by 'this is an immuno instead of modulator'? What do you mean by immuno? Thanks, Terry > > They recently posted on the LDN group that one of the doctors (whoever > recommends dosing) has declared this an immuno instead of modulator. > > Since I'm having some symptoms come back--I thought of doing the twice per > day or upping the doseage from 1.5mg at night. I started March 11, 2010. > Now I'm thinking of stopping completely. > > Any thoughts? > > Debbie 41 cd > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2010 Report Share Posted June 16, 2010 I am going to try to guess at this one, not seeing any other information. Having an autoimmune condition is like having the immune system running without a " thermostat " , like an air conditioner that is always on no matter what the temperature is. Immune suppressors turn the air conditioner off all the time. Perhaps what this is trying to say is that LDN turns the air conditioner on for the 4-6 hours it is in your system and then stimulates another chemical to turn the air conditioner off so it can reset itself. This is the concept of homeostasis- a constant " temperature " maintained by an " air conditioner thermostat " that turns on when needed and then turns off when not needed. We all need our immune systems to work when needed, but they also need to turn off at the right time. Maybe LDN is doing this? I would be interested in more information. PJ > >Sorry to go OT Marilyn ;-). > > Well, LDN does tie in with SCD. And since many of > us have recommended LDN, I don't want anyone > getting incorrect information on the subject from this list. > > > > — Marilyn > New Orleans, Louisiana, USA > Undiagnosed IBS since 1976, SCD since 2001 > Darn Good SCD Cook > No Human Children > Shadow & Sunny Longhair Dachshund > Babette the Foundling Beagle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2010 Report Share Posted June 16, 2010 I don't understand all the technical stuff but I think this is pretty much what it does. I've been on LDN for 8 months now, and it has definitely, and almost immediately, seriously decreased the number of viruses I used to get. I used to have a cold literally a good part of every week. LND (or my better working immune system) started knocking them within a few days. It won't handle a flu or a really bad cold, but it's much much better. So I think, yes, the LDN is helping my immune system operate more the way it is intended to. Having an autoimmune condition is like having the immune system running without a " thermostat " , like an air conditioner that is always on no matter what the temperature is. Immune suppressors turn the air conditioner off all the time. Perhaps what this is trying to say is that LDN turns the air conditioner on for the 4-6 hours it is in your system and then stimulates another chemical to turn the air conditioner off so it can reset itself. This is the concept of homeostasis- a constant " temperature " maintained by an " air conditioner thermostat " that turns on when needed and then turns off when not needed. We all need our immune systems to work when needed, but they also need to turn off at the right time. Maybe LDN is doing this? I would be interested in more information. PJ Quote Link to comment Share on other sites More sharing options...
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