Re: You all talk about pain, I have an option for you

[Guest guest]

Bob I'm a little late in responding, but I just wanted to say that I tried the alignment of the neck, and it sent me into the worse NS symptoms ever, maybe I didn't have the right Dr. but it scares me to even try again.  I'm doing pretty good and don't want to rock the boat. As far as the supplement, still thinking.  

Marla

 

Hello all, it has been a while since I posted to the group. For those of you who do not know me, I have suffered from Neurosarcoidosis since 1995.

I was diagnosed having Sarcoidosis in 1996 after removal of the middle right lobe in my lung and from there moving forward went through a battery of tests and finally in 1998 was diagnosed with Neurosarcoidosis.

It was not until 2005 that the Neurosarcoidosis took its toll and I was unable to control the symptoms, and remain cognitive for any period of time. I was hospitalize and in quarantine for a week with infusions of 120 mg of prednisone to attempt to control the process.

Needless to say during this 16 year process my body went through all kinds of contortions, muscle, joint stiffness and pain, massive headaches, loss of cognitive thinking and the like. Finally in October of 2005 SSDI awarded me disability, but needed to fight my company through all of 2005 to receive disability from them.

As you are all aware of if they can't see it, you don't have it. Well finally through many spinal taps, the evidence of my Neurosarcoidosis shows up in my protein count and I was awarded long term disability.

During the following years, I lived with the pain and settled in on my regiment of 20 mg of prednisone daily and 24 Ibuprofen pills a day.

Well a little over a year ago; I was approach by a friend about trying a new supplement that is a high potent antioxidant, Nopalea. It is derived from the nopal cactus in Northern Mexico and Southern Arizona. Along with this I was introduced to another supplement by the name of Adaptogen 10 plus. Both of these supplements are provided by a nutraceutical company in sdale Arizona, Trivita. With the use of these two products my pain is all but gone.

These products were formulated to reduce and in many cases eliminate inflammation in the body. Because of our autoimmune disorder our bodies are plagued with vast quantities of chronic inflammation. In fact our immune system is completely out of control, causing our bodies to be inflamed and in constant pain as it is attempting to relieve our Neurosarcoidosis condition.

Because of my inflamed condition; the ability for these supplements to take control and to alleviate my chronic inflammation condition, required me to consume 5 ounces of these products daily for over a month before the supplements started to overtake the inflammation, allowing my body to go back to a normal state.

In February of 2010 I was told about another treatment. That might be able to help out my overall health situation, called Upper Cervical ChiropracTIC. This deals specifically with the C1 and C2 vertebra in your upper neck. These two vertebra are not connected to the rest of the spine, but are connected by ligaments and muscle.

About 100 years ago, it was discovered that this is where the brain stem enters the body and allows your nervous system to communicate with all of your body parts. There are literally millions of nerves that leave the brain stem, traversing throughout the body providing the nutrients, blood flow, and stimuli needed for the body to function and repair itself.

What was discovered is that the C1 and C2 vertebra can become misaligned due to physical or emotional trauma, stress, or through inflammatory conditions taking place in the body. If the C1 and C2 become out of alignment, then the brain stem nervous system becomes impinged (pinched) and the signals going throughout your body become interrupted and the normal healing and repair process is inhibited and sometimes completely cut off.

Doing further investigation on this matter, I decided to see an Upper Cervical ChiropracTIC specialist in South Carolina. These doctors specialize in properly aligning the C1 and C2 vertebra so that any impingements are alleviated. I have been on the treatment for six weeks now and it has done remarkable things for me. My headaches are gone. Since about two weeks into the treatment my head aches have disappeared. My body is getting stronger and I am losing weight even though I am still on 19 mg of prednisone daily. Next week I will be reducing my prednisone intake to 18 mg daily and will tail off 1 mg each week until I no longer need to take the prednisone.

Upper Cervical ChiropracTIC Specialist do not believe in constant adjustments. What they believe in is to get the C1 and C2 in alignment, and then monitor your brain stem for impingements. They monitor this through the use of a high tech scanner using heat as a measurement of how well the nerves in your spinal column are performing. Heat means that the blood flow is working normally and properly. Cold spots or lack of heat means that there are impingements and that the flow of nutrients and data transfer throughout the nervous system is being impinged and is preventing the nervous system from working properly.

During the first 3 weeks, I was adjusted 5 times. Since then, no adjustments have been necessary. As I mentioned, my headaches are gone, I am getting stronger every day, and my recovery time is days not weeks.

What I mean by recovery time is this, whenever I use to bend over, to pick weeds, vacuum, or due minor chores, my body would be in pain for days if not weeks. Since using the supplements and going through the Upper Cervical ChiropracTIC therapy, my recovery time is sometime hours and not more than a couple of days.

I write this, because I do believe that there is hope for us. I have had all but written off my ability to have some level of a normal life. I now believe that I too can participate once again with the living. I am now doing things that I have not been able to do for years.

So in conclusion, I would recommend that you start a supplement regiment using the Nopalea and the Adaptogen 10 Plus from Trivita. I also would recommend that you find an Upper Cervical ChiropracTIC doctor as close to you as possible to find out if you have any impingements at the C1 and C2 vertebra.

It was amazing; I met people from all walks of life at the clinic. We all had one thing in common and that was we had no hope, as the medical profession had told each and every one of us that we were stuck with our fate and there was nothing that modern medical science could do for us.

On the other hand the Upper Cervical ChiropracTIC clinic said this. The body was made to heal itself. If given the proper nutrients and nervous system function, it can and it will heal itself. As Upper Cervical ChiropracTIC doctors, it is our mission to align your nervous system so that it can operate at the optimum peak performance that God intended it to do.

What we do is align your C1 and C2 vertebra, which provides your body the ability to optimally heal and take care of itself. Once you are properly aligned, you are then monitored to make sure that you are remaining in alignment. Our goal is not to readjust unless we have valid evidence that your nerves are impinged and an adjustment is needed to free up this impingement. The ultimate goal is that your body would be strong enough to realign itself by using the muscles and ligaments in your neck to self align.

Knowing all of this now, I am on the road to a better quality of life. Will I become healed from my Neurosarcoidosis, I do not know. However, I do know this, my body is responding very favorably and I am feeling better than I have in 16 years.

I recommend that you investigate the information that I am providing you. If you ignore what I am telling you, I will be saddened.

The question I will ask you is what I had to ask myself. What if all of this works and I can once again live a normal life. Is it worth the effort to find out; I decided it was, and now I am reaping the rewards of my efforts.

As becoming ill with Neurosarcoidosis was a journey, getting back to wellness is also a journey and will not happen overnight. I hope that all of you will consider this. It has been over a year for me to reach the level that I am at. This has not been an instant recovery; it is a day by day process. Health comes by practicing healthy habits daily, one day at a time.

I personally believe in a higher being. I believe in God and Jesus as my Lord and savior. I know that not all of you have the same believe system as I do and that is ok, however I tell you of my faith as it was this faith that allowed me to move forward. This belief gives me the strength to trust that God wants a better life for me and that He wants me to be healed.

In the bible in the book of in chapter 10 verse 10 Jesus said; the thief comes only to steal and kill and destroy. I come that they may have life and have it abundantly. I choose to believe this so I moved forward to look for ways to enjoy the abundant life.

I hope that this post brings encouragement to all of you. May God bless all of you and give you the abundant life as he is giving me.